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International Patient and Public Involvement Network

@ippin.bsky.social

The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite.com/ippin

818 Followers  |  1,488 Following  |  13 Posts  |  Joined: 03.02.2025  |  1.5177

Latest posts by ippin.bsky.social on Bluesky

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Did you know membership of the International PPI Network is completely free? To find out more and join today click here: intppinetwork.wixsite.com/ippin/member...

09.02.2026 12:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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There is still time to book your place for this afternoon's webinar - Patient and Public Involvement in Research in Ireland. Register here - zoom.us/webinar/regi...

05.02.2026 12:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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There are still spaces available for our next webinar. You can register to attend here: zoom.us/webinar/regi...

02.02.2026 09:13 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Join us for our next webinar - 'Patient and Public Involvement in Research in Ireland' with Claire Riordan and Edel Murphy. Register here: zoom.us/webinar/regi...

13.01.2026 12:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?

Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'

intppinetwork.wixsite.com/ippin/post/p...

27.10.2025 15:31 β€” πŸ‘ 1    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1
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Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7

23.10.2025 09:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The presentation and Q&A from our webinar on Citizen Science with Sarah Ahannach are now available to watch again on our website: t.co/YG6zYkVSJJ

20.10.2025 13:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Registration is still open for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...

22.09.2025 10:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The presentation and Q&A for last weeks webinar on Measuring the Impact of PPI in Research are now available to watch again on our website. intppinetwork.wixsite.com/ippin/webina...

09.09.2025 09:36 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Join us for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...

04.09.2025 09:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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How do we assess the impact of #patientandpublicinvolvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. Register at: zoom.us/webinar/regi...

07.08.2025 11:01 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Research Fellow, Patient and Public Involvement and Engagement (PPIE) [LKCMedicine] The Lee Kong Chian School of Medicine (LKCMedicine) trains doctors who put patients at the centre of their exemplary care. The School, which offers both undergraduate and graduate programmes, is named...

ntu.wd3.myworkdayjobs.com/Careers/job/...

02.07.2025 12:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸš€ THE PEOPLE'S REVIEW IS OPEN NOW πŸš€
We are excited to launch Stage 1 of #ThePeoplesReview

βœ…Open to people worldwide
βœ…Everything takes place online
βœ…Make a difference in health research
βœ…Learn about systematic reviews

Join now ➑️ buff.ly/WAnKUYa

22.04.2025 15:58 β€” πŸ‘ 7    πŸ” 7    πŸ’¬ 1    πŸ“Œ 9
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πŸŽ‰ Celebrating 3 years of the @hralatest.bsky.social Shared Commitment to Public Involvement! We hear from 1000s of patients every year and their voices shape real change in healthcare. Our 6 principles can help other orgs do the same. Learn more: buff.ly/5Pf97bX
#SharedCommitment #PublicInvolvement

10.03.2025 16:32 β€” πŸ‘ 10    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
It says, 'Celebrating the third anniversary of the Shared Commitment to Public Involvement.' An image of a cupcake with a number 3 shaped candle is left.

It says, 'Celebrating the third anniversary of the Shared Commitment to Public Involvement.' An image of a cupcake with a number 3 shaped candle is left.

To mark the third anniversary of our #SharedCommitment to #PublicInvolvement, Matt Westmore, HRA Chief Executive, has written about our public involvement highlights from the past year ➑️https://www.hra.nhs.uk/about-us/news-updates/blog-celebrating-the-third-anniversary-of-our-shared-commitment/

10.03.2025 16:06 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

We take our membership of the Shared Commitment to Patient Involvement very seriously. Jenny Royle, our lovely Strategic Lead shares our pledges www.youtube.com/watch?si=juW...
#SharedCommitment #patientinvolvement #socialresearch

24.02.2025 16:41 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Our public partners Cheryl and Irene are marking the 3rd anniversary of the HRA #SharedCommitment to #PublicInvolvement by sharing their research participation stories & discussing why #PublicInvolvement is so important to them.

Read the blog ⬇️
tinyurl.com/SC25Blog

10.03.2025 15:30 β€” πŸ‘ 7    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1
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Nick Hillier | The Academy of Medical Sciences - Research Unravelled Peter Barker chats with Nick Hillier - Director of Comms and Engagement at the Academy of Medical Sciences - about patient and public involvement.

Our #SharedCommitment to #PublicInvolvement in health and social care research is three today! πŸ₯³

Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research.

πŸ‘‰ ow.ly/e5u050VbF7R

@hralatest.bsky.social

10.03.2025 11:42 β€” πŸ‘ 11    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
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Today marks 3 years of the #SharedCommitment to Public Involvement!

As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research!

Read it here: bit.ly/4kAIEqS

@hralatest.bsky.social
@nihr.bsky.social

10.03.2025 13:01 β€” πŸ‘ 11    πŸ” 7    πŸ’¬ 0    πŸ“Œ 2
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Today marks the 3rd anniversary of the #SharedCommitment to Public Involvement in Health and Social Care Research.

We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.

10.03.2025 16:10 β€” πŸ‘ 20    πŸ” 5    πŸ’¬ 0    πŸ“Œ 1
celebrating the third anniversary of the shared commitment to public involvement

celebrating the third anniversary of the shared commitment to public involvement

We’re a partner with other leading orgs on the #SharedCommitment to Public Involvement initiative, which turns 3 today!🎈

@vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research πŸ‘‰ bit.ly/4hnVTs6

@nihr.bsky.social @hralatest.bsky.social

10.03.2025 15:41 β€” πŸ‘ 9    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1

Great to see @ippin.bsky.social on here.
Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!

06.03.2025 16:51 β€” πŸ‘ 10    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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NIHR (National Institute for Health and Care Research) on LinkedIn: We've just released episode 1 of our new podcast series - Spotlight on… We've just released episode 1 of our new podcast series - Spotlight on community engagement and involvement (CEI): Leaving no one behind. Each episode, guests…

www.linkedin.com/posts/nihr-r...

10.03.2025 14:52 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Patient and Public Involvement and Engagement in Med Tech

Tue 12 Nov 2024, 9am - 12:30pm

Join this event to understand the importance of #PPIE throughout the #medtech development cycle.

Book your tickets here: lnkd.in/ePXGWTa3

Sponsored by the WMHTIA in collaboration with Medilink Midlands.

04.11.2024 14:36 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Podcast!! πŸŽ™οΈπŸ“Ή Having patients involved in #epilepsy research is fantastic - if done well! How can Public Patient Involvement impact qualitative research? And, how is this is benefit to quantitative research?! Hear all about it from research fellow Georgia Cook 🀩! Watch/listen, via links πŸ‘‡πŸ»!

23.01.2025 17:23 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0
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Recruiting for research Get involved with research into coeliac disease and the affects of gluten by helping with research projects.

(2/2)The research team is looking for people diagnosed with coeliac disease or parents or carers of children with coeliac disease to join a Patient and Public Involvement and Engagement (PPIE) panel.

Find out more: ​
www.coeliac.org.uk/research/our...

#CoeliacDisease #CoeliacUK #Coeliac

17.12.2024 13:38 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Do you want to help shape research into how and why health and healthcare for people living in different types of rural communities differs from those living in urban areas?

Researchers are looking for people who live in rural and island communities in Scotland and who 

a) live with or have experienced cancer or a long-term rheumatic or musculoskeletal condition, 
or 
b) are over the age of 65 and have been hospitalized at least twice in the past two years, 

to be part of the Patient and Public Involvement and Engagement group for the BRUCES research project.
Group members will be compensated for their time.

https://bit.ly/BRUCESPPI

Do you want to help shape research into how and why health and healthcare for people living in different types of rural communities differs from those living in urban areas? Researchers are looking for people who live in rural and island communities in Scotland and who a) live with or have experienced cancer or a long-term rheumatic or musculoskeletal condition, or b) are over the age of 65 and have been hospitalized at least twice in the past two years, to be part of the Patient and Public Involvement and Engagement group for the BRUCES research project. Group members will be compensated for their time. https://bit.ly/BRUCESPPI

Researchers at Aberdeen Uni are looking for ppl in rural & island Scotland to help shape research into healthcare provision for specific medical conditions. Check out the link for more info on the project & how to get involved.

www.abdn.ac.uk/iahs/academi...

#RuralHealth #IslandHealth

06.01.2025 10:36 β€” πŸ‘ 3    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

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