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Gavin

@bowdon.bsky.social

I've been suffering from #LongCovid for the last 2 years. I also have #POTS, as well as 2 genetic conditions #SMA (Spinal Muscular Atrophy), and #Larsen's Syndrome. I'm interested in #LC treatment updates, #audiobooks, #games, #tech and #politics.

61 Followers  |  115 Following  |  30 Posts  |  Joined: 20.10.2024  |  2.1288

Latest posts by bowdon.bsky.social on Bluesky

Even though I pay for an account with my bank card. The process asks for a photo ID, so I used my driving license, it still required a 180 degree selfie.

Because of my disability I wear an oxygen mask 24/7. So age verification as restricted my life. I'm in my late 40s.

What can you suggest I do?

26.07.2025 09:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@debbieabrahamsmp.bsky.social I love in your constituency, so you're my MP.

The age verification requirements your party as brought in come in today.

They not only cover porn sites. But most of social media.

Because X now requires age verification I, as a disabled person, can't verify my age 1/2

26.07.2025 09:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

@debbieabrahamsmp.bsky.social I hope you vote for the new welfare amendment today, as the concessions made by the government aren't really concessions.

The government is lowering the financial support for disabled people. I think you know this too.

I'm from your constituency.

01.07.2025 09:56 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Clinical trial underway to assess effectiveness and safety of potential Long Covid treatment A clinical trial is underway to assess the effectiveness and safety of sipavibart, AstraZeneca's long-acting monoclonal antibody designed to provide protection against Covid-19, as a potential treatme...

'Clinical trial underway to assess effectiveness and safety of potential Long Covid treatment'

"...post-viral conditions, Long Covid is incredibly complicated and thus little understood. Finding a treatment will be life-changing..." - Dr. Nancy Klimas

www.news-medical.net/news/2025050...

02.05.2025 14:39 โ€” ๐Ÿ‘ 24    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

It's a good article and video too.

Thank you for allowing your story to be public ๐Ÿ‘

14.01.2025 13:11 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Merry Christmas to all my bluesky friends ๐Ÿงก

25.12.2024 16:07 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Merry Christmas Star! I hope do too!๐Ÿคž

23.12.2024 12:14 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It's to make people hurry up ๐Ÿ˜ฒ

22.12.2024 14:51 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Same here Lexi. The first time only lasted 5 days. I thought "good, I'm immune now". Little did know on the third infection in 2022 I got long covid. Now bedbound 24/7 ๐Ÿ˜”

16.12.2024 13:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

You Finnished with them?

09.12.2024 22:12 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
a brown puppy is being held in someone 's hand with the words " really " written below it ALT: a brown puppy is being held in someone 's hand with the words " really " written below it
30.11.2024 13:54 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Some people seem to love to cause trouble. They are a prisoner to their own discrimination.

25.11.2024 11:25 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Is that an Amiga 4000?

20.11.2024 12:47 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I remember hearing of this game title. But I was an Amiga guy at that stage.

20.11.2024 12:44 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

They've been doing a few medical related dramas recently.

I wish this one could be more realistic.

17.11.2024 19:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Take care of yourself mate ๐Ÿ‘

17.11.2024 19:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Welcome aboard! ๐Ÿ‘‹

17.11.2024 19:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

That is scary. Do you get breathing problems at 183bpm?

I start struggling to breath at 120bpm.

17.11.2024 19:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

The real highlander! There can be only one!

14.11.2024 13:55 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Very disappointing.

13.11.2024 10:49 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

It will be a tough battle. We have to try.

06.11.2024 12:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Harris would have been better for long covid research.

We just have to hope that Trumps group can be persuaded to carry on the push to get long covid resolved.

06.11.2024 11:00 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I wish the Dems had chosen Gavin Newsom. He was a much stronger candidate. Hopefully next time.

06.11.2024 09:28 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Black background with white text that reads It's exhausting having to continually fight that hard for recognition. We're talking about people who are really unwell. These people want to know what's wrong and they want to get better, that's all they're asking for. You shouldn't have to fight that hard to get help.
Natalie Rogers Founding Trustee Long Covid Support www.longcovid.org
Long Covid Support is a registered charity in England and Wales 1198938

Black background with white text that reads It's exhausting having to continually fight that hard for recognition. We're talking about people who are really unwell. These people want to know what's wrong and they want to get better, that's all they're asking for. You shouldn't have to fight that hard to get help. Natalie Rogers Founding Trustee Long Covid Support www.longcovid.org Long Covid Support is a registered charity in England and Wales 1198938

๐ŸšจOur Founding Trustee Natalie Rogers gave evidence at the UK Covid Inquiry this week for the #LongCovid groups. Have a listen on this podcast (#LongCovid covered from about 14:40 in).

โ€œIt's exhaustingโ€ฆ You shouldn't have to fight that hard to get help.โ€

www.bbc.co.uk/sounds/play/...

02.11.2024 20:21 โ€” ๐Ÿ‘ 22    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
PolyBio supports & helps conceptualize long COVID rapamycin clinical trial - PolyBio Research Foundation The trial will test a low dose of the drug rapamycin in participants across a 3-month period. Analysis of participant blood...

๐Ÿ‘ฉโ€๐Ÿ”ฌPolybio announce $800K low-dose Rapamycin treatment trial for #LongCovid
Led by Putrino & Proal ๐Ÿ‘
polybio.org/polybio-supp...

30.10.2024 14:33 โ€” ๐Ÿ‘ 38    ๐Ÿ” 12    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 3

Isis the group really give the name a bad rep. I'm sure you know it originally referred to an Egyptian Goddess.

30.10.2024 16:03 โ€” ๐Ÿ‘ 9    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I'm glad we're finally getting a voice.

30.10.2024 11:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It's the same as when we talk about (long) covid the first question is, Did you have the vaccine?

I feel it's like a cope for them that they are trying to reassure themselves they won't get sick by not having the vaccine.

24.10.2024 12:30 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Migraines suck big time.

22.10.2024 11:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I hear you on that. I was born with physical disabilities and spent my childhood being judged by other people's preconceived ideas about me. They always underestimated me.

We're the only one who fully knows ourselves, so we have to be our own PR too.

22.10.2024 10:57 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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