Imperial Patient Experience Research Centre (PERC)

🚨Calling #LondonMums🚨​

Had a baby since Dec 2024 or currently pregnant? @ImperialCollege researchers want to hear your thoughts on the RSV vaccine, whether you had it or not.

​💬 30-45 min interview (phone/online)
🎁 £25 Lovetoshop voucher
📧 Email: matimms@imperial.ac.uk

The Covid Made Long project is is a research partnership led by @lshtm.bsky.social in collaboration with @longcovidkids.bsky.social @imperialcollegeldn.bsky.social @longcovidsupport.bsky.social @posnegorg.bsky.social

The front cover of the Long Covid Lives illustrated story about young people with Long Covid featuring an illustration of the four young people from the story.

The front cover of the Living with Long Covid: A Young Person's Guide featuring illustrations of young people in different situations, some depicted struggling with symptoms such as lying in bed or with a cloud above their head. Some smiling and eating pizza with friends

The front cover of the Living with Long Covid: A Young Person's Glossary, featuring a young person sitting on a bed looking sad with words such as 'ache' 'depressed' 'lost' and 'sick' floating above their head.

The Covid Made Long project has been working with a group of peer collaborators and young people to co-produce 3 resources we are excited to launch today

If you know someone who may benefit from these resources, please share this post and direct them to this link www.lshtm.ac.uk/covid-made-l...

Huge shoutout 👏to Annemarie Lodder, winner of the 2025 BRC Public Involvement in Research Competition! 🏆

The project exemplifies excellence in PPIE from start to finish.

@imperialperc.bsky.social @imperialcollegeldn.bsky.social

More details 👇
imperialbrc.nihr.ac.uk/2025/11/28/w...

Read our latest article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being. 👇

onlinelibrary.wiley.com/doi/epdf/10....

Our Partnerships & Training Manager, Maria Piggin (right), has received an Outstanding Recognition Award from the Mosaic Community Trust.

We collaborate with Mosaic and researchers, like Dr Helen Skirrow (left), towards ensuring that community priorities are addressed at Imperial's health research.

New article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being.
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social

Should qualitative health researchers call themselves ‘qualitative health researchers’? - Bristol Biomedical Research Centre Dr Kirsten Bell is a Senior Research Fellow in Anthropology at Imperial College’s Patient Experience Research Centre. She’s also a member of the BRC Qualitative Social and Behavioural Research Network...

Our Senior Research Fellow in Anthropology, Dr Kirsten Bell reflects on how labelling research disciplines influences how we think about them.

Read more at @bristolbrc.bsky.social blog👇

💛 PERC at W12 Together Festival 💛

We keep it real and relevant — bringing research that speaks to our audience and the people it will impact most.
#W12Together #PeopleFirst #HealthResearch #CommunityEngagement

Are you an experienced #PublicInvolvement professional & passionate about engaging with underrepresented communities? Join us to support @imperialbrc.bsky.social
health research.

👇Find out more and apply by 13 October 2025.
lnkd.in/d88Ttg_p

@imperialmed.bsky.social @imperialcollegeldn.bsky.social

The @imperialbrc.bsky.social proudly recognises the exceptional public involvement in research across @imperialcollegeldn.bsky.social. Our Public Involvement in Research Competition 2025 is now officially open.

Apply by 12 October 2025 👉 tin.al/jG1dq

@imperialmed.bsky.social @nihr.bsky.social

🌈 Our PI Officer had an amazing time volunteering at the @wlqp.bsky.social street party!

💌 Big thanks to our colleagues at @westlondonnhs.bsky.social for helping hand out flyers, and to the brilliant folks from @goodgym.bsky.social and @dkms-uk.bsky.social we met along the way. #WLQP #LGBTQ

REACT study to help boost UK dementia research | Imperial News | Imperial College London Imperial’s REACT study will collaborate with a leading national dementia programme to help boost recruitment for clinical trials.

Millions signed up to @imperialcollegeldn.bsky.social's REACT study during the #COVID19 pandemic.

Now, that same cohort could help accelerate #dementia research – through a new partnership with HDR UK, @ukdri.ac.uk & Inuvi.

Faster trials = faster treatments 🧠 www.imperial.ac.uk/news/267013/...

A quick update from me on the REACT study which continues to follow the health impacts of the pandemic. @longcovidsupport.bsky.social @imperialperc.bsky.social @imperialsph.bsky.social

🤒How do older people make-sense of persistent COVID symptoms?

🤔 How does this influence their behaviors & outcomes?

📝 I'm presenting findings from the REACT study at the #BSG2025 conference, let's have a chat! 🗨️

@imperialsph.bsky.social @imperialperc.bsky.social @britishgerontology.bsky.social

Event 🚨

Title: NIHR Research Inclusion Training Event
Date: 25 June
Time: 12:00-16:00
Venue: Hybrid

To register or know more- imperial.eu.qualtrics.com/jfe/form/SV_...

@imperialmed.bsky.social @imperialnhli.bsky.social @imperialsci.bsky.social @imperialcollegeldn.bsky.social

Introducing Break the Barriers Co-producing better maternity care with and for Black, African, Caribbean, and mixed-Black families—grounded in lived experience, advocacy, and research.

🚨New blog: Break the Barriers!🚨

For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey!

🔗 First post + subscribe: bit.ly/3Hw2If4

#BlackMaternalHealth #coproduction #healthequity

Community session in a hall

It was a pleasure hosting @menkaloomba.bsky.social as an @imperialcollegeldn.bsky.social Global Development Fund Fellow. This blog reflects her #communityengagement across #NorthWestLondon & feedback on her #PhD in #periodontalhealth & #Type2diabetes blogs.imperial.ac.uk/perc/2025/06...

Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

We are delighted to share that our Director, @profhelenward.bsky.social, has been elected a Fellow of the Academy of Medical Sciences @acmedsci.bsky.social.

Huge congratulations, @profhelenward.bsky.social 🎉

Development of a Core Outcome Set for Intervention Studies in Adults With Laryngotracheal Stenosis We used a rigorous two round Delphi process informed by multiple stakeholder groups to gain consensus on seven core outcomes for inclusion in future research relating to adults with laryngotracheal s...

New paper alert! A Core Outcome Set for intervention studies in Airway Stenosis.

Thanks @imperialbrc.bsky.social for infrastructure support & @nihr.bsky.social for funding

@imperialmed.bsky.social @drjustinroe.bsky.social @amyfreeman.bsky.social @imperialperc.bsky.social

doi.org/10.1002/lary...

📢New paper now available: rdcu.be/elqhD

We outline how we trained & supported people living with HIV to conduct & analyse online interviews during the COVID-19 pandemic.

Huge thanks to our amazing community partner
@positivelyuk.bsky.social, staff @imperialperc.bsky.social & co-researchers ✨

Researchers and community members working together to shape research on respiratory infections in young children - Patient Experience Research Centre This entry is part 1 of 1 in the series Ealing Community Involvement in Research Event 2024Ealing Community Involvement in Research Event 2024Researchers and community members working together to shap...

🎉 Discover Kimberley Foley’s @kafoley.bsky.social inspiring blog on the Public Involvement work Kim led at the Ealing Community Involvement in Research event 👏
This blog was co-authored with a community member. Visit the link below:

tinyurl.com/2avat9rb and let us know your thoughts!

Post doc Dr Rhea Harewood sharing #BowelCancerAwareness at a community outreach event with the Harrow THCOGIC church.

The group discussed how #BowelCancer is caused, how we can screen to find it earlier and how to improve public involvement in bowel cancer research

#EDI #CancerResearch

Challenges of visibility and inclusion in Long COVID: a population-based interview study Introduction People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been base...

Pre-print from REACT . 60 interviews with diverse group
- all reported persistent symptoms after COVID
- many "invisible" as not using clinical care or support groups
- some didn't identify with category Long Covid
1/2
@longcovidsupport.bsky.social @imperialperc.bsky.social

doi.org/10.1101/2025...

Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.

On this #WorldHealthDay the @who.int focuses on the health of mothers and babies. Our 2024 Public Involvement in Research Competition Winner, @sarindiary.bsky.social, followed a co-production approach to address ethnic inequities in maternity care for Black women in West London.

👉 shorturl.at/bvVBO

BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.

@profhelenward.bsky.social @imperialmed.bsky.social

imperialbrc.nihr.ac.uk/2024/12/10/w...

Two women presenting at a conference

Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social

🎥 Discover how we are collaborating with the Latin American community in London to promote health awareness and public involvement!
A huge thank you to LA United UK and The Invention Rooms for making this possible. 🌟
#HealthAwareness #PublicInvolvement #LatinAmericanCommunity #ImperialCollegeLondon

Don’t miss our final blog of 2024! 💫 Featuring @emmaaaaa8.bsky.social Emma Alexander's amazing Public Involvement work in the Paediatric Intensive Care Unit research. Please find it here: blogs.imperial.ac.uk/perc/2024/12...

Let us know your thoughts in the comments!