Penny

A painting of a woman lying in a bed with a landscape of hills in the background.

Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social

A BBC podcast titled "Access All: Disability News & Mental Health" asks if the DNA of people with ME is different.

They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes

www.bbc.com/audio/play/p...

#MEcfs #PwME #CFS

Photo of a woman in a hospital bed with an eye mask on and heavy noise defenders with the caption "it stole my life"

🧵
"ME/CFS: The mysterious illness trapping people in their bodies"

Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary

youtu.be/DsOAq6cs564

#ChronicFatigueSyndrome #MEcfs #CFS #PwME

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Two in five arrested for last summer’s UK riots had been reported for domestic abuse Police data indicates overlaps between public violent disorder and domestic violence and abuse

2. We’ve also discovered that there was a very high representation of suspected domestic abusers among those rioting against asylum seekers last year. A small number of truly horrible men are responsible for all kinds of misery. www.theguardian.com/society/2025...

Link to donate for LEGAL ACTION : #pwME - Currently at £4754 11:15 31/08/2025

crowdjustice.com/case/justice...

#Justice #JusticeForME
#MyalgicEncephalomyelitis

PLEASE SHARE IF YOU CARE!
(If you haven’t already)

Thank you 💙

Excellent.

⏳Final week to sign up to the Green Party.

🗳️ Vote for Bold Leadership on August 1st.

It's time for a new kind of political party - one that belongs to you.

Sign up at yourparty.uk.

June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾

Campaign update 23: getting visible. Where oh where is the delivery plan? NIHR funding. Long Covid visibility at the V&A. New #ThereForME substack post

Today we’ve got a visibility themed update, in honour of our @oonaghcousins.bsky.social new job.

Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog.

Link in next post 👇

We’ve been so moved seeing the #FundThePlan videos over the past few weeks.

Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.

We’d love your help making some noise with it 🙏

Another petty counterproductive move from Starmer. Punishing MPs who stood against a widely unpopular policy won’t endear him to the public or improve discipline in the party. It just makes him look like he hasn’t learnt a thing - morally or practically - from the disability cuts. Because he hasn’t.

Ministers urged to overhaul and raise carer’s allowance Resolution Foundation says unpaid carers on low incomes pay ‘very heavy price’ for looking after loved ones

Carers need more help, govt will be told as @resfoundation shows how little they get bit.ly/3GF0cDl Before being forced to change, the govt planned to take carers allowance away from 50,000 through changes to PIP. They are paid a pittance for £184bn worth of care

Children's doctors slam 'unbearable' poverty - as students make breakfast plea

More than three-quarters of children’s doctors say poverty-related illness has increased over the last two years, as they warned of an “unbearable level” of hardship among kids.

⚠️ Irrationality and Authoritarianism:

George Monbiot rightly said:

> "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational.
"

Join the Green Party Join the Green Party from just £6 a year. Become a member today - join the only party with the policies needed to tackle the climate crisis.

Speak out for Disabled people?

Keir Starmer will suspend you.

Labour once again showing where their values lie.

Join.greenparty.org.uk

Keir Starmer suspends Labour MPs for breaching party discipline Neil Duncan-Jordan, Brian Leishman, Chris Hinchliff and Rachael Maskell all voted against welfare reforms.

Starmer suspends Labour MPs for challenging disability benefit cuts.

Others targeted with petty sanctions.

These people ought to be celebrated for forcing Starmer to develop better policies.

Silencing of critics results in poorer policies.

Trump says he ‘really likes Starmer, even though he’s a liberal’

I've read many condemnations of Keir Starmer, but none as damning as this.

Full text of Bell's statement: https://bellribeiroaddy.com/statement-on-my-removal-as-uk-trade-envoy-to-ghana/

Full text of Bell's statement: https://bellribeiroaddy.com/statement-on-my-removal-as-uk-trade-envoy-to-ghana/

I've received a number of enquiries about the decision to remove me as a trade envoy.

I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched.

My statement on the issue 👇🏾

I want to take this opportunity to thank everyone who has sent their solidarity in light of yesterday’s news of having the Labour whip temporarily suspended.

Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊

A screenshot of the headline of an article on the Guardian website. The headline reads: ‘Keir Starmer removes Labour whip from four “persistent rebel” MPs’. The subheadline reads: ‘Rachael Maskell, Neil Duncan-Jordan, Brian Leishman and Chris Hinchliff pushed out and three trade envoys lose roles’. The headline is accompanied by a photograph of Keir Starmer smiling and walking out of No. 10 Downing Street, carrying some folders.

how many days since he announced he was going to listen more to mps?

🚨 A statement:

Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita

Closure of Columbia's ME/CFS Research Center will slow understanding of this terrible disease & progress towards effective therapies. This decision disproportionately affects women & some of the most vulnerable in society. It would've been a privilege to work alongside Ian Lipkin.
#pwME #ME #CFS

Image of red square with wording that says, "Trump Admin Cuts Funding for ME/CFS Collaborative Research Center at Columbia University."

Trump administration has terminated funding for the Center for Solutions for ME/CFS at Columbia University—one of the nation’s leading research centers for ME/CFS, led by Dr. Ian Lipkin.
#MEAction plans to fight back!

Photograph of a blooming tree, its branches covered in small white flowers under a soft blue sky. The scene resembles an impressionist painting, with delicate tones and a diffused texture, characteristic of Saskia Boelsums’ work. The surrounding field is flat, with low vegetation and gentle late-afternoon light.

Saskia Boelsums is a Dutch visual artist who turns landscape photography into pure visual poetry. Her images evoke the softness and depth of impressionist paintings, though they are captured with a camera. With a refined aesthetic and masterful digital editing, Boelsums creates ✒️

Does anybody else think that Rachel Reeves needs psychiatric help?

I feel physically ill. I just can’t cope with anymore. Rachel Reeves and Labour - you are an absolute disgrace. I can’t support my son alone when his disability benefits are pulled from him. #SpringStatement #Reeves #Labour

As Rachel Reeves follows the deathly neoliberal script to the letter, here is our latest video, explaining the dire state of this government and demanding better. Please do watch.

Reeves said PIP is "a waste of their potential and a waste of their futures.”

PIP is a measure that keeps more disabled people IN WORK, without it many will drop out of the workforce.

This REDUCES the economic activity the country needs.

Reeves is lying by pretending it's somehow the opposite.

GCSE economics lesson for Rachel Reeves

via @pileusmedia.bsky.social