#GreatestMEdicalscandal
#JohnVSJonVSME
12.02.2025 00:04 β π 7 π 4 π¬ 0 π 0
#greatestMEdicalscandal #JohnVSJonVSME
Remember to share with your friends and family and have your love fest MEmeβs ready for Friday π
12.02.2025 00:03 β π 4 π 3 π¬ 0 π 0
#johnVSjonVSME #GreatestMEdicalscandal
09.02.2025 11:24 β π 3 π 1 π¬ 0 π 0
A screenshot of the first page of the petition showing Line, a 26-year-old white woman
A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months.
The core values page on their website states that "It is crucial that the residents are met
with:
Respect
Dignity
Empathy
Realistic Expectations"
Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they canβt get out of bed.
bit.ly/linepetition
20.01.2025 13:15 β π 81 π 50 π¬ 8 π 9
Such a powerful message ππ
18.01.2025 14:02 β π 3 π 1 π¬ 0 π 0
ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someoneβs life depends on it.
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de MΓ©xico. #ME #MECFS #POTS #LongCovid
Calling for an NHS that's there for Long Covid & Myalgic Encephalomyelitis (ME) | www.thereforme.uk
she/her β¦ ecology lover β¦ πβπ« β¦
musings from the sickbed β¦ π» β¦
one of the millions missing #myalgicencephalomyelitis β¦ ποΈ β¦
Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time π€
a small chronically ill creature (moderate-severe ME/CFS) from finland, known as piengreta.
Chaotic good writer and scientist with severe, bed bound MECFS. Writing wholesome stories, science stuff, and funny anecdotes from bed. Lover of memes.
jesshoneybadger.substack.com
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com
(She/her) ME, hEDS, adeno ~ surviving being housebound with birds, books, embroidery ~ still masking π·
#pwME #MillionsMissing
Lover of woods and mountains, botany and dragons, childrenβs books and much more.
π³β°οΈπ₯Ύπ¦ππ§π»βππͺ
Stuck in an uncooperative body, severe Long Covid/ME.
#LongCOVID #mecfs #pwme
π΅πΈ π±π§
Severe ME | Activism from bed | Small joys
She/her
Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
illustrator & motion designer, memes, disability justice and climate | she/her | https://laurabeckman.com
She/her. Mostly talking about life housebound by chronic illness (when I have enough energy to).
#pwME
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
π #MECFS et al. | π GM at @operamariposa.bsky.social
πMST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
My body has given up but I haven't...
ME/CFS Patient Leader & Complex-Chronic Disease Advocate (on hiatus). Co-founder #MEAction Maryland. Bed-tethered disabled by severe ME & LC & comorbids.
Orioles/Ravens/Caps fan. She/her
Just a Mama navigating parenting with a chronic illness.
Mild ME/CFS & IST
Aotearoa, New Zealand.