Sickle Cell Society

⏰ Final days to sign up!
North-East London sickle cell patients aged 14–21 — join our emotional wellbeing group session on 10 Oct, 5–6:30pm.
Share your experiences & help shape transition support.🔗 bit.ly/groupscyp
#SickleCell #YouthVoice #NELondon

A huge thank you to Amaka & Amina from Deutsche Bank for hosting our CEO John James and NCL Lead Mentor Temitope for a brilliant Sickle Cell Awareness event & panel discussion.

We appreciate Deutsche Bank’s continued support!

#SickleCellAwareness #SickleCellSociety

Have you applied for PIP (Personal Independence Payment) because of sickle cell? We want to hear from you — good or bad, your experience matters.

🗓️ Complete the survey by 31 Oct:
🔗 tinyurl.com/bdhzdmfz

#SickleCell #PIP #PatientVoices #SickleCellSociety

We’re delighted to welcome Dr Matthew Sowemimo as the new Chair of our Board of Trustees. With decades of experience in health & social justice, his leadership will help shape the next chapter for the Society. Excited for what 2026 will bring!

#SickleCellSociety

🩸 Last call to have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our shortlisting survey.

⏳ Closes 14 Oct
📩 Link: www.surveymonkey.com/r/YVHCF5Q

#SickleCell #Genomics #HaveYourSay

Happy Black History Month!

This October we’re celebrating the many forms of support that strengthen the sickle cell community — and thanking everyone who makes our work possible. We’ll also be spotlighting events & programmes across the month.

#BlackHistoryMonth #SickleCellAwareness

📚✨ BOOK GIVEAWAY ✨📚
We’re giving away a copy of The Secret Diary of Joynina K. Jones by Antoinette Brooks for you and a friend 🎉 Perfect for 8–11 year olds. 🎉 Perfect for 8–11 year olds.

👉 Head to our Instagram @SickleCellUK to enter! Closes 10 Oct.

#BookGiveaway #JoyninaKJones

✏️ Author Antoinette Brooks has shared 10 top tips for teachers supporting children returning to school — especially those navigating health challenges.

Read her advice in the article linked here: buff.ly/GB4wCt0 📖✨

#JoyninaKJones #TeacherTips #BackToSchool #SickleCellSociety #EmotionalGrowth

🎓✨ North East London sickle cell patients (15–18): Join our online Transition Workshop!
📅 Thu 25 Sep, 5–6:30PM
Topics: rights, uni/career next steps, patient stories & managing anxieties.

👉 Sign up: bit.ly/sicklefuture

#SickleCellSociety

✨ Get to Know the Author ✨
We spoke with Antoinette Brooks about her life and the journey of writing The Secret Diary of Joynina K. Jones—from inspiration to the importance of talking about sickle cell. 📖❤️

#JoyninaKJones #AuthorSpotlight

📢 Last chance to apply!

We’re hiring a Mentoring Programme Coordinator to support mentors & young people living with sickle cell.

🗓 Applications close 29 Sept
🔗 Apply via link in bio

#Hiring #JobOpportunity #SickleCell #CharityJobs #Mentoring

🩸 Martha’s Rule lets patients & families request an urgent review if concerns aren’t being heard.

A short survey has been developed to capture awareness among people with sickle cell.

📩 Take part: forms.cloud.microsoft/r/NTpySfPxVN

#SickleCell #MarthasRule

On 4 Sept, we held a parliamentary meeting with patients & medical professionals to discuss updates in sickle cell care.

Thank you to Bell Ribeiro-Addy MP & all who joined. We aim to host these more regularly.

#SickleCell #HealthEquity #Parliament

🩸 Have your say! Help shape the Top 10 research priorities for sickle cell & genomics in our new Shortlisting Survey.

📩 Take part: www.surveymonkey.com/r/YVHCF5Q

⏳ Closes: 14 Oct 2025

#SickleCell #Genomics #ResearchPriorities #PatientVoices

🩸 Join us on 17 Sept, 11:45am–12:45pm for a Sickle Cell Awareness Month webinar hosted by LGT MIN. Speakers include John James OBE (@SickleCellUK), LGT clinicians & mental health staff.📍 Online (Teams) buff.ly/EWxg5h1 #SickleCellAwareness #SickleCell

🩸 Last call! We’re looking for two Barts NHS patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon at Royal London Hospital.

📩 Apply by 11 Sept: Heritage.Project@sicklecellsociety.org

(Please note: Barts patients only)

#SickleCell #BartsNHS

🚨 Group blood donation bookings are now nationwide! 🩸

Black donors are urgently needed to support people with sickle cell. Join friends, colleagues or community groups at upcoming sessions.

🔗 Book: www.blood.co.uk

#GiveBloodSpreadLove #SickleCell

📢 We’re hiring! Join us as Mentoring Programme Coordinator and help support young people living with sickle cell. Apply today 👉 www.sicklecellsociety.org/paid-vacancy...

#Hiring #CharityJobs #SickleCell

🏃🏿The countdown is on! Join Team Sickle Cell at the 2026 TCS London Marathon and make every mile matter. Run for a cause. Run for sickle cell.

👉🏿 Register today: www.sicklecellsociety.org/london-marat...

#LondonMarathon #TeamSickleCell #CharityRun #RunForACause #SickleCellAwareness

🩸 Help Shape an Exhibition About Sickle Cell! We’re inviting @NHSBarts patients with sickle cell to join a Patient Committee for Our Journey, Our Story, soon to be displayed at Royal London Hospital.📩 Apply by 11 Sept: Heritage.Project@sicklecellsociety.org
#SickleCell

📣 Join us on Tue 26 Aug at Manor Park Methodist Church Herbert Rd, E12 6AY for our NEL Sickle Cell Transition Co-creation Day! Patients (12–24) & parents — share your voices, help shape resources & hear from experts.🔗 Sign up: bit.ly/level-up-day #SickleCell #TransitionCare

Help shape sickle cell & infections research! 🧪We’re looking for people 18+ living with or caring for someone with sickle cell to join our patient & public involvement group.
🔍 Scan the QR code or visit: bit.ly/3JeARkF
📧 r.muzambi@imperial.ac.uk
#SickleCell #Research

On 17 Aug, our CEO John James & volunteers Brenda & Sophie joined Emancipated Run Crew for their annual Pre-Carnival 5K in Notting Hill 🎉

Huge thanks to ERC for supporting the Sickle Cell Society & our Give Blood, Spread Love campaign ❤️🩸

#ERC #PreCarnivalRun #GiveBloodSpreadLove #SickleCellSociety

A huge thank you to Charles Sam for organising the Windrush Trophy golf competition (@windrushtrophy) and raising an amazing £2,500 for us! ⛳💙

Your support makes a real difference to the Sickle Cell community. 🙌🏾

#WindrushTrophy #SickleCellSociety #Fundraising

Aged 10–24 & living with Sickle Cell in NW England or South Yorkshire?
Join our Peer Mentoring Programme for support, guidance & 1-2-1/group activities.

📧 NWMentors@sicklecellsociety.org
#SickleCell #PeerMentoring #YouthSupport

Our Comms team joined @BAMREF’s 4th Annual Conference at Notts County FC on 20 July. A powerful day of food, workshops & EDI discussions in football. Thanks to Darren, sponsors & all involved!
#BAMREF2025 #EDIinSport #RefereeDiversity #SickleCellSociety

📢 Helpline Closure.
Please note that our helpline will be closed on Monday 28 July and Tuesday 29 July 2025. For any urgent enquiries during this time, please email info@sicklecellsociety.org.
Our helpline team will return on Wednesday 30 July 2025. Thank you for your patience.

Huge thanks to the African Caribbean Business Alliance for hosting a fantastic quiz night on 16 July, raising over £6K for the Sickle Cell Society! Our CEO John James was honoured to attend. Your support helps us make a real difference. #SickleCell #ACBA #Fundraising

Parliamentary Update.On 22 July, Kate Osamor MP raised a question on funding for sickle cell research & workforce. The Minister reaffirmed NIHR welcomes funding bids for all health areas incl Sickle Cell.Contains Parliamentary info licensed under the Open Parliament Licence v3.0

We're supporting a paid opportunity for people with lived experience of sickle cell or thalassaemia to join a working group to improve school support. Sessions run online from Sept 2025 to Jan 2026. Deadline to register is 8 August. Sign up: shorturl.at/SVMki