Sickle Cell Society

Aged 10–24 & living with Sickle Cell in NW England or South Yorkshire?
Join our Peer Mentoring Programme for support, guidance & 1-2-1/group activities.

📧 NWMentors@sicklecellsociety.org
#SickleCell #PeerMentoring #YouthSupport

Our Comms team joined @BAMREF’s 4th Annual Conference at Notts County FC on 20 July. A powerful day of food, workshops & EDI discussions in football. Thanks to Darren, sponsors & all involved!
#BAMREF2025 #EDIinSport #RefereeDiversity #SickleCellSociety

📢 Helpline Closure.
Please note that our helpline will be closed on Monday 28 July and Tuesday 29 July 2025. For any urgent enquiries during this time, please email info@sicklecellsociety.org.
Our helpline team will return on Wednesday 30 July 2025. Thank you for your patience.

Huge thanks to the African Caribbean Business Alliance for hosting a fantastic quiz night on 16 July, raising over £6K for the Sickle Cell Society! Our CEO John James was honoured to attend. Your support helps us make a real difference. #SickleCell #ACBA #Fundraising

Parliamentary Update.On 22 July, Kate Osamor MP raised a question on funding for sickle cell research & workforce. The Minister reaffirmed NIHR welcomes funding bids for all health areas incl Sickle Cell.Contains Parliamentary info licensed under the Open Parliament Licence v3.0

We're supporting a paid opportunity for people with lived experience of sickle cell or thalassaemia to join a working group to improve school support. Sessions run online from Sept 2025 to Jan 2026. Deadline to register is 8 August. Sign up: shorturl.at/SVMki

Join Team Sickle Cell at Tough Mudder 2025 💪

Choose a 5K or 15K obstacle course at one of 14 events and raise awareness for those living with sickle cell.

Medal, T-shirt, headband, drink & parking included.

🔗 Sign up: www.sicklecellsociety.org/tough-mudder
#ToughMudder #SickleCell

A month on from #WorldSickleCellDay, we’re reflecting on some incredible events: from Royal London & Central Middlesex to Sheffield with SYSCO. Thank you to all who helped raise awareness.

#SickleCellAwareness #ACTNOW #SickleCellSociety

As we gear up for more races, we're celebrating our amazing London Marathon runners from April! 🏁

Thank you for your strength, support, and dedication to the Sickle Cell Society.

London 2026 spaces pending… stay tuned!
#SickleCell #TeamSickleCell #LondonMarathon

📢 Join us as a Community Support Worker Lead in North East London for the Sickle Cell Society's Home from Hospital project. Apply by 4 August 2025. 🔗 More info & application: buff.ly/ezpj7Cm #SickleCell #NowHiring #NEL #SupportWorker #CommunityHealth #SickleCellSociety

🧘🏾 Join us for a FREE North East London Wellness Event for sickle cell patients!

🗓️ July 11 | 🕕 6–7:30PM
📍 Stratford Hub, E15 2LS
💆🏾Focus: Sleep Better w/ Aromatherapy

🔗 More info & eligibility buff.ly/bjSefxE
Please read the form before registering 💛
#SickleCell #NELondon #WellnessEvent

The UK can lead in rare disease innovation—with long-term investment and a united approach. ⏳

Our CEO John James contributed to @lifearc & @GeneticAll_UK’s new report on how we can #ChangeTheRareFuture.

Read more: www.lifearc.org/rd-report?ut...

🏃🏿 Huge shoutout to Tyler, who ran the Finsbury Park Half Marathon on 15 June 2025 and raised £650 for the Sickle Cell Society! ✊🏿🩸

Want to keep supporting or read his story?
🔗 buff.ly/vGQ0GcJ

#SickleCell #Fundraising #ThankYouTyler #SupportSickleCell

🩸 Make Work Fair for People with Sickle Cell. Meet Benji, sharing why the new Early Day Motion matters. Too many face unfair treatment at work.
✅ Recognise sickle cell as a disability
✅ Train employers
✅ Improve support
📝 Write to your MP: www.sicklecellsociety.org/wscd25/ #SickleCell

📢 We’re hiring a Lead Mentor & Community Projects Coordinator in North East London.
Work with families, NHS support groups & mentoring teams to improve care for those with sickle cell. In partnership with Barts Health NHS Trust.🔗 Apply: sicklecellsociety.org #SickleCell #NEL

📣 Calling all 12–24 y/o sickle cell patients in NE London (+ parents)!

Join us Sat 19 July for a fun, interactive day of workshops, learning & co-production 🧠🎮🗣️

Help shape transition care!

🔗 Sign up: bit.ly/levelup-day
#SickleCell #LevelUp #YouthVoice #CoProduction #NHSVoices

🗣️ Living with sickle cell? Aged 10–24 in Sheffield, Manchester or Liverpool? Join our peer mentoring programme and connect with someone who truly gets it 💬🩸
No shame. No judgment. Just support.🔗 Email us at : NWmentors@sicklecell.org for more information #SickleCell

🗣️ Your voice matters in hospital care.

Our NW & South Yorkshire mentors are empowering young people with sickle cell to speak up, stay safe & push for better treatment 🏥🩸

Let’s advocate for change where it’s needed most.

#SickleCell #SpeakUpStaySafe #NHSVoices #YouthVoice

World Sickle Cell Day may be over, but the work continues.

Our North West & South Yorkshire mentoring teams are busting myths and sharing the facts 💭

Myth or Truth? Let’s fact check!

#SickleCellAwareness #MythVsFact #TellItLoud #SickleCellSociety #BloodMatters

On #WindrushDay, we honour the legacy of the Windrush Generation 🇯🇲🇬🇧

For many with sickle cell, the day holds deep meaning — a reminder of both heritage and the ongoing fight against stigma, inequality & poor care.

🩸 Let’s keep amplifying these voices. #SickleCell

On June 20, our CEO John James joined emancipated run crew at the Jamaican High Commission to receive £5,910.37 for the Sickle Cell Society. Massive thanks for your years of support — your impact is real! 🙌🏾🩸#SickleCell #RunForACause #ERC #BlackRunners #HealthEquity #ThankYou

🩸 This #WorldSickleCellDay we’re highlighting the importance of screening.
The NHS offers antenatal & newborn screening for sickle cell via a simple blood test. Early testing = informed choices & better care.
#SickleCellAwareness #KnowYourStatus

Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family — with 8 relatives affected. “Testing is so key — and blood donation even more so.” Thank you, Konnor, for helping raise awareness.
#WorldSickleCellDay #SickleCellAwareness

🩸 SHOUT: Tell It Loud
This #WorldSickleCellDay we’re amplifying voices too often ignored.
The pain is real. The silence is loud.
Let’s listen. Let’s care. Let’s act.

#SickleCellAwareness #ShoutTellItLoud #InvisibleNoMore #WSCD2025 #ArtWithPurpose

🧠 Leading up to #WorldSickleCellDay, let’s get the mind working!

🔍 What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
👉 buff.ly/WDpczGm

Tag us when you complete them! #WSCD2025 #TellItLoud

We’re proud to share that our CEO John James will be speaking at #PPW2025 hosted by ‪@patientsassoc.bsky.social ! 🗣️✨Join him on Friday 4th July, 9–10am as he champions patient voices in healthcare campaigns.👉 Register now at: www.patients-association.org.uk #SickleCell #PatientVoice

💙 Happy Father’s Day to all the amazing sickle cell dads.

Whether you live with it or care for someone who does, your strength, patience & love inspire us every day.

Wishing you rest, recovery & recognition

— From all at @SickleCellUK 🩸

🩸 Join Whittington Health & NCL ICS for World Sickle Cell Day on Thurs 19 June!
Meet the NCL Red Cell Team & raise awareness across local centres incl. Wood Green, UCLH, North Mid & more.

📧 ncl.redcellteam@nhs.net
#SickleCell #TogetherForChange

📢 In the lead-up to #WorldSickleCellDay, we’re calling for change.

People with sickle cell deserve stronger workplace rights & better employer education.

✊🏾 Write to your MP today: www.sicklecellsociety.org/wscd25

#TellItLoud #YourVoiceMatters

Live with Sickle Cell Disease? Aged 18+ & registered with a haematology team in England?

Join the RISE Study! 💬 Help shape better self-management tools through online group sessions.

🔗 buff.ly/lRBoomL
📧 rmclough@citystgeorges.ac.uk
#SickleCell #RISEStudy