Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate
Sav
Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS symptoms
#MECFS
1/
02.11.2025 18:40 β π 18 π 4 π¬ 2 π 0
As Tony Benn said
" β¦ βI don't think people realise how the establishment became established. They simply stole land & property from the poor, surrounded themselves with weak minded sycophants for protection, gave themselves titles & have been wielding power ever since!β
#WATO
#NotMyKing
02.11.2025 13:04 β π 128 π 52 π¬ 2 π 1
CitizenGO
Stop the UN power grab
cgo.ac/sc5BOE1h
03.11.2025 08:30 β π 0 π 0 π¬ 0 π 0
Add your name
An election is coming in Wales next year. Join us in calling on all political parties to act on cancer.
I've added my name to call on all political parties to help save around 5,500 lives in Wales over the next 15 years. Will you join me? #LongerBetterLivesWales action.cancerresearchuk.org/page/177737/...
02.11.2025 02:05 β π 0 π 0 π¬ 0 π 0
Will your MP stand up for older people?
Too many older people are missing out on the support they deserve. Only 62% of those eligible receive Pension Credit leaving 910,000 older households struggling. We need urgent action. Email your MP t...
Too many #olderpeople are missing out on the support they deserve. Only 62% of those eligible receive #PensionCredit leaving 910,000 older households struggling. We need urgent action. Will you join me and @IndependentAge and write to your MP too?
campaigns.independentage.org/page/180691/...
02.11.2025 00:57 β π 0 π 0 π¬ 0 π 0
Wealth Tax EDM Lobby
I've just called on my MP to back a Wealth Tax at the Autumn Budget.
A Wealth Tax is the best alternative to cuts; raising billions to invest in our public services and to support people hit by the cost-of-living crisis.
Write to your MP here.
richardburgoncampaigns.eaction.org.uk/TaxWealthAut...
02.11.2025 00:39 β π 2 π 0 π¬ 0 π 0
In the last 30 years.
University has become unaffordable.
Homes have become unaffordable.
Healthcare has become unaffordable/non existent.
Heating has become unaffordable.
All the jobs are Minimum Wage.
The screws are only turned on you so billionaires can become trillionaires
29.10.2025 13:51 β π 116 π 48 π¬ 5 π 3
...aaaand HSBC tops off the Q3 profits of the Big Four banks - with a whopping Β£17.3 billion made in 2025 so far π€―
We took our message to parliament yesterday to say loud and clear: these are windfall profits, & they *need* a windfall tax.
Email your MP π bit.ly/TaxTheBanksMP...
29.10.2025 18:59 β π 3 π 3 π¬ 0 π 1
The richest 150 people in the UK make Β£115m profit every day, that's your cash taken from you, not asset value, not share price increase.
Β£115m a day, every day, in pure profit, for 150 people who are already billionaires.
Why does no one complain about that?
29.10.2025 23:15 β π 151 π 60 π¬ 6 π 1
π¨Wow! Over 100,000 have now signed the petition calling on the government to
#FixNHSdentistryNOWπ
If you are one of the 14 million adults unable to access NHS dentistry in England sign @thebda.bsky.socialβs URGENT call for action hereπ
you.38degrees.org.uk/petitions/fu...
29.10.2025 11:14 β π 200 π 68 π¬ 7 π 2
Because we still worship the Greedy, instead of punish them.
29.10.2025 19:20 β π 220 π 47 π¬ 7 π 0
Idk I just feel like Michael Myers would take one look at me and be like... nah, she's been through enough
29.10.2025 14:34 β π 142 π 27 π¬ 3 π 1
Food is too expensive, controlled by billionaires.
Energy is too expensive, controlled by billionaires.
Housing is too expensive, controlled by billionaires.
Wages are too low, controlled by billionaires.
I'm going to blame... immigrants.
29.10.2025 18:22 β π 580 π 223 π¬ 11 π 11
Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour
29.10.2025 20:00 β π 1 π 1 π¬ 0 π 0
ME/CFS is an evil disease and the fact that there are zero clinical supports for it should be an international scandal. the only reason it isn't is because people with ME/CFS are too sick to advocate on behalf of ourselves.
29.10.2025 04:05 β π 69 π 16 π¬ 2 π 0
How much my providers know about my condition:
Photo of tiny book (possibly the smallest in the world)
How much I have to know to keep them from harming me:
Photo of huge book (possibly the largest in the world)
29.10.2025 17:57 β π 436 π 80 π¬ 8 π 6
Ask someone why they are voting for Nigel Farage and you will get a racist rant or a belief that he will do exactly the opposite of what he would do
Nigel Farage hates pensioners
He hates Disabled People
He hates free Healthcare
If you are old Nigel Farage will kill you
29.10.2025 22:15 β π 138 π 47 π¬ 8 π 1
Disabled people arenβt ignorant. We knew that the labour government could not suddenly make things better overnight after 14 years of shit.
But to attack the most vulnerable, when there are so many other more pressing priorities, is simple cruelty and should never be accepted.
29.10.2025 12:13 β π 54 π 14 π¬ 3 π 1
Photo shows a woman in pink pyjamas lying in bed wearing an eye mask.
This is my life for up to 22 hours a day, every day. I can't tolerate bright lights or noise. Raising awareness of Severe M.E. on BED For Severe ME Day with ME Foggy Dog and Stripy Lightbulb CIC
#BEDForSevereME #PyjamasAndProtocol #PyjamasForSevereMe #SevereME
29.10.2025 10:54 β π 17 π 4 π¬ 1 π 0
Your problem may be the Genocide in Gaza
Or the destruction of the planet by Climate Change
Or the Cost of Living, terrible wages and unaffordable housing
Or the Dictatorship in the USA
It may seem there are too many problems, but they are all symptoms
Of billionaires Greed
25.10.2025 22:27 β π 249 π 81 π¬ 6 π 2
Sign the Petition
MET Police: Reopen the 3 investigations into Prince Andrew. No one is above the law
MET Police: Reopen the 3 investigations into Prince Andrew. No one is above the law - Sign the Petition! c.org/Xkm5cdFGzt via @UKChange
25.10.2025 22:09 β π 1 π 0 π¬ 0 π 0
CitizenGO
Demand Sadiq Khan's Resignation: Failing London and Ignoring Abuse - Click here: cgo.ac/schYz48a
25.10.2025 07:04 β π 0 π 0 π¬ 0 π 0
After 40 years, privatisation of our public services has failed. It's time for public ownership. We use it, we pay for it, We Own It.
https://weownit.org.uk/people-not-profit
https://weownit.org.uk/act-now/donate
Billionaires have broken Britain. Make them pay to fix it.
Join the national demonstration. 20 September, central London.
https://makethempay.org.uk/
The life and times of Steve the otter...
Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
DPAC is a grass roots campaign group
Email: mail@dpac.uk.net
A better tax system that benefits everyone in the UK. Sister organisation of @taxjusticenet.bsky.social
https://taxjustice.uk/
All Party Parliamentary Group for Fair Elections
Goals:
- Replacing First Past the Post with PR
- Eliminating dark money from politics
- Countering disinformation
Chair: @alexsobel.co.uk
Secretariat: @FairVoteUK.bsky.social
Website: www.fairelections.uk
ME/CFS Endurer. Still missing and still trying to send gentle day wishes to all the never well warriors.
π Now, more than ever, we need REAL changeβask the Government to give the #CANBill an emergency debate in Parliament. It takes 2 minutes! βοΈ zerohour.uk
"The most beautiful thing we can experience is the mysterious. It is the source of all true art and science" - Albert Einstein
linktr.ee/wonderofscience
Shifting power from big banks to people, and working to redesign our economic system for social justice and a liveable planet.
positivemoney.org
Politics and economics
https://anotherangryvoice.substack.com/
I like cats, fairies and wondering about death.
π¦πΊ South Australia
π³οΈβπ Queer
π©ββοΈ Retired doctor - ME/CFS & POTS advocate (Doctors with M.E. associate + Australian POTS foundation member)
π Climate crisis advocate (Climate and Health Alliance member + Doctors for the Environment Australia member)
We're a UK, patient-led charity supporting people with all kinds of symptomatic hypermobility to self-manage their condition where possible, educate professionals on how to support patients, and raise awareness generally. We like cake too hypermobility.org
Scientist, zebra, #ActuallyAutistic. I study #autism #genetics #evolution #NeanderthalDNA #EhlersDanlos -- Asst Prof/Basic Scientist @ St. Louis University. Tweets = mine.
Educates and supports patients, family, friends and medical professionals within the UK about Postural Tachycardia Syndrome (PoTS)
PoTS UK - Charity 1159813
https://linktr.ee/potsuk
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions.
https://chronicpainpartners.com
Disabled Activist.
Founder of My Way Access
Co-Founder of DPAC Northern Ireland
Director at IMTAC
Vice-Chair of FODC's Access and Inclusion Group
Whatβs is Snowball??β¦Think TripAdvisor for the disabled community.
Apple https://apps.apple.com/gb/app/snowball-community/id1624679548
Android https://play.google.com/store/search?q=snowball+community&c=apps&hl=en&gl=US