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Hari

@harik.bsky.social

Multiple myeloma, healthcare patient advocate, compassion for all living with cancer.

168 Followers  |  342 Following  |  2 Posts  |  Joined: 11.12.2023
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Posts by Hari (@harik.bsky.social)

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As if cancer itself wasn’t bad enough, it also creates a barrier between you and your loved ones. They’ll struggle to understand. They want to help but they’ve got their own feelings to process. So they’ll inevitably be clumsy with the words they use.

#cansky

1/3

02.08.2025 14:14 — 👍 616    🔁 79    💬 26    📌 4
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And you, the person with cancer: you’ll be tired, scared and overwhelmed. You’ll have little patience for this clumsiness. You’ll feel isolated. You’ll wish they understood.

2/3

02.08.2025 14:15 — 👍 93    🔁 8    💬 1    📌 0
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We’ve all got to try and meet each other halfway.

3/3

02.08.2025 14:16 — 👍 102    🔁 9    💬 5    📌 0
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“Get the tests! Get checked!”

Yes, of course you should.

But getting the tests is a stressful and disruptive process. It’s not cost-free.

As a cancer survivor, I’ve had to learn precisely *when* getting the tests is the best possible thing for my health. It’s not easy to navigate.

#cansky

17.06.2025 11:22 — 👍 29    🔁 8    💬 5    📌 1
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There isn’t anything you can say to make it better. If there was, then cancer wouldn’t be a big deal.

Loved ones, friends, doctors and nurses: be with us, if you can. Sit alongside us in our pain. I know it’s hard. That’s why it means so much.

#cansky #graphicmedicine

27.04.2025 14:05 — 👍 2132    🔁 337    💬 53    📌 24

I hadn't realised just how important food was to my happiness until nausea and taste bud weirdness disrupted my diet.

20.04.2025 11:35 — 👍 4    🔁 2    💬 0    📌 0
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Rates of Influenza and Pneumococcal Vaccination and Correlation with Survival in Multiple Myeloma Patients [Dec 6, 2022] @mtmdphd et al. @AjaiChari CLML www.clinical-lymphoma-myeloma-leukemia.com/article/S215... #NCT02761187 #mmsm #IDonc #ClinicalTrials #caxtx

14.02.2025 13:37 — 👍 7    🔁 4    💬 0    📌 0
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I'm proud to have @emilyslist.bsky.social endorsement. We know that when we respect women, our families and communities are stronger.

13.02.2025 16:46 — 👍 202    🔁 42    💬 1    📌 1

May we be liberated from the causes and conditions that give rise to human cruelty. January 25, 1945, Auschwitz was liberated.

27.01.2025 17:19 — 👍 103    🔁 14    💬 4    📌 2
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I voted NO on Pete Hegseth.

25.01.2025 02:52 — 👍 935    🔁 139    💬 85    📌 14
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New Mexico: Here’s what the largest female legislative majority in US history can accomplish “There’s a chance for me to help protect my girls from legislators and from laws that want to control their bodies.”

In a mostly bleak election for American women and their rights, New Mexico was an unexpected bright spot.

Even as Harris lost her bid for the White House, NM voters elected 60 women to fill the legislature’s 112 seats, giving New Mexico the largest female legislative majority in US history.

18.01.2025 16:20 — 👍 6051    🔁 1564    💬 170    📌 132

#oncosky

24.01.2025 06:27 — 👍 5    🔁 4    💬 0    📌 0

A bow to courageous women speaking truth to power, not complying with harmful orders, not backing down.. Thank you, Rev Budde, Mayor Bowser, Liz Cheney, Rebecca Solnit, Terry Tempest Williams, and so many more. We will be seeing more and more women in solidarity meeting these times with integrity.

21.01.2025 22:12 — 👍 249    🔁 35    💬 9    📌 2
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Santa Ana Pueblo gets millions to design wildlife corridors I-25 is a barrier to animal migration and the scene of dangerous collisions between large animals and cars. The Pueblo of Santa Ana is getting $6.4 million in federal dollars to plan and design overpa...

Building wildlife crossings saves lives and reduces the risk of dangerous vehicle collisions. That’s why I worked to establish the Wildlife Crossings Pilot Program in the Infrastructure Law. I'm happy to see this funding delivered to Santa Ana Pueblo. www.abqjournal.com/news/article...

18.01.2025 19:30 — 👍 113    🔁 25    💬 5    📌 1
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Tribes, traditional communities, the County of Santa Fe, sportsmen, hikers, birders, and countless New Mexicans all want to see the Caja protected as a national monument. I’m calling on the Department of the Interior and USDA to get this done.

17.01.2025 19:15 — 👍 76    🔁 13    💬 3    📌 0
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For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt

16.01.2025 17:36 — 👍 2    🔁 2    💬 0    📌 0

**Good News**

The New Mexico Supreme Court ruled unanimously that local governments cannot restrict abortion services, striking down ordinances adopted by 4 New Mexico counties.

10.01.2025 14:16 — 👍 1412    🔁 266    💬 21    📌 9
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Carter's public lands legacy left lasting mark on New Mexico From the Continental Divide trail to the Chama River Canyon Wilderness, Carter's conservation legacy stands out in New Mexico.

New Mexico Wild's Mark Allison says it perfectly: "Thanks to President Carter, NM has these special wild areas that are inseparable from our identity and way of life."

President Carter left an indelible mark on NM, & it’s on us to carry his work forward.

www.santafenewmexican.com/news/local_n...

10.01.2025 14:42 — 👍 95    🔁 21    💬 1    📌 0

Jan 6... I will not, cannot turn away from the horrors of this day four years ago.

06.01.2025 13:15 — 👍 49    🔁 4    💬 4    📌 0
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Beautiful New Mexico sunrise this morning.

31.12.2024 14:08 — 👍 2    🔁 0    💬 0    📌 0
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Insurers Continue to Rely on Doctors Whose Judgments Have Been Criticized by Courts In dozens of cases ProPublica reviewed, judges found that some doctors working for these companies engaged in “selective readings” of medical evidence and “shut their eyes” to medical opinions opposin...

Reminder:
Health insurance companies don’t “provide healthcare.”

They withhold access to it.
That’s their business model.

Which is why we need Medicare for All which would guarantee healthcare for everyone, save lives, save money, cost less, and create jobs.

www.propublica.org/article/ment...

30.12.2024 12:24 — 👍 667    🔁 191    💬 19    📌 11

I need someone to explain to me why it’s always “if you can’t pay rent, buy fewer lattes and avocado toasts” and not “if you can’t pay your employees a living wage, buy fewer yachts and real estate”.

Explain it to me like I’m in kindergarten.

26.12.2024 20:30 — 👍 24557    🔁 5704    💬 735    📌 210
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Highlights of ASH 2024: Focus on Multiple Myeloma According to the Surveillance, Epidemiology, and End Results Program registry, approximately 36,000 patients are annually diagnosed with multiple m...

Highlights of ASH 2024: Focus on Multiple Myeloma #ASH24 #mmsm #bmtsm opmed.doximity.com/articles/hig...

23.12.2024 22:27 — 👍 5    🔁 2    💬 1    📌 0
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Impact of gut colonization by antibiotic-resistant bacteria on the outcomes of autologous stem cell transplantation in multiple myeloma - Scientific Reports Scientific Reports - Impact of gut colonization by antibiotic-resistant bacteria on the outcomes of autologous stem cell transplantation in multiple myeloma

Patients with multiple myeloma undergoing stem cell transplants face higher infection risks if colonized with resistant bacteria, but their survival and blood recovery remain unaffected.

www.nature.com/articles/s41...

28.12.2024 10:56 — 👍 16    🔁 8    💬 1    📌 0

Is it possible to post a link to the research.

09.12.2024 21:50 — 👍 0    🔁 0    💬 0    📌 0