@longcovidsupport.bsky.social
UK charity dedicated to supporting people with Long Covid • Support • Research • Advocacy • Education • www.longcovid.org https://linktr.ee/longcovidsupport 📧info@longcovid.org
March is International Long Covid Awareness Month - and the theme this year aims to highlight how Covid can affect heart health.
Experiencing symptoms and don't know where to start? Join our Facebook Support group to connect with others 🩵 🖤 💚
#LongCovidHeartbeats #LongCovidAwarenessMonth
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, “We are being left in some kind of void.” Attribution below: “Margaret O’Hara, Trustee, Long Covid Support.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “I struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: “Susannah Thompson, Former GP living with Long Covid.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, “Services that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: “Luke Akehurst, MP for North Durham.” Small line reads “BBC News | 1 March 2026” with the Long Covid Support logo at the bottom.
“We are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support
BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month.
Read: www.bbc.co.uk/news/article...
#LongCovid #LongCovidClinics
Refreshments provided | Accessible venue | Online access available
Sign up at www.eventbrite.co.uk/e/in-person-...
#LongCovid #LongCovidSupport #PeerSupport
Join us for our monthly In-Person Long Covid Support Group in Birmingham.
Free session for people with Long Covid to connect and support each other.
📅 Friday 20 March 2026
⏰️ 11am to 12pm
📍 Sense TouchBase, B29 6NA
Next session: Friday 24 April 2026
2/ By working together, we’re able to speak with a stronger, united voice on behalf of the communities we represent.
Learn more about the alliance here:
www.overlappingillnessalliance.org.uk
#LongCovid #MECFS #EDS #POTS #MCAS
Seven advocacy leaders pose together in a modern office atrium following a meeting. One woman sits in a wheelchair at the front, with six others standing behind her. The space features glass walls and hanging decorative lights.
1/ Our Chair, Nigel Rothband (centre), recently met with partners in the Overlapping Illness Alliance to move our shared advocacy work forward.
Together, we focused on how to improve recognition and strengthen support for people living with overlapping and under-recognised conditions.
Happening today at 6pm GMT
youtube.com/live/V8VWgLC...
Vitamin B12 deficiency is often overlooked, yet may contribute to symptoms in Long Covid and ME/CFS.
In this episode, Dr Binita Kane, Dr Andrew Klein and Helen Oakleigh discuss how B12 deficiency can be missed and what evidence-based treatment looks like.
🔗 www.youtube.com/watch?v=V8VW...
⭐ Episode 29: Vitamin B12 - Could it help me? ⭐
Long Covid Clinic: Fireside Chat Series
📍 YouTube live
📅 Wednesday 11 February
⏰ 18:00 GMT
🎥 This session will be recorded for those unable to attend live.
Great to see @laylamoran.bsky.social paying attention to the ongoing challenges faced by millions with #LongCovid. Let’s hope this leads to much needed action by the Health & Social Care Committee.
Thanks to @joplatt.bsky.social & @longcovidsupport.bsky.social Chair @nigelrothband.bsky.social!
Really welcome seeing Long Covid Kids, @longcovidsupport.bsky.social & @longcovidsos.bsky.social all signposted to in this new community pharmacy resource on #LongCovid from the
@cppeengland.bsky.social (CPPE).
www.cppe.ac.uk/programmes/l...
#LongCovidKids #CPPE #PatientAdvocacy #Resources
A screenshot of a website. The txt says 'Long Covid Lives' - An image of a sad person looking down, they have blond hair. there are three graphic images (cartoon) showing three images from chapters of a graphic novel. One is a group of young people with a blue background, two is a young person resting on a sofa under a blanket with an image of a calendar in the background, three shows three young people talking outside in nature. There is a logo for 'positive negative'
Long Covid Lives has been produced from research undertaken by the Covid Made Long Project at the London School of Hygiene and Tropical Medicine in partnership with @imperialcollegeldn.bsky.social , @longcovidkids.bsky.social and @longcovidsupport.bsky.social
@posnegorg.bsky.social
As we begin 2026, we wanted to pause and look back on 2025 and the work we’ve done alongside the Long Covid community. Our work spans Research, Influence and Support.
Thank you so much to everyone who supported us in 2025. We’re heading into 2026 with the same determination to drive change.
So encouraging to see in-person Long Covid support growing. If you’re nearby, the next group is on 5 February. Huge thanks to Fleur for leading.
26.01.2026 18:02 — 👍 4 🔁 3 💬 1 📌 0
All the details for the next support group here:
www.eventbrite.co.uk/e/attend-in-...
#LongCovid #LongCovidSupport
Three people wearing face masks stand smiling in front of a colourful artwork, with “Long Covid Support” badges and clothing visible.
A group of people sit around tables in a bright meeting room, listening to a speaker standing at the front during a support group session.
We had such a lovely first in-person Long Covid support group in West Cheshire 💛 Thank you so much to everyone who came along.
Next group will be on 5th February (details via link below.
The sessions are led by Fleur Roberts, a former NHS Wellbeing Coordinator - we are so grateful for Fleur!
Reminder!
Happening today at 8pm GMT.
It will be recorded if you cannot join the live session.
@binitakane.bsky.social
2/ Dr Binita Kane and Helen Oakleigh are joined by Founder and CEO of Turnto (an AI health platform), Jessica Dove to discuss the challenges of navigating the health information minefield and how AI can help to cut through the noise.
19.01.2026 16:55 — 👍 6 🔁 3 💬 0 📌 0
1/ Episode 28: Long COVID Clinic Fireside Chat Series
⭐ Navigating the health-info minefield
📅 Wed 21 Jan
⏰ 20:00 UK time
🎥 YouTube Live
🔗 youtube.com/live/W3fKUyl...
#LongCOVID #MECFS
Today we’re launching #ForThoseWhoCant, a new community fundraising campaign from Long Covid Support.
Many people living with Long Covid can’t fundraise themselves. This campaign is about making it easier for friends, families and allies to step in and show solidarity.
#ForThoseWhoCant #LongCovid
Today we’re launching #ForThoseWhoCant, our new fundraising campaign.
It’s about making fundraising more accessible, with ideas and guidance for friends, family, and loved ones who want to support our work.
Email fundraise@longcovid.org or click here for more: www.longcovid.org/get-involved...
The Long Covid groups are calling for:
1. Proper data on how Long Covid affects work and income
2. Economic and welfare policies that reflect the realities of Long Covid
3. Lived experience to be built into decision-making
Blue graphic with silhouettes of people along the top. Quoted text reads: “Many of those with Long Covid were left to bear the economic burden caused by the pandemic without support.” Long Covid Support logo at the bottom.
“Many of those with Long Covid were left to bear the economic burden caused by the pandemic without support.”
12.01.2026 16:27 — 👍 12 🔁 4 💬 1 📌 3
Blue graphic with silhouettes of people along the top. Quoted text reads: “If you don’t measure it, you can’t manage it.” Long Covid Support logo at the bottom.
“If you don’t measure it, you can’t manage it.”
12.01.2026 16:27 — 👍 4 🔁 3 💬 1 📌 0
Blue graphic with silhouettes of people along the top. Quoted text reads: “Not a single witness who has appeared before you in this module has given a credible explanation for why government decision makers failed to consider Long Covid in the economic response to the pandemic.” Long Covid Support logo at the bottom.
“Not a single witness who has appeared before you in this module has given a credible explanation for why government decision makers failed to consider Long Covid in the economic response to the pandemic.”
12.01.2026 16:27 — 👍 6 🔁 3 💬 1 📌 0
Blue graphic with silhouettes of people along the top. Quoted text reads: “The Inquiry process has exposed the unwarranted disbelief and minimisation of Long Covid by decision makers.” Long Covid Support logo at the bottom.
"The Inquiry process has exposed the unwarranted disbelief and minimisation of Long Covid by decision makers."
12.01.2026 16:26 — 👍 6 🔁 4 💬 1 📌 0
Blue graphic with silhouettes of people along the top. Quoted text reads: “The short answer is that the Treasury took no action at all.” Long Covid Support logo at the bottom.
"The short answer is the that the Treasure took no action at all"
12.01.2026 16:26 — 👍 4 🔁 2 💬 2 📌 0
Blue graphic with silhouettes of people along the top. Text reads: “COVID-19 Inquiry. Our closing submissions for Module 9: Economic response.” Long Covid Support logo at the bottom.
"The short answer is that the Treasury took no action at all."
At the UK Covid Inquiry (Module 9), the Long Covid Groups were clear: the economic impact of Long Covid was foreseeable and ignored, leaving many people without support.
Watch our closing statement: www.youtube.com/watch?si=ikR...
🧵 👇
3/ UK-based and interested in sharing your experience of Long Covid? We’d love to hear from you.
You can find a short sign-up form at the start of Matt’s story in the link above. We’ll be sharing a small number of stories, reflecting a range of experiences.
#LongCovid #CommunityStories
2/ Matt will be speaking with people from the UK and capturing their stories to share through our website and newsletter. His poetry and social research have been widely published, and you can find him on Instagram at @mattaltonpoet.
12.01.2026 16:10 — 👍 2 🔁 1 💬 1 📌 0