CMTUK

📣 CMTUK is going to Glasgow!
We’re happy to share that we’ll be at the Royal College of Podiatry Conference 2025👉 After a great time at the Foot & Ankle Show, we’re excited to keep spreading awareness about CMT.
More info: rcpod.org.uk/podiatry-conference
#CMTAwareness #RCOPConference2025

02.07.2025 13:02 — 👍 0    🔁 0    💬 0    📌 0

Move A Mile-A-Day In May 2025 Move A Mile-A-Day in May is BACK for 2025 – and this year, we’re going charity-wide! 🎉 We’re challenging ourselves to move 1 mile, every day, for the whole month of May – and we’d love for you to joi

Move A Mile-A-Day In May is back for 2025 and this time, we’re going charity-wide 🎉Whether you’re walking, wheeling, skipping, running, or even driving your mile, it all counts🧑‍🦽🕺👩‍🦼🚶‍♂️
💙 Donate or share the fundraising link (cmtunitedkingdom.enthuse.com/pf/mamadim25)
Ready to get moving? Let’s do this!

23.04.2025 11:45 — 👍 0    🔁 0    💬 0    📌 0

On July 13th, Paul will be taking on the Cotswol Half-Ironman to raise funds and awareness for Charcot-Marie-Tooth disease, the condition he lives with.
Let’s all wish him the best of luck!🍀
Paul, you’re going to smash it! 💪
👉 Read his full story: cmtunitedkingdom.enthuse.com/pf/paul-newell

04.04.2025 12:36 — 👍 2    🔁 0    💬 0    📌 0

✨ Wow! We are officially FULLY BOOKED for this year’s CMTUK Annual Conference on 10th May in Stratford-upon-Avon! We can’t wait to see you there for a day full of learning, connection, and inspiration.
🎥 Check out how we did last year!
www.youtube.com/watch?v=tGw3...

04.03.2025 13:35 — 👍 0    🔁 0    💬 0    📌 0

💜🌍 It’s Rare Disease Day! 🌍💜

Tonight, let’s shine a light for the 300 million people living with a rare disease, including Charcot-Marie-Tooth (CMT).

Join the #LightUpForRare movement @ 7 PM
📸 Share a photo of your lights and tag #LightUpForRare to raise awareness! www.youtube.com/watch?v=fIvq...

28.02.2025 09:37 — 👍 1    🔁 1    💬 0    📌 0

Professor Mary Reilly receives honorary MBE : University College London Hospitals NHS Foundation Trust Congratulations to Professor Mary Reilly – professor of clinical neurology and consultant neurologist – on receiving an honorary MBE for services to medicine.

👏 Congratulations to Professor Mary Reilly – professor of clinical neurology and consultant neurologist – on receiving an honorary MBE for services to Medicine.
We are proud to have her as our Patron as the UK’s leading expert in CMT💜
👉 Read more: www.uclh.nhs.uk/news/profess...

19.02.2025 13:23 — 👍 2    🔁 0    💬 0    📌 0

CMT is a hereditary neurological condition that affects movement and sensation, yet many people have never heard of it.
💜 How can you help?
✔ Share this post to educate others about CMT and rare diseases.
✔ Join us at the CMTUK Conference 2025—bringing the community together.
💜 #RareDiseaseDay

13.02.2025 13:20 — 👍 0    🔁 0    💬 0    📌 0

Mark your calendars! We’re excited to invite you to the CMTUK Annual Conference 2025, happening on Saturday, 10th May 2025, in Stafford.

Take advantage of our early bird offer and secure your spot for just £39!

Don’t wait too long—reserve your place and join us in exploring the future of CMT!

22.01.2025 13:16 — 👍 0    🔁 0    💬 0    📌 0

💝 Did you know that you can turn your energy into something meaningful? 🏃‍♀️ Planning to run, walk, or take on a challenge this year?

📝 Register with JustRunning or UltraChallenge and choose CMTUK as your charity.
👉JustRunning: www.justrunning.com
👉UltraChallenge: www.ultrachallenge.com/how-to-join/

13.01.2025 09:24 — 👍 1    🔁 0    💬 0    📌 0

📝 Help us to raise the issues that matter most to the neuro community in Parliament.
👉 Ask your MP to attend The Neurological Alliance’s upcoming Parliamentary Neuro Reception.
📝 Take the easy e-action to write to your MP now.
👉 tinyurl.com/ParliNeuroRe...
#BackThe1in6

10.01.2025 09:27 — 👍 1    🔁 0    💬 0    📌 0

CMTUK: I promise myself to...

💬 What’s your promise to yourself this year?
🌟 Everyone’s CMT symptoms, strengths, and weaknesses may be different. The idea for a healthy 2025 is listening to what YOUR body and mind need.
Small steps can make a big difference! 🧠❤️
👇 What's your goal this year? Share below and inspire others! 💙✨

08.01.2025 13:21 — 👍 1    🔁 0    💬 0    📌 0

👉 Have you ever joined one of our online support meetings? If not, maybe face-to-face meetings work better for you – we get it, and we’re happy to offer that too!
👉 Do you live nearby FAREHAM and would like to get more details?
👣 Send us email enquiries@cmt.org.uk to book your place.
See you soon!

08.01.2025 11:36 — 👍 2    🔁 0    💬 0    📌 0