🚀 Counting down — only 6 days to go until On the PPI Journey! 🎉
We’ll be diving into research from the PPI Contributor’s point of view — real voices, real impact. 👥💡
Haven’t signed up yet? Don’t miss out 👉 tinyurl.com/mrxxa5ve
10.10.2025 15:28 — 👍 1 🔁 0 💬 0 📌 0
What an amazing start to #PPIFestival2025 @rcsi.bsky.social! 🌟 So much wisdom shared. “PPI contributors are coaches, not just cheerleaders in research.” What insight grabbed your attention yesterday or today?
02.10.2025 08:21 — 👍 1 🔁 0 💬 0 📌 0
Get ready for lift-off! The fourth National PPI Festival is happening from 1st–31st October 2025.
Have a look at all the events organised so far
tinyurl.com/4bb7vzma
Register for what interests you and share broadly!
30.09.2025 14:21 — 👍 1 🔁 1 💬 0 📌 2
🚨 Registration Now Open! 🚨
Join us for 'On The PPI Journey' 🌟
A lot of PPI events focus on activities from a researcher's perspective. This event, however, will be looking at PPI from a PPI Contributor’s perspective.
🗓 10:30–16:00 | 16 Oct
Register: tinyurl.com/3hde4y4u
04.09.2025 15:24 — 👍 0 🔁 0 💬 0 📌 0
Some new opportunities are up on the PPI opportunities noticeboard: ppinetwork.ie/get-involved...
Are you:
A women with lived gynaecological care experience
A person using various medications
A blood/platelet donor
03.09.2025 09:30 — 👍 1 🔁 0 💬 0 📌 0
Stay up to date on the latest news about PPI with the August newsletter. Highlights include our National PPI Festival 2025 launch information, PPI event seed funding, new blogs by PPI contributors, and of course new PPI opportunities, publications, and events.
ppinetwork.ie/ppi-newslett...
02.09.2025 14:29 — 👍 0 🔁 0 💬 0 📌 0
On the PPI Journey 🚀
Lessons from the past 📜 stories from today 🎙️ aspirations for the future ✨
🗓️ 10:30 AM–4:00 PM | Hybrid: online & in-person
5 years of insights, one true knowledge exchange! 💡
Experience the many faces of involvement
🔗 Register 4/9/25:
#PPIFestival2025
02.09.2025 13:31 — 👍 0 🔁 1 💬 0 📌 0
National PPI Festival Fund - University of Galway
We are offering funding for PPI festival events in October!
➡️Open to:
⚫️@uniofgalway staff or students of any discipline
⚫️All patient & community organisations
⚫️PPI contributors
➡️Up to €1,000 awarded to 3 applicants
➡️Learn more tinyurl.com/4yvccw3t
15.07.2025 09:43 — 👍 1 🔁 1 💬 0 📌 1
Here's a great opportunity with PPI Ignite Network @ UL to dive into Participatory Health Research and learn how to meaningfully engage with patients throughout your research. With a 50% fee reduction for 10 places on a first come-first serve basis!
Learn more: lnkd.in/eD9EQ9s6
30.06.2025 09:52 — 👍 1 🔁 0 💬 0 📌 0
Stay up to date on the latest news about PPI with the April newsletter. Highlights include the the 10th annual PPI Summer School, blogs by PPI contributors, and new opportunities, publications, and events.
Read the full newsletter here: tinyurl.com/ys2ywct3
01.05.2025 14:02 — 👍 0 🔁 0 💬 0 📌 0
YouTube video by PPI Ignite Network @ UCD
PPI @ UCD case study with Dundalk Simon: Supporting homelessness
Watch this video created by @UCD_PPI_Ignite giving a case study of the Dundalk Simon Community, who were awarded seed funding for their collaboration with researchers in UCD School of Nursing Midwifery and Health Science, led by Assoc Prof Kate Frazer.
www.youtube.com/watch?v=ic5O...
06.02.2025 10:12 — 👍 1 🔁 1 💬 0 📌 0
A new PPI opportunity!
Researchers in RCSI are would like parents with babies discharged from a neonatal unit within the last 5 years to get involved in their research on information resources about giving medicines to their baby.
Get involved! tinyurl.com/3aehyjw9
28.01.2025 13:51 — 👍 1 🔁 0 💬 0 📌 0
PPI Ignite Network • Promoting excellence and innovation in PPI
The PPI Ignite Network promotes excellence and inspires innovation in public and patient involvement (PPI) in health and social care research in Ireland.
Delighted to be breaking new ground for our first post on Bluesky!
If you're new to the network check out our website ppinetwork.ie where you can find out more about us, and all things PPI from resources and case studies to PPI opportunities and exciting new events.
28.01.2025 13:34 — 👍 6 🔁 2 💬 2 📌 0
👩🏼🏫 autism trainer across North Central London
🎓 inclusive public involvement PhD @kcl.ac.uk
📚 So, I'm Autistic out now
she/her - autistic and disabled
generally funny, views + typos own
@SarahMarieOB on Twitter
I support capacity and capability building for societal impact and participatory research practices | Chair of trustees for a rare disease charity | Cat daddy | LGBTQIA+ | he/him
Mostly retired qualitative health services researcher, linguist, europhile, cat lover. Other animals welcome.
Mostly in Oxford, occasionally in Aberdeen
She/her
https://orcid.org/0000-0002-8109-1930
reh-beh-kah gold-ing (she/her). Researcher at The University of Manchester. Researching health communication, access to care, patient involvement, patient safety and treatment burden, particularly for people with (multiple) long-term conditions
Heath and social care policy. Maternity and patient and public involvement. Feminist mum to boys.
Creating safe, #compassionate spaces & partnership approaches to support change
#psychology, #psychiatry #coproduction, #Involvement, #Health #Social research #ethics #evaluation #youngpeople
PPIE specialist/Patient Partner/Med Comms
Professor of Health and Social Care and Director of the Policy Research unit for the Health and Social Care Workforce (https://www.kcl.ac.uk/hscwru), Kings College London, Co-lead https://transforming-evidence.org
❤️ music, arts, literature poetry,travel, health, learning, equality, spirituality, psychology, cats, nature. Celt, Christian, socialist, activist. Up for new adventures albeit small ones. Woke & proud! Enjoy work that feeds the soul not just the purse.
Global health researcher, expert in participatory research & co-production approaches. Director of The Stop Collaborate and Listen Agency and Host of Connecting Citizens to Science Podcast https://bit.ly/Follow_CCS
Research Fellow, Sapphire, University of Leicester.
Sociologist, Qualitative health researcher interested in maternity and neonatal care, visual culture of reproduction, PPIE, qualitative research methods
NHS Englander. Ex VCSE and BBC.
Mainly interested in public participation and engagement, so stuff around people, volunteering, building communities, health, power, digital, media etc.
Husband | 🚸 Dad x2 | 💔 #ACHD
🌍 Warwickshire, UK
ollybenson.uk
Professor of Autism Studies at the University of Birmingham, UK.
Passionate about participatory autism research that truly benefits autistic people.
Research interests include education, healthcare, employment and criminal justice.
Senior Lecturer in Social Psychology at the University of Skövde, Sweden
#Coproduction, #codesign, #cocreation - call it whatever you like, if it is about having dialogue together, I would love to learn about it.
Qualitative-first surveys – discover attitudes, ideas, and lived experiences.
Experience the power of peer interaction with Gobby. Analyse overlapping experiences and ideas to uncover nuanced trends within interconnected communities.
https://gobby.io
Mental health/tech stuff. Sell ads for local newspapers, keeping local public interest news alive. Former writer in residence @centreforMH. Ask me to write MH things. Director Social Spider CIC. DMs open. Podcast @BBCOuch
(he/they)
Public Involvement Manager, Neurodivergent, #2e, Dyslexic, Late Diagnosed Autistic, INFJ, Advocate, Amateur Photographer, Runner, Mum, Dog mum
🇵🇹🏳️🌈♿️💃🏽💃🏼
National Lived Experience Ambassador, NHS England - OWN VIEWS #QICopro #CoProSky
#London born but #Madeira where my ❤️ longs for
#DisabilityPower100 2021 and 2022 #AuADHD #ADHD #Autism diagnosed ‘24 at 47 #EDS #MSK
🪩🎤#LadyLXA @LemonadeRadio
Twitter migrant. Senior academic precariat. Sociologist. Applied qual research (health and lack of social care). Concerned about research quality and integrity. Monsters. Lit. Cult.
'A woman's place is in the resistance'
PhD student | Global health | Adolescent Mental Health | Youth involvement in research using participatory approaches. 🇮🇪🇵🇰
Patient and Public Involvement Officer and Adviser. Clinical trials PPIE and inclusive research.
Experienced PPI lead in stroke research. Personal interest in mental health and neurodiversity research
Love music, visual arts, nature walking and gaming
