We got asked by several parents if there was anything that they could take into a school to help the school understand Dystonia. We made this for them.
#Dystonia #childhooddystonia #complexcare
06.02.2026 20:44 — 👍 1 🔁 0 💬 0 📌 0
A child with both Epilepsy and Dystonia can be challenging. Parents often have to differentiate the differences between what is a seizure and what is Dystonia this can often take years and over time our children like to throw a curve ball.
We recognise November as Epilepsy awareness month 💜💙.
10.11.2025 08:06 — 👍 0 🔁 0 💬 0 📌 0
Did you know ?? 💙 lets share this post best way to educate others about Dystonia is teaching them about something they already know.
#FocalDystonia #writerscramp #dystonia #dystoniaawareness
10.09.2025 13:19 — 👍 0 🔁 0 💬 0 📌 0
💙Dystonia Awareness month post💙
👉 whats is generalised Dystonia
#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
10.09.2025 06:05 — 👍 1 🔁 0 💬 0 📌 0
Join our Childhood Dystonia Support Group – open to children with dystonia, parents & close family across the UK & Europe. 💙
A safe space to share, connect & support each others.
please share!
👉 Join here: facebook.com/share/g/1FURiL…
#Dystonia #Dystoniaawareness #Dystoniasupport
08.09.2025 09:23 — 👍 0 🔁 0 💬 0 📌 0
Dystonia Awareness month post 💙
Highlighting Respiratory Dystonia 💙💙
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
08.09.2025 06:24 — 👍 0 🔁 0 💬 0 📌 0
A Proverb with such an important meaning behind it. Raising a complex child takes a village.
♥️💙💜💚💛
#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
07.09.2025 14:24 — 👍 0 🔁 0 💬 0 📌 0
Dystonia Awareness month post 💙.
Today we share HemiDystonia awareness. What is Hemidystonia and what causes it 💙.
#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
07.09.2025 07:06 — 👍 0 🔁 0 💬 0 📌 0
We have some incredibly educational Dystonia posts we have and will sharing throughout Dystonia awareness month so make sure to keep up with our page 💙💙
06.09.2025 09:54 — 👍 0 🔁 0 💬 0 📌 0
thank you Hannah we will give it a reshare 💙
06.09.2025 09:51 — 👍 1 🔁 1 💬 0 📌 0
thank you Hannah we will give it a reshare 💙
06.09.2025 09:51 — 👍 1 🔁 1 💬 0 📌 0
Dystonia Awareness month post today we are highlighting a fairly newer type of Dystonia GI Dystonia/Gut Dystonia.
#Dystonia #gutdystonia #gidystonia #dystoniaawareness
06.09.2025 05:54 — 👍 0 🔁 0 💬 0 📌 0
Dystonia in Epilepsy syndromes is a very real thing and can make both extremely hard to treat.
#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
05.09.2025 06:47 — 👍 0 🔁 0 💬 0 📌 0
Thank you for reposting 💙♥️
04.09.2025 07:31 — 👍 0 🔁 0 💬 0 📌 0
Dystonia Awareness month post!!
Today we highlight Spastic and Dystonic CP 💙💙
#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
04.09.2025 06:04 — 👍 2 🔁 1 💬 1 📌 0
What is Genetic Dystonia !!
#Dam2025 #dystonia #dystoniaawareness #geneticdystonia
02.09.2025 07:08 — 👍 0 🔁 0 💬 0 📌 0
Dystonia is a condition in its own right and should be considered as such. 💙
#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
01.09.2025 06:17 — 👍 0 🔁 0 💬 0 📌 0
Tomorrow is the start of Dystonia Awareness month
What a better time to share our Parents guide to Dystonia.
The full guide can be viewed or downloaded at cdauk.org
#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
31.08.2025 08:39 — 👍 0 🔁 0 💬 0 📌 0
September is Dystonia awareness month. Next month we will be posting lots of posts about childhood Dystonia.
Parent who is syruggling and need support ? our facebook group offers private parent to parent support.
www.facebook.com/share/g/1BDS...
#Dystonia #Dystoniaawareness #childhooddystonia
13.08.2025 09:08 — 👍 0 🔁 0 💬 0 📌 0
Optimizing the lifelong health and wellness of people with cerebral palsy and their families through high quality research, education and community programming.
We’re a charity that improves the lives of children and adults with cerebral palsy through specialist therapy, support and information.
Hello, visitor, Grab a snack and get comfy.
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I’m FruityFruit6 on that other place!!!
• Consultant Neurologist RWT - Movement and Cognitive disorders • Honorary Consultant Queen Elizabeth Hospital Birmingham • NIHR West Midlands Specialty Lead for Neuro-degeneration and Dementia • Honorary post-doctoral researcher, John Hardy Lab UCL
Autonomic and Movement Neurologist @ Mayo Clinic 🧠Residency Program Director 🌟Triathlete, skier, mother of 4💙
Pediatric neurologist, movement disorders specialist, educator, researcher
Neurologist with interest in Parkinson's disease and related movement disorders
Movement Disorders Neurologist, UCLA/VA, Travel/ Live Music Junkee, Jazz, Mom of 3 Boys, Mindfulness/ Yoga, 🇮🇳🇨🇦🇺🇸
Paediatric Neurologist, Prof, Royal Hospital for Children, Glasgow & Lead Paediatric Neurosciences Research Group, University of Glasgow. Neurodevelopment Co-Lead, Epilepsy Research Institute UK, Board Member EBC & EPNS
#apaediatriclife reflections! | Children seen & heard...better outcomes | More baking | Consultant Paediatrician Sherwood Forest | Epilepsy12 Lead | BPNA course content Mx | Views own
Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The Dystonia Medical Research Foundation (DMRF) is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
