Stichting TAPS Support

On March 1, 2006, Robyr et al described a rare anemia polycythemia pattern in monochorionic twins after laser for TTTS, using MCA Doppler to detect anemia in one twin and polycythemia in the other. Read the paper: www.ajog.org/article/S0002-... #20YearsOfTAPS

Tomorrow there is a free online TAPS webinar for International TAPS Day, for clinicians, nurses, midwives, and students involved in twin care. Register on Eventbrite: www.eventbrite.co.uk/e/inte...

On Rare Disease Day, remember that rare does not always mean genetic. TAPS is a rare complication in the shared placenta of monochorionic twins, usually found through ultrasound and MCA Doppler checks in pregnancy. Learn more at internationaltapsday.com #RareDiseaseDay #20YearsOfTAPS

On March 3, International TAPS Day, The Red and White Twins is released, a children’s book about Twin Anemia Polycythemia Sequence for ages 5–10. It uses real medical words and gentle explanations to help families talk about TAPS. Learn more at internationaltapsday.com #20YearsOfTAPS

March 3 is International TAPS Day. Over 20 years, TAPS research has increased knowledge of ultrasound techniques, Doppler use, and early markers in monochorionic twins. It helps families, clinicians, and researchers. Learn more at internationaltapsday.com #20YearsOfTAPS

March 3 is International TAPS Day. We invite hospitals, universities, charities, and support groups to stand with TAPS research by adding their logo. See how worldwide efforts connect at internationaltapsday.com #20YearsOfTAPS

March 3 is International TAPS Day. Mark 20 years of research into Twin Anemia Polycythemia Sequence and the families, clinicians, and researchers behind it. Learn more at internationaltapsday.com #20YearsOfTAPS

Mar 1: free online webinar for TAPS Day. Experts cover what we know, how care has changed over 20 years, and what still needs research. Register free: www.eventbrite.co.uk/e/inte... #20YearsOfTAPS

For nearly 20 years, TAPS research has grown through clinical questions and family participation. Extra scans, follow-up visits, long-term studies. “20 Years of TAPS” begins March 3. Learn more: internationaltapsday.com #20YearsOfTAPS

TAPS is bigger than one center. If your organization touches twin research, fetal medicine, neonatal care, bereavement, or family advocacy, add your logo as a supporter for #20YearsOfTAPS: internationaltapsday.com

Why a whole year for TAPS (Twin Anemia Polycythemia Sequence)? Twenty years of progress deserves more than one day. We will share what has changed in scanning and treatment, and what families still need answered. internationaltapsday.com #20YearsOfTAPS

TAPS awareness belongs to everyone. For 20 years, parents, clinicians, and researchers have built what we know about TAPS (Twin Anemia Polycythemia Sequence). “20 Years of TAPS” begins March 3. internationaltapsday.com #20YearsOfTAPS

20 years of research into TAPS have changed how monochorionic twins are monitored, treated, and followed after birth. From March 3, 2026 to March 3, 2027 we will mark #20YearsOfTAPS. International TAPS Day is March 3. Learn more: internationaltapsday.com

Red and white twins at birth can be seen with TAPS, but it can also happen with acute TTTS around labor. The difference isn’t appearance. It comes from the right blood tests for both babies and examining the placenta.

More: www.tapssupport.com/acute-t...

#TwinQuestions

Twin Anemia Polycythemia Sequence still challenges fetal and neonatal care worldwide. On March 1 at 15:00 GMT, international experts and the patient voice come together for a focused free academic webinar marking International TAPS Day. Join us. www.eventbrite.co.uk/e/inte... #20YearsOfTAPS

#TwinTuesday | Ask Our Community

Have a question you haven’t had the chance to ask yet?

This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.

#TAPSSupport

We’re extending the LOSS-TAPS survey. Hearing loss is documented in some TAPS donors, including auditory neuropathy and sensorineural hearing loss. Please take the survey, or share it with your networks: www.tapssupport.com/parent-...

#TAPSTwins #HearingLoss

Word of the week: placenta

The placenta is the organ that supplies oxygen and nutrients to a baby during pregnancy. In monochorionic twins, one placenta supports both babies.

Evidence and further reading:
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#WednesdayWordOfTheWeek

Australian parents who’ve experienced preterm birth in the past 12 months are invited to join a small online focus group to help shape a compassion based mental health program. Learn more and sign up: exp.psy.uq.edu.au/caregivers/ #ResearchOpportunities

#TwinTuesday | Ask Our Community

Have a question you haven’t had the chance to ask yet?

This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.

#TAPSSupport

Peer support can matter, especially when outcomes are complex. This position paper, informed by TAPS Support and Footprints Baby Loss, explains what peer support is, how it differs from medical care, and why boundaries and safety matter. #PeerSupport www.tapssupport.com/positio...

I read online that protein shakes can help with TTTS. Is there actually any evidence they help TTTS, TAPS, or sFGR? No. TTTS & TAPS are placental blood-flow conditions. Protein shakes can’t change placental blood vessels or correct an imbalance. More: www.tapssupport.com/blog/20...

#TwinQuestions

TAPS Support is a parent-led organisation working internationally to support families and professionals affected by monochorionic twin complications. Our aim is to provide clear, reliable information, and help bridge the gap. Learn more at www.tapssupport.com

#MonochorionicTwins

European Congress of Perinatal Medicine (EAPM) takes place 16–19 September 2026 in Warsaw, Poland. A key meeting for teams in pregnancy and newborn care. Details: europerinatal.eu/congresses... #EAPM2026

Word of the week: monochorionic
Identical twins who share a single placenta. Because one placenta supports both babies, this type of pregnancy is followed more closely to watch for changes over time.
Evidence and further reading:
www.tapssupport.com/ultraso...
#WednesdayWordOfTheWeek

CHOP named Jena Lyn Miller, MD Chief of OB/GYN and Co-Director (with N. Scott Adzick, MD) of the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment. More: www.chop.edu/news/dr-jena-l...

#FetalTherapyNews

#TwinTuesday | Ask Our Community

Have a question you haven’t had the chance to ask yet?

This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.

#TAPSSupport

This resource explains TAPS for school settings. Written with professionals in the field, it outlines what TAPS is, why it can still matter at school age, &areas educators may encounter such as hearing, learning, & development. Includes a free download. #EducatingTwins
www.tapssupport.com/taps-fo...

Our social media will be coming back online on Monday after a short break.During the break, we’ve refreshed our content and approach, and we’re looking forward to sharing news, research, and our own resources, alongside important updates from the world of monochorionic twins.

#TAPSSupport

We’re stepping back from X as an active platform. We’re focusing more of our day-to-day engagement here and on other platforms that support what matters to us: evidence-based information and a safe, inclusive space for families and professionals. Thanks for being here with us.