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Bone Cancer Research Trust

@bcrt-uk.bsky.social

The leading charity dedicated to saving lives and fighting primary bone cancer through #Research, #Information, #Awareness and #Support. We are #TeamBones.

262 Followers  |  42 Following  |  149 Posts  |  Joined: 25.11.2024
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Posts by Bone Cancer Research Trust (@bcrt-uk.bsky.social)

Beth in a hospital bed with a lamb teddy on her right shoulder and a cast on her left arm. She is holding popcorn chicken. 

The BBC Radio 4 Appeal charity logo goes across the bottom of the image

Beth in a hospital bed with a lamb teddy on her right shoulder and a cast on her left arm. She is holding popcorn chicken. The BBC Radio 4 Appeal charity logo goes across the bottom of the image

There’s only one week until our BBC Radio 4 Appeal airs!

Our presenter, Ben Phelps, share the heartbreaking story of his daughter Beth, who passed away from Ewing sarcoma aged 12.

Listen on Sunday 15 March at 7:54am and 9:25pm

Please donate: https://ow.ly/fqVc50Yl23U

08.03.2026 10:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Ben Phelps sat in the BBC Radio 4 studio recording the appeal. 

He is wearing an orange Bone Cancer Research Trust hoodie and smiling at the camera. There is a microphone next to him.

Ben Phelps sat in the BBC Radio 4 studio recording the appeal. He is wearing an orange Bone Cancer Research Trust hoodie and smiling at the camera. There is a microphone next to him.

It's two weeks until our BBC Radio 4 Appeal, broadcasting on Sunday, 15 March.

Our supporter, Ben Phelps, is presenting and sharing the story of his beloved daughter, Beth, who passed away from Ewing sarcoma just days before her 13th birthday.

Support us and donate: https://ow.ly/3XvO50YkUtN

01.03.2026 10:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Please tune in to our BBC Radio 4 appeal to hear more about Beth’s story and why tissue samples from patients are vital in helping scientists better understand bone cancer and develop more effective treatments. 🧑

To find out more and donate, visit: https://ow.ly/RabO50YmkxI

26.02.2026 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Ben seated on a beige armchair, dressed in a Bone Cancer Research Trust hoodie, displaying a picture of Beth and a plush sheep toy. 

In the top right corner there is a blue BBC Radio 4 Appeal logo. 

There is text that overlays the photo which says: 
'Presented by Ben Phelps. Listen and support Sunday 15 March at 7:54am and 9:25pm 
Thursday 19 March at 3:27pm

Ben seated on a beige armchair, dressed in a Bone Cancer Research Trust hoodie, displaying a picture of Beth and a plush sheep toy. In the top right corner there is a blue BBC Radio 4 Appeal logo. There is text that overlays the photo which says: 'Presented by Ben Phelps. Listen and support Sunday 15 March at 7:54am and 9:25pm Thursday 19 March at 3:27pm

Tune into our BBC Radio 4 appeal, broadcasting on Sunday, 15 March at 7:54am and 9:25pm.

Our supporter, Ben Phelps, is presenting and sharing the story of his beloved daughter, Beth, who passed away from Ewing sarcoma just days before her 13th birthday 🧑

https://ow.ly/YemE50Yi0Ot

20.02.2026 18:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Dr MΓ³nica Pascual-GarcΓ­a in a blue shirt sitting at a desk using a computer mouse and talking on the phone, with a grant announcement banner above.

Dr MΓ³nica Pascual-GarcΓ­a in a blue shirt sitting at a desk using a computer mouse and talking on the phone, with a grant announcement banner above.

New funding has been awarded to Dr MΓ³nica Pascual-GarcΓ­a from Universitat de Barcelona aiming to develop effective treatments that help re-educate immune cells to fight osteosarcoma cells and stop them from spreading.

Read more: https://ow.ly/667R50XW4mb

06.02.2026 18:00 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Graphic design for World Cancer Day with the date 04 02 and a location pin featuring a stylized letter b over a blue globe.

Graphic design for World Cancer Day with the date 04 02 and a location pin featuring a stylized letter b over a blue globe.

Today is #WorldCancerDay, a day where we come together to raise awareness worldwide of the impact cancer has.

Each year, thousands of people are diagnosed with primary bone cancer around the world, and their voices deserve to be heard 🧑

Please share this post to raise more awareness.

04.02.2026 14:23 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Brochures on osteosarcoma and Ewing sarcoma are displayed on an orange tablecloth. The tone conveys information and support awareness. The World Cancer Day and Patient Information Creator logos are included in the bottom left corner.

Brochures on osteosarcoma and Ewing sarcoma are displayed on an orange tablecloth. The tone conveys information and support awareness. The World Cancer Day and Patient Information Creator logos are included in the bottom left corner.

Ahead of #WorldCancerDay, we are also thrilled to announce we have once again been re-certified under the Patient Information Forum (PIF) TICK scheme!

This is a quick way to assure our supporters that BCRT’s information is reliable and trustworthy 🧑

Find out more: https://ow.ly/ufVC50Y84CR

03.02.2026 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We were honoured to be at 10 Downing Street alongside fellow cancer charities to mark #WorldCancerDay.

Our Chief Executive, Will Burchell, and Patient Advocate, Andy Westwood, were incredibly proud to represent bone cancer patients and give a voice to their experiences 🧑

#UntilTheresACure #WCD26

03.02.2026 10:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟@bcrt-uk.bsky.social is now PIF TICK re-certified.

This means its health information continues to be:

- Evidence-based

- Up-to-date

- Easy to use and understand

Get PIF TICK certified: pifonline.org.uk/pif-tick/how...

29.01.2026 15:37 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Two professional women shown in headshots, Dr Meena Rafiq from UCL and Silvia Kraft from Bone Cancer Research Trust, with their titles displayed below, alongside related cancer support logos.

Two professional women shown in headshots, Dr Meena Rafiq from UCL and Silvia Kraft from Bone Cancer Research Trust, with their titles displayed below, alongside related cancer support logos.

We are speaking at the next GP Community of Practice webinar on the 21st January, 1-2pm, in collaboration with Macmillan Cancer and Cancer Research UK

Dr Meena Rafiq and Silvia Kraft are representing the primary bone cancer community 🧑

If you're a GP, sign up here: https://ow.ly/AmGb50XXj06

16.01.2026 10:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Professor Wenhui Song

Professor Wenhui Song

A new Β£1 million cancer research project, led by Professor Wenhui Song UCL and funded by Children with Cancer UK in collaboration with Bone Cancer Research Trust, will drive the development of next-generation immunotherapy for Ewing sarcoma.

Read more: https://ow.ly/SCkP50XWEgW

#Research

14.01.2026 18:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
In person 'Get Together' event for the Bone Cancer Research Trust in Cambridge

In person 'Get Together' event for the Bone Cancer Research Trust in Cambridge

An in person support 'Get Together' for Bone Cancer Research Trust in Wigan

An in person support 'Get Together' for Bone Cancer Research Trust in Wigan

We’re excited to share that the Bone Cancer Research Trust has received Β£19,450 of funding from The National Lottery Community Fund towards our Support and Information service 🧑

Read more about the funding: https://ow.ly/fvIh50XAJwK

#NationalLottery #BoneCancer #Support #UntilTheresACure

06.01.2026 17:00 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We are proud to announce the appointment of our first-ever Youth Ambassador, Annabel Kiki!

Annabel will support us in advocating for the needs of young people living with or facing bone cancer, alongside helping to amplify their voices and strengthen engagement.

https://ow.ly/TAvG50XLxvz

01.01.2026 15:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Collage of people wearing orange Bone Cancer Research Trust awareness shirts making heart shapes with their hands in various indoor settings.

Collage of people wearing orange Bone Cancer Research Trust awareness shirts making heart shapes with their hands in various indoor settings.

As we step into the New Year, we want to say a heartfelt thank you from us all here at the Bone Cancer Research Trust!

Thanks to your incredible support, we’re able to fund life-saving research and ensure that no one faces bone cancer alone.

None of this would be possible without you🧑

01.01.2026 10:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
The Bone Cancer Research Trust information resources laid out on an orange table

The Bone Cancer Research Trust information resources laid out on an orange table

We are committed to producing information that is high quality, evidence-based, up-to-date and accurate. That's why we were awarded PIF TICK certification, the UK’s only assessed quality mark for health information 🧑

Read our information resources: https://ow.ly/oIQX50UK298

27.12.2025 10:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We would like to wish all our supporters, wherever you are, a Merry Christmas from all of us at #TeamBones HQ πŸŽ„πŸ§‘

25.12.2025 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Abbi resting in a hospital bed connected to multiple medical devices and IV lines, with a visitor leaning in supportively.

Abbi resting in a hospital bed connected to multiple medical devices and IV lines, with a visitor leaning in supportively.

In December 2024, Abbi was diagnosed with chondrosarcoma in her spine.

Her 11-hour operation not only saved her life but changed it completely.

Please help patients like Abbi cope with the after effects of treatment so they can live life as normally as possible.

https://ow.ly/3XHY50XKjeE

24.12.2025 17:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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In December 2024, Abbi was diagnosed with chondrosarcoma in her spine exactly three weeks before Christmas Day.

Her whole world was turned upside down.

Please watch, share and donate this Christmas to help people like Abbi have hope for the future: https://ow.ly/3XHY50XKjeE

#UntilTheresACure

24.12.2025 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Watch a special message from one of our research team, Professor Sibylle Mittnacht at UCL to learn how your donation this Christmas will help our dedicated researchers find kinder and more effective treatments for primary bone cancer.

Please donate today at: https://ow.ly/4CoK50XKeMz

21.12.2025 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Christine was diagnosed with bone cancer in 2022.

Her cancer returned in 2023 and she had her leg amputated so she could focus on watching her daughters grow up.

The cancer is terminal and she now creates special memories for her girls to hold onto.

Please donate today: https://ow.ly/2UQn50XJM6U

19.12.2025 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Christine and he family dressed in festive attire posing in front of a large, decorated Christmas tree with gold and blue ornaments indoors.

Christine and he family dressed in festive attire posing in front of a large, decorated Christmas tree with gold and blue ornaments indoors.

My name is Christine and in January 2022, I was diagnosed with bone cancer, in my heel.

I had surgery, which was successful, but in 2023, my cancer returned, and I had my leg amputated.

Devastatingly, the cancer is terminal.

Please donate and give the gift of hope: https://ow.ly/76aK50XJK5x

17.12.2025 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Your support is making research progress possible! 🧑

Watch this thank you from our researcher, Dr Martin Pule, whose research involves developing CAR T therapy as a potential treatment for osteosarcoma patients.

Please drive more progress by donating: https://ow.ly/4A1n50XHppZ

#UntilTheresACure

14.12.2025 16:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Abbie with a prosthetic leg practicing walking between parallel bars in a rehabilitation center.

Abbie with a prosthetic leg practicing walking between parallel bars in a rehabilitation center.

My name is Abbie and when I was 17, I was diagnosed with bone cancer in my leg which led to an amputation.

If treatments were kinder or the diagnosis came earlier, things might've worked out differently for me.

Your support matters so much 🧑

Please donate today: https://ow.ly/HNSu50XzWXC

12.12.2025 18:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Bone cancer advocacy work winning multiple awards: BCRT social media campaign seen 3 million timesΒ  - SPAGN - Sarcoma Patient Advocacy Global Network The Bone Cancer Research Trust this year received the inaugural Paola Gonzato Memory Award, dedicated to projects in bone sarcoma. They also took the second place in SPAGN's Advocacy in Action…

Our newest blog highlights the great work at @bcrt-uk.bsky.social and the multiple awards they received at the SPAGN Annual Conference this year.

Read more & Share: www.sarcoma-patients.org/blog/bcrt_aw...

#SarcomaAwareness

12.12.2025 12:30 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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New research funded by BCRT willβ€―investigateβ€―two established chemotherapy drugs for the treatment of Ewing sarcoma.

The grant has been awarded to Dr Nikolas Herold at the Karolinska Institutet, with researchers from The University of Manchester and UniversitΓ€t Heidelberg.

https://ow.ly/NZrS50XGKys

11.12.2025 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Abbie lying in a hospital bed wearing a white t-shirt and red socks, with medical equipment and personal items nearby.

Abbie lying in a hospital bed wearing a white t-shirt and red socks, with medical equipment and personal items nearby.

My name is Abbie.

When I was just 17, I was diagnosed with bone cancer in my knee. It changed my life forever β€” including a full leg amputation.

No one should have to face that reality. But many people with bone cancer are.

Give the gift of hope today: https://ow.ly/FcWw50XzW6R

Thank you 🧑

07.12.2025 18:00 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Dr Tyler Barr, postdoctoral Research Fellow at the University of Leeds, stood in a lab

Dr Tyler Barr, postdoctoral Research Fellow at the University of Leeds, stood in a lab

Scientists from the @UniversityofLeeds, together with teams in the UK and internationally have found a promising new immunotherapy for Ewing sarcoma.

From testing a modified virus, they hope it will recognise and destroy tumour cells more effectively.

Read more at: https://ow.ly/AIsH50XBRXo

05.12.2025 18:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Research poster on long-term follow-up and late effects monitoring for UK bone sarcoma patients displayed at a conference booth 207.

Research poster on long-term follow-up and late effects monitoring for UK bone sarcoma patients displayed at a conference booth 207.

Banner welcoming attendees to the 2025 Annual Meeting of 30 CTOS, displayed on a stone wall with palm tree graphics and a decorative emblem above.

Banner welcoming attendees to the 2025 Annual Meeting of 30 CTOS, displayed on a stone wall with palm tree graphics and a decorative emblem above.

We were honoured to represent the primary bone cancer community at this year’s (CTOS) Annual Meeting.

The event brought together more than 1,260 participants from 55 countries and we were able to continue driving progress and collaborate internationally.

Read more: https://ow.ly/A3tS50XBm4w

04.12.2025 18:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A poster depicting the work of the Bone Cancer Research Trust. The poster includes 'who we are' and research, information, support and awareness activities carried out by the charity.

A poster depicting the work of the Bone Cancer Research Trust. The poster includes 'who we are' and research, information, support and awareness activities carried out by the charity.

At the CTOS annual meeting, we're delighted to be at the Sarcoma Patient Advocacy Global Network (SPAGN) hospitality lounge - sharing our efforts on behalf of the bone cancer community with likeminded organisations 🧑

14.11.2025 11:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A photograph of the CTOS 2025 Annual Meeting poster at the front of the Boca Raton resort in Florida.

A photograph of the CTOS 2025 Annual Meeting poster at the front of the Boca Raton resort in Florida.

Viqui, a member of the Bone Cancer Research Trust team, standing in front of a poster about long-term and late effects research carried out by the charity.

Viqui, a member of the Bone Cancer Research Trust team, standing in front of a poster about long-term and late effects research carried out by the charity.

We're representing the bone cancer community at the Connective Tissue Oncology Society (CTOS) annual meeting 🌴

Over the next three days, world-leading clinicians, researchers and advocates will come together to advance bone cancer and sarcoma research πŸ”¬

#CTOS2025 #Research #UntilTheresACure

12.11.2025 15:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0