Two days to go. If youβre a healthcare worker living with Long Covid, this is your reminder. Join our online peer support group:
Tuesday 24 February 11:00β12:00 (UK time)
A safe space to connect with others who understand the impact of Long Covid.
π teams.microsoft.com/...
23.02.2026 11:10 β π 0 π 1 π¬ 0 π 0
π¨ New resources
π Young doctor sickness in the National Health Service
π¬ IAQ guide (Health and Safety Authority)
π£ Safe Air letter to the UK Health Security Agency
π shh-uk.org/sickness-...
π shh-uk.org/indoor-ai...
π shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
15.02.2026 10:00 β π 2 π 3 π¬ 0 π 1
Last months audiobooks π§π
Sunrise on the Reaping 5β I hope it's not the last in the series.
13.09.2025 16:19 β π 0 π 0 π¬ 0 π 0
Amazing opportunity for someone with lived experience of mental illness
πππ
29.08.2025 15:39 β π 0 π 0 π¬ 0 π 0
π§ NEW RESEARCH SUMMARY π§
The Benefits & Limitations of Self-Tracking Long Covid
π shh-uk.org/?p=34441
#LongCovidResearch #SelfTracking #PatientLedResearch #SHHUK #HealthJustice #PostViral
25.08.2025 11:01 β π 6 π 3 π¬ 0 π 0
Thanks to millions of people speaking up about their care, we've been able to champion big healthcare changes.
Think there's no power in your feedback? Don't believe it can make a difference to health and social care services? We want to show you that isn't the case. Check out some recent examples of how you made a difference - www.healthwatch.co.uk/our-impact
15.08.2025 08:22 β π 2 π 2 π¬ 1 π 0
infographic on the PLRF with an address to register at bit.ly/PLRF-2025
list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more
list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1β4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
ποΈ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
24.06.2025 21:43 β π 88 π 54 π¬ 2 π 13
"This is clearly a sad day for our staff, volunteers and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care.
Over the past 12 years, we've helped millions of people raise concerns, access vital advice and influence real change in the services they rely on.
By championing the voices of local communities, we've helped drive countless improvements across the NHS and social care - successes I understand the government recognises.
Our focus is now on ensuring a smooth transition of our function to the NHS and government, so that the voices and patients and the public continue to be heard."
Quote from Louise Ansari, Chief Exceutive at Healthwatch England.
Our Chief Executive Louise Ansari responds to news thatΒ #HealthwatchΒ is to be closed down.
"This is clearly a sad day for our staff, volunteers, and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care."
28.06.2025 09:37 β π 18 π 13 π¬ 0 π 7
π Help us contact every MP in the UK π
π Visit π shh-uk.org/get-in-to...
π¬ Use our simple tool to contact your MP and make your voice heard.
#safeair4all #longcovid #workplacesafety #infectioncontrol #PublicHealth #Healthcareleadership
08.06.2025 10:00 β π 7 π 5 π¬ 2 π 0
Get In Touch With Your MP - #SafeAir4All
All healthcare workers and every patient in the UK has the right to feel safe and protected in any healthcare setting
#SafeAir4All
In collaboration with @gmhazardscentre.bsky.social we've produced a fact sheet for MPs. #SafeAir4All campaign
Can you contact your MP about the need for safe air in healthcare settings?
Find out more here: shh-uk.org/get-in-touch...
04.06.2025 18:15 β π 13 π 11 π¬ 0 π 0
This is gorgeous π The children were so respectful to Mum duck & her ducklings π¦
02.06.2025 20:06 β π 0 π 0 π¬ 0 π 0
A month of trusted detectives & another great story by Michael Morpurgo.
#booksky ππ§
02.06.2025 18:41 β π 6 π 0 π¬ 0 π 0
β¬οΈβ¬οΈπ§΅
31.05.2025 10:58 β π 5 π 5 π¬ 1 π 0
Covid-19 is airborne.
Poor indoor air quality in healthcare settings increases infection risks for staff, patients & visitors.
Weβre calling for urgent action. Read our second position statement:
π shh-uk.org/shh-uk-posit...
#SafeAir4All #ProtectHCWs #LongCovid
21.05.2025 12:26 β π 67 π 37 π¬ 5 π 0
Image of library book display labeled:
βIt's A Warning Not An Instruction Manual.β
Books on display:
β’ On Tyranny
β’ Twenty Lessons From
The 21st Century
β’ 1984
β’ A Handmaids Tale
β’ Diary of Anne Frank
β’ Parable of The Sower
β’ Fahrenheit 451
β’ Animal Farm
β’ Brave New World
~TAiLS of a Bookworm
13.05.2025 18:35 β π 26299 π 6097 π¬ 417 π 235
We're looking to speak with people in the UK who have experienced psychosis and worry about relapse. Could you help?
Reposts/shares hugely appreciated! π
#PsychSciSky #AcademicSky #psychsky #Psychosis #MentalHealth #MentalHealthResearch #schizophrenia
13.05.2025 11:23 β π 10 π 12 π¬ 0 π 0
I really enjoyed this audiobook too ππ§
12.05.2025 20:43 β π 1 π 0 π¬ 0 π 0
At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.
Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government.
@joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social
Read the joint statement: meassociation.org.uk/nsts
#WorldMEDay #MEAwarenessWeek2025
12.05.2025 08:46 β π 9 π 9 π¬ 0 π 4
πββοΈ Every step you take helps protect healthcare workers with Long Covid. Join #TeamSHHUK in the #RunForCharities and fundraise for a cause that matters π shh-uk.org/run-for-c...
#LongCovid #NHS #CharityRun
11.05.2025 19:31 β π 3 π 2 π¬ 1 π 1
Have you seen our Patient Partnership Week events for this year? Take a look and book on to our free webinars, happening 30th June to 4th July. #PPW2025 buff.ly/EKU2vAg
11.05.2025 15:32 β π 2 π 2 π¬ 0 π 0
Instead of slashing welfare and disability benefits β forcing more disabled people and children into poverty β the government could introduce a 2% tax on assets over Β£10 million.
It would raise Β£24 billion β five times the savings from these cuts.
This is austerity 2.0
18.03.2025 15:27 β π 1438 π 562 π¬ 51 π 29
The Lost Mothers Project
Focusing on the needs and experiences of women who are separated from their infants due to imprisonment
On Thursday we launched the Lost Mothers Project findings @birthcompanions.bsky.social @britishlibrary.bsky.social Powerful performances from @cleanbrk.bsky.social, art by Beci Ward. Experiences shared reveal a depth of unimaginable pain - ββ¦my whole body craved himβ Time 4 change is now.
10.05.2025 15:11 β π 10 π 3 π¬ 1 π 0
Don't miss your chance to make healthcare settings safer for patients & staff.
Sign the petition π
#PatientSafety #PublicHealth
#SafeAir4All
10.05.2025 13:56 β π 3 π 2 π¬ 0 π 0
Itβs my birthday. Iβm 44. I feel deeply happy. That feels extraordinary - after 22 years with ME, and now 17 days in hospital with post-Covid microvascular failure.
What Iβm going through feels otherworldly. But itβs common. Not rare.
We must take ME and Long Covid seriously!
10.05.2025 10:19 β π 371 π 46 π¬ 43 π 2
You canβt put a price on good mental health. But weβre all paying for the lack of investment.
Ahead of the #SpendingReview, we're calling on the Government to #InvestInMentalHealth. We've set out six key areas where investment could make a real difference: tinyurl.com/ypjusv3z
08.05.2025 11:33 β π 3 π 1 π¬ 0 π 0
Love this π
09.05.2025 21:14 β π 1 π 0 π¬ 0 π 0
A graphic titled "Hot weather reminder" with a sun illustration at the top. The text advises staying hydrated, resting in cool environments, and finding shade to stay safe during hot weather.
Just a gentle reminder for those on antidepressants in this heat π₯ Not everyone knows this, so please share to spread the word β€οΈ
30.04.2025 13:22 β π 579 π 477 π¬ 11 π 35
@shh-uk.bsky.social
09.05.2025 17:32 β π 2 π 2 π¬ 0 π 0
β "We are deeply alarmed by reports that NHS trusts across England are being forced to cut staff, close services, and ration care to meet severe savings targets," @rachel-p.bsky.social on the latest @nhsproviders.bsky.social survey. Read the full statement: buff.ly/nXXEUFi
09.05.2025 10:13 β π 11 π 9 π¬ 0 π 0
YouTube video by Long Covid Kids
Don't Shut The Door On Us
Now on YouTube.
We would love it if you could watch, like and share their short advocacy video
youtu.be/6JRF4CVEVsI
#FridayVibes #YoungVoices #LCandME
28.03.2025 17:50 β π 0 π 2 π¬ 0 π 0
Do you love to dance? So do we! Come & join our inclusive dance sessions led by people with learning disabilities. North West & beyond. Small charity, big impact!
Information from the British Association for Behavioural and Cognitive Psychotherapies, the lead organisation for CBT in the UK and Ireland
We are a membership community collaboratively accelerating the improvement of care in the UK and Ireland. Q is hosted by the NHS Confederation and supported by the Health Foundation and partners across the UK and Ireland.
The Patient Advisors Network (PAN) is a community of people who have received health services or cared for those who have and are committed to improving healthcare as patient partners and advisors for the good of all across Canada.
We work nationally and in local neighbourhoods to build stronger communities where there is no one left out.
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Website: https://wdbta.org
We are the network of six NIHR Patient Safety Research Collaborations (PSRCs). NIHR PSRCs deliver research to improve patient safety in England.
Find out more: https://psrc-network.nihr.ac.uk/
Lead PCN Pharmacist & Partner bmg.link/us
A believer in the benefits of #pharmacy and #pharmacists #Pharmsky
Views expressed are my own t.me/PharmRJ
rbnc.cc
We want people to be in control of their end-of-life decisions because there is no-one better to make them.
Ensuring NHS Scotland provides the best environment to support clinical research so patients can benefit from new and better treatments. https://www.nhsresearchscotland.org.uk/
Support group for carers of children with eczema.
Senior Lecturer and NIHR Fellow @sheffielduni.bsky.social I NHS Consultant Clinical Psychologist | ClinPsyD PhD | Chief Investigator iMAPS-2 | BABCP National Scientific Committee |
Personal Tweets from The Beautiful North
www.researchinpsychosis.com
Multi-award winning grassroots campaign for unpaid carers in the UK. Led by carers, for carers.
wecarecampaign.org.uk
We are an independent charitable organisation working to build a healthier UK.
www.health.org.uk
A coalition of over 200 charities making what matters to people matter in health and care.
Account monitored Mon-Fri, 9am-5pm.
We fight for everyoneβs right to breath. From Research, campaigning, advice + support. For queries about your lung condition please call our helpline.
asthmaandlung.org.uk
CEO @ Inspiring Communities | Working across #Charity, #Regeneration & the #ThirdSector | Championing #ClimateAction, #Volunteering & #Sustainability | Powered by #CommunityLedChange, #EVs and time #GettingOutside
Canada's Hospital:
Princess Margaret, Toronto General, Toronto Western, Toronto Rehab, West Park Healthcare & Michener.
π uhn.ca
Chief executive at the Patients Association - views my own