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@hyperacusiscentral.bsky.social

6 Followers  |  1 Following  |  30 Posts  |  Joined: 23.01.2025  |  1.505

Latest posts by hyperacusiscentral.bsky.social on Bluesky

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Participants Wanted for Hyperacusis and Tinnitus Study - Hyperacusis Central Belgian researchers at the University of Ghent are looking for participants for a hyperacusis and tinnitus study. Here are some of the requirements . . . -They're looking for people with hyperacusis o...

Belgian researchers at the University of Ghent are looking for participants for a #hyperacusis and #tinnitus study. Click on the link to learn more.

hyperacusiscentral.org/participants...

24.07.2025 17:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hearing Health Magazine | Award-Winning Consumer Publication β€” Hearing Health Foundation Hearing Health magazine is the ultimate consumer resource on hearing loss, tinnitus, and other hearing and balance conditions. Our quarterly highlights inspiring first-person stories and real-world so...

The #Hyperacusis & #Tinnitus Issue of Hearing Health was released today (Hearing Health Foundation's magazine). It features a story from J.D. Rider & a piece by HC's Scientific Advisor Kelly Jahn. Plus a lot more. It's free to read in full.

hearinghealthfoundation.org/hearing-heal...

02.07.2025 00:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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ATP-gated P2x7 receptors express at type II auditory nerves and required for efferent hearing control and noise protection - PubMed Negative feedback of the cochlear efferent system plays a critical role in control of hearing sensitivity and protection from noise trauma. Type II auditory nerves (ANs) innervate outer hair cells (OH...

Research to determine the underlying mechanics responsible for #hyperacusis continues with this study, which found that the absence of these receptors makes the hearing system more likely to suffer damage from noise, sound sensitivity, and tinnitus.

pubmed.ncbi.nlm.nih.gov/40540593/

01.07.2025 19:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hyperacusis Hope: A Tribute to Patricia - Hyperacusis Central Daniel has a YouTube channel called Hyperacusis Hope, which, like a lighthouse, gives navigational aid for dark and murky waters: pain and loudness hyperacusis, grave conditions where the "seafarers" ...

Daniel, who has a YouTube channel called #Hyperacusis Hope, pays tribute to the late Patricia Bylsma.

hyperacusiscentral.org/hyperacusis-...

28.06.2025 23:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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When It Hurts to Cry - Hyperacusis Central By Jerad J. D. Rider Today marks a year since severe noxacusis sufferer Patricia Rose Bylsma took her life. She also suffered from mild reactive tinnitus, extreme sensitivity and pain to light (called...

Click on the link to learn about how YOU can be a part of change.

#painhyperacusis #noxacusis #tinnitus #photophobia

hyperacusiscentral.org/when-it-hurt...

28.06.2025 14:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Nate’s Story - Hyperacusis Central By J. D. Rider For Nate Repke, a 27-year-old in Grand Blanc, Michigan, three ear conditions have affected every part of his life: noxacusis, loudness hyperacusis, and reactive tinnitus. β€œImagine every...

Nate Repke's ongoing battles with #noxacusis, loudness #hyperacusis, and reactive #tinnitus are laid out in a revamped story on Hyperacusis Central's website. We encourage you to read it. His current state is added, too--the good news and the bad.

hyperacusiscentral.org/nates-story/

14.06.2025 21:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Gene’s Success Story - Hyperacusis Central By Jerad J. D. Rider In 2024, Gene recovered from a case of massive sound intolerance: pain and loudness hyperacusis and reactive tinnitus. Devastating, terrifying, hideously inhumane and altogether t...

Gene Dillon made a full recovery from pain #hyperacusis and loudness hyperacusis. Click on the link to discover how a doctor helped him with two off-label treatments.

hyperacusiscentral.org/genes-succes...

07.06.2025 17:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A Former CBT Counselor Shares the Lowdown on Having β€˜Crippling’ Ear Condition, Noxacusis: β€˜All My Coping Skills Went Down the Drain’ - Hyperacusis Central CBT (cognitive behavioral therapy) is one of the leading psychological treatments espoused by clinicians and audiologists for the hearing condition noxacusis. That being said, when crossing this condi...

A former CBT counselor shares the lowdown on "crippling" #noxacusis: "All my coping mechanisms went down the drain."

He also shares about his loudness #hyperacusis journey, tonic tensor tympani syndrome, and reactive #tinnitus.

hyperacusiscentral.org/a-former-cbt...

26.05.2025 15:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hyperacusis Hope: You’re Doing Your Best - Hyperacusis Central On his YouTube channel, Hyperacusis Hope, Daniel shares an uplifting message regarding problems that most, if not all, struggle with when having hyperacusis: regrets, dwelling on the past, self-indign...

On his YouTube channel, Hyperacusis Hope, Daniel wants to remind us that we’re doing our best to navigate the strange and uncharted world that is #hyperacusis. To give ourselves a break, more or less.

Watch his video here . . .

hyperacusiscentral.org/hyperacusis-...

17.05.2025 14:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Objective autonomic signatures of tinnitus and sound sensitivity disorders Emotionally evocative sounds elicit pupil dilations and facial movements that index the severity of common hearing disorders.

The aforementioned study also assesses the severity of #hyperacusis by observing pupil dilation and facial movements.

www.science.org/doi/abs/10.1...

03.05.2025 16:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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New β€œhidden in plain sight” facial and eye biomarkers for tinnitus severity could unlock path to testing treatments Mass General Brigham researchers for the first time have identified biomarkers for tinnitus severity in subtle facial movements and pupil dilation that can be captured on video recordings. Until now, ...

Hyperacusis Central's Scientific Advisor, Kelly Jahn, was one of the authors involved in a study that measures #tinnitus severity through facial countenance, and whose findings could lead to testing treatments down the road. Click here to see it. #hyperacusis

www.eurekalert.org/news-release...

03.05.2025 00:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Be a Part of Siobhan’s Hyperacusis Book - Hyperacusis Central A message from Siobhan Farrell . . . I am writing to introduce myself and the book I plan to write, which will be a compilation of first-person stories of people with loudness and pain hyperacusis, wi...

Writer Siobhan Farrell is in the process of creating a book which contains first-person accounts of pain and loudness #hyperacusis, and is looking for participants. To learn more about this opportunity, go to the link and read the message from Siobhan.

hyperacusiscentral.org/be-part-of-s...

27.04.2025 21:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hyperacusis Hope: An Interview With Eddie - Hyperacusis Central For his YouTube channel called Hyperacusis Hope, Daniel interviewed Eddie, a licensed plumber who is out of work because his life was upended by loudness hyperacusis and reactive tinnitus. They talk a...

For his YouTube channel called Hyperacusis Hope, Daniel interviewed Eddie, a plumber out of work due to loudness #hyperacusis and reactive #tinnitus. They talk about Eddie's goals, how he copes, and what has helped treatments-wise. Click on the link to watch.

hyperacusiscentral.org/hyperacusis-...

26.04.2025 19:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sami’s Story: A Sufferer of the Ultra-Rare Vestibular Hyperacusis - Hyperacusis Central By Jerad J. D. Rider It all started on July 24, 2021, a day that 33-year-old Samantha β€œSami” Jones would rank as unforgettable in STL’s suburbia, the city nicknamed the Gateway to the West in Missouri...

Sami suffers from the rarest kind of #hyperacusis: #vestibular hyperacusis. She also has loudness hyperacusis, #noxacusis, and #tinnitus. Read about her journey on our website.

hyperacusiscentral.org/samis-story-...

24.04.2025 15:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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An Interview with James A. Henry, PhD, Author of The Hyperacusis and Misophonia Book - Hyperacusis Central James A. Henry, PhD, is a retired research audiologist who obtained a doctorate in behavioral neuroscience. He studied tinnitus for 35+ years, and has it himself along with loudness hyperacusis. His c...

J. D. Rider of Hyperacusis Central sat down with James A. Henry, PhD, to talk about his new book, The Hyperacusis and Misophonia Book.

Click here to read it!

#LoudnessHyperacusis
#PainHyperacusis
#Noxacusis
#Hyperacusis
#Tinnitus
#Misophonia

hyperacusiscentral.org/an-interview...

21.04.2025 16:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Hyperacusis Hope: Daniel’s Introduction - Hyperacusis Central A loud incident with a train introduced 29-year-old Daniel to the world of loudness hyperacusis, noxacusis, and reactive tinnitus. To make sense of it all, he took to YouTube with his own channel, Hyp...

Daniel, 29, encountered a loud train and ended up with loudness #hyperacusis, #noxacusis, and reactive #tinnitus. He started a YouTube channel called Hyperacusis Hope to introduce himself, share his experiences, and interview others with these conditions.

hyperacusiscentral.org/hyperacusis-...

19.04.2025 20:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Cruellest Month - Hyperacusis Central

In T.S. Eliot's poem called The Waste Land, he wrote that "April is the cruellest month." Well J. D. Rider couldn't agree more, as spring is when constant grass cutters and other outside noises torture him. Read his story here.
#hyperacusis #tinnitus
hyperacusiscentral.org/the-cruelest...

17.04.2025 19:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Checkmate - Hyperacusis Central

Megan W., who suffers from reactive #tinnitus, #noxacusis, and middle ear myoclonus, wrote a poignant piece that compares these conditions to a game of chess. You can read it on our website.

#tinnitusawareness #painhyperacusis #hyperacusis
#chess

hyperacusiscentral.org/checkmate/

12.04.2025 17:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Home | Hyperacusis Memorial

Breanne Woods created The Hyperacusis Wall of Remembrance, a virtual memorial to honor those who had hyperacusis and passed away. We are thankful that she came up with this way to honor them in memory. You can see the memorial at the link below.

brewoods.wixsite.com/hyperacusism...

08.04.2025 22:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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VA.gov | Veterans Affairs Apply for and manage the VA benefits and services you’ve earned as a Veteran, Servicemember, or family memberβ€”like health care, disability, education, and more.

Our Scientific Advisor, Dr. Kelly Jahn, will be presenting "What Clinicians Should Know About Pain Hyperacusis and its Clinical Management" for the virtual NCRAR Monthly Seminar Series on April 10 @noon PT/3 ET. It is free and anyone can attend.

www.ncrar.research.va.gov/MonthlySemin...

07.04.2025 23:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Hyperacusis Central - Raising awareness for hyperacusis A group of volunteers raising awareness for hyperacusis and related ear conditions with a focus on patient experiences and fundraising for research.

Today is #WorldHealthDay. Spread the word about hearing protection and HyperacusisCentral.org.

#Hyperacusis
#Tinnitus
#TinnitusAwareness
#PainHyperacusis
##Noxacusis
#HearingLoss

07.04.2025 19:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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An Interview with John Drinkwater - Hyperacusis Central

#Hyperacusis Central interviewed John Drinkwater, whose firm helps people with disabilities understand, and advocates for, their rights under the ADA and related federal and state laws. The laws and policies relating to environmental noise are also discussed.

hyperacusiscentral.org/an-interview...

03.04.2025 16:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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β€˜Bad Advice from Doctors Destroyed My Life; now I’m Stuck in My Room, Missing My Son’ - Hyperacusis Central

Understandably, Megan Wright is furious, since bad advice from doctors is the reason she's in carnage.

Click on the link to read this story.

#hyperacusis
#loudnesshyperacusis
#painhyperacusis
#noxacusis
#tinnitus
#tinnitusawareness
#reactivetinnitus

hyperacusiscentral.org/bad-advice-f...

20.03.2025 16:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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a man is crying and saying `` i 'm tired boss '' in a dark room . ALT: a man is crying and saying `` i 'm tired boss '' in a dark room .

How we feel after yet another setback.

Setbacks are a common part of #hyperacusis. And sometimes they are worsenings with tragic permanence. The process becomes a tireless cycle that's neverending. Sometimes you feel like Michael Clarke Duncan's character John Coffey in "The Green Mile."

18.03.2025 22:24 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Shane’s Story - Hyperacusis Central

Could #hyperacusis sometimes be hereditary? Shane's story makes a compelling case for that, but most of his story centers around the fact he had to leave his church. The painful and deafening sensations from the children in the audience were just too much.

hyperacusiscentral.org/shanes-story/

04.03.2025 19:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Today is World Hearing Day. Remember to protect your ears and advocate for funding and research to bring some treatments or cures for #tinnitus and #hyperacusis. And also regenerative treatments for #hearingloss or #deafness.

03.03.2025 16:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Those Eyes Tell a Story - Hyperacusis Central

Twenty-three-year-old Wesley Dhadamus first got #tinnitus 11 years ago from gaming with headphones and listening to loud music. It was stable, and he never had a shred of sound intolerance, also known as #hyperacusis. "Not until I got a COVID-19 vaccine."

hyperacusiscentral.org/those-eyes-t...

17.02.2025 20:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Expert Research on Tinnitus from Dr. James Henry, PhD Dr. Henry's contributions to the study of tinnitus have helped to pave the way in providing accurate and realistic data on the various aspects of tinnitus.

James Henry, Ph.D., is a retired clinical audiologist who has tinnitus and sound hypersensitivity. He wrote three books regarding tinnitus. You can visit his website to learn about each book: earsgonewrong.org. Also, on Amazon, they're available for purchase.

www.earsgonewrong.org/books/?fbcli...

09.02.2025 19:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Whitstable: 'Certain sounds can bring me to my knees' Tinnitus affects 7.6 million people in the UK, according to the charity Tinnitus UK.

"A former audio engineer who has tinnitus and hyperacusis, two sound-related conditions, is encouraging people to protect their hearing." From: www.bbc.com/news/article... #tinnitus #hyperacusis @hyperacusiscentral.bsky.social #loveyourers #keeplistening

04.02.2025 16:20 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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C’est un Cauchemar - Hyperacusis Central

β€œC’est un cauchemar”—French for β€œIt’s a nightmare”—is an endless thought in Sonia Lombardini’s mind while hiding from sounds in Nouvelle-Aquitaine, France.

Visit our website to read about her journey.

hyperacusiscentral.org/cest-un-cauc...

04.02.2025 17:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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