Love this! #pacing #pwme
20.12.2024 13:13 — 👍 2 🔁 0 💬 0 📌 0Love this! #pacing #pwme
20.12.2024 13:13 — 👍 2 🔁 0 💬 0 📌 0Back to work for a couple of hours today in clinic ❤️ #pacing #pwme
12.12.2024 14:37 — 👍 8 🔁 0 💬 0 📌 0All my plants are fake, cannot keep them alive 🫣 Look forward to seeing yours bloom x
10.12.2024 18:04 — 👍 1 🔁 0 💬 0 📌 0That’s a sleep mask on his head by the way….. 🤣
10.12.2024 18:04 — 👍 1 🔁 0 💬 0 📌 0My son has had surgery so we are both lying low and enjoying Christmas films ❤️
10.12.2024 18:03 — 👍 3 🔁 0 💬 1 📌 0No problem at all, here to help! 😍
05.12.2024 08:59 — 👍 1 🔁 0 💬 0 📌 0You need an established and consistent baseline in order to build up to tolerate any change in your current resting ’angle’
04.12.2024 22:42 — 👍 1 🔁 0 💬 1 📌 0
Im a specialist ME Physio( I have ME). You need to make surenyou have a physio with a deep understanding and
special interest in ME that can work with you very slowly
ME Research UK: Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research. Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - https://bit.ly/3Z3ISgt #MEcfs #PwME #CFS
ME Research UK:
Immune exhaustion is a state in which the immune system becomes less effective over time. It is a topic that has been garnering increasing attention in ME/CFS research.
Read about a recent study exploring immune exhaustion in ME/CFS & #longCOVID - bit.ly/3Z3ISgt
#MEcfs #PwME #CFS
When your husband just ‘gets’ ME! #pwME
03.12.2024 15:34 — 👍 3 🔁 0 💬 0 📌 0So true! Genuinely look like the third one today 🤣
02.12.2024 18:23 — 👍 1 🔁 0 💬 0 📌 0Yes they are so heavy - I can’t use it on my own as needs lifting in and out 🫣
01.12.2024 20:45 — 👍 1 🔁 0 💬 1 📌 0Thank you 😍
28.11.2024 21:54 — 👍 0 🔁 0 💬 0 📌 0Your material is fantastic, I’m an avid follower. I’m wanting to put on my website quick and easy everyday pacing tips and downloads for my patients
28.11.2024 21:21 — 👍 1 🔁 0 💬 2 📌 0I think a lot of people feel that way til they try it, it’s learning not to push through for a lot of us
28.11.2024 21:15 — 👍 1 🔁 0 💬 0 📌 0Aw congratulations to him! Yeah there’s no way I could have walked round the shop, just was lovely really to access something I haven’t been able to
28.11.2024 20:44 — 👍 0 🔁 0 💬 1 📌 0Just been out in my wheelchair to the shop- part of my pacing after having Covid a couple of months back. My husband said how great it was to be able to be out with me. Definite gamechanger for me #pwME
28.11.2024 20:01 — 👍 11 🔁 1 💬 2 📌 0Absolutely they are amazing! As a person and physio with ME I’d just like to put material that is practical to implement ….. will put my thinking cap back on
28.11.2024 19:56 — 👍 1 🔁 0 💬 0 📌 0Ah yes they are fab, I want to put different from your usual info - should have put that on my post!
28.11.2024 19:25 — 👍 0 🔁 0 💬 1 📌 0Cripes 😬
28.11.2024 14:25 — 👍 0 🔁 0 💬 0 📌 0Feel free to email me admin@mephysio.org.uk if you don’t want to make it public 🥰
28.11.2024 14:25 — 👍 0 🔁 0 💬 0 📌 0🤣
28.11.2024 13:47 — 👍 0 🔁 0 💬 0 📌 0
ME community - I’m updating my website & I’m going to put free resources on there about pacing etc as I want to give back
If you were looking at physiotherapy for ME - what would be your FAQ’s? Or what resources would you like access to?
#pwME #myalgicencephalomyelitis #mecfs #spoonie
😬
28.11.2024 13:05 — 👍 1 🔁 0 💬 0 📌 0Nooooooo 🤢
28.11.2024 13:03 — 👍 1 🔁 0 💬 1 📌 0Tell me you didn’t taste it 🫣
28.11.2024 13:02 — 👍 0 🔁 0 💬 1 📌 0A graphic featuring a stethoscope and clipboard in the background, with the text: "Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal." Includes "action for m.e." branding, research and healthcare tags, and a QR code.
'Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal'
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
Thank for sharing this!
28.11.2024 10:34 — 👍 1 🔁 0 💬 0 📌 0🤭
28.11.2024 00:41 — 👍 1 🔁 0 💬 0 📌 0When you’re trying to sleep but your husband is snoring so loudly you can’t even hear your audio book 🙄
28.11.2024 00:38 — 👍 3 🔁 0 💬 1 📌 0