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ALS United Mid-Atlantic

@alsmidatlantic.bsky.social

Supporting ALS families in Pennsylvania, New Jersey, and Delaware. Learn more at www.alsmidatlantic.org

42 Followers  |  23 Following  |  29 Posts  |  Joined: 26.11.2024
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Posts by ALS United Mid-Atlantic (@alsmidatlantic.bsky.social)

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This Thanksgiving, we’re reminded of what truly matters: love, courage, and community. We are grateful for our ALS United Mid-Atlantic family, the 1,200+ people living with ALS, their devoted families, and the countless friends across PA, NJ, and DE who lift us all with hope and unwavering support.

27.11.2025 16:47 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us wish a very happy birthday to ALS United Mid-Atlantic Board Chair Emeritus, Ellyn Phillips!

For more than 40 years, Ellyn has been a national leader in the fight against ALS, championing research, advocacy, awareness, and fundraising with unwavering dedication.

22.11.2025 17:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#podcastclips Irene from BioCurie discusses #genomesequencing on our #ALS #podcast

06.11.2025 23:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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On behalf of the staff at ALS United Mid-Atlantic, we are forever grateful for Jeff’s tremendous leadership and wish him well in his retirement. We look forward to carrying his spirit and commitment into the next chapter of our organization’s journey.

27.08.2025 20:47 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This December, Jeff will be retiring to enjoy more precious moments with his grandkids and well-deserved days on the golf course.

27.08.2025 20:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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We’re excited to share some special news from ALS United Mid-Atlantic’s Executive Director, Jeff Cline. For the past twenty years, Jeff has been a cherished part of our community, touching the lives of countless families with his unwavering dedication and kindness.

27.08.2025 20:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 1
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In our latest GOALS Podcast, Doug Yocum talks about living with ALS and his favorite events with ALS United Mid-Atlantic. Full episode is now on YouTube, Spotify and iTunes.

Join our ALS mission at www.alsmidatlantic.org

#ALS #Podcast

19.06.2025 19:31 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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May is ALS Awareness Month and the University of Scranton Cheerleaders are excited to raise awareness for the ALS cause. Learn more about what motivates and inspires the ALS United Mid-Atlantic Volunteers of the Month at alsmidatlantic.org/may-2025-vol...

#ALS #alsawareness #alsawarenessmonth

01.05.2025 22:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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April is Occupational Therapy Month. ALS United Mid-Atlantic is proud to partner with exceptional Occupational Therapists like Gabriela Charles to ensure that people with ALS receive the best care possible.

Learn more about our ALS mission and programs at www.alsmidatlantic.org

#ALS #OTMonth

18.04.2025 19:08 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Lehigh Valley ALS patients, advocates fear what federal cuts for medical research mean for them As part of cost-cutting measures across the federal government, the Trump administration last month instituted a new National Institutes of Health policy that would strip research groups of hundred…

I’ve met a lot of ALS patients and family members and they know there’s not going to be a cure for them but they don’t stop living,” said Valarie Schwarz of Bethlehem, a visiting volunteer for a Lehigh Valley ALS patient, and former ALS United Mid-Atlantic board member

www.mcall.com/2025/04/17/l...

17.04.2025 23:52 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Bryan Rosica recently returned to the classroom to read to students and show the power of speech technology. Read more in this uplifting "ALS U-Knighted" story: alsmidatlantic.org/u-knighted-f...

#ALS #ALSUnited #Teacher

31.03.2025 21:46 β€” πŸ‘ 0    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Bryan Rosica recently returned to the classroom to read to students and show the power of speech technology. Read more in this uplifting "ALS U-Knighted" story: alsmidatlantic.org/u-knighted-f...

#ALS #ALSUnited #Teacher

31.03.2025 21:46 β€” πŸ‘ 0    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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March is #nationalsocialworkmonth. Social Worker Jayne Etskovitz shares information on the valuable support groups that she leads through ALS United Mid-Atlantic. Learn more at www.alsmidatlantic.org
#als #alsunited #alsawareness #caregiving #socialwork

31.03.2025 19:10 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Alisa Brownlee joins the ALS United Mid-Atlantic GOALS Podcast to discuss the personal connections between people with ALS and our care team members. Full episode available on March 18th! Learn more a... TikTok video by ALSMidAtlantic

Follow our TikTok account for more ALS United Mid-Atlantic GOALS Podcast clips:

www.tiktok.com/t/ZT2peVpDT/

18.03.2025 01:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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March 8th is International Women's Day! Today, we want to take a moment to honor the talented women on our Care Service team. The Care Services team is the heart of our organization.

Today, we encourage you to share one way a woman on our Care Services team impacted your life.

08.03.2025 15:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The first ALS United Mid-Atlantic GOALS Podcast is live! Board member Crystal Goodwyn discusses her brother's life with ALS, the support from the Philadelphia Phillies, and progress in ALS care and research.

Listen now on Spotify, YouTube, and at: alsunitedmidatlantic.podbean.com/e/goals-podc...

19.02.2025 17:56 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Happy Valentine's Day to our friends and families who are part of our ALS community. ALS United Mid-Atlantic extends our love to those living with ALS and their families.

Join our mission at www.alsmidatlantic.org

#ALS #ALSUnited #valentineday #valentine #love

14.02.2025 15:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us recognize our February 2025 Volunteer of the Month... Marie Mullins-Bishop! Since her husband was diagnosed with ALS, Marie has been a source of comfort and encouragement for all ALS caregivers. Read and share her story now at: alsmidatlantic.org/february-202...

#ALS #ALSUnited #volunteer

01.02.2025 18:32 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thanks to ALS Caregiver Marie Mullins Bishop for sharing this positive encouragement for all ALS caregivers. Remember, our ALS United Mid-Atlantic team is always here for you to answer questions and to listen to your concerns. Learn more at www.alsmidatlantic.org

13.01.2025 19:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us wish a very HAPPY BIRTHDAY to our Director of Care Services, Steve Spaulding, MA!

Steve and his team of healthcare professionals are always ready to provide care, comfort, compassion, and advice to those living with ALS, their caregivers, and their families.

06.01.2025 18:14 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us recognize our first Volunteer of the Month for 2025...Joyce Paugh! Joyce has been a leader for the ALS United Walk and the ALS cause for 20 years in loving memory of her husband Racey. Read her story now at: alsmidatlantic.org/january-2025...

#ALS #ALSUnited #alsawareness #volunteer

01.01.2025 18:56 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you to everyone who supported our ALS mission in 2024. You make our programs and research possible. Continue our progress at www.alsmidatlantic.org

30.12.2024 15:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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As 2024 comes to a close, join us in remembering some of the major highlights from a momentous year. Thank you to the Phillies for all that they have done to Strike Out ALS since 1984.

Continue to support the ALS United Mid-Atlantic mission by making your year-end gift at www.alsmidatlantic.org

26.12.2024 18:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Happy Holidays from all of us at ALS United Mid-Atlantic! We hope you have a joyful and safe holiday.

25.12.2024 14:48 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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There are only TWO WEEKS left to make your tax-deductible gift before the end of 2024! Your gift to ALS United Mid-Atlantic to fund ALS care and research will be MATCHED. Donate now at: alsmidatlantic.org/ways-to-give...

#ALSUnited #ALS #endofyear

18.12.2024 20:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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U.S. Veterans are 2x more likely to develop ALS than non-veterans. This bill expanding caregiver benefits & home-based care has passed Congress and awaits the President's signature. Thank you to all the advocates & elected officials who worked to make this happen! #ALS #Veterans

17.12.2024 15:43 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Help us celebrate the ALS United Mid-Atlantic 2024 Volunteers of the Year.... Marc and Lori Schefsky! Marc and Lori are tireless advocates for the ALS cause and have gone above and beyond to bring awareness to ALS in every way possible.

#ALS #ALSUnited

17.12.2024 18:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Two weeks ago, @allelitewrestling.com stars @bowensofficial.bsky.social @dabryceisright.bsky.social and Wheeler Yuta joined our Annual Celebration to recognize the Phillies and help to ##StrikeOutALS

Join our mission now at www.alsmidatlantic.org

29.11.2024 19:51 β€” πŸ‘ 27    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
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Happy Thanksgiving to everyone who is part of our ALS mission.

We could not do what we do without you. With your continued support, we will do even more in 2025 and beyond to benefit the over 1,200 people living with ALS who we serve each year in Pennsylvania, New Jersey, and Delaware.

28.11.2024 15:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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37-year-old artist with ALS creates moving portraits of people with the fatal disease β€œYou feel this urgency to get things done while you still can.”

Thank you to The Today Show for highlighting the amazing artwork of our friend Eric Brunner, who is living with ALS and using his talents to lift up others impacted by ALS:

www.today.com/parents/dads...

27.11.2024 14:42 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0