British Dupuytren's Society

For anyone who's had surgery for Dupuytrens, there's this app to help you: myrecovery.app/bds

@dupuytren.bsky.social welcome on the blue site!

Screenshot of email explaining that the four finger requirement can be waved if people are physically unable to comply

Some UK Dupuytren patients worry about travelling to Europe once ETIAS has started.
We approached the relevant authorities, who assured us hand and finger disabilities will not prevent travel.

Sadly we are familiar with that problem!

Ventoux Biosciences Secures U.S. Patent for Novel Therapy Targeting Dupuytren's Disease and Immune-Fibrotic Disorders /PRNewswire/ -- Ventoux Biosciences, a biotechnology company developing disease-modifying therapies for fibrotic conditions, today announced the issuance of a...

Another big step towards understanding the condition and maybe a cure.
www.prnewswire.com/news-release...

The Research Room - YouTube Discover the groundbreaking clinical trials happening at the York Trials Unit at the University of York! Join us each week in The Research Room where we sit ...

The DISC trial compared fasciectomy with collagenase. Now the team is presents the trial and the results in a two-part podcast.

Listen to the Podcasts by The Research Room on Spotify, Apple Podcasts, Amazon Music or www.youtube.com/playlist?lis...

Dupuytren Disease Group

FESSH has a new SIG - specialised subject Dupuytren's Disease
fessh.com/dupuytren-di...

Dupuytren’s Disease and Rock Climbing: What Climbers Need to Know Learn how rock climbing increases Dupuytren's disease risk by 20% in climbers. Discover early treatment options including radiotherapy, symptoms to watch for, and how climbers can continue their sport...

dupuytrensuk.com/dupuytrens-d...

Dupuytren’s Contracture and Trigger Finger: Are They Connected? Discover the surprising connection between Dupuytren's contracture and trigger finger. Learn how these hand conditions interact, share risk factors, and affect treatment planning. Expert insights from...

dupuytrensuk.com/dupuytrens-c...

For Dupuytren patients in NW England: a new (private) hand clinic has opened in Warrington with several surgeons who are very experienced treating Dupuytren's. They offer a good range of treatments.
www.iishealth.com

Astro put out a call for papers on radiation for benign diseases.
See this pdf for more information.
www.advancesradonc.org/pb-assets/He...

YouTube video by British Dupuytrens-Society Surface Anatomy of the Hand: A patient guide

There's no stopping Dr Shaffer! Here is his latest video on 'surface anatomy of the hand'
Informative! Enjoy and learn
youtu.be/fw2lF6_9te8?...

Good news! The videos of the 2025 Conference presentations are now online. Check them out!
#Dupuytren #Ledderhose #Peyronie
dupuytrensymposium.org/scientific-p...

Dupuytren Disease Group

FESSH now has an official Dupuytren Disease Group!
(Federation of European Societies for Surgery of the Hand)
fessh.com/dupuytren-di...

YouTube video by British Dupuytrens-Society What is the palmar fascia anyway?!

A new video on our YouTube channel, made by Dr Shaffer!
youtu.be/ILflvdbk72I?...

Patient Pathway Dupuytren Conference 2025 talk | The British Dupuytren's Society The patient's first port of call will be either a general practitioner or Dr Google. If patients can't get a GP appointment or a definite diagnosis, Dr Google is a popular alternative. If the patient ...

At the recent Dupuytren Conference our charity was represented by Prof Furniss, Prof Ralph and Anna Schurer. Each of them gave a presentation.
Anna's presentation can be read here:
dupuytrens-society.org.uk/patient-path...

Homepage for the British Dupuytren's Society Providing support and information About Us We provide support and information to people affected by Dupuytren's, Ledderhose, Peyronie's and related conditions. Read More Personal Stories Personal stor...

Our website had 8,700 visitors over the last month.
That tells you something about how many people want more information on these diseases!
dupuytrens-society.org.uk

He wants all patients to have a chance to hear about the option and discuss it.
So if you live in Mid or South Essex, and are willing to get involved, please message me your contact info, or email me anna@dupuytrens-society.org.uk

He wants to set up a group to raise awareness of radiotherapy for these condition among GPs and surgeons, maybe through meetings or a webinar. He said at the moment patients only get referred to him if they have read about the radiotherapy option or our website. (2)

You can make a difference!
I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose.
He would like to set up a group of patient advocates who live in the region. (1)

www.ageuk.org.uk/discover/202...

For anyone in the UK: PD labs is hoping to make Verapamil gel more accessible
www.pdlabs.co.uk

Meet Real-time meetings by Google. Using your browser, share your video, desktop, and presentations with teammates and customers.

The next meeting is set for Saturday 21/06 at 3pm British time. It will last an hour, but if nobody shows up I will probably close it after 15-20 minutes.
Here is the link:
meet.google.com/sej-cmyp-oxi

Advert for fingerless padded cycling gloves

Not meaning to advertise UK people, but this Thursday (19June) Lidl have cycling gear, and the padded gloves that I got last year and absolutely LOVE will be in store again.
Means you can try them on for size. And at £4.99, I will be getting a few more pair.

It was a great conference

We would like everyone to sign up to the Dupuytrens Research Group study, to help get more understanding of the natural disease progress, risk factors and comorbidities.
They are searching for a biomarker of active disease.

Yes, if patients attend you can't have pharmaceutical sponsors so the attendance fees would have to be much higher.

YouTube video by KU Leuven videos Internationale Dupuytren Conferentie Brussel 2025

The first video of the 2025 Conference is online!
Recorded talks will come later, this is a compilation of interviews done at the event. Thanks to Yente Giegas for making this great memento.
youtube.com/watch?v=Y3_b...

Some of us in England were in the PPI group for Liz Laird's research in Liverpool. This article was just published as a result of the study she was doing. insight.jci.org/articles/vie...

Donate to Join the Fight: Advancing Dupuytren's Treatment, organized by Kurt Harrington Join Me in Advancing Dupuytren’s Disease Research My name is Ku… Kurt Harrington needs your support for Join the Fight: Advancing Dupuytren's Treatment

Kurt Harrington of Ventoux Biosciences has started a GoFundMe to raise money to allow him to continue his Dupuytren research. Small donations can add up to big things! Here is the link (picture: Kurt and his dad)
www.gofundme.com/f/join-the-f...