Lydia Makaroff

A black and red exercise bike in a shed

Got an exercise bike gathering dust? 🚴‍♀️
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling

Lydia Makaroff and Rohan Greenland smiling in the sunshine after breakfast in London. Lydia is wearing a black jacket and Australian patterned scarf; Rohan is in a brown jacket and sunglasses on his head. Urban buildings and a clear blue sky form the backdrop.

A real pleasure to meet @rohangreenland.bsky.social in London this morning, fresh off the plane from Oz 🦘. Grateful to have him on the Board of the #MultipleSclerosis International Federation as we chatted about challenges & solutions over breakfast ☕ 🌏 #MSCommunity #MSAwareness

A group of seven people wearing bright red “The May 50K” t-shirts pose for a selfie in a park on a sunny day. They are smiling and looking at the camera, with trees, grass, and a few buildings in the background.

WELCOME TO #TheMay50K! I put on my red t-shirt for the first time, and we had our first team training day in London! Roll, walk or run 50K this May to support people living with #MultipleSclerosis 💙 themay50k.com

Deactivated. Your account is deactivated. Sorry to see you go. #GoodBye

I deleted my #Twitter today. 😢😡 Joined in 2008 as user #14,857,473, back when @Replies was new, #FailWhale was frequent, #iPhone3G was launched, & #ThisWeekInTech was my go-to podcast. Grateful for my 5,598 followers, but it's time. Used helloquittex.com to find friends on Bluesky. #GoodBye 👋

Lydia using seated bike

Trying out a Recumbent Cross Trainer, which helps people with #MultipleSclerosis stay active with low-impact exercise. It’s designed to improve strength, balance, & health. The Italian MS Society is publishing important research on the best rehab approaches. Grateful to learn from them! #MSRehab

Lydia with a TENS machine on her arm and a pen in her hand.

The Italian MS Society’s #SentiComeMiSento workshops help us all understand invisible MS symptoms. Tools include TENS machines for tremors, scratched glasses for optic neuritis, gloves for sensory loss, and weights for fatigue. These simulations build awareness of MS challenges. #MSAwareness

A pair of white sneakers with black calligraphy-style writing on them sit on a white shelf. The shoes feature handwritten messages in Italian about movement, life, and multiple sclerosis. Behind them, a golden and white award plaque reads “Excellence in Life Science 2022 – Best Patient Advocacy Program.”

👟 Visiting the Associazione Italiana Sclerosi Multipla (Italian MS Society) today, I was able to hold a pair of The SMeakers - sneakers that share the words of Cristina, Federico, and Rachele, who all live with MS.

“Movement is life, even when it takes unexpected paths.”

💙 #MSAwareness

I love them too.

This is gorgeous!

I am looking for online interactive workshops on communication, collaboration, or connection - any recommendations? I learn best in live sessions, not pre-recorded modules.

#Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning

🚨 Love science, advanced data analysis, and making a real impact? 🚨

We're hiring! 📊🌍

My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿

Join us!

msf.lu/en/oradvisor...
msf.lu/en/conseille...

@msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky

What a horrible, horrible time. Thinking of you, and your son.

Thinking about #PaidAds today. 🤔 Looking to reach the broader #MultipleSclerosis community. Which platforms should I focus on? 📢💙 #LinkedIn, #Instagram, #Facebook, #YouTube, #Reddit, #GoogleAds, #Nextdoor, #PatientsLikeMe… Any others I should consider? Drop your thoughts! ⬇️ #MSCommunity #Advertising

I celebrate! Looking forward to the onslaught.

Photo of a great horned owl against green trees

Flashback to when we met this magnificent great horned owl in Vancouver Canada in 2007. #superbowl

Sunday reset. ☁️📂🌿 The sky is grey, but it is decent weather for #decluttering 🧹, #filing 📁, and #weeding 🌱 - clearing out the old to make space for the new. A slow, quiet reset before the week begins. How do you reset? ✨ #SundayVibes

That’s so neat !

Thank you!

This is so cool! Jackdaws are such boisterous birds. Albatross do seem unlikely.

I'm off to the #RaspberryPi store today to begin the next phase of my #SmartHome adventure. Attempting to link up #GoogleNest accessories with #AppleHome. I'm feeling a little intimidated, so I'm glad I have friends on call and the internet at my fingertips. Like all things, one step at a time 🤓

#FridayThoughts 💅 What should my next #manicure be? 🌍What are my goals as a new Chief Executive working in #GlobalHealth? ☕ Do I need #coffee? 💙 What does it mean to represent the #MultipleSclerosis movement when I am not living with the disease? 🧊Will I ever manage to solve a #RubiksCube on my own?

Watching Season 2 of #Severance, I wonder if embodying my “innie” from 9 to 5 and my “outie” from 5 to 9 would improve balance. Right now, it’s just a work to-do list by day and a home to-do list by night. What would it feel like to truly switch between these parts of myself?

Thankyou. Why do you think people mask their problems? Because the problems are invisible? Because they don't want to be a burden? It's easier to say "I'm fine"? They've experience a lifetime of having their experiences dismissed? Because they think they experience "the normal amount of pain"?

My rule-loving brain wants to pinpoint the exact moment Winter becomes Spring ❄️➡️🌱 Is it when snowdrops bloom? When frost melts? When elder trees bud? But the soft animal part of me knows that seasons blur & blend, one unfolding into the next. No sharp edges, just change in its own time ✨ #Liminality

Thinking of you and your sister. Hope you don't have too much waiting to do today.

Hooray!

That is *so* much. I hope you get your hug.

Thank you so much. I am glad that you are finding some relief with therapy, walking, and yoga.

Your dog is adorable! Great haircut too!