Erin Whittingham's Avatar

Erin Whittingham

@erinuk.bsky.social

Co-production | NHS | Lived experience | Shared decision making | Mental health | Long term conditions | πŸŽ§πŸ“š I work for NICE, volunteer @shh-uk.bsky.social & relax with πŸ“š 🎧 πŸ“Ί in #Lancashire Reposts are not necessarily endorsements. Views are my own.

156 Followers  |  378 Following  |  48 Posts  |  Joined: 20.01.2025  |  2.1447

Latest posts by erinuk.bsky.social on Bluesky


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Two days to go. If you’re a healthcare worker living with Long Covid, this is your reminder. Join our online peer support group:

Tuesday 24 February 11:00–12:00 (UK time)

A safe space to connect with others who understand the impact of Long Covid.

πŸ”— teams.microsoft.com/...

23.02.2026 11:10 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🚨 New resources
πŸ“Š Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
πŸ“£ Safe Air letter to the UK Health Security Agency
πŸ”— shh-uk.org/sickness-...
πŸ”— shh-uk.org/indoor-ai...
πŸ”— shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth

15.02.2026 10:00 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 1
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Last months audiobooks πŸŽ§πŸ“š

Sunrise on the Reaping 5⭐ I hope it's not the last in the series.

13.09.2025 16:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Amazing opportunity for someone with lived experience of mental illness
πŸ‘‡πŸ‘‡πŸ‘‡

29.08.2025 15:39 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🧠 NEW RESEARCH SUMMARY 🧠

The Benefits & Limitations of Self-Tracking Long Covid
πŸ”— shh-uk.org/?p=34441

#LongCovidResearch #SelfTracking #PatientLedResearch #SHHUK #HealthJustice #PostViral

25.08.2025 11:01 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
Thanks to millions of people speaking up about their care, we've been able to champion big healthcare changes.

Thanks to millions of people speaking up about their care, we've been able to champion big healthcare changes.

Think there's no power in your feedback? Don't believe it can make a difference to health and social care services? We want to show you that isn't the case. Check out some recent examples of how you made a difference - www.healthwatch.co.uk/our-impact

15.08.2025 08:22 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
infographic on the PLRF with an address to register at bit.ly/PLRF-2025

infographic on the PLRF with an address to register at bit.ly/PLRF-2025

list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more

list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more

list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more

list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!

Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.

πŸ—“οΈ Register: us02web.zoom.us/webinar/regi...

#LongCOVID

24.06.2025 21:43 β€” πŸ‘ 88    πŸ” 54    πŸ’¬ 2    πŸ“Œ 13
"This is clearly a sad day for our staff, volunteers and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care. 

Over the past 12 years, we've helped millions of people raise concerns, access vital advice and influence real change in the services they rely on. 

By championing the voices of local communities, we've helped drive countless improvements across the NHS and social care - successes I understand the government recognises. 

Our focus is now on ensuring a smooth transition of our function to the NHS and government, so that the voices and patients and the public continue to be heard."

Quote from Louise Ansari, Chief Exceutive at Healthwatch England.

"This is clearly a sad day for our staff, volunteers and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care. Over the past 12 years, we've helped millions of people raise concerns, access vital advice and influence real change in the services they rely on. By championing the voices of local communities, we've helped drive countless improvements across the NHS and social care - successes I understand the government recognises. Our focus is now on ensuring a smooth transition of our function to the NHS and government, so that the voices and patients and the public continue to be heard." Quote from Louise Ansari, Chief Exceutive at Healthwatch England.

Our Chief Executive Louise Ansari responds to news thatΒ #HealthwatchΒ is to be closed down.

"This is clearly a sad day for our staff, volunteers, and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care."

28.06.2025 09:37 β€” πŸ‘ 18    πŸ” 13    πŸ’¬ 0    πŸ“Œ 7
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πŸ›‘ Help us contact every MP in the UK πŸ›‘

πŸ“„ Visit πŸ‘‰ shh-uk.org/get-in-to...
πŸ“¬ Use our simple tool to contact your MP and make your voice heard.

#safeair4all #longcovid #workplacesafety #infectioncontrol #PublicHealth #Healthcareleadership

08.06.2025 10:00 β€” πŸ‘ 7    πŸ” 5    πŸ’¬ 2    πŸ“Œ 0
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Get In Touch With Your MP - #SafeAir4All All healthcare workers and every patient in the UK has the right to feel safe and protected in any healthcare setting

#SafeAir4All
In collaboration with @gmhazardscentre.bsky.social we've produced a fact sheet for MPs. #SafeAir4All campaign
Can you contact your MP about the need for safe air in healthcare settings?

Find out more here: shh-uk.org/get-in-touch...

04.06.2025 18:15 β€” πŸ‘ 13    πŸ” 11    πŸ’¬ 0    πŸ“Œ 0

This is gorgeous 😍 The children were so respectful to Mum duck & her ducklings πŸ¦†

02.06.2025 20:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A month of trusted detectives & another great story by Michael Morpurgo.
#booksky πŸ“šπŸŽ§

02.06.2025 18:41 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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β¬‡οΈβ¬‡οΈπŸ§΅

31.05.2025 10:58 β€” πŸ‘ 5    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
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Covid-19 is airborne.

Poor indoor air quality in healthcare settings increases infection risks for staff, patients & visitors.

We’re calling for urgent action. Read our second position statement:
πŸ”— shh-uk.org/shh-uk-posit...

#SafeAir4All #ProtectHCWs #LongCovid

21.05.2025 12:26 β€” πŸ‘ 67    πŸ” 37    πŸ’¬ 5    πŸ“Œ 0
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Image of library book display labeled:

β€œIt's A Warning Not An Instruction Manual.”

Books on display:
β€’ On Tyranny
β€’ Twenty Lessons From
The 21st Century
β€’ 1984
β€’ A Handmaids Tale
β€’ Diary of Anne Frank
β€’ Parable of The Sower
β€’ Fahrenheit 451
β€’ Animal Farm
β€’ Brave New World

~TAiLS of a Bookworm

13.05.2025 18:35 β€” πŸ‘ 26299    πŸ” 6097    πŸ’¬ 417    πŸ“Œ 235
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We're looking to speak with people in the UK who have experienced psychosis and worry about relapse. Could you help?

Reposts/shares hugely appreciated! πŸ™

#PsychSciSky #AcademicSky #psychsky #Psychosis #MentalHealth #MentalHealthResearch #schizophrenia

13.05.2025 11:23 β€” πŸ‘ 10    πŸ” 12    πŸ’¬ 0    πŸ“Œ 0

I really enjoyed this audiobook too πŸ’™πŸŽ§

12.05.2025 20:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.

At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.

Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government.

@joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social

Read the joint statement: meassociation.org.uk/nsts

#WorldMEDay #MEAwarenessWeek2025

12.05.2025 08:46 β€” πŸ‘ 9    πŸ” 9    πŸ’¬ 0    πŸ“Œ 4
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πŸƒβ€β™€οΈ Every step you take helps protect healthcare workers with Long Covid. Join #TeamSHHUK in the #RunForCharities and fundraise for a cause that matters πŸ‘‰ shh-uk.org/run-for-c...
#LongCovid #NHS #CharityRun

11.05.2025 19:31 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 1
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Have you seen our Patient Partnership Week events for this year? Take a look and book on to our free webinars, happening 30th June to 4th July. #PPW2025 buff.ly/EKU2vAg

11.05.2025 15:32 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Instead of slashing welfare and disability benefits β€” forcing more disabled people and children into poverty β€” the government could introduce a 2% tax on assets over Β£10 million.

It would raise Β£24 billion β€” five times the savings from these cuts.

This is austerity 2.0

18.03.2025 15:27 β€” πŸ‘ 1438    πŸ” 562    πŸ’¬ 51    πŸ“Œ 29
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The Lost Mothers Project Focusing on the needs and experiences of women who are separated from their infants due to imprisonment

On Thursday we launched the Lost Mothers Project findings @birthcompanions.bsky.social @britishlibrary.bsky.social Powerful performances from @cleanbrk.bsky.social, art by Beci Ward. Experiences shared reveal a depth of unimaginable pain - β€˜β€¦my whole body craved him’ Time 4 change is now.

10.05.2025 15:11 β€” πŸ‘ 10    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

Don't miss your chance to make healthcare settings safer for patients & staff.

Sign the petition πŸ‘‡

#PatientSafety #PublicHealth
#SafeAir4All

10.05.2025 13:56 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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It’s my birthday. I’m 44. I feel deeply happy. That feels extraordinary - after 22 years with ME, and now 17 days in hospital with post-Covid microvascular failure.

What I’m going through feels otherworldly. But it’s common. Not rare.

We must take ME and Long Covid seriously!

10.05.2025 10:19 β€” πŸ‘ 371    πŸ” 46    πŸ’¬ 43    πŸ“Œ 2
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You can’t put a price on good mental health. But we’re all paying for the lack of investment.

Ahead of the #SpendingReview, we're calling on the Government to #InvestInMentalHealth. We've set out six key areas where investment could make a real difference: tinyurl.com/ypjusv3z

08.05.2025 11:33 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Love this πŸ˜€

09.05.2025 21:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A graphic titled "Hot weather reminder" with a sun illustration at the top. The text advises staying hydrated, resting in cool environments, and finding shade to stay safe during hot weather.

A graphic titled "Hot weather reminder" with a sun illustration at the top. The text advises staying hydrated, resting in cool environments, and finding shade to stay safe during hot weather.

Just a gentle reminder for those on antidepressants in this heat πŸ”₯ Not everyone knows this, so please share to spread the word ❀️

30.04.2025 13:22 β€” πŸ‘ 579    πŸ” 477    πŸ’¬ 11    πŸ“Œ 35

@shh-uk.bsky.social

09.05.2025 17:32 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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❗ "We are deeply alarmed by reports that NHS trusts across England are being forced to cut staff, close services, and ration care to meet severe savings targets," @rachel-p.bsky.social on the latest @nhsproviders.bsky.social survey. Read the full statement: buff.ly/nXXEUFi

09.05.2025 10:13 β€” πŸ‘ 11    πŸ” 9    πŸ’¬ 0    πŸ“Œ 0
Don't Shut The Door On Us
YouTube video by Long Covid Kids Don't Shut The Door On Us

Now on YouTube.

We would love it if you could watch, like and share their short advocacy video

youtu.be/6JRF4CVEVsI

#FridayVibes #YoungVoices #LCandME

28.03.2025 17:50 β€” πŸ‘ 0    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

@erinuk is following 20 prominent accounts