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Eden Dora Trust

@edendoratrust.bsky.social

Helping children & families affected by childhood Encephalitis & Acquired Brain Injury, feel less misunderstood & alone, through dedicated support, research & more. For more info: Www.edendoratrust.org

46 Followers  |  54 Following  |  46 Posts  |  Joined: 09.01.2025  |  1.9995

Latest posts by edendoratrust.bsky.social on Bluesky

Run the London Marathon for EDT | Eden Dora Trust

Would you like to run the @londonmarathon.bsky.social 2026πŸƒπŸƒβ€β™€οΈ
We have one place left - register your interest here πŸ‘‡
edendoratrust.org/london-marat...

Do something legendary this year and apply to be part of #TeamEdenDoraTrust πŸ’ͺπŸ’™

Please Share πŸ™

#londonmarathon #Run4EDT #Encephalitis #ABI

23.07.2025 17:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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2/2

21.07.2025 16:31 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Most schools have now broken up for the summer, however school holidays can be a challenging time for families when a young person's routine changes.
We understand how difficult it can be πŸ’™
We also have some key tips that may help during the school holidays
#ABI #encephalitis

21.07.2025 16:30 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

All superbly put together by @chloehayward.bsky.social and hosted by the fabulous Sir John Hayes MP

#ABI #Encephalitis #RightToRehab #TimeForChange @ukabif.bsky.social

19.07.2025 15:28 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

We also heard from Hope Kent & Alyson Norman about the incredibly informative #RightToRehab report, and Luke Griggs about the impact to charities #WhenFundingFails

#ABI #Encephalitis #RightToRehab #TimeForChange

19.07.2025 15:27 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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What a great day at the Parliamentary reception for ABI. 4 amazing young people spoke on behalf of @nables.bsky.social
So brave, insightful & giving. The only way to make the right change is to listen to the experts by experienceπŸ’™ #YEBEABI

#ABI #Encephalitis #TimeForChange @ukabif.bsky.social

19.07.2025 15:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

Really looking forward to attending the @ukabif.bsky.social ABI Parliamentary APPG Reception at Portcullis House this afternoon 🧠
I’ll be wearing many hats today,CEO of @edendoratrust.bsky.social , as Mummy to Eden & as part of the steering committee for @nables.bsky.social

#ABI #Encephalitis

16.07.2025 11:59 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Great catch up with one of our amazing Patrons @djwilliamsact whilst he’s on tour with the fantastic @thelastlaughplay (an amazing show that we definitely recommend seeing if you get chance!) catching up with all things EDT πŸ’™
Thank you Damian for all your continued support! β€οΈπŸ’™

#encephalitis #ABI

12.07.2025 18:30 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We are so proud to share some pictures we received from some of our amazing supporters that took on our #50MilesinMay challenge! Raising vital funds & awareness, allowing us to continue being a lifeline for children & families across the UK - THANK YOU! πŸ’™πŸ§ 

#Encephalitis #ABI #50Miles4EDT #Support

26.06.2025 10:38 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The wonderful Jo Woodhouse will represent N-ABLES at the Northern Acquired Brain Injury Conference to deliver an update on N-ABLES and discuss the responsibilities of a SENCO in supporting children and young people with #AcquiredBrainInjuries

Stay tuned to our accounts for an update!

24.06.2025 11:02 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Run the London Marathon for EDT | Eden Dora Trust

Got a TCS @londonmarathon.bsky.social '26 ballot place? It would mean the world if you ran for us! As a small charity, every supporter makes a HUGE differenceπŸ’™πŸƒπŸΌβ€β™€οΈπŸƒπŸΌβ€β™‚οΈ

If you didn't get a ballot place, applications are still open for our EDT LM26 place! πŸ‘‰
edendoratrust.org/london-marat...

Thank youπŸ’™

23.06.2025 11:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Places available for the β€˜#UCABI’ workshop on 26/6 🧠
This workshop is vital if you are professionally supporting a young person with an Acquired Brain Injury!

We are so proud to fund the workshop, enabling any professional to attend for free!

#ABI #encephalitis #teamwork #makingadifference

10.06.2025 10:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Run the London Marathon for EDT | Eden Dora Trust

Wanting to take part in the
London Marathon in 2026?πŸƒβ€β™‚οΈ
Wanting to run for Eden Dora Trust? πŸ…

We have one place left πŸ₯³!

Please register your interest NOW πŸ‘‡
edendoratrust.org/london-marat...

Good Luck πŸ‘πŸ€ž

#ABI #Encephalitis #londonmarathon #Run4EDT #Support #Marathon

10.06.2025 10:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you so much to GallifordTry & @cardfactory.bsky.social for your generous and continued support, as a small charity the support of businesses makes such a huge difference for us in continuing the work we do πŸŒŸπŸ’™
#ABI #Encephalitis #support

02.06.2025 14:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today for the final day of Action for Brain Injury Week 2025, we’re sharing some more of the achievements that make a β€œGood Day” when living with a brain injury.
We think this will resonate with so many! πŸ’™

#ActionForBrainInjuryWeek #ABIWeek #Encephalitis #BrainInjury #ABI

23.05.2025 11:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Some more of the achievements that make a β€œGood Day” when living with a brain injury, this Action for Brain Injury Week 2025 πŸ’™

#ABIWeek #ActionForBrainInjuryWeek #BrainInjury #Encephalitis #ABI

21.05.2025 08:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We love working with like minded people and @cbituk.bsky.social being one of the wonderful charities we partner with, having the same goals 🫢
Working together to make a difference πŸ’™πŸ§ 

#ABI #encephalitis #ActionForBrainInjuryWeek #childhoodAcquiredBrainInjury

20.05.2025 13:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This week we’re celebrating the achievements that make a β€œGood Day” when living with a brain injury πŸ’™

#ActionForBrainInjuryWeek #BrainInjury #ABI #Encephalitis #ABIWeek #onagoodday

20.05.2025 09:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

RBAY @cbituk.bsky.social 🫢

19.05.2025 22:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This week is #ActionforBrainInjuryWeek, with the theme "On a Good Day" - shining light on the strength of facing each day after a brain injury, through the achievements that make a good dayπŸ’™

Proud to be celebrating alongside @headwayuk.bsky.social
, @cbituk.bsky.social & other great charities!🧠

19.05.2025 10:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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There is still plenty of time to join our fun 50 Miles in May campaign to support us here at Eden Dora Trust πŸ€Έβ€β™€οΈπŸš΄πŸƒ
Helping to raise vital fundsπŸ’›

Scan the QR code or click for more infoπŸ‘‡
edendoratrust.org/50-miles-in-...

#EncephalitisAwareness #ABI #Encephalitis #50milesinmay #run4edt #50Miles4EDT

09.05.2025 16:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are incredibly proud to be able to fund this essential workshop so everyone that attends can do so for free, to ensure children can receive the support they need after an Acquired Brain Injury πŸ’›

#ABI #Encephalitis #UCABI #Collaboration #funding #teamwor

07.05.2025 23:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Eden Dora Trust for children with Encephalitis supports children with Encephalitis and ABI Help Maria Ciocan raise money to support The Eden Dora Trust for Children with Encephalitis

Excited to be taking part in the #50miles4edt challenge, starting it off with 11 miles walked around sunny Durham and Newcastle today:)

You can support and find out more about the amazing work that @edendoratrust.bsky.social does here: www.justgiving.com/page/maria-c...

04.05.2025 20:10 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

Love this Maria, thank you so much for your support πŸ’›
We can’t wait to see your progress πŸ‘πŸ’ͺ

06.05.2025 16:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Award details | Funding and scholarships for students | University of Exeter

Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠
πŸ‘‰ www.exeter.ac.uk/study/fundin...
Closing date 5.5.25 - interview wk after
Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social

28.04.2025 14:22 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Felt inspired by the incredible London Marathon?
Join our '50 Miles in May' challenge & get a free breathable T just for signing up!
It doesn't matter how you do it - run, walk, hop or a mixture of them all! πŸ€ΈπŸƒπŸš΄
Register nowπŸ‘‡
www.edendoratrust.org/50-miles-in-may

#Encephalitis #ABI #50Miles4EDT

28.04.2025 09:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you to all that have signed up so far to our β€˜50 miles in May’ challenge πŸ’ͺ
Would you like to join in the fun?...

You choose how you complete your 50 miles, mix it up, however you want! πŸš²πŸšΆβ€β™‚οΈπŸ€Έβ€β™‚οΈ

Register now πŸ‘‡
edendoratrust.org/50-miles-in-...

#50miles4edt #encephalitis #ABI #Support

25.04.2025 10:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Looks like the Easter bunny has arrived early...
Thanks so much to Sondex Wireline for putting together this yummy looking Easter Raffle for the Eden Dora Trust, what a fabulous looking hamper!πŸ£πŸ‡

#Encephalitis #ABI #Easteregg #Easterhamper #Chocolate #easterbunny

16.04.2025 09:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks to the team EDT riders who took on the Bamburgh 100km sportive cycle challenge on Sunday 🚲 πŸ’ͺ
What an exhilarating way to support us! πŸ‘πŸ‘
Thank you πŸ…

#ABI #Encephalitis #Bike #race #cycling

15.04.2025 14:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us in our 50 Miles in May Challenge and make every mile count for EDT!πŸƒβ€β™€οΈπŸš΄β€β™‚οΈ
Walk, run, cycle, or even jump, you'll be raising vital funds for us πŸ’›

Sign up today πŸ‘‰ edendoratrust.org/50-miles-in-...
Let's make a difference together! πŸ’™

#50MilesinMay #Run4EDT #ABI #Encephalitis #MakingADifference

08.04.2025 11:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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