MDR-RA Project

On 19 Jan, #MDRRA joined EU rheumatology projects to exchange on stakeholder engagement, with a strong focus on patients & PRPs.
Key takeaways: plan engagement early, support PRPs properly, use accessible language, and manage expectations transparently.

MDR-RA’s first public webinar highlighted how patient partnerships strengthen research and real-world impact in difficult-to-treat rheumatoid arthritis.

Patients and PRPs are shaping the iCare-RA model from the start — proving patient involvement is scientifically essential.

⏰ Final registration call! Join the MDR-RA webinar today at 17:00 CET. Learn how patients and PRPs help shape the iCare-RA model and why patient collaboration drives innovation in RA research. 💻 Online | 🔗 Register now:
us06web.zoom.us/webinar/regi...

⏰ Happening tomorrow!
Don’t miss the MDR-RA webinar on patient-centred innovation in rheumatoid arthritis. Join patients, PRPs, patient organisations, and researchers to explore how collaboration is shaping the iCare-RA model. Sign up today and secure your spot! Register here- bit.ly/4qSCAfT

Join our MDR-RA webinar and explore how patients, PRPs, and patient organisations actively shape innovation in rheumatoid arthritis research.
Learn how collaboration drives the co-development of the iCare-RA model.
🗓️ 20 Jan | 17:00 CET 🔗 Register now bit.ly/4qSCAfT

Season’s greetings from the #MDRRA project 🎄
Thank you to all partners, patient organisations & supporters for your dedication and collaboration. We look forward to an exciting 2026, with first results from our joint work towards better, patient-centred RA care. Wishing you peaceful holidays.

📢 MDR-RA Webinar!
Patients at the centre of RA innovation. Join our MDR-RA webinar on patient-centred innovation in rheumatoid arthritis for patients, PRPs & researchers.
🗓 20 Jan ⏰ 17:00 CET 💻 Online
🔗 us06web.zoom.us/webinar/regi...

MDR-RA was represented at the EULAR PARE Conference by Katy Antonopoulou, Mariana Carvalho, and Souzi Makri. Mariana presented our project at the Best Practice Fair, highlighting MDR-RA’s mission to better understand multi-drug-resistant RA and strengthen patient involvement across Europe.

Listening to the Community

MDR-RA is gathering insights from patients, clinicians, policymakers, and advocacy groups across Europe on multi-drug resistance in RA. Their voices highlight treatment fatigue, the need for better tools, and equitable access.
Follow us as we deepen this dialogue.

In MDR-RA, patients aren’t just participants — they’re partners shaping research, communication, and care. Through our Patient Engagement Plan, people living with RA co-create studies and materials that reflect real needs. Science works best when it listens. 💙
#MDRRA #PatientInvolvement #CoCreation

Introducing iCare-RA — a smarter, more personal way to treat rheumatoid arthritis 🌿

By combining clinical data, molecular insights & patient-reported outcomes with AI, MDR-RA aims to guide truly personalised care.

Because every person with RA deserves tailored treatment.
#AI #RA #MDRRA

💙 On World Arthritis Day, 12th October 2025 we honour the voices of people living with RA and RMDs. Your #RMDreams — for less pain, more freedom, better care — inspire us all. Every dream matters. Together, we can achieve them. 🌍✨

#WAD2025 #WorldArthritisDay

💙 On World Arthritis Day, October 12th, 2025 we honour the voices of people living with RA and RMDs. Your #RMDreams — for less pain, more freedom, better care — inspire us all. Every dream matters. Together, we can achieve them. 🌍✨

#WAD2025 #WorldArthritisDay

Measuring Impact:
Beyond clinical value, MDR-RA is testing if the iCare-RA Tool is cost-effective & feasible in real healthcare.

From cost-effectiveness & micro-costing to stakeholder input, we’re building the case for smarter RA care.

🌍💡 #MDRRA #RAresearch #DigitalHealth

🔬 MDR-RA is preparing the groundwork for a future cluster trial of the AI-powered iCare-RA Tool.
Over 100 patients across Europe will eventually be enrolled to compare standard care vs. AI-supported decisions. A key step toward precision care in difficult-to-treat RA. #MDRRA #AI

🧠 MDR-RA is developing the iCare-RA Tool—an AI-powered assistant for rheumatologists. It will integrate clinical, molecular & imaging data to deliver tailored treatment options for difficult-to-treat RA. A bold step toward precision medicine! #Rheumatology #AI #MDRRA

Building the Evidence: PrOb-MDR-RA 🧩

MDR-RA is recruiting 80 D2T-RA patients across 16 EU/UK centres. 12-month follow-up with biopsies, imaging, QST & clinical data to power AI-driven iCare-RA and advance precision medicine in RA.

#MDRRA #RAresearch #ClinicalTrial #HorizonEurope #RealWorldEvidence

💥 Why do some RA patients stop responding to treatment?

Researchers across Europe are uncovering the molecular clues - from joint tissue to blood biomarkers - to crack drug resistance & enable precision care.
Read how our team is building the first molecular maps of drug-resistant RA www.mdr-ra.eu

What if science didn’t just speak about patients—but spoke with them, and through them?

With the #MDRRA project, that vision is becoming reality.
We’re honoured to collaborate with 14 patient organisations from 12 European countries.
#RAcommunity #PatientEngagement #HealthResearch #HorizonEurope

🎯 First in-person #MDRRA Consortium meeting in Verona!
✅ Progress on data infrastructure & clinical tools
🤝 14 patient orgs joined project
🧬 Observational study & AI tool underway
👏 Great leadership & inspiring opera night!
Stay connected - follow us on LinkedIn & visit our website for updates.

Spotted at #EULAR2025
Prof. Gremese & Dr. Bruno (HUMANITAS) with Prof. Alivernini (Università Cattolica del Sacro Cuore) at the MDR-RA booth!
Key experts driving MDR-RA project forward — combining clinical excellence with cutting-edge AI to improve care for RA patients.
Follow us @ EULAR and beyond.

At #EULAR2025 (Fri, 13 June, 15:45 CEST, Room B1), Prof. Costantino Pitzalis on synovial biopsy-guided treatment in RA — key for precision medicine & highly relevant for our MDR-RA work on Multi Drug Resistant Rheumatoid Arthritis. Excited for the session! 🔬🧬 #RA #MDRRA

🌍 MDR-RA at #EULAR2025 in Barcelona! 🇪🇸

Thrilled that our MDR-RA project is present at the EULAR 2025 Congress, taking place 11–14 June in Barcelona!
🔬 Visit our stand O9 – Our research on rheumatoid arthritis and drug repurposing will be featured among the top scientific contributions this year.

Deep Clinical Phenotyping: Understanding the human side of MDR-RA by integrating clinical data, pain profiling & imaging to stratify patients and tailor treatments. Toward a future of AI-powered, personalized RA care. #MDRRA #PainResearch #AIinHealthcare #RA

🔍 Transforming MDR-RA care with secure, AI-powered data tools! A Europe-wide platform is harmonizing patient data & using federated learning to fuel smart, privacy-first clinical insights. Personalized medicine, powered by tech. #MDRRA #AIinHealth #DigitalHealth #Rheumatology

Tackling MDR-RA: 1.5M+ in the EU affected, 50% face treatment failure. The MDR-RA project develops iCare-RA, an AI tool using 25k+ datasets to guide treatment, improve outcomes & cut costs across EU care. #MDRRA #RA #AIHealth #HorizonEU #DigitalHealth #ClinicalTrials

🌍 On #WorldHealthDay we stand by #RA patients facing treatment resistance. MDR-RA is redefining care with #AI, #clinical #trials & patient-led science—for healthier beginnings & hopeful futures. Follow us for impact!
#MDRRA #HorizonEU #iCareRA #HealthForAll

🧍‍♀️🧍‍♂️ Patients = they are key collaborators in the #HorizonEurope #MDRRAProject! 💬 Our #PRPs co-design 🧪 trials, shape #iCareRA & drive 📢 awareness. Their voices ensure real-world impact on pain 🎯 & quality of life. Big thanks to 🤝 #EULAR for supporting #HorizonEU #Rheumatology #PatientEngagement!

🔍 Can AI revolutionize #RA treatment? We think so! The iCare-RA Tool (WP6, @inmusc.bsky.social) is an #AI-driven decision support system helping rheumatologists make personalized treatment decisions for MDR-RA patients.

✅ Analyzes data
✅ AI-powered recommendations
✅ Supports shared decision-making

🔬Our #HorizonEurope #MDRRAProject is taking #RA treatment from research to real-world impact!

✅PrOb-MDR-RA (WP5): Observational trial collecting clinical, imaging & molecular data.
✅iCare-RA Trial (WP7): Testing AI-driven decision support VS standard care.

Stay tuned! #ClinicalTrials #AIinMedicine