Canadian Hemophilia Society, Manitoba Chapter

The membership is lucky to have so many dedicated people who work to help the community. Please consider making an award nomination. Deadline for nominations is Tuesday, March 31st. tinyurl.com/mv3pnhda

Men’s health matters—and for too long, stigma has kept too many men and boys from getting the support they need. When men’s physical and mental health challenges go unspoken, families, workplaces, and communities feel the impact.

PSA: if you have chronic fatigue and have never had your ferritin checked, please do so.

And look at the actual value because the reference range is likely trash. It should be at minimum 30 and ideally 50+

Thank you for your attention.

CHS-MC is looking for volunteers with an interest in golf and/or fundraising to help us with the Chapter's 2026 golf tournament, our most significant fundraiser. To continue growing the event, we need more help! Would you join us? Contact the office at info@hemophiliamb.ca.

So we now have two "rebalancing" agents, both anti-TFPI products approved for #hemophilia treatment. Both did well in the phase 3 trials. We will need to monitor them closely to see if their safety is maintained in patients undergoing surgery, those with malignancy and those with severe sepsis.

Patients With Hemophilia B Report Improvement in QoL After Gene Therapy A majority of patients with hemophilia B reported that their impression of life with hemophilia was “greatly improved” after gene therapy with fidanacogene elaparvovec.

After a single infusion of fidanacogene elaparvovec, a majority of patients with #hemophiliaB reported that their impression of life with #hemophilia was “greatly improved” and demonstrated gains in health-related QoL measures. From @jthjournal.bsky.social.

https://bit.ly/49kPq0D

📢 The EHC Public Policy Review (PPR) is out! Covering #EUHealthPolicy developments from Jan 2025 to Jan 2026, it breaks down what matters most for the #BleedingDisorders community — pharma reform, #EHDS, #HTA, #CriticalMedicinesAct, EU Biotech Act & social care. 📖 buff.ly/vIIDSak

The CHS-MC January Chapter Update is now available! tinyurl.com/z2amz82a

Please note that while we will have access to email and will do our best to help from afar, expect delays.

Make sure to sign-up for the CHS Town Hall!
We have a lot of news to share with you!
Join us in a virtual Town Hall on January 22 to hear all about the new initiatives coming up for the CANADIAN HEMOPHILIA SOCIETY.
To register: Scan the QR code or: surveymonkey.com/r/CHS-SCH-TownHall

Wishing you all a happy, healthy and peaceful new year! The CHS-MC Board is excited to move forward with a new strategic plan to meet the needs of the bleeding disorders community in 2026 and beyond.

Please consider a year-end gift to the Chapter. We have a lot of great plans for 2026 and we need your help! To make a donation, please visit: tinyurl.com/5x696c8f

The winners of the three CHS-MC Grey Cup Pools are listed in the news section of the Chapter website. Congratulations to our winners, thank you to all the amazing volunteers who sold tickets and thank you to everyone who supported the Chapter by buying a ticket! tinyurl.com/4wkhsrp8

The September issue of the Chapter newsletter is now available. tinyurl.com/nu4599jn
#bleedingdisorders #manitoba #winnipeg #vonwillebranddisease #hemophilia #raredisorder #community #education

We have our winners. Congratulations! I am certain your friends will be looking for an invitation to dinner! Thank you to everyone who supported by purchasing tickets and thank you to the Chapter members who sold them!

Last day for Summer Sizzle raffle tickets! 1 for $20 or 3 for $50. Order online at tinyurl.com/8av9x7j4 Draw is Monday at 10 am. Proceeds to support Manitobans managing inherited bleeding disorders. LGCA-334RF-48145

The Chapter office is closed but we are still taking Summer Sizzle raffle ticket orders! Get yours now!! tinyurl.com/8av9x7j4

The CHS-MC June E-Newsletter is now available! tinyurl.com/4hmj7b4s

Summer Sizzle raffle tickets on sale! 1 for $20 or 3 for $50. For details and to order online visit EVENTS at websoite in profile. Please share with family and friends. Proceeds to support Manitobans managing inherited bleeding disorders. LGCA-334RF-48145

We have a great Summer Sizzle raffle! Two amazing summer cooking prizes could be yours.
Order tickets online in EVENTS on website in profile or contact the Chapter at info@hemophiliamb.ca or call 204.775.8625.

#BBQ #raffle #manitoba #winnipeg #charityevents #biggreenegg #pizzaoven

Heavy periods affect school attendance and exam scores, study in England finds Charities say more should be done to support girls who experience prolonged bleeding and severe menstrual pain

Iron deficiency also has a major impact on exam scores! Finding the cause of heavy periods early could change someone’s academic future.

Heavy periods affect school attendance and exam scores, study in England finds www.theguardian.com/society/2025... @theguardian.com

We have such a great group of people who come out every year. Don't worry if you don't have a team of four! We'll find you some new friends!! tinyurl.com/3hs85up2

#golftournament #charityevent #fundraiser #winnipeg #manitoba #bleedingdisorders #fun

The disturbing cuts to women’s health research in the U.S. will threaten global innovation and care for decades. Canada has a chance to lead.

When women's health loses, we all lose policyoptions.irpp.org/magazines/ma... @hollymathias.bsky.social @irpp.org

𝗠𝗼𝗿𝗲 𝗵𝗲𝗮𝗹𝘁𝗵 𝗻𝗲𝘄𝘀 ⇢ CanadaHealthwatch.ca 🍁

The latest Chapter newsletter is available! tinyurl.com/ss2mhnyf

Welcome to Winnipeg! Professional meetings have started for the Canadian healthcare providers in bleeding disorders care and community members are arriving. We can't wait to see everyone!

Opinion: Complex problems require complex solutions Where did the health-care system go wrong and how can we fix it?

Fixing healthcare needs big picture planning, not jumping from crisis to crisis, says #MCHPResearch's Dr. Alan Katz' @winnipegfreepress.com op-ed, suggesting a comprehensive, milestone-based funding plan between federal & provincial governments could help.
www.winnipegfreepress.com/opinion/anal...

Liberal Leader Mark Carney meets supporters as he arrives at the Charlottetown, Prince Edward Island airport on Sunday, April 20, 2025

Carney urges Canadian doctors in the U.S. to come home nowtoronto.com/news/carney-... @nowtoronto.bsky.social

𝗦𝗲𝗲 𝗺𝗼𝗿𝗲 𝗻𝗲𝘄𝘀: CanadaHealthwatch.ca 🍁

CHS-MC's AGM is this Thursday! Have you registered yet? This AGM package went out today to the initial registrants. It's not too late to join us this Thursday night. Register at: tinyurl.com/tuvnw94v

Today is #WorldHemophiliaDay. #WHD2025 is a day for everyone to learn more about women and girls with #BleedingDisorders. Join the movement and learn more about #hemophilia on the WFH eLearning center: wfh.org/education-and-elearning

🩸Is haemophilia (fe)male?

Many women—especially carriers—face bleeding risks & low factor levels, yet remain underdiagnosed. Haemophilia doesn’t discriminate & neither should care. Stay tuned for new resources today!

🔗 www.ehc.eu/awareness/eh...

#WHD2025 #WeBleedToo #WorldHemophiliaDay