An accompanying policy briefing detailing key findings & recommendations has also been published today:
Bereavement: Systemic reform and targeted action needed to better support Black communities
π tinyurl.com/34sh98ac
@policybristol.bsky.social @griefcentrebris.bsky.social @lucyselman.bsky.social
02.12.2025 12:49 β π 3 π 1 π¬ 0 π 0
π£Out today: βThe system doesnβt really cater for the trauma that Black people have experiencedβ β Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
www.tandfonline.com/doi/full/10....
Policy brief: tinyurl.com/34sh98ac
02.12.2025 21:22 β π 2 π 1 π¬ 0 π 0
Iβll never forget the horror of the Covid wards | The Observer
"My NHS colleagues & I werenβt willing to let the bodies pile high in their thousands. Boris no longer mentions them at all."
My piece on the responses to the UK Covid-UK Inquiry report that try to airbrush the dead away.
Sincere thanks, @theobserveruk.bsky.social.
observer.co.uk/news/nationa...
23.11.2025 09:18 β π 1452 π 659 π¬ 49 π 50
AXA Safe Spaces β Against domestic and sexual violence
Foster safe spaces at work by learning how to Recognize, Respond to and Refer those impacted to specialist services. Create a safe and supportive workplace where everyone can seek help.
Please repost @bright-group.bsky.social @kazjm.bsky.social @drlucypotter.bsky.social @lucyselman.bsky.social @drpoco.bsky.social @clarethomasvll.bsky.social @shobadawson.bsky.social @christiec.bsky.social @jscottuob.bsky.social @jhorwood.bsky.social safespaces-againstviolence.axa.com/en/
11.11.2025 14:35 β π 4 π 3 π¬ 2 π 2
Last chance to book - PEOLC Southwest Research Network Meeting, Tomorrow 6 November 2-4pm, online. We have an exciting list of speakers and interesting talks lined up. Presentations will have a focus on equity. Register here www.ticketsource.co.uk/alice-malpas...
@lucyselman.bsky.social
05.11.2025 12:10 β π 3 π 1 π¬ 1 π 0
We are running this session on Ripple Effects Mapping next week - free and open to all. π
30.10.2025 17:41 β π 2 π 0 π¬ 0 π 0
Turning grief into art
A new exhibition aimed to βunite people in love and lossβ
Lovely article in @bristol247.bsky.social about an exhibition 'turning grief into art', which was held in Bristol on Saturday. The exhibition was curated by @goodgrieffest.bsky.social intern Isis Blake.
www.bristol247.com/culture/art/...
27.10.2025 15:53 β π 5 π 3 π¬ 1 π 0
Stellar line-up of speakers for our next online Palliative and End of Life Care Southwest Research Network Meeting on 6 Nov. Our focus is equity.
Register: www.ticketsource.co.uk/alice-malpas...
@joannamdavies.bsky.social @claudechidiac.bsky.social @peolcsw.bsky.social @capcbristol.bsky.social
22.10.2025 11:35 β π 8 π 4 π¬ 1 π 0
Listen to CC&CH Co-Investigators speak
David Moss BNSSG ICB & Teresa Salami-Oru Consultant in Public Health
Register here lnkd.in/euB5HEfu
@lucyselman.bsky.social @profnigelsherriff.bsky.social @mobcommassets.bsky.social @capcbristol.bsky.social @bnssgresearch.bsky.social @eastsussexcc.bsky.social
22.10.2025 14:49 β π 4 π 3 π¬ 0 π 0
Stellar line-up of speakers for our next online Palliative and End of Life Care Southwest Research Network Meeting on 6 Nov. Our focus is equity.
Register: www.ticketsource.co.uk/alice-malpas...
@joannamdavies.bsky.social @claudechidiac.bsky.social @peolcsw.bsky.social @capcbristol.bsky.social
22.10.2025 11:35 β π 8 π 4 π¬ 1 π 0
CC&CH Workshop: Why does it matter? Understanding accountability for community outcomes, 4 December 1-3pm. More information and registration here:
www.eventbrite.com/e/why-does-i...
@lucyselman.bsky.social @mobcommassets.bsky.social @capcbristol.bsky.social
16.10.2025 09:32 β π 3 π 3 π¬ 0 π 0
Opportunity to learn about Ripple Effect Mapping - a participatory evaluation method that helps to identify and make sense of the wide-ranging impacts of a project or initiative (both intended & unintended), courtesy of @coastalcch.bsky.social, which is co-led by colleague @lucyselman.bsky.social. π½
16.10.2025 09:36 β π 1 π 1 π¬ 0 π 0
The CC&CH project aims to generate evidence and resources to improve mental health and tackle health inequalities in coastal communities by enhancing and widening access to community assets coastalcch.bristol.ac.uk
@lucyselman.bsky.social @mobcommassets.bsky.social @capcbristol.bsky.social
10.10.2025 13:12 β π 5 π 2 π¬ 0 π 0
Amazing work by Liam Callebout, who live scribed at our recent community meeting in Weston-super-Mare, where our main focus was creative health. @mobcommassets.bsky.social @bnssgresearch.bsky.social @capcbristol.bsky.social
10.10.2025 12:39 β π 6 π 2 π¬ 0 π 0
Evaluating Programmes & Creative Engagement Initiatives. Register for our Collaborative workshop exploring methods for evaluating creative engagement initiatives and participatory methods for evaluating programmes www.eventbrite.com/e/evaluating...
@lucyselman.bsky.social @mobcommassets.bsky.social
30.09.2025 10:47 β π 2 π 2 π¬ 0 π 0
π’Research Handbook on End of Life Care and Society (eds Clark & Samuels) now out OPEN ACCESS.
Delighted to contribute the chapter on bereavement. PDF available here: www.elgaronline.com/edcollchap-o...
23.09.2025 12:13 β π 3 π 3 π¬ 0 π 0
Griefβs Grace: Launching our Living Archive in Weston-super-Mare. Read Louise Hill-Davis' blog here coastalcch.bristol.ac.uk/news/
How do we carry loss and still find strength and connection? When we share it, grief can become a source of grace.
@lucyselman.bsky.social @mobcommassets.bsky.social
16.09.2025 14:22 β π 1 π 1 π¬ 0 π 0
Co-creating Services: Stakeholder Engagement from Design to Evaluation. Recording & slides from our latest capacity building workshop are now on our website. coastalcch.bristol.ac.uk/capacity-bui...
@lucyselman.bsky.social @mobcommassets.bsky.social
18.09.2025 10:26 β π 4 π 1 π¬ 0 π 0
Figure 1 | Patients have diverse preferences that reflect individual variation in what they consider important. Those planning for life
with kidney failure want control over their futures and tend to desire autonomy in treatment decision-making. They will trade off the
potential benefits of treatments against an over-riding desire to minimize disruption of daily and family life, responsibilities, and interests. The
treatments that patients plan for and receive reflect complex processes involving many actors. Familial, community, societal, cultural,
spiritual, clinical, and informational factors shape preferences, restrict or provide treatment options, and guide decisions. Skill, investment,
and intentional practice are needed to ensure that patient preferences carry weight in decision-making.
Proud of this Kidney International paper: doi.org/10.1016/j.ki.... Nephrology involves optimal delivery of treatments that prolong life, preserve & replace organ function. The art lies in shaping this care to the person.
@rachaelmorton.bsky.social
@lucyselman.bsky.social
@flissmurtagh.bsky.social
19.08.2025 10:38 β π 6 π 5 π¬ 0 π 0
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
- YouTube
The first seminar of our new series is now available on YouTube! Thanks again to Christy Denckla @hsph.harvard.edu @harvard.edu for a fascinating discussion exploring a public health perspective on grief & bereavement with @lucyselman.bsky.social.
Watch here: griefcentre.bristol.ac.uk/events
26.08.2025 10:45 β π 4 π 4 π¬ 0 π 0
If you are interested in bereavement research, join us on 30 July at 2pm (UK time) to hear from Dr Christy Denckla on A Public Health Perspective on Grief & Bereavement
www.ticketsource.co.uk/goodgrieffes...
28.07.2025 16:54 β π 1 π 0 π¬ 0 π 0
Figure 1 Patients have diverse preferences reflecting individual variation in what people consider important. Those planning for life with kidney failure want control over their futures and tend to desire autonomy in treatment decision-making. They will trade-off the potential benefits of treatments against an over-riding desire to minimize disruption of daily and family life, responsibilities, and interests. The treatments patients plan for and receive reflect complex processes involving many actors. Familial, community, societal, cultural, spiritual, clinical and informational factors shape preferences, restrict or provide treatment options, and guide decisions. Skill, investment, and intentional practice is needed to ensure that patient preferences carry weight.
Patient preferences in RRT choice
Review in @kireports.bsky.social www.kidney-international.org/article/S008...
27.07.2025 12:24 β π 12 π 6 π¬ 0 π 1
On 30 July we have the first of our new
@griefcentrebris.bsky.social online seminar series. Join us at 2pm to hear Dr Christy Denckla @hsph.harvard.edu talk on A Public Health Perspective on Grief & Bereavement.
Register at:
www.ticketsource.co.uk/goodgrieffes...
23.07.2025 15:56 β π 3 π 1 π¬ 0 π 0
Last week we had our annual in-person team meeting in Weston. Lovely to welcome colleagues from across sectors from Blackpool/the NW and Hastings/the SW and show them around Weston in the sunshine! Blog here
coastalcch.bristol.ac.uk/news/#WSM-me...
@lucyselman.bsky.social @mobcommassets.bsky.social
17.07.2025 11:01 β π 2 π 3 π¬ 0 π 0
Capacity-building Workshops | Coastal Community & Creative Health
Watch our capacity-building workshops "A changing landscape and the need for complexity-informed approaches" and "Trauma-informed practice: Tools, stories, and strategies for impact" coastalcch.bristol.ac.uk/capacity-bui...
@lucyselman.bsky.social @mobcommassets.bsky.social @buketkara.bsky.social
16.07.2025 09:39 β π 1 π 3 π¬ 0 π 0
Do you work for a bereavement service? If so, pls take a look at this v. short survey for a project we are running to support the analysis of qualitative client feedback data. Open until 31 July.
There'll also be a focus group on 17 Sept - see flyer.
app.onlinesurveys.jisc.ac.uk/s/cardiff/be...
15.07.2025 13:59 β π 2 π 3 π¬ 0 π 0
Professor Lucy Selman and Dr Lesel Dawson, University of Bristol.
Guests at the launch event.
Guests on the lawn with Goldney House in the background.
A wonderful day at Goldney House with @lucyselman.bsky.social & @leseldawson.bsky.social for the launch of The Bristol Centre for Grief Research & Engagement (1 July). π
The Centre will focus on interdisciplinary & multidisciplinary research into grief, deathΒ & loss.
See: griefcentre.bristol.ac.uk
08.07.2025 10:50 β π 6 π 4 π¬ 0 π 0
Portrait by Jake Hurle.
Exhibition flyer
1/3 Coming up: Life in a Coastal Town - a new free exhibition exploring #MentalHealth and community, Weston Museum, Weston-super-Mare, 8-17 July 2025.
The exhibition shares original artwork by local people exploring their experiences during some of life's toughest times.
More info: bit.ly/4ltc4H8
02.07.2025 11:47 β π 10 π 6 π¬ 1 π 1
Associate Professor Health Services Research, University of Exeter
Supporting system health and care research.
https://bnssg.icb.nhs.uk/research-and-evidence/
@BNSSGResearch on X
We are a multidisciplinary special interest group @IASP, fostering widespread interest in high-quality methods for pain research. https://www.iasp-pain.org/membership/special-interest-groups-sigs/methodology-evidence-synthesis-and-implementation-mesisig/
Prof in Intellectual Disability Research at the University of South Wales. I am currently leading the Marie Curie funded READY study https://www.readystudy.uk/home - a study of the last year of life of people with learning disabilities.
The British Psychotherapy Foundation is one of the largest independent providers of #Jungian analytic & psychoanalytic #psychotherapy training in the UK. Based in London and Newcastle.
https://www.britishpsychotherapyfoundation.org.uk/
Policy updates, news and campaigns from the UKβs leading end of life charity. We campaign for a world where everyone gets the best experience possible at the end of their life.
Nephrologist = kidney doctor
MD, MPH
Professor, University of Ottawa/Ottawa Hospital π¨π¦
He/Him/His
#NephJC co-creator; @FreelyFiltered.bsky.social pod panelist; KICR EiC
https://www.swapnilhiremath.com
Palliative Care physician in Winnipeg, Manitoba, Canada
Educator and creator of Palliative Care Explained (YouTube channel)
https://www.youtube.com/@PalliativeCareExplained
Musician
π¨π¦ Canadian Storyteller. Death Doula. Theatre Nerd. Hex the patriarchy. Make art.
https://linktr.ee/LadyDeathDoula
Quantitative Researcher at Marie Curie
Interests include palliative and end of life care, caregiving, loneliness, health and wellbeing, older adults.
BSc, MSc, MBPsS, AFHEA | PhD Researcher in Medical Sciences at Hull York Medical School | NHS | Research areas: Integrated care, health inequalities, respiratory disease, lung cancer, advanced illness, palliative care
Passionate about #Ageing #Health #SocialCare #Dementia. Award-winning Content Creator; Author of D4Dementia; Consultant; Trainer & Mentor; Campaigner & Speaker.
http://www.bethbritton.com/
@MeetMacIntyre passionate about #Dementia #Health #CoProduction #SocialCare & supporting people with #LearningDisabilities #Autism to live meaningful and happy lives loves to connect with others @macintyrehealth #teamworkmakesthedreamwork π
We're MacIntyre. We offer learning, support and care for children, young people and adults with learning disabilities and/or autism.
www.macintyrecharity.org
The membership association for learning disability and autism support providers.
Ask us about membership, training, DBS checks, qualifications, Active Support and research.
Changing thinking, changing practice, changing lives.
Pain scientist. Asst Clinical prof @ UCSF, lecture @ Stanford. Psychologist. Disruptor. Authorπ The Pain Management Workbook. Neuroscience nerd π§ #medsky #medtwitter #SciComm #neuroskyence
zoffness.com
Kidney pharmacist, Bristol UK.
#NephSky #PharmSky
All views are a personal opinion.
Interested in equity and equality in end of life care, ethnicity and culture, advance care planning, big data. Works at Wolfson Palliative Care Research Centre, Hull York Medical School
Now one of the presenters of 'Movers & Shakers' podcast & blogging for Prospect 'a good death' on assisted dying. Notionally retired ex BBC R4 presenter,North America editor,Europe ed, chief pol corr. Huge music fan.