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Imperial Patient Experience Research Centre (PERC)

@imperialperc.bsky.social

We are a team of mixed methods researchers doing research on research and public involvement practitioners supporting the Imperial Biomedical Research Centre funded by the National Institute of Health and Care Research (NIHR). linktr.ee/imperial_perc

112 Followers  |  35 Following  |  16 Posts  |  Joined: 28.11.2024  |  2.0606

Latest posts by imperialperc.bsky.social on Bluesky

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Should qualitative health researchers call themselves β€˜qualitative health researchers’? - Bristol Biomedical Research Centre Dr Kirsten Bell is a Senior Research Fellow in Anthropology at Imperial College’s Patient Experience Research Centre. She’s also a member of the BRC Qualitative Social and Behavioural Research Network...

Our Senior Research Fellow in Anthropology, Dr Kirsten Bell reflects on how labelling research disciplines influences how we think about them.

Read more at @bristolbrc.bsky.social blogπŸ‘‡

30.09.2025 08:04 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ’› PERC at W12 Together Festival πŸ’›

We keep it real and relevant β€” bringing research that speaks to our audience and the people it will impact most.
#W12Together #PeopleFirst #HealthResearch #CommunityEngagement

18.09.2025 17:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Are you an experienced #PublicInvolvement professional & passionate about engaging with underrepresented communities? Join us to support @imperialbrc.bsky.social
health research.

πŸ‘‡Find out more and apply by 13 October 2025.
lnkd.in/d88Ttg_p

@imperialmed.bsky.social @imperialcollegeldn.bsky.social

17.09.2025 08:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The @imperialbrc.bsky.social proudly recognises the exceptional public involvement in research across @imperialcollegeldn.bsky.social. Our Public Involvement in Research Competition 2025 is now officially open.

Apply by 12 October 2025 πŸ‘‰ tin.al/jG1dq

@imperialmed.bsky.social @nihr.bsky.social

12.09.2025 09:08 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🌈 Our PI Officer had an amazing time volunteering at the @wlqp.bsky.social street party!

πŸ’Œ Big thanks to our colleagues at @westlondonnhs.bsky.social for helping hand out flyers, and to the brilliant folks from @goodgym.bsky.social and @dkms-uk.bsky.social we met along the way. #WLQP #LGBTQ

04.09.2025 09:36 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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REACT study to help boost UK dementia research | Imperial News | Imperial College London Imperial’s REACT study will collaborate with a leading national dementia programme to help boost recruitment for clinical trials.

Millions signed up to @imperialcollegeldn.bsky.social's REACT study during the #COVID19 pandemic.

Now, that same cohort could help accelerate #dementia research – through a new partnership with HDR UK, @ukdri.ac.uk & Inuvi.

Faster trials = faster treatments 🧠 www.imperial.ac.uk/news/267013/...

06.08.2025 08:30 β€” πŸ‘ 2    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1

A quick update from me on the REACT study which continues to follow the health impacts of the pandemic. @longcovidsupport.bsky.social @imperialperc.bsky.social @imperialsph.bsky.social

11.07.2025 12:59 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ€’How do older people make-sense of persistent COVID symptoms?

πŸ€” How does this influence their behaviors & outcomes?

πŸ“ I'm presenting findings from the REACT study at the #BSG2025 conference, let's have a chat! πŸ—¨οΈ

@imperialsph.bsky.social @imperialperc.bsky.social @britishgerontology.bsky.social

26.06.2025 10:27 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Online Survey Software | Qualtrics Survey Solutions Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.

Event 🚨

Title: NIHR Research Inclusion Training Event
Date: 25 June
Time: 12:00-16:00
Venue: Hybrid

To register or know more- imperial.eu.qualtrics.com/jfe/form/SV_...

@imperialmed.bsky.social @imperialnhli.bsky.social @imperialsci.bsky.social @imperialcollegeldn.bsky.social

09.06.2025 08:28 β€” πŸ‘ 0    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1
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Introducing Break the Barriers Co-producing better maternity care with and for Black, African, Caribbean, and mixed-Black familiesβ€”grounded in lived experience, advocacy, and research.

🚨New blog: Break the Barriers!🚨

For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey!

πŸ”— First post + subscribe: bit.ly/3Hw2If4

#BlackMaternalHealth #coproduction #healthequity

07.06.2025 11:00 β€” πŸ‘ 12    πŸ” 8    πŸ’¬ 1    πŸ“Œ 1
Community session in a hall

Community session in a hall

It was a pleasure hosting @menkaloomba.bsky.social as an @imperialcollegeldn.bsky.social Global Development Fund Fellow. This blog reflects her #communityengagement across #NorthWestLondon & feedback on her #PhD in #periodontalhealth & #Type2diabetes blogs.imperial.ac.uk/perc/2025/06...

03.06.2025 09:14 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social

29.05.2025 13:01 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

We are delighted to share that our Director, @profhelenward.bsky.social, has been elected a Fellow of the Academy of Medical Sciences @acmedsci.bsky.social.

Huge congratulations, @profhelenward.bsky.social πŸŽ‰

23.05.2025 10:07 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Development of a Core Outcome Set for Intervention Studies in Adults With Laryngotracheal Stenosis We used a rigorous two round Delphi process informed by multiple stakeholder groups to gain consensus on seven core outcomes for inclusion in future research relating to adults with laryngotracheal s...

New paper alert! A Core Outcome Set for intervention studies in Airway Stenosis.

Thanks @imperialbrc.bsky.social for infrastructure support & @nihr.bsky.social for funding

@imperialmed.bsky.social @drjustinroe.bsky.social @amyfreeman.bsky.social @imperialperc.bsky.social

doi.org/10.1002/lary...

13.05.2025 18:26 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Co-production in HIV research: a case study from the COVID-19 pandemic

πŸ“’New paper now available: rdcu.be/elqhD

We outline how we trained & supported people living with HIV to conduct & analyse online interviews during the COVID-19 pandemic.

Huge thanks to our amazing community partner
@positivelyuk.bsky.social, staff @imperialperc.bsky.social & co-researchers ✨

12.05.2025 08:27 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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Researchers and community members working together to shape research on respiratory infections in young children - Patient Experience Research Centre This entry is part 1 of 1 in the series Ealing Community Involvement in Research Event 2024Ealing Community Involvement in Research Event 2024Researchers and community members working together to shap...

πŸŽ‰ Discover Kimberley Foley’s @kafoley.bsky.social inspiring blog on the Public Involvement work Kim led at the Ealing Community Involvement in Research event πŸ‘
This blog was co-authored with a community member. Visit the link below:

tinyurl.com/2avat9rb and let us know your thoughts!

29.04.2025 16:20 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Post doc Dr Rhea Harewood sharing #BowelCancerAwareness at a community outreach event with the Harrow THCOGIC church.

The group discussed how #BowelCancer is caused, how we can screen to find it earlier and how to improve public involvement in bowel cancer research

#EDI #CancerResearch

24.04.2025 10:25 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Challenges of visibility and inclusion in Long COVID: a population-based interview study Introduction People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been base...

Pre-print from REACT . 60 interviews with diverse group
- all reported persistent symptoms after COVID
- many "invisible" as not using clinical care or support groups
- some didn't identify with category Long Covid
1/2
@longcovidsupport.bsky.social @imperialperc.bsky.social

doi.org/10.1101/2025...

15.04.2025 13:33 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.

Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.

On this #WorldHealthDay the @who.int focuses on the health of mothers and babies. Our 2024 Public Involvement in Research Competition Winner, @sarindiary.bsky.social, followed a co-production approach to address ethnic inequities in maternity care for Black women in West London.

πŸ‘‰ shorturl.at/bvVBO

07.04.2025 09:33 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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BRC Public Involvement in Research Competition winner 24 receives the trophy πŸ† at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.

@profhelenward.bsky.social @imperialmed.bsky.social

imperialbrc.nihr.ac.uk/2024/12/10/w...

26.03.2025 20:15 β€” πŸ‘ 4    πŸ” 5    πŸ’¬ 0    πŸ“Œ 1
Two women presenting at a conference

Two women presenting at a conference

Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social

25.03.2025 19:31 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ₯ Discover how we are collaborating with the Latin American community in London to promote health awareness and public involvement!
A huge thank you to LA United UK and The Invention Rooms for making this possible. 🌟
#HealthAwareness #PublicInvolvement #LatinAmericanCommunity #ImperialCollegeLondon

17.03.2025 18:13 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Having an Impact with PPIE in Paediatric Intensive Care Research By Emma Alexander As a doctor who works in children’s intensive care, I have always been interested in research, especially in research that matters to parents and young children

Don’t miss our final blog of 2024! πŸ’« Featuring @emmaaaaa8.bsky.social Emma Alexander's amazing Public Involvement work in the Paediatric Intensive Care Unit research. Please find it here: blogs.imperial.ac.uk/perc/2024/12...

Let us know your thoughts in the comments!

20.12.2024 16:20 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Winner announced for the BRC Public Involvement in Research Competition 2024 – NIHR Imperial Biomedical Research Centre <p>The winner of the NIHR Imperial BRC Public Involvement in Research Competition 2024 was announced early this month.</p>

Congratulations to @sarindiary.bsky.social on winning the @imperialbrc.bsky.social 2024 #publicinvolvement competition! Read more about her coproduced #maternitycare in #NorthWestLondon here. tinyurl.com/2fyt492b @imperialcollegeldn.bsky.social #academicsky #medsky #matexp #coproduction

10.12.2024 11:31 β€” πŸ‘ 12    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

@imperialbrc.bsky.social

04.12.2024 09:35 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@imperialbrc.bsky.social

04.12.2024 09:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Improving the maternity experience for Black, African, Caribbean and mixed-Black families in an integrated care system: a multigroup community and interprofessional co-production prioritisation exerci... Background Ethnic inequities in maternity care persist in England for Black, African, Caribbean and mixed-Black heritage families, resulting in poorer care experiences and health outcomes than other m...

There is a need for an integrated, #community-centred approach beyond hospital to improve #maternityexperience in Black, African, Caribbean & mixed-Black families @sarindiary.bsky.social @nihr.bsky.social @phoebeaverill.bsky.social #academicsky #medsky #matexp #coproduction
doi.org/10.1136/bmjq...

28.11.2024 16:24 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 1    πŸ“Œ 3
2 people sitting at a table with a bowl of counters and 2 glass jars

2 people sitting at a table with a bowl of counters and 2 glass jars


We attended the #CardiomyopathyUK conference a few weeks ago to further explore experiences of patients and how they feel about their heart medications. Read more in our latest blog: #cardiomyopathy #patientexperience @imperialcollegeldn.bsky.social @nihr.bsky.social #TRED-HF2
tinyurl.com/3dv2sws8

28.11.2024 14:42 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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