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Eating Disorders and Autism Collaborative

@edaceatingautism.bsky.social

A research network bridging the gap between autism and eating disorders research, driven by Autistic individuals with lived experience

565 Followers  |  224 Following  |  45 Posts  |  Joined: 15.11.2024  |  2.2522

Latest posts by edaceatingautism.bsky.social on Bluesky

And we are very glad you agreed to doing this thing! It is fab, thanks you so much for bringing all your loved experience and expertise! πŸ‘πŸ‘πŸ‘

11.09.2025 18:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Table Talk Episode 7 : Autistic Male Experiences of Eating Disorders
YouTube video by EDAC Table Talk Episode 7 : Autistic Male Experiences of Eating Disorders

www.youtube.com/watch?v=ee5q... - I did a thing

11.09.2025 11:46 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 1    πŸ“Œ 1

Myself and @drhelensharpe.bsky.social have combined 2 0.4WTE postdocs to make 0.8 for 1 person or two 0.4 posts thanks to @medresfdn.bsky.social funding. Will be working across developing resources for food insecurity in EDs and adaptations to FT-AN for autistic young people at Edinburgh uni.

20.08.2025 15:54 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Medical Research Foundation | Transforming eating disorder care…

[2/2] A huge congratulations to:

🟩 @fionaduffy.bsky.social from The University of Edinburgh
🟩 @nicolabyrom.bsky.social from King's College London
🟩 @drhelensharpe.bsky.social from the University of Edinburgh
🟩 @dashanicholls.bsky.social from Imperial College London

πŸ‘‰ Read more: shorturl.at/GbQQk

31.07.2025 11:10 β€” πŸ‘ 7    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

Meet the recipients of our new Eating Disorders Research Changing Policy and Practice Awards! ✨

These exceptional researchers are working to share their findings with healthcare professionals & policymakers, to improve support for those affected by life-threatening eating disorders. [1/2]

31.07.2025 11:08 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk

Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk

We are recruiting Autistic adults (formal diagnosis or self identified), over 16years and fluent in English, who have experienced CBT-E for anorexia, bulimia or binge eating disorder in the past 3 years for a survey and an optional follow up interviews. edinburgh.eu.qualtrics.com/jfe/form/SV_...

16.05.2025 20:33 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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πŸ” Researchers from the Eating Disorders and Autism Collaborative (#EDAC) have used an innovative 'photo voice' technique to empower Autistic people with eating disorders to shape the direction of future research. #MedSky

πŸ“„ read paper: lnkd.in/dAWSUVyT
πŸ–ΌοΈ view virtual exhibition: lnkd.in/dnBHnAh5

10.07.2025 13:11 β€” πŸ‘ 8    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

πŸ“£ We’ve now opened our second phase of recruitment and are inviting cisgender adults with a current or past eating disorder to share their experiences too.

Please follow the link to find out more: tinyurl.com/LEADINGStudy1

27.06.2025 12:54 β€” πŸ‘ 3    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
Poster has the title: Clinician perspectives on the implementation of the PEACE framework.
We want to learn more about experienced or perceived barriers and enablers towards implementing changes to eating disorder (ED) treatment for Autistic people with an eating disorder. If you are a healthcare professional working in an ED service that has implemented/is seeking to implement a PEACE framework, take part in our study! The study will involve a short survey collecting demographic information (5 minutes) an online interview that will take between 45 and 60 minutes. Please use the following link: https://edinburgh.eu.qualtrics.com/jfe/form/SV_0dEMYg36Natk0dw
If you have any questions, please email emy.nimbley@ed.ac.uk

Poster has the title: Clinician perspectives on the implementation of the PEACE framework. We want to learn more about experienced or perceived barriers and enablers towards implementing changes to eating disorder (ED) treatment for Autistic people with an eating disorder. If you are a healthcare professional working in an ED service that has implemented/is seeking to implement a PEACE framework, take part in our study! The study will involve a short survey collecting demographic information (5 minutes) an online interview that will take between 45 and 60 minutes. Please use the following link: https://edinburgh.eu.qualtrics.com/jfe/form/SV_0dEMYg36Natk0dw If you have any questions, please email emy.nimbley@ed.ac.uk

Recruitment call for clinicians working in UK ED services (NHS or private practice) that are looking to implement the PEACE framework πŸ“£
To find out more and to take part in the study, please see the poster below or click the following link: edinburgh.eu.qualtrics.com/jfe/form/SV_...

02.06.2025 15:41 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Very privileged to have received "highly commended" at Edinburgh Uni's Research Impact Prize event today for team culture! So great for our hardworking team and collaborators to be acknowledged .... not all of our team could make it along so this is for them!

29.05.2025 18:01 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Autistic women or Non-binary folks (18+) needed πŸ“’

With support from @edaceatingautism.bsky.social, we would like to hear your valuable expertise to review an intervention that aims to prevent body image concerns and disordered eating. For more info, please email Hannah at h.k.lewis@qmul.ac.uk

28.05.2025 11:03 β€” πŸ‘ 1    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0
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Perinatal Survey | NAIT NAIT Perinatal Survey launched March 2025 to ask about experiences of neurodivergent people in Scotland during pregnancy, birth and the post-natal period.

We are looking for #autistic & #ADHD people in Scotland🏴󠁧󠁒󠁳󠁣󠁴󠁿 to fill in a survey about experiences (in the last 10 years) of pregnancy, birth and the 1st year of being a parent.
The survey is hereπŸ‘‡
nait.scot/news-and-eve...

@nctcharity.bsky.social @semascot.bsky.social @scottishautism.bsky.social

27.05.2025 16:08 β€” πŸ‘ 12    πŸ” 12    πŸ’¬ 1    πŸ“Œ 2
Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk

Flyer on a white background with two speech bubbles top right of picture and QR code bottom right. Title: are you an autistic adult with experience of CBT-E for eating disorders? Main text: we want to learn more about experiences of enhanced contrive behavioural therapy for eating disorders (CBT-E) for Autistic people. We are looking for Autistic people over 16 with experience of CBT-E for anorexia, bulimia or binge eating. Taking part involves providing information about you, your experience of CBT-E and maybe a follow up interview to talk more about your experience. If you would be happy to take part please scan the QR code. If you have any questions please email Emy.nimbley@ed.ac.uk

We are recruiting Autistic adults (formal diagnosis or self identified), over 16years and fluent in English, who have experienced CBT-E for anorexia, bulimia or binge eating disorder in the past 3 years for a survey and an optional follow up interviews. edinburgh.eu.qualtrics.com/jfe/form/SV_...

16.05.2025 20:33 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Thanks so much for coming up to see us! Gorgeous photos... yeah weather in Edinburgh is totally always like this πŸ€­πŸ€”

11.05.2025 06:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Spent a great few days in Edinburgh this week with the @edaceatingautism.bsky.social team and others funded under the @ukri.org collaborations in eating disorders research call.

Fab opportunity to chat all things peer research and hear updates from ECRs and teams working in the field.

11.05.2025 06:19 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Day two in Edinburgh; looking forward to hearing about the incredible research that is being done across the Eating Disorder Research Network. Any conference with @edaceatingautism.bsky.social branded fidget spinners gets my vote!

09.05.2025 08:16 β€” πŸ‘ 9    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Oh no! Yes that's the right one!

09.05.2025 09:18 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Many thanks to all or the participants who took part producing so many impactful images! If you would like to see more of these we have an online gallery on our EDAC website to host them! edacresearch.co.uk/virtual-exhibi…

03.05.2025 19:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Research priorities included more research on the impact of early experiences; the function of the eating disorder in autistic populations, barriers and facilitators to ED recovery, understanding and accommodating for complexity and changing research culture

03.05.2025 19:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

New research paper using photovoice to explore research priorities with autistic individuals with eating disorders onlinelibrary.wiley.com/doi/full/10....

03.05.2025 19:44 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
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Our @edaceatingautism.bsky.social postdoc @emynimbley.bsky.social has made this amazing clip of a recent ESRC Impact Acceleration event supporting lived experience, clinicians and researchers to come together to share understanding of autism and eating disorders, narrated by one of our collaborators

30.04.2025 18:21 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

New publication which EDAC is proud to be part of supporting implementation of PEACE pathway in clinical services www.mdpi.com/2072-6643/17...

30.04.2025 15:26 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Neuroanatomical associations with autistic characteristics in those with acute anorexia nervosa and weight-restored individuals | Psychological Medicine | Cambridge Core Neuroanatomical associations with autistic characteristics in those with acute anorexia nervosa and weight-restored individuals - Volume 55

New EDAC publication from our postdoc Michelle Sader, we will upload a plain speaking summary of this on our website shortly πŸ‘ www.cambridge.org/core/journal...

30.04.2025 15:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Qualtrics Survey | Qualtrics Experience Management The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

Luka is recruiting for some research on this topic. You must be Autistic, trans/nonbinary, have past/present experience of disordered eating, be over 16 and be based in the UK to participate. If you are interested in participating there is more info here: edinburgh.eu.qualtrics.com/jfe/form/SV_...

04.04.2025 07:08 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

But a trans Autistic person with an ED might require care from each of these services, preferably all at once. But each one has a waiting list. Each one has gatekeepers, and each one has barriers."

04.04.2025 07:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

"Healthcare services are often siloed, you can get autism support from an autism service, you can get trans support from a trans service and ED support from ED service....

04.04.2025 07:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Beige graphic with words TABLE TALK repeated round border. Top box includes a hand holding a sign with pronouns they/them and text "luka will be talking to us about autistic trans and non binary peoples experience of eating disorders. Our discussion will cover TNB eating disorder development, treatment, recovery, and research priorities!" Bottom graphic text stating "TOPIC: trans and non-binary experiences with table talk logo below which is two heads with speech bubbles over a table labelled table talk with text under table stating "by the eating disorders and autism collaborative."

Beige graphic with words TABLE TALK repeated round border. Top box includes a hand holding a sign with pronouns they/them and text "luka will be talking to us about autistic trans and non binary peoples experience of eating disorders. Our discussion will cover TNB eating disorder development, treatment, recovery, and research priorities!" Bottom graphic text stating "TOPIC: trans and non-binary experiences with table talk logo below which is two heads with speech bubbles over a table labelled table talk with text under table stating "by the eating disorders and autism collaborative."

New podcast dropping today on autistic trans and non binary peoples experience of eating disorders open.spotify.com/show/6tEaThW...

04.04.2025 07:08 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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In-person ECR event for eating disorder researchers in UK on 8th May, focusing on funding applications and co-production.

An optional second day networking event with 4 UKRI-funded ED research.

✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...

15.03.2025 17:47 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
Link between Eating disorders and Autism: PEACE pathway Conference | King's College London eStore We will be presenting an overview of our work, including outcomes, learning points and specially developed resources for clinicians and teams of health pro

Are you a health care professional working in #EatingDisorders?

KateTchanturia and her team’s workshop β€˜Link between Eating disorders and #Autism: PEACE pathway Conference’ will share specially developed resources to take back to your clinic.

#MedSky #AcademicSky

Register: bit.ly/3Sk2Xgl

12.02.2025 16:23 β€” πŸ‘ 13    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0
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We are delighted to present a selection of *Photovoice photographs, drawings and digital art produced by Autistic people with eating disorders on Inspace @designinf.bsky.social City Screens on Potterrow, each evening across this week.

#Photovoice #research #collaboration #data #photography

05.03.2025 17:10 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

@edaceatingautism is following 19 prominent accounts