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Brian Shuell

@bshuell.bsky.social

Living a limited life, missing from many places. Aspiring to be well again. Occasionally bipedal. #mecfs

952 Followers  |  415 Following  |  188 Posts  |  Joined: 28.09.2023
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Posts by Brian Shuell (@bshuell.bsky.social)

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Tulane study reveals key differences in long-term impacts of COVID-19 and flu Tulane University News and Press Releases

Tulane University: “Tulane study reveals key differences in long-term impacts of COVID-19 and flu”

“The findings, published in Frontiers in Immunology, help explain why long COVID often includes neurological symptoms such as brain fog, fatigue…”

news.tulane.edu/pr/tulane-st...

27.02.2026 15:11 — 👍 10    🔁 7    💬 1    📌 0
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‘Nearly Every’ Child With Measles Suffers This Hidden Threat Immune amnesia — measles’ little-known complication — can leave unvaccinated children at a higher risk for infections for years.

‘Nearly Every’ Child With Measles Suffers This Hidden Threat

27.02.2026 16:01 — 👍 1    🔁 0    💬 0    📌 0
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How Covid Quietly Rewires the Brain Researchers keep discovering more about the long-term neurological effects of SARS-CoV-2.

Bloomberg: How Covid Quietly Rewires the Brain

Researchers keep discovering more about the long-term neurological effects of SARS-CoV-2.

By Jason Gale

www.bloomberg.com/news/feature...

25.02.2026 13:49 — 👍 48    🔁 25    💬 2    📌 5

I totally agree. Like the saying goes, a well defined problem is half solved.

19.02.2026 20:44 — 👍 2    🔁 0    💬 0    📌 0
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we need to talk about that Ring Super Bowl ad

10.02.2026 20:18 — 👍 31320    🔁 13786    💬 971    📌 1691
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Colbert Slams FCC and CBS, Priming for Fight Over Equal-Time Rules In a biting monologue on ‘The Late Show,’ the comedian said his network was cowering to regulators prematurely.

"With an autocrat, you cannot give an inch"

17.02.2026 19:14 — 👍 0    🔁 0    💬 0    📌 0
UNREST Feature Documentary (With Captions and Multilingual Subtitles)
YouTube video by Unrest Film UNREST Feature Documentary (With Captions and Multilingual Subtitles)

ME/CFS is debilitating enuf to tend to disappear those affected from public life, so many people have no idea what it looks like.

If you’re curious, this Sundance-premiered, Oscar-shortlisted doc streams free on YouTube and does a remarkable job making visible an illness usually obscured from view.

13.02.2026 21:34 — 👍 52    🔁 22    💬 2    📌 2
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✅ ✅ Submitted support for Maryland's TEDCO Long COVID Innovation Grant and Loan Program (HB0027) this AM!

06.02.2026 15:23 — 👍 13    🔁 4    💬 1    📌 1

May still be time to sneak in a testimony for anyone wanting to support the effort to get dedicated research funds for Long Covid in Maryland. #LongCovid #MECFS

06.02.2026 20:27 — 👍 8    🔁 4    💬 0    📌 0
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Hackers Recruit Unhappy Insiders to Bypass Data Security The souring economy has hackers on the hunt for disgruntled workers open to assisting with cyberattacks through authorized access into their employer’s digital systems.

CISA was DOGEd last year. AI will be taking corporate jobs that have security privileges. Seems like a perfect storm for cyber security nighmare.

03.02.2026 00:56 — 👍 0    🔁 0    💬 0    📌 0

If you are worried how data will be used against ICE protesters.

Or how smart homes reveal your secrets.

Or smart cars or medical devices will become evidence in court.

Listen to this conversation.

There are risks, rewards, and even solutions…

01.02.2026 18:58 — 👍 146    🔁 72    💬 2    📌 2
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Ok y'all. Whats going on is making me cry on the regular. It feels weird to be here at the GRAMMYs - but I want to honor the music of my ancestors by playing it- we gonna do some busking tomorrow, come say hello if you’re in town for the shindig.

31.01.2026 23:47 — 👍 858    🔁 176    💬 13    📌 17
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Religious Leaders in Minnesota Say It’s Their Duty to Resist ICE

NYT: 'Religious Leaders in Minnesota Say It’s Their Duty to Resist ICE'

'Progressive clergy members are in the spotlight — protesting, organizing and getting arrested. It’s a split screen to the Trump administration’s muscular, conservative Christianity'

www.nytimes.com/2026/02/01/b...

01.02.2026 19:47 — 👍 14    🔁 6    💬 0    📌 0
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In the Twin Cities, ICE resistance goes mainstream • Minnesota Reformer The week before an ICE agent shot and killed Renee Good in south Minneapolis, her 67-year-old neighbor Terri Sullivan heard that a school in nearby Richfield that serves mostly Latino students needed ...

'In the Twin Cities, ICE resistance goes mainstream'

“Doing nothing isn’t okay.”

“This movement that we’re building is about love and it’s about the powerful futures that we want to build each other."

minnesotareformer.com/2026/01/21/i...

31.01.2026 21:54 — 👍 8    🔁 3    💬 1    📌 0
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A red hat, inspired by a symbol of resistance to Nazi occupation, gains traction in Minnesota A Minneapolis knitting shop has resurrected the design of a Norwegian cap worn to protest Nazi occupation. Its owner says the money raised from hat pattern sales will support the local immigrant commu...

NPR: 'A red hat, inspired by a symbol of resistance to Nazi occupation, gains traction in Minnesota'

'Since making the pattern available for $5, the shop has raised nearly $400,000, Mashaal said Friday.'

www.npr.org/2026/01/31/n...

31.01.2026 21:55 — 👍 123    🔁 59    💬 2    📌 5
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St. Peter police chief intervenes, prevents federal agents from arresting resident The police chief of St. Peter intervened to prevent federal agents from taking a local resident who was observing ICE enforcement actions into custody. It is believed to the first time local police in...

"MPR News has learned that the police chief in the small southern Minnesota city of St. Peter intervened Thursday afternoon to prevent federal immigration agents from arresting a local resident" who had been observing federal agents. www.mprnews.org/story/2026/0...

31.01.2026 14:48 — 👍 6963    🔁 2423    💬 319    📌 622
POTS : An Invisible Illness  | Full Movie
YouTube video by PCARES POTS : An Invisible Illness | Full Movie

A very good 17 minute documentary on POTS. If you are someone you love suffers from POTS this might be a helpful video to share with them and would be good to share with Healthcare providers.

06.12.2025 18:06 — 👍 8    🔁 3    💬 0    📌 0
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Your Brain Has a Built-In Isolation Mode - Neuroscience News New research uncovers the exact immune-to-brain pathway that drives the loss of social motivation during sickness.

Is this one of the many facets of PEM that is found in people with #longcovid and #mecfs?

26.11.2025 14:13 — 👍 8    🔁 2    💬 0    📌 0
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I have long Covid. Don’t call my chronic disease a ‘journey’ A “journey” is something you choose. No one chooses chronic illness.

I have long Covid. Don’t call my chronic disease a ‘journey’ www.statnews.com/2025/11/25/c... via @statnews.com

26.11.2025 10:39 — 👍 19    🔁 4    💬 2    📌 0
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Research Into ME/CFS Pathology Points to Possible Treatments With greater understanding of the complex pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome, researchers aim to target treatments.

Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...

08.11.2025 16:33 — 👍 46    🔁 18    💬 2    📌 2
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No Evidence Supports Using Graded Exercise for ME/CFS Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’

"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...

31.10.2025 13:18 — 👍 125    🔁 58    💬 3    📌 7
SAVE PUBLIC MEDIA STATIONS

#SAVEOURSTATIONS

☑

PROTECTMY PUBLIC MEDIA

SAVE PUBLIC MEDIA STATIONS #SAVEOURSTATIONS ☑ PROTECTMY PUBLIC MEDIA

29.10.2025 18:35 — 👍 1    🔁 0    💬 0    📌 0
Picture of Ron Davis with white hair, a beard, and glasses is wearing a green checkered shirt. He is looking slightly toward the camera. Behind him, the background is softly blurred with a wall and some indistinct writing visible. At the top of the image, white text reads: “Community Symposium on the Molecular Basis of ME/CFS.”

Picture of Ron Davis with white hair, a beard, and glasses is wearing a green checkered shirt. He is looking slightly toward the camera. Behind him, the background is softly blurred with a wall and some indistinct writing visible. At the top of the image, white text reads: “Community Symposium on the Molecular Basis of ME/CFS.”

🎥 Recordings Available: Community Symposium on the Molecular Basis of ME/CFS

👉 Access them here: ow.ly/Aw2G50XcIIO

#MECFS #pwME

21.10.2025 21:55 — 👍 19    🔁 10    💬 0    📌 0
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Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study - Journal of Translational Medicine Background mTOR activation is associated with chronic inflammation in ME/CFS. Previous studies have shown that sustained mTOR activation may cause chronic muscle fatigue by inhibiting ATG13-mediated a...

Just published: Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study. J Transl Med 23, 1148 (2025). doi.org/10.1186/s129...

21.10.2025 16:41 — 👍 13    🔁 8    💬 1    📌 0
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A caregiver's survival guide: Advice from people who've been there Family caregivers offer their wit, wisdom and survival tips for the hardest unpaid job in America.

Sunday morning read: www.npr.org/2025/10/18/n...

19.10.2025 13:15 — 👍 1    🔁 1    💬 1    📌 0

Someone knowing their limits and stopping before a crash starts is an important part of pacing yourself. Very concerning conclusions.

18.10.2025 20:56 — 👍 81    🔁 10    💬 3    📌 0

Just a reminder that this is coming up quickly, on 10/31. You can register to watch remotely or in person. Im very curious to see what they come up with.

18.10.2025 14:05 — 👍 0    🔁 0    💬 0    📌 0

Great meme and yes, i will likely borrow it.

18.10.2025 13:42 — 👍 0    🔁 0    💬 0    📌 0

This is a beautifully worded description of how people with ME have to navigate the world. I have yet to meet a person with ME who "prefers" living like this. In fact, we abhor it.

18.10.2025 12:51 — 👍 6    🔁 1    💬 0    📌 0

#NEISvoid inside baseball—

The NIH team’s response to this (the Davenport et al comment) is awful.

It’s here: www.nature.com/articles/s41...

1/

18.10.2025 03:55 — 👍 50    🔁 17    💬 5    📌 4