Tom Forbes

Another day, another ex-prem patient with nephrocalcinosis undiagnosed with “bilateral medullary sponge kidney”!!

It’s quite fascinating how this erroneous label seems to stick to patients for years after a passing mention in an ultrasound report without anyone ever looking into what it means!!

Sitting in the Diabetic Kidney Disease session at #PAS2025.
Cherry Mammen presenting on AKI in DKA. Approx 50% of DKA have AKI, and approx 28% have severe AKI. RRT is uncommon (4%) but neurocog outcomes are poorer at 3-6 months.

This week I ticked ‘Singing a social media reference during a symposium presentation at a national conference.’ Off my bucket list!
#PSANZ

Some sunset zen from my ride home yesterday. @cityofmelbourne.bsky.social #bike

On behalf of the ANZ NKC Chapter, thank you thank you thank you #PSANZ2025 🙏🙏🙏. Huge attendance and great discussion at our symposium today!!! We were just blown away by the enthusiasm and engagement from you all to improve our care and research into neonatal kidney disease.

Eveline Staub, Neonatologist and from Royal North Shore Hospital presents an interim analysis of the NEOKANZ multi-centre AKI study. #PSANZ2025

Acute kidney injury is common in NICU admitted infants, and associated with mortality and increased length of stay. AWAKEN is the study that “woke up” the field to this problem, thanks to the Neonatal Kidney Collaborative. #PSANZ2025

Next up, Prof Alison Kent speaking to acute kidney injury in the NICU, and why kidney outcomes should be included in research. #PSANZ2025

It’s time!!! The Inaugural Neonatal Nephrology Symposium kicking off to a full house at #PSANZ2025!
First up Simon Carter from RCH Melbourne discusses antenatal counselling of antenatally detected kidney disease. #NKC #ANZNKC #preservethenephrons

Very grateful for the opportunity to present our local data-led audit of #AKI at #PSANZ2025. Work made possible by the coding expertise and supervision of Emily See and the amazing resource that is the Centre for Health Analytics at the Melbourne Children’s Campus.

Smells interesting!!

Yes indeed!! Thanks Michelle!

NKC | Australian and New Zealand Chapter

Very excited to have landed in Brisbane (a little late, sorry) for #PSANZ2025 to talk all things neonatal kidney with my colleagues from the ANZ Chapter of the Neonatal Kidney Collaborative - welcoming new members (free - link below - all welcome).

#PSANZ
www.babykidney.org/chapters/aus...

🎧 In our latest episode, our panel of nephrology and oncology experts tackle:
✔️ AKI in cancer patients
✔️ The impact of novel oncology therapies
✔️ Drug dosing considerations in kidney-compromised cancer patients

Listen here: bit.ly/3DamjQ9

@silvishah.bsky.social
@gudnephron.bsky.social

Any rationale for evening dosing over morning dosing @edgarvlermamd.bsky.social?
My GP tells me it reduces CV events by blunting the AM BP surge but I think it’s anecdotal.

World Kidney Day: Case Finding for Kidney Disease in Children – From Neonates to Adolescents

This #WorldKidneyDay 's theme is "Are your kidneys OK? Detect early, protect kidney health.", In this editorial Dave Selewski and I ask the question, how can we best find and screen pediatric populations at risk of CKD?
www.sciencedirect.com/science/arti...

Is this a withdrawal symptom associated with the lack of #Animalhouse Bracket in this year’s #NephMadness Swap?

The Education Hub - Conversation with the experts Education Podcast · 123 Episodes · Updated Monthly

In this podcast, ahead of World Kidney Day 2025, I discuss why preterm birth and post-natal kidney injury can lead to increased mild kidney disease risk in adulthood. Early detection and treatment can reduce progression.

www.podbean.com/ew/pb-zr9r3-...

Officially following on behalf of the ANZ NKC chapter! So exciting!!

COL4A5 Intronic Variants at Third to Fifth Nucleotides Cause Alport Syndrome pubmed.ncbi.nlm.nih.gov/39990911/

It was a great update talk Louise. Unfortunately I came down with a bad flu on the Friday night and was devastated to miss pretty much everything thereafter. 🥲

All patients with Dent’s (and presumably Lowe’s) Disease should be screened and treated for low vitamin A. This can drop because of loss of retinol binding protein and when severe can have permanent effects on their vision. #IPNA2025

Dent disease: clinical practice recommendations ABSTRACT. Dent disease is a rare X-linked tubulopathy that is characterized by low-molecular-weight proteinuria associated with hypercalciuria, which may l

Ana Cristina Simoes E Silva presents the recently published (NDT) CPG for the management of Dent’s Disease.

academic.oup.com/ndt/advance-...

Dr Julien Hogan presents results of RCT in children with FR nephrotic syndrome treated with Rituximab +/- IVIG. Result: Addition of IVIG showed no benefit on relapse free survival. #IPNA2025

Registry information: #IPNA2025

Patients with cystinuria are at risk of CKD and HTN.
Propensity to form stones and intensive treatment leads to impairment of quality of life.
#IPNA2025

Patients can monitor with urine dipsticks (pH and SG) at home.

Use of penicillamine or tiopronin can be limited by side effects (and cost for tiopronin). #IPNA2025

Diagnosis by stone analysis, urine amino acids (COLA), crystalluria (large, stacked hexagonal crystals), or crystals)
Treatment: hyper hydration, low salt and methionine (normal protein intake in children, no more than 1g/kg/day for adults). #IPNA2025

May present antenatally with echogenic bowel, however Fuchs et al recently described only 67% have cystiruria syndromes. #IPNA2025

Aurelia Bertholet Thomas speaking now on cystinuria.
Type A SLC3A1 is more common (and sometimes associated with a contiguous gene deletion including PREL1), and SLC7A9 less common. #IPNA2025