@lcaireland.bsky.social
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com
'Ireland (is) one of two EU countries that does not recognise COVID 19 as an occupational illness.' -
TD Marie Sherlock
How can this position POSSIBLY be justified?
Please share
#LongCovid
#Covid
#Ireland
#Justice
#LongTermPlan
#DoWhatIsRight
Excellent presentation made by Dr @binitakane.bsky.social
to the APPGs on ME and #LongCovid.
We are fortunate to have a Doctor who understands the problems, sees the need for change and can communicate so well.
Also some strong new thinking for #pwME.
(1 of 4 short vids)
🆕Improving healthcare services for people with ME and Long Covid: Patients share their challenges, and the actions needed. pslhub.org/learn/improv... #patientsafety
24.06.2025 07:30 — 👍 14 🔁 8 💬 3 📌 2
"#LongCovid isn’t a problem until we can find no other explanation for why millions.. are unable to work, school performance & children’s health decline in unison, & no one can remember what it feels like not to be sick all of the time"
#VioletAffleck
yaleglobalhealthreview.com/2025/05/18/a...
🚨1/5. Cutting PIP will:
⚠️ Push people further away from work
⚠️ Increase poverty
⚠️ Drive decline in health & independence
See what people said below ⬇️
📧 Contact your MP today & ask them to oppose the proposed welfare changes!!
#LongCovid
#TakingThePIP
Join us this Sunday for our monthly support meeting online for spouses/partners and carers.
#LongCovid
Black background with logos for the APPG on Long Covid and APPG on Myalgic Encephalomyelitis (ME) across the top. On the right is a photograph of Jo Platt MP. Text consists of a quote saying "I suffered with Long Covid and ME. I wanted nothing more than to work. I was able to be supported back into employment because I managed myself. We've really got to get this bit right. Because you cannot just force people back". Below the quote it says Jo Platt MP Chair of the APPG on Long Covid and APPG on ME.
📣 1/2. Minutes available from joint meeting of APPG on #LongCovid & APPG on #ME!
🔴 Stephen Timms MP (DWP) spoke on proposed welfare reforms, with APPGs raising concerns
🔴 Research talks from Prof. Danny Altmann, Dr. Binita Kane, Prof. Chris Ponting & Prof. David Strain
Link ⬇️
JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…”
TY @blakemurdoch.bsky.social !
edmontonjournal.com/opinion/colu...
Long COVID is Now the Number One Chronic Illness in Children.
"So many children are getting Long COVID because COVID causes Long COVID, and children are not “immune” to COVID, they are not becoming healthier with each infection, and the adults around them are doing nothing to mitigate the virus."
IMAGE DESCRIPTION: The Houses of Parliament and Big Ben with logos of APPG on ME, APPG on Long Covid, Action for ME, Long Covid Support, and the ME Association. A QR code is included. Text reads: “Joint-ME & Long Covid APPG meeting minutes are available.”
1/4 📢 The official minutes from the first joint ME and Long Covid APPG meeting are now available!
🔗 appgme.co.uk/meetings/min...
Highlights Fatiguing syndromes affect millions of patients in the United States and globally, but are grossly underserved in the clinic and in the contemplative design of basic research. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex multisystem metabolic-immune-inflammatory disorder. Although research on this condition is in its infancy, it appears to involve the immune system and central nervous system malfunction, with cellular oxidative stress as a predominant feature. Approximately half of the cases of long-haul coronavirus disease 2019 meet the diagnostic criteria for ME/CFS, burgeoning the number of affected individuals. Recent strides in neurobiology have yet to transfer the understanding of the neurodegenerative aspects, and potential for neuroprotection, of ME/CFS. ME/CFS may represent a useful paradigm and research model for the study of the impact of sustained oxidative stress on the central nervous system and the body at large.
How pandemics reshape our brain: Common links and targets between long-haul COVID-19, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), oxidative stress, and neurodegeneration
Free:
onlinelibrary.wiley.com/doi/10.1002/...
#LongCovid #MEcfs
‘Results of this cohort study suggest that symptom patterns were distinguishable across infants/toddlers and preschool-aged children, and from previously studied older children and adults.’
jamanetwork.com/journals/jam...
#PaediatricLongCovid #LongCovidKids #Childhood #RECOVER
Orange background with graphics of white bunting at the top, light orange fireworks in the top right corner and light orange hearts in the bottom left corner. Top left is the Long Covid Support logo. Text reads CELEBRATING VOLUNTEERS WE THANK YOU ALL! Across the centre are two rows of three images. The upper row has an image of our Long Covid Support Group header on Facebook, a photograph of some of our volunteers wearing Long Covid Support tops in front of our Long Covid banner, and an image our Research Involvement Consultancy logo. The lower row has a photograph of some of our volunteers holding placards outside the Covid Inquiry, a graphic of raised hands in pastel colours with white hearts on them, and the front cover of our report called Disabled, discharged and disappearing from view A snapshot review of Long Covid services across the UK. Below is our website address www.longcovid.org and text saying Long Covid Support is a registered charity in England and Wales 1198938.
This #VolunteersWeek we say a huge ‘Thank you!’ to all our fantastic volunteers who have made our charity what it is. Nearly all have #LongCovid themselves or are care givers to someone with Long Covid. Thank you for giving your precious energy to helping so many others.
💖💖💖
Photo of a lake and surrounding grass. Text on the photo reads georgebrill_ 5h Added to End-to-End 6 Day 72 108km 30 hours, two sunrises, and the English 3000s Sun and glorious scenery by day Endless rain and gale force winds by night
👀 We’re keeping track of the amazing George Brill, who is fundraising for our charity by walking Lands End to John o’Groats!
Day 72: 108 km in 30 hours
Two sunrises & the English 3000s
Read more about George’s #LongCovid challenge on the link below! ⬇️
Go George!! 💖
#ForThoseWhoCant
Just an FYI, if someone tells you they're disabled and they don't look like they are... the chances of them lying about it are way smaller than the chances of you just not understanding how hidden disabilities work. Hope that helps.
02.06.2025 02:41 — 👍 1237 🔁 322 💬 15 📌 13
Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social
01.06.2025 14:12 — 👍 6 🔁 5 💬 0 📌 0
1/
"In conclusion, this group of articles points to the global impact of long COVID as well as the varied complications from the condition":
www.frontiersin.org/journals/med...
Registration is over half full, so register soon if you’re thinking about coming on Tuesday!
31.05.2025 17:00 — 👍 6 🔁 2 💬 0 📌 0
🔔REMINDER - TONIGHT🔔
Join us tonight at 7pm for our monthly online support meeting for spouses/partners & parents.
Those on our mailing list will have received the link or you can email us to request it at longcovidadvocacyireland@gmail.com
#LongCovid #pwLC #SpeirGorm #SpéirGorm #LongCovidSupport
A square graphic with a blue background and light yellow text reads: "May 20th is National Clinical Trials Day! ME/CFS and Long Covid Clinical Trials to Watch. Learn more about how you can join! " An illustration depicts a woman in a lab coat holding a clipboard and beaker and surrounded by scientific lab tools including test tubes and a microscope. She is surrounded by images of cells under a microcsope and a DNA double-helix.
It's National Clinical Trials Day! Click the link below to learn about some of the #MECFS and #LongCovid clinical trials we’re watching now, and consider joining those that are right for you.
ow.ly/8jYa50VVSoB
#MECFS #LongCovid #ClinicalTrialsDay
🔔REMINDER🔔
Online support meeting for spouses/partners & parents is this coming Sunday 25th May at 7pm.
Those on our mailing list will receive the link or you can email us to request the link.
#LongCovid #pwLC #SpeirGorm #SpéirGorm #LongCovidSupport
Great to see #maskblocéire included in this list ⤵️
#maskbloc #longcovid #pwLC #stillmasking #publichealth #cleanair #covid #speirgorm #spéirgorm @cleanairie.bsky.social
If you can’t afford a respirator, look for a local mask bloc.
These are volunteer organizations committed to helping people access the best protection they can.
If you CAN afford it, consider donating to them as well!
maskbloc.org
People facing the fight of their life shouldn’t have to worry about fighting Covid, too. #HealthCareNotHealthCareless
21.05.2025 20:09 — 👍 114 🔁 56 💬 2 📌 3
Page one of the press release reads as follows: PRESS RELEASE - FOR IMMEDIATE RELEASE ISSUED 19/5/2025 by CLEAN AIR ADVOCACY IRELAND ~ BEGINS ~ Clean Air in Schools could boost Attendance ● Illness is the leading cause of School Absence in Ireland ● Fall in Attendance Shows Need for Urgent Action on Clean Air in Schools The recent School Attendance report from Tusla shows a dramatic increase in school absence, and is an urgent warning sign which should not be ignored by the Department of Education. The high level of absenteeism is being driven by illness, and this should trigger immediate action to improve indoor air quality in schools to reduce the spread of common airborne infections such as flu, RSV, and Covid-19. Illness consistently accounts for around 60% of absences in schools, and that remains the case in the latest report for the 2022/23 school year, with illness accounting for 61% of known absences from Primary Schools and 59% of known absences from Secondary Schools. In the 2022/23 school year, absences from Primary Schools were 46% higher than the 18-year average from 2003 to 2019. Absences of longer than 20 days are 128% higher than the same 18-year average in Primary Schools, and 43% higher in Post-Primary Schools. Clean Air Advocacy Ireland is calling on the Department of Education to implement guidelines for schools to manage the air quality in indoor spaces such as classrooms, canteens, staff rooms, and toilets. Improving indoor air quality through monitoring, ventilation and filtration has been shown to effectively reduce the transmission of common airborne
Page 2 of the press release reads as follows: ...illnesses. We have the tools to minimise airborne pathogens and reduce the number of infections, through mechanical ventilation and air filtration, but we are simply not using them properly, or at all. There is also existing legislation in Ireland which governs indoor air quality in workplaces, and schools are places of work for teachers, assistants, and other support staff. Employers, including school boards, have a legal obligation to monitor indoor air quality and to implement changes where the air quality is below acceptable levels. Kieran Ryan, a member of Clean Air Advocacy Ireland, says the Tusla school attendance report indicates that something is going badly wrong in terms of sickness levels in Irish schools. “If we’re talking about increased absences in schools then we need to address the elephant in the room, which is an overall increase in illness at a population level. As well as common illnesses such as RSV and seasonal flu, Covid-19 has now added to the burden of illness faced by students, parents, and teachers.” “We know that many of these illnesses are spread via airborne transmission, so when children are packed into poorly-ventilated classrooms sickness spreads like wildfire. Infected children then bring the illness back to their own homes, and this seeds the further spread of illness within the community. If we can reduce transmission in schools, then we can reduce the overall burden of disease within our communities. It’s a win-win.” “It is not the duty of school principals or teachers to be their own public health experts or ventilation engineers: They must be given effective guidance & resources by the Department of Education to ensure that the indoor air quality in schools is safe. The Department is failing school employees and students by not issuing such guidance or resources.” ~ ENDS ~
"We have the tools to reduce the number of infections in schools, but we are simply not using them properly, or at all."
We have issued this press release in response to the "highly alarming" school absence figures (from 2022-23) released yesterday by the Minister for Education.
Violet Affleck on COVID and climate change: this is excellent yaleglobalhealthreview.com/2025/05/18/a...
20.05.2025 14:28 — 👍 72 🔁 26 💬 4 📌 4🎯 A powerful statement from @cleanairie.bsky.social - it’s time for the Dept. Of Education to implement the tools we have and promote clean air in #schools
#SpeirGorm #SpéirGorm #cleanairireland #longcovid #publichealth
An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.
19.05.2025 09:55 — 👍 8 🔁 1 💬 1 📌 0#ActionForME
#ThereForME
@WesStreeting
@theguardian.com
@davetuller1.bsky.social
@lcaireland.bsky.social
#MEActionUK
#25%MEgroup
Photo of a table decorated and ready for a tea party
Thanks to my mum for getting everything ready for our family #TeaPartyForME2025 on #BlueSunday (tomorrow) 👍
We’re doing it in aid of @irishmecfsassoc.bsky.social
www.idonate.ie/event/BlueSu... but other worthy charities are available (see: the-slow-lane.com/donation-pag... )
#MEcfs #CFS #PwME
