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Jessie

@jessie-siobhan.bsky.social

Hi! I'm Jessie. Full time Covid Longhauler surviving in Meanjin/Brisbane, Australia with my fluffy little demon cat, Harry.

116 Followers  |  554 Following  |  1 Posts  |  Joined: 09.01.2025  |  1.8356

Latest posts by jessie-siobhan.bsky.social on Bluesky

Grey sunflower seeds radiating in a beautiful pattern. I've cropped out the edges of the sunflower, so the entire square is seeds.

Grey sunflower seeds radiating in a beautiful pattern. I've cropped out the edges of the sunflower, so the entire square is seeds.

Sunflower seedheads are so beautiful.

The ones I harvested today will become next year's sunflower patch.

🌱

03.02.2025 21:07 β€” πŸ‘ 22    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months.
The core values page on their website states that "It is crucial that the residents are met
with:
Respect
Dignity
Empathy
Realistic Expectations"
Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months. The core values page on their website states that "It is crucial that the residents are met with: Respect Dignity Empathy Realistic Expectations" Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.

bit.ly/linepetition

20.01.2025 13:15 β€” πŸ‘ 81    πŸ” 50    πŸ’¬ 8    πŸ“Œ 9

πŸ’™πŸ’™πŸ’™

21.01.2025 02:49 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...

Well done to Mark Vink on getting another piece published: this one has the provocative title, "CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that"

www.frontiersin.org/journals/hum...

#MEcfs #CFS #PwME

15.01.2025 17:08 β€” πŸ‘ 222    πŸ” 82    πŸ’¬ 12    πŸ“Œ 8
Preview
Ron Davis's message of hope for 2025 and plea for help I think of you all every day as I work to untangle the complex molecular basis of this horrific disease…I am very optimistic that soon the major mechanisms that initiate the disease will be found. Thi...

From Ronald W, Davis, PhD.
- HOPE FOR 2025 -
I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure….

New post on my blog:
www.whitneydafoe.com/mecfs/?post=...

#MECFS #LongCovid

15.01.2025 16:10 β€” πŸ‘ 73    πŸ” 32    πŸ’¬ 2    πŸ“Œ 3
Ventilation is key to helping stay COVID-free

Ventilation is key to helping stay COVID-free

Messaging from Victorian Department of Health

1/5

13.01.2025 06:13 β€” πŸ‘ 127    πŸ” 50    πŸ’¬ 7    πŸ“Œ 4
Post image

Australian C19 Update 10th January 2025

13.01.2025 10:54 β€” πŸ‘ 29    πŸ” 7    πŸ’¬ 1    πŸ“Œ 0
Bild beschreibt die Auswirkungen von stΓ€ndigen SC2 Infektionen ohne PrΓ€vention. Teufelskreis: mehr akut Kranke, mehr Mutationen (neue Welle), mehr Long-Covid, mehr Probleme in Wirtschaft, Bildungs-und Gesundheitssektor. Durch neue Welle start von vorne, durch kumulative Effekte aber immer schlechteres Niveau.

Bild beschreibt die Auswirkungen von stΓ€ndigen SC2 Infektionen ohne PrΓ€vention. Teufelskreis: mehr akut Kranke, mehr Mutationen (neue Welle), mehr Long-Covid, mehr Probleme in Wirtschaft, Bildungs-und Gesundheitssektor. Durch neue Welle start von vorne, durch kumulative Effekte aber immer schlechteres Niveau.

Ich habe das Bild von Prof. Pagel (von X) abgeΓ€ndert und aktualisiert. So finde ich es passender fΓΌr die Situation 2024/25:

09.01.2025 20:36 β€” πŸ‘ 36    πŸ” 24    πŸ’¬ 0    πŸ“Œ 1

Please support and amplify!

14.01.2025 11:45 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Merci! @apresj20.bsky.social and @millionsmissingfr.bsky.social were already included in my starter-pack for the patient community. Added the other three (split up between the researchers pack and the patients pack).

go.bsky.app/LciucLP

14.11.2024 10:36 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Hi, I've also made a starter pack for anyone interested in ME CFS or Long Covid. go.bsky.app/FbLo7qc

14.11.2024 05:27 β€” πŸ‘ 17    πŸ” 7    πŸ’¬ 3    πŸ“Œ 0

Welcome, Todd Davenport
@sunsopeningband.bsky.social !

People looking for excellent #MECFS #LongCovid #PEM researchers to follow, please follow him. Also added him to my starter-pack of ME/CFS and Long Covid researchers & MDs if you’re looking for others to follow:

go.bsky.app/42cuLif

14.11.2024 01:28 β€” πŸ‘ 59    πŸ” 30    πŸ’¬ 11    πŸ“Œ 4

πŸ’«To help build our community, as Bluesky goes from strength to strength, we're going to start a STARTER PACK 🧡
If you have a good one please add it to the list!
go.bsky.app/Ba6FATY

08.11.2024 09:15 β€” πŸ‘ 283    πŸ” 140    πŸ’¬ 44    πŸ“Œ 29

ME/CFS and long COVID starter pack 😊
go.bsky.app/KnwWePQ #pwME #pwLC #MECFS #LongCOVID

29.12.2024 23:38 β€” πŸ‘ 16    πŸ” 9    πŸ’¬ 3    πŸ“Œ 0

@jessie-siobhan is following 20 prominent accounts