Nick Palmer 's Avatar

Nick Palmer

@nick-fire1.bsky.social

Patient Ambassador & Involvement Lead at Kidney Care UK kidneycareuk.org #fsgs #nocturnaldialysis Everton #nsno #coyb ๐Ÿ’™ #HOUSE๐Ÿชฉ

390 Followers  |  252 Following  |  16 Posts  |  Joined: 27.11.2024  |  1.8403

Latest posts by nick-fire1.bsky.social on Bluesky

Post image

If you have kidney disease and are keen to be involved in research into the condition please check out our research opportunities page: kidneycareuk.org/get.../resea...

We update this regularly with the latest research opportunities and how you can get involved.

13.07.2025 15:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Promotional poster for the Kidney Care UK 2025 Gala Dinner in Belfast, featuring an event scene with attendees, emphasizing the opportunity to win tickets.

Promotional poster for the Kidney Care UK 2025 Gala Dinner in Belfast, featuring an event scene with attendees, emphasizing the opportunity to win tickets.

๐ŸŽ‰ Win tickets to our 2025 Gala Dinner in Belfast. We want you to join us for a night to remember at Titanic Belfast! Prize tickets kindly funded by Lurgan Veterinary Clinic and ABP Food Group.
Enter or nominate someone to win (closes 21 July at 5pm) ๐Ÿ‘‰ forms.gle/fBUfyMtNw1Sz...

07.07.2025 16:07 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Our charity Golf information. ๐Ÿ’™๐Ÿ‘

30.06.2025 15:30 โ€” ๐Ÿ‘ 17    ๐Ÿ” 14    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

Adults with kidney failure experience financial toxicity as measured by the Comprehensive Score for financial Toxicity (CoST). Additionally, those experiencing financial toxicity report reduced workforce participation. kidney.pub/KID0857 #ASNKidney360

30.06.2025 18:31 โ€” ๐Ÿ‘ 6    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Two power cuts in less than an hour tonight, completely disrupting my 8 hour overnight haemodialysis for the second time this month!

29.06.2025 00:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image Post image Post image Post image

๐Ÿšจ LATE-BREAKING SESSION ALERT ๐Ÿšจ #PodocyteConference ๐Ÿ™
Vincent Boima's overview of the recent study published in @nejm about APOL1 Bi- and Monoallelic Variants and Chronic Kidney Disease in West Africans ๐Ÿ†• ๐Ÿ”ฅ tobias-b-huber.bsky.social

12.06.2025 08:56 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image Post image Post image Post image

A look into the future by Prof. Moin Saleem ๐Ÿง at the #PodocyteConference ๐Ÿ™ Walking towards gene therapy in Glomerular Diseases ๐Ÿงฌ๐Ÿคฏ kidneyresearchuk.orgโ€ฌ tobias-b-huber.bsky.social

13.06.2025 04:04 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Promotional graphic by Kidney UK discussing the impact of inadequate support on individuals with kidney disease, featuring a quote on emotional challenges and an image of the report.

Promotional graphic by Kidney UK discussing the impact of inadequate support on individuals with kidney disease, featuring a quote on emotional challenges and an image of the report.

๐Ÿ“ฃ Our latest report 'Left to get on with it' focuses on the social and emotional needs and experiences of adults living with kidney disease. High quality psychosocial support should be available to EVERYONE with kidney disease.

Click here ๐Ÿ‘‰ kidneycareuk.org/news-from-ki...

11.06.2025 08:25 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Huge thank you to all those that sponsored and supported. Raised over ยฃ3k for @kidneycareuk.bsky.social the power of #nocturnaldialysis

07.04.2025 18:34 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

A big thank you to everyone who has shown generous support and sponsored my London Landmarks half marathon run on Sunday for
@kidneycareuk.bsky.social
Big rest and fuel day today, hopefully with an
@evertonfc.com
win!

05.04.2025 06:09 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Preview
Nick's fundraiser for Kidney Care UK Help Nick Palmer raise money to support Kidney Care UK

www.justgiving.com/page/nick-pa...
Just over a week until I run the London Landmarks half marathon. No mean feat for someone with #kidneyfailure on #nocturnaldialysis! If any of you lovely folks are able to sponsor me in support of @kidneycareuk.bsky.social that would be fabulous โค๏ธ๐Ÿ‘

28.03.2025 18:07 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Post image

Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of casesโ€”called recurrent FSGS.

#KidneyMonth #rFSGS #rFSGSConference

27.03.2025 19:06 โ€” ๐Ÿ‘ 7    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
Preview
My fistula story Health writer and kidney transplant recipient Allie Anderson shares her complex feelings about living with an arteriovenous fistula.

This is a lovely piece of writing. Iโ€™m biased, as it is by my wife, but it is lovely all the same kidneycareuk.org/kidney-disea... @kidneycareuk.bsky.social

19.03.2025 19:09 โ€” ๐Ÿ‘ 7    ๐Ÿ” 5    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0

It's a great piece! I remember the horror of mine first being used 26 years ago and the utter joy of literally bumping into someone with a fistula in a supermarket in Peckham and sharing a moment!

19.03.2025 22:12 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

โœ… ๐Ÿ‘

12.03.2025 08:19 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

๐Ÿ“ขDo you or a family member have #KidneyDisease, #HighBloodPressure or #Diabetes?

๐Ÿ“’ We would like to hear about what information you have received about your #kidneys - what was good & what could be improved!

๐Ÿ”—https://app.onlinesurveys.jisc.ac.uk/s/salford/phase-1-patient-survey

๐Ÿ™ŒThank you!

05.03.2025 15:12 โ€” ๐Ÿ‘ 17    ๐Ÿ” 15    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1
Post image

Beautiful thai chicken noodle soup for a cold evening โ„๏ธ courtesy of @nigella.bsky.social

13.01.2025 18:25 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
Preview
Moderately elevated ambient temperature is associated with mortality in dialysis patients, but not in transplant patients AbstractBackground. In many parts of the world, heat waves have been associated with excess morbidity and mortality in the general population. Studies on t

Interesting new paper in CKJ: effect of climate change / heatwaves on mortality. Increased in dialysis patients - not in transplant.

academic.oup.com/ckj/advance-...

25.12.2024 16:07 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

That figures. In the UK/London with summer temps peaking 33-37 (not for very long) I am on my knees and need to lay down. Abroad with similar temps but with air con and a swimming pool life is far more manageable.

25.12.2024 16:18 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Less 'shop' more food bank. That's incredibly generous and heartening to see๐Ÿ‘

25.12.2024 14:17 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Merry Christmas to you too Paul. Thank you for your unwavering persistence in the face of often toxic criticism and your professional nous. You and many, many other Blues (home and away!) have done us all proud and kept the 'fires burnin'! ๐Ÿ™๐Ÿฅ‚๐ŸŽ„๐Ÿ‘๐Ÿ’™

25.12.2024 10:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thanks Rob, you too. Here's to a 'healthy' 2025๐Ÿ‘

24.12.2024 15:37 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Merry Christmas Rob!๐ŸŽ„๐Ÿฅ‚

24.12.2024 15:33 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Kidney friendly soups and stews Enjoy a hot bowl of Kidney Kitchen's nourishing soups and stews, classic homemade comfort food. Our warming recipes range from traditional leek and potato soup to flavour-packed Thai and North African...

๐Ÿฒ With wintery weather set to affect many of us soon, get meal planning with our #KidneyKitchen soups and stews recipes. From traditional leek & potato soup to flavour packed Thai & North African dishes - you have lots to choose from! #KidneyFriendly recipes here: kidneycareuk.org/get-support/...

20.12.2024 17:30 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image Post image Post image

Wonderful event at UK Parliament yesterday organised by @kidneycareuk.bsky.social & @nhsbt.bsky.social

Celebrating organ donation + raising awareness of how important kidney health is + how devastating kidney disease/failure can be โšก๏ธ

Plus lovely catch up with pal/new MP/Tx surgeon Zubir Ahmed ๐Ÿค—

05.12.2024 06:12 โ€” ๐Ÿ‘ 20    ๐Ÿ” 7    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image Post image

And yesterday we attended another event in Westminster with @parkinsons.org.uk #sicklecellsociety @asthmaandlunguk.bsky.social @cftrustuk.bsky.social raising awareness with MPs of the impact of #prescriptioncharges thanks to support from @helenmorganlibdem.bsky.social & @leepitcher.bsky.social

04.12.2024 18:38 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A grand room within Westminster that is filled with professionals all listening to Fiona Loud - Policy Director at Kidney Care UK. Fiona is holding a discussion and is dressed in a red blazer and a red patterned skirt.

A grand room within Westminster that is filled with professionals all listening to Fiona Loud - Policy Director at Kidney Care UK. Fiona is holding a discussion and is dressed in a red blazer and a red patterned skirt.

We've been in Parliament today with NHSBT talking to MPs & peers about the importance of #OrganDonation & telling your family about your wishes. The waiting list is the highest it's been in a decade and this needs to change. Thank you to all who joined us today to make this event such a success!

04.12.2024 17:05 โ€” ๐Ÿ‘ 8    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

Self Promo Monday.

It takes less than 5 seconds to like or share something.
Big up your mates, help them out, even if you don't need anything done.
Support them when you can.
You never know who might see it.

My design work can be found here:

insidesixtyone.com

Cheers โœŠ

02.12.2024 08:50 โ€” ๐Ÿ‘ 21    ๐Ÿ” 17    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Great to see a conference like this. Experienced rFSGS twice. Now doing well on nocturnal HHD.๐Ÿ‘

01.12.2024 19:28 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Knife. Rusty. Blunt.

01.12.2024 14:23 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@nick-fire1 is following 20 prominent accounts