Join us for our next event...
Communication Challenges and Pathways in Palliative Care
🗓️30 October
⏰11:00 - 13:00 (UK time)
💬Dr Andrea Bruun and Dr Kathryn Radley
pcrs.org.uk/events/oct-w...
FREE for PCRS Members!
07.10.2025 10:33 — 👍 1 🔁 2 💬 0 📌 0
Our next speakers are Dr Andrea Bruun & Amanda Cresswell from Kingston University London who are telling delegates about the Victoria & Stuart Project, which explores the development and use of an end-of-life care planning toolkit for people with learning disabilities
#InclusiveCare #EndOfLifeCare
26.09.2025 02:40 — 👍 2 🔁 1 💬 1 📌 0
@pcrscommittee.bsky.social
04.10.2025 08:22 — 👍 0 🔁 0 💬 0 📌 0
Communication Challenges and Pathways in Palliative Care | Palliative Care Research Society
I’m doing a session in the next Palliative Care Research Society webinar!💡
Come along to hear me ramble about ‘Exploring communication between hospice staff and patients with a learning disability using Conversation Analysis’ on 30 October from 11.00-13.00
Sign up here👇🏼
pcrs.org.uk/events/oct-w...
04.10.2025 08:21 — 👍 5 🔁 1 💬 1 📌 0
We have arrived in Birmingham. All ready to meet everyone and talk about The Victoria & Stuart Project at the The Gold Standards Framework Annual Conference & Awards Ceremony tomorrow 💫 @victstuproject.bsky.social @gsfcentre.bsky.social
25.09.2025 20:45 — 👍 5 🔁 1 💬 0 📌 0
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:
shorturl.at/LgOPC
22.09.2025 07:37 — 👍 3 🔁 4 💬 0 📌 0
Abstract submission for the EAPC 2026 Congress in Prague is open! Submit your abstract now.
Submission Terms & Conditions: eapcnet.eu/congress/202.
Abstract submission platform: eapc2026.exordo.com/
Deadline: 31 October 2025. As previous year, there will be no extension to this deadline.
22.09.2025 04:30 — 👍 3 🔁 1 💬 0 📌 0
Thank you so much, Michael! I was indeed - one of the project managers. It’s been really great. Hope you’re doing well!
05.09.2025 19:27 — 👍 1 🔁 0 💬 0 📌 0
Earlier this year I was lucky to be invited to talk about The Victoria & Stuart Project at the International Better Conversations Conference 2025💫
Lovely to see so many SLTs interested in the toolkit and asking such good questions. Thanks for a great conference and for having me!
#BetterConv2025
05.09.2025 05:39 — 👍 1 🔁 0 💬 1 📌 0
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
02.09.2025 16:01 — 👍 4 🔁 4 💬 0 📌 1
Nope :-)
02.09.2025 11:26 — 👍 1 🔁 0 💬 0 📌 0
Order printed copies of the toolkit resources to your door 📬
Order on the Marie Curie UK website here:
www.mariecurie.org.uk/help/support...
01.09.2025 13:28 — 👍 2 🔁 0 💬 0 📌 0
Why I do what I do: met a former palliative care nurse & was describing how devout Muslims can hold up a single finger to represent the Shahadah if they're unable to speak. She'd never heard of this.
"I wonder how many times nurses see this, think someone is agitated, and drug them."
30.08.2025 10:16 — 👍 27 🔁 7 💬 2 📌 1
So proud to have been involved in The Victoria & Stuart Project! @victstuproject.bsky.social
29.08.2025 21:15 — 👍 2 🔁 0 💬 0 📌 0
@tuffrey-wijne.com on stage receiving the award for @victstuproject.bsky.social 🏆
29.08.2025 21:13 — 👍 2 🔁 0 💬 0 📌 0
The ASDS Public Engagement Award has gone to the Victoria and Stuart Project @asdsdeath.bsky.social @ddd17-2025.bsky.social #DDD17 . Congratulations!
29.08.2025 16:24 — 👍 7 🔁 4 💬 2 📌 2
Check out our new paper! 📰 We learned a lot about how the end-of-life care planning toolkit works in practice - and a lot about how to evaluate things in the future (talking to peole and short and straightforward surveys!). The toolkit is still available on: www.victoriaandstuart.com
26.08.2025 08:29 — 👍 1 🔁 0 💬 0 📌 0
Sign up for our launch webinar now!
19.08.2025 08:14 — 👍 0 🔁 0 💬 0 📌 0
Our wonderful @uclpals.bsky.social MSc student, Phineas Winterbottom, worked on rule-breaking in hospice MDT meetings in his final project. After his SLT studies, he turned his dissertation into a paper, now published in Discourse Studies. Check it out!
11.08.2025 08:29 — 👍 5 🔁 0 💬 1 📌 0
📄 New paper alert! 📄
Our protocol paper for DAPPLE has been published 🎉 You can read it below. It’s open access and sets out what we’re doing and how we’ll do it.
bmjopen.bmj.com/content/15/7...
30.07.2025 19:10 — 👍 1 🔁 2 💬 0 📌 0
The Impact Centre for Palliative and End-of-Life Care Stakeholder Survey
By completing this survey, you will help shape the priorities for the Impact Centre.
📣 Are you a UK-based professional working in palliative or end of life care?
💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care.
We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey
👉 qualtrics.kcl.ac.uk/jfe/form/SV_...
22.07.2025 08:19 — 👍 2 🔁 4 💬 0 📌 1
So excited about this! We hope the print and deliver service will help staff with getting hold of and using The Victoria & Stuart Project resources with people they support. It's a pleasure leading a project when you're working with such a brilliant (and fun) team!
18.07.2025 11:19 — 👍 3 🔁 0 💬 0 📌 0
@tuffrey-wijne.com @kingstonuniversity.bsky.social
27.06.2025 15:10 — 👍 0 🔁 0 💬 0 📌 0
Last year I was so lucky to be awarded one of the Kingston University First Grants Schemes🌠My project is a small-scale Conversation Analysis pilot study where I'm video-recording conversations between patients with a learning disability and hospice staff. Read all about it in our new protocol paper!
27.06.2025 15:10 — 👍 28 🔁 7 💬 2 📌 0
Looking forward to our event tomorrow - Caught between the dream and realities: considering ‘advance care planning’
24.06.2025 10:53 — 👍 5 🔁 2 💬 1 📌 0
The Gold Standards Framework CIO (GSF) is the UK’s leading charitable provider of End of Life Care Training & Accreditation for frontline health and social care staff, in all settings.
The official Vegan for the Animals http://veganfta.com Bluesky feed. We're here to help stop the exploitation of all animals. 🌱🐖🐄🐓🐐🐁🐘🐇
linktr.ee/veganfta
(interactional) linguist(ic anthropologist) at Montclair State University in Montclair, NJ, USA
The Language and Social Interaction Working Group at Teachers College, Columbia University in New York City #lansibunch https://www.tc.columbia.edu/lansi/
Prof in Intellectual Disability Research at the University of South Wales. I am currently leading the Marie Curie funded READY study https://www.readystudy.uk/home - a study of the last year of life of people with learning disabilities.
People with #LearningDisabilities #Autism #PeterAndFriends #ChooseLDNursing #LetsTalkAboutSexuality #SelfAdvocacyWorks
Trustee at @dvcdudley.bsky.social
Nurse with a passion for Palliative Care.
Mom to 2 humans and a dog. The fish died. I’m the funny one in the relationship. Live music is church.
University College London Psychology and Language Sciences. 🧠
We undertake world-leading research and teaching in mind, behaviour and language.
Postdoctoral researcher speciliazed in healthcare interaction @ University of Turku, Docent of Finnish language @ University of Helsinki.
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Terveysalan vuorovaikutukseen perehtynyt tutkijatohtori, suomen kielen dosentti. Inhimillisen kohtaamisen puolesta!
Social Interaction, Action and Understanding, Body Behavior, Conversation Analysis, Mixed Methods, Cross-Cultural Comparison, Systems Thinking. Associate Professor at UCLA Sociology.
PhD Student at Aarhus University | Conversation Analysis, Interactional Linguistics | Teacher of Danish as L2
🌱 Straight talk on veganism — brave, disruptive, to the point.
You'll love my newsletter 🥰👇
veganhorizon.substack.com/welcome
Speech and Language Therapist, North West of Ireland. Trainer and Registered Intermediary (Criminal Justice). Passionate about Justice, Human rights, Autism and Intellectual Disabilities. Neuroaffirmative and always curious.
NHS SLT, clinical doctorate student and research fellow. Learning disability, autism and inclusive communication. Wild swimmer and travel lover based in Scotland
Occupational therapist, passionate about palliative care and arts and nature in health.
Hospice based head of therapies and wellbeing services
This is not my professional account, all views are mine!
Consultant Speech & language therapist / Associate Professor, Department of Language & Cognition, Psychology & Language Sciences, UCL, London, UK. I do research on speech & language therapy for people affected dementia, primary progressive aphasia
The End-of-Life Doula International Research Group (EOLD-IRG) is a collective of diverse individuals interested in developing a collaborative approach to research relevant to end-of-life doulas across national and international boundaries
The National Centre for Social Research (NatCen) is Britain's leading independent social research organisation. Visit natcen.ac.uk for more information.
News from Marie Curie UK for researchers, health and social care professionals and those affected by end of life care.
Together we’ll ensure a better end of life for all.
