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Hippymum

@hippymum.bsky.social

Happily married. Fighting to get through one day at a time. 42 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.

571 Followers  |  184 Following  |  303 Posts  |  Joined: 14.11.2024  |  1.9561

Latest posts by hippymum.bsky.social on Bluesky

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate 
Sav

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate Sav

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS symptoms

#MECFS
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02.11.2025 18:40 β€” πŸ‘ 18    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

As Tony Benn said
" … β€œI don't think people realise how the establishment became established. They simply stole land & property from the poor, surrounded themselves with weak minded sycophants for protection, gave themselves titles & have been wielding power ever since!”
#WATO
#NotMyKing

02.11.2025 13:04 β€” πŸ‘ 128    πŸ” 52    πŸ’¬ 2    πŸ“Œ 1
CitizenGO

Stop the UN power grab
cgo.ac/sc5BOE1h

03.11.2025 08:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Add your name An election is coming in Wales next year. Join us in calling on all political parties to act on cancer.

I've added my name to call on all political parties to help save around 5,500 lives in Wales over the next 15 years. Will you join me? #LongerBetterLivesWales action.cancerresearchuk.org/page/177737/...

02.11.2025 02:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Will your MP stand up for older people? Too many older people are missing out on the support they deserve. Only 62% of those eligible receive Pension Credit leaving 910,000 older households struggling. We need urgent action. Email your MP t...

Too many #olderpeople are missing out on the support they deserve. Only 62% of those eligible receive #PensionCredit leaving 910,000 older households struggling. We need urgent action. Will you join me and @IndependentAge and write to your MP too?

campaigns.independentage.org/page/180691/...

02.11.2025 00:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Wealth Tax EDM Lobby

I've just called on my MP to back a Wealth Tax at the Autumn Budget.

A Wealth Tax is the best alternative to cuts; raising billions to invest in our public services and to support people hit by the cost-of-living crisis.

Write to your MP here.
richardburgoncampaigns.eaction.org.uk/TaxWealthAut...

02.11.2025 00:39 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

In the last 30 years.

University has become unaffordable.
Homes have become unaffordable.
Healthcare has become unaffordable/non existent.
Heating has become unaffordable.
All the jobs are Minimum Wage.

The screws are only turned on you so billionaires can become trillionaires

29.10.2025 13:51 β€” πŸ‘ 116    πŸ” 48    πŸ’¬ 5    πŸ“Œ 3
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...aaaand HSBC tops off the Q3 profits of the Big Four banks - with a whopping £17.3 billion made in 2025 so far 🀯

We took our message to parliament yesterday to say loud and clear: these are windfall profits, & they *need* a windfall tax.

Email your MP πŸ‘‰ bit.ly/TaxTheBanksMP...

29.10.2025 18:59 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 1

The richest 150 people in the UK make Β£115m profit every day, that's your cash taken from you, not asset value, not share price increase.

Β£115m a day, every day, in pure profit, for 150 people who are already billionaires.

Why does no one complain about that?

29.10.2025 23:15 β€” πŸ‘ 151    πŸ” 60    πŸ’¬ 6    πŸ“Œ 1

🚨Wow! Over 100,000 have now signed the petition calling on the government to
#FixNHSdentistryNOWπŸ™

If you are one of the 14 million adults unable to access NHS dentistry in England sign @thebda.bsky.social’s URGENT call for action hereπŸ‘‡
you.38degrees.org.uk/petitions/fu...

29.10.2025 11:14 β€” πŸ‘ 200    πŸ” 68    πŸ’¬ 7    πŸ“Œ 2
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Because we still worship the Greedy, instead of punish them.

29.10.2025 19:20 β€” πŸ‘ 220    πŸ” 47    πŸ’¬ 7    πŸ“Œ 0
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Positive Money UK πŸ¦‹ @positivemoneyuk.bsky.social on X: "Barclays, Lloyds, HSBC and NatWest have made over Β£35 BILLION in profits this year so far 🀯 These enormous profits have been inflated by high interest rates - they need a windfall tax now! Email your MP to #TaxTheBanks πŸ‘‰ https://t.co/TItJemuM2V and share this video today! https://t.co/sD3FtPtcYo" / X Barclays, Lloyds, HSBC and NatWest have made over Β£35 BILLION in profits this year so far 🀯 These enormous profits have been inflated by high interest rates - they need a windfall tax now! Email your MP to #TaxTheBanks πŸ‘‰ https://t.co/TItJemuM2V and share this video today! https://t.co/sD3FtPtcYo

The Big Four banks are raking in the cash - a windfall tax on these profits could bring in Β£14 billion!πŸ’°

Check out @PositiveMoneyUK's video and email your MP to #TaxTheBanks! πŸ‘‡

x.com/PositiveMone...

30.10.2025 01:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Idk I just feel like Michael Myers would take one look at me and be like... nah, she's been through enough

Idk I just feel like Michael Myers would take one look at me and be like... nah, she's been through enough

29.10.2025 14:34 β€” πŸ‘ 142    πŸ” 27    πŸ’¬ 3    πŸ“Œ 1

Food is too expensive, controlled by billionaires.
Energy is too expensive, controlled by billionaires.
Housing is too expensive, controlled by billionaires.
Wages are too low, controlled by billionaires.

I'm going to blame... immigrants.

29.10.2025 18:22 β€” πŸ‘ 580    πŸ” 223    πŸ’¬ 11    πŸ“Œ 11
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Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour

29.10.2025 20:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

ME/CFS is an evil disease and the fact that there are zero clinical supports for it should be an international scandal. the only reason it isn't is because people with ME/CFS are too sick to advocate on behalf of ourselves.

29.10.2025 04:05 β€” πŸ‘ 69    πŸ” 16    πŸ’¬ 2    πŸ“Œ 0
How much my providers know about my condition:
Photo of tiny book (possibly the smallest in the world)

How much I have to know to keep them from harming me:
Photo of huge book (possibly the largest in the world)

How much my providers know about my condition: Photo of tiny book (possibly the smallest in the world) How much I have to know to keep them from harming me: Photo of huge book (possibly the largest in the world)

29.10.2025 17:57 β€” πŸ‘ 436    πŸ” 80    πŸ’¬ 8    πŸ“Œ 6

Ask someone why they are voting for Nigel Farage and you will get a racist rant or a belief that he will do exactly the opposite of what he would do

Nigel Farage hates pensioners
He hates Disabled People
He hates free Healthcare

If you are old Nigel Farage will kill you

29.10.2025 22:15 β€” πŸ‘ 138    πŸ” 47    πŸ’¬ 8    πŸ“Œ 1
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Tax the super rich to stop cuts to public services Across the UK, living standards are falling and millions live in poverty, while the cost of living crisis has made affording the basics difficult. Public services we all rely on - our hospitals, schoo...

I just signed the petition to to demand the Government tax the super rich to rebuild our NHS, schools, and other public services. Will you sign too? you.38degrees.org.uk/petitions/ta...

29.10.2025 22:52 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Disabled people aren’t ignorant. We knew that the labour government could not suddenly make things better overnight after 14 years of shit.

But to attack the most vulnerable, when there are so many other more pressing priorities, is simple cruelty and should never be accepted.

29.10.2025 12:13 β€” πŸ‘ 54    πŸ” 14    πŸ’¬ 3    πŸ“Œ 1
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BED for Severe M.E - Fundraising Page for CureME Help ME Foggy Dog raise money to support London School of Hygiene & Tropical Medicine

www.justgiving.com/page/bedcureme

#BEDForSevereME #pwME

29.10.2025 12:38 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Photo shows a woman in pink pyjamas lying in bed wearing an eye mask.

Photo shows a woman in pink pyjamas lying in bed wearing an eye mask.

This is my life for up to 22 hours a day, every day. I can't tolerate bright lights or noise. Raising awareness of Severe M.E. on BED For Severe ME Day with ME Foggy Dog and Stripy Lightbulb CIC

#BEDForSevereME #PyjamasAndProtocol #PyjamasForSevereMe #SevereME

29.10.2025 10:54 β€” πŸ‘ 17    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
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Can you score 7 out of 7 in this quiz? How much do you know about Britain’s favourite mammal?

surveys.38degrees.org.uk/to/JQFpgU2L

29.10.2025 01:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Petition: Allow people to be eligible for both state pension and full carer's allowance We call upon the government to ensure that those receiving carer’s allowance continue to get it at the full amount when in receipt of the state pension.

petition.parliament.uk/petitions/73...

27.10.2025 03:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Your problem may be the Genocide in Gaza
Or the destruction of the planet by Climate Change
Or the Cost of Living, terrible wages and unaffordable housing
Or the Dictatorship in the USA

It may seem there are too many problems, but they are all symptoms

Of billionaires Greed

25.10.2025 22:27 β€” πŸ‘ 249    πŸ” 81    πŸ’¬ 6    πŸ“Œ 2
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Save the painted woolly bats UPDATE: eBay has banned the sale of painted woolly bats on its platform! Now let's keep up the pressure to make sure Amazon follows suit.------Painted woolly bats are selfless little forest guardians,

Tell Amazon: Stop the trinket trade with the painted woolly bat! action.eko.org/a/painted-wo...

26.10.2025 00:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Petition: Return all the M4 to the 70mph speed limit, in Wales. Remove all lower speed limits forced on us. The OVERWHELMING MAJORITY believe the Port Talbot 50mph is not required. This is likewise with the 50mph brought in around Newport. It is stiffling our ability to travel freely and causing unnecessary 'snarl ups'. The Government is here to serve the people and better their lives. This is a reduced speed limit, that is neither wanted or required. Modern cars are able to travel very safely with far superior braking distances to older cars when 70mph was the standard motorway speed limit.

Petition: Return all the M4 to the 70mph speed limit, in Wales. Remove all lower speed limits forced on us. petitions.senedd.wales/petitions/24...

25.10.2025 22:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sign the Petition MET Police: Reopen the 3 investigations into Prince Andrew. No one is above the law

MET Police: Reopen the 3 investigations into Prince Andrew. No one is above the law - Sign the Petition! c.org/Xkm5cdFGzt via @UKChange

25.10.2025 22:09 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Disabled people describe impact of β€˜very unfair’ extra costs caused by DWP’s universal credit migration Disabled people have described their anger with the Department for Work and Pensions (DWP) for failing to warn them of the significant hidden costs – which can be more than Β£2,400 a year – of trans…

Disabled people have described their anger with the Department for Work and Pensions for failing to warn them of the significant hidden costs – which can be more than Β£2,400 a year – of transferring onto universal credit from their old β€œlegacy” benefits.
www.disabilitynewsservice.com/disabled-peo...

25.10.2025 07:01 β€” πŸ‘ 20    πŸ” 14    πŸ’¬ 0    πŸ“Œ 0
CitizenGO

Demand Sadiq Khan's Resignation: Failing London and Ignoring Abuse - Click here: cgo.ac/schYz48a

25.10.2025 07:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@hippymum is following 20 prominent accounts