A picture featuring the INTEGRATE-LMedC logo that reads: WP15: Policy for Cohort Access and Secondary Data Use.
🚀 WP15 Updates
✅ Defined 8 assessment dimensions for cohort access & secondary data use.
✅ Assessed governance in 3 cohorts (clinical, population, European).
✅Proposed first recommendations for harmonised data access & protection policies.
🔗 www.integratelmc.eu/news/latest-...
02.10.2025 10:30 — 👍 0 🔁 0 💬 0 📌 0
A picture that reads: "WP4: Mapping of available, Infrastructure Services for Large Medical Cohorts"
📊 WP4 highlights
🔹 Surveyed 25 organisations supporting large medical cohorts
🔹 5 service clusters mapped
🔹 Gaps: operational support, harmonisation, staff & funding
🔹 Users report fragmented use & regulatory hurdles
🔗 www.integratelmc.eu/news/wp4-the...
30.09.2025 07:30 — 👍 0 🔁 0 💬 0 📌 0
A picture displaying the INTEGRATE-LMedC logo in front of a white background
🚀 WP9 highlights
🔹 Identified sustainable IT for medical data
🔹 Built secure access procedures
🔹 Explored federated analysis
🔗 www.integratelmc.eu/news/wp9-dat...
25.09.2025 10:30 — 👍 0 🔁 0 💬 0 📌 0
A BBMRI-ERIC story for the WHO World Health Day, Healthy Beginnings, Hopeful Futures. Featuring biobank research from: Estonia(BBMRI.ee), Germany (BBMRI.de), INTEGRATE-LMedC (coordinated by BBMRI-ERIC).
🌍 On #WorldHealthDay BBMRI-ERIC highlighted, among other initiatives, the #IntegrateLMedC project's efforts to address unmet medical needs, especially for conditions like endometriosis.
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🔗 Learn more about WP3: buff.ly/08VXAPP
09.04.2025 10:12 — 👍 0 🔁 0 💬 0 📌 0
A picture displaying INTEGRATE-LMedC's WP3 deliverable 3.1: Outcomes of the Gap Analysis of Large Medical Cohorts.
📣 WP3 – Large Medical Cohorts is complete
Over 12 months, WP3 conducted a gap analysis, a Delphi study with 73 experts, and a Scoping Review, mapping cohorts for depression, Alzheimer’s, and endometriosis.
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28.03.2025 11:35 — 👍 0 🔁 0 💬 0 📌 0
The integrate-LMedC logo
🚨📣 #IntegrateLMedC 12-month update
🔬 Identifying unmet medical needs (depression, Alzheimer’s, endometriosis)
🤝 Enhancing researcher & participant engagement
📊 Expanding the FAIR medical cohorts catalogue
🔗 integratelmc.eu/news/integra...
26.03.2025 08:39 — 👍 0 🔁 0 💬 0 📌 0
The picture of the cover's of WP6 - Deliverable 6.1
📣 Progress Update from WP6
📄 In 6 months, WP6 delivered D6.1: Established Assessment Regime, outlining guidelines for evaluating large medical cohorts (LMedC) for a future research infrastructure.
🔑 Key focuses:
1️⃣ ELSI
2️⃣ FAIR Data Management
3️⃣ Data Sharing & Protection
🔗 buff.ly/4fHk84G
25.11.2024 10:18 — 👍 1 🔁 0 💬 0 📌 0
Instruct offers funded access to structural biology technology and services for researchers in member countries and organisations - utilise high-end machinery, get training, internships, and collaborations!
We are Europe's gateway to biological & biomedical imaging expertise. Visit our website: www.eurobioimaging.eu
Profile image by Olivia Harris, Cambridge University.
We accelerate knowledge of marine biodiversity to foster sustainable initiatives in research and for the blue economy
🔗 embrc.eu
A life sciences research infrastructure, bringing together #bioinformatics resources across Europe to store, analyse, share and reuse data.
An organisation that provides ecosystem research results and access to research tools to experiment with real ecosystems under conditions like pollution and climate change. Our network gives insights to help predict and mitigate environmental challenges.
The largest multi-professional cancer organisation in Europe; reducing burden and improving quality of care. Organiser of the #EuropeanCancerSummit
🌷The leading voice for #Parkinson's in Europe since 1992
🌷Supporting the 1.2m Europeans with #Parkinsons and their families
🌷Founder of #WorldParkinsonsDay
Non-profit NGO, making #dementia a European priority.
Newsletter: https://bit.ly/AE_News_signup
Conference #35AEC
We act as the united and trusted voice of European gastroenterology and are recognised as the leading authority for digestive health.
The European Clinical Research Alliance for Infectious Diseases is a not-for profit foundation that advances clinical research in infectious diseases.
The International Psycho-Oncology Society promotes multidisciplinary communication about clinical, educational and research issues related to psycho-oncology.
We define better treatments for all cancer patients to prolong survival and improve quality of life.
The voice of national and regional cancer leagues in Europe. Making a difference in cancer control since 1980. 🔗 https://www.cancer.eu/
The official Journal of the European Academy of Neurology. Covers all areas of clinical and basic research in neurology. #EurJNeurol #OpenAccess
🔬 Advancing nuclear medicine since 1985 | Largest non-profit organisation for nuclear medicine in Europe | Driving innovation, collaboration & education | Based in Vienna 🇦🇹
We promote excellence in #diabetes #care through #research, #networking and #education.
The European Association for the Study of Diabetes e.V. (EASD) is a membership-based academic non-profit organization. It was founded in 1965, headquartered in Germany
CIRSE is a non-profit making, educational, and scientific association aiming to improve patient care through the support of teaching, science, research and clinical practice in the field of cardiovascular and #interventionalradiology. www.cirse.org
The ESHG is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims.
CLS is home to a unique series of UK national cohort studies. We conduct research and produce policy evidence to improve lives.
We are based at UCL Institute of Education (IOE). We are funded by the ESRC.
https://cls.ucl.ac.uk
Wij zijn Amsterdam UMC. We reiken de hand aan Amsterdam & omstreken en aan iedereen die met ons een gezond leven wil bevorderen.
