The image shows Richard Keagan-Bull, a researcher with a learning disability, during the analysis of themes and findings from the workshop. The workshop was funded through the prize money awarded in the Tammy Prescot award.
“Getting a PPI blue stamp from a prestigious palliative care organisation like Marie Curie is such an achievement – we are all very proud.”
👇
Join us for our next event...
Communication Challenges and Pathways in Palliative Care
🗓️30 October
⏰11:00 - 13:00 (UK time)
💬Dr Andrea Bruun and Dr Kathryn Radley
pcrs.org.uk/events/oct-w...
FREE for PCRS Members!
Our next speakers are Dr Andrea Bruun & Amanda Cresswell from Kingston University London who are telling delegates about the Victoria & Stuart Project, which explores the development and use of an end-of-life care planning toolkit for people with learning disabilities
#InclusiveCare #EndOfLifeCare
@pcrscommittee.bsky.social
04.10.2025 08:22 — 👍 0 🔁 0 💬 0 📌 0
I’m doing a session in the next Palliative Care Research Society webinar!💡
Come along to hear me ramble about ‘Exploring communication between hospice staff and patients with a learning disability using Conversation Analysis’ on 30 October from 11.00-13.00
Sign up here👇🏼
pcrs.org.uk/events/oct-w...
We have arrived in Birmingham. All ready to meet everyone and talk about The Victoria & Stuart Project at the The Gold Standards Framework Annual Conference & Awards Ceremony tomorrow 💫 @victstuproject.bsky.social @gsfcentre.bsky.social
25.09.2025 20:45 — 👍 6 🔁 1 💬 0 📌 0
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:
shorturl.at/LgOPC
Abstract submission for the EAPC 2026 Congress in Prague is open! Submit your abstract now.
Submission Terms & Conditions: eapcnet.eu/congress/202.
Abstract submission platform: eapc2026.exordo.com/
Deadline: 31 October 2025. As previous year, there will be no extension to this deadline.
Thank you so much, Michael! I was indeed - one of the project managers. It’s been really great. Hope you’re doing well!
05.09.2025 19:27 — 👍 1 🔁 0 💬 0 📌 0
Still plenty of time for ordering your own free printed copy of the toolkit from the Marie Curie UK website: www.mariecurie.org.uk/help/support....
05.09.2025 05:39 — 👍 1 🔁 0 💬 1 📌 0
Earlier this year I was lucky to be invited to talk about The Victoria & Stuart Project at the International Better Conversations Conference 2025💫
Lovely to see so many SLTs interested in the toolkit and asking such good questions. Thanks for a great conference and for having me!
#BetterConv2025
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
02.09.2025 16:01 — 👍 4 🔁 4 💬 0 📌 1Nope :-)
02.09.2025 11:26 — 👍 1 🔁 0 💬 0 📌 0
Order printed copies of the toolkit resources to your door 📬
Order on the Marie Curie UK website here:
www.mariecurie.org.uk/help/support...
Why I do what I do: met a former palliative care nurse & was describing how devout Muslims can hold up a single finger to represent the Shahadah if they're unable to speak. She'd never heard of this.
"I wonder how many times nurses see this, think someone is agitated, and drug them."
So proud to have been involved in The Victoria & Stuart Project! @victstuproject.bsky.social
29.08.2025 21:15 — 👍 3 🔁 0 💬 0 📌 0@tuffrey-wijne.com on stage receiving the award for @victstuproject.bsky.social 🏆
29.08.2025 21:13 — 👍 2 🔁 0 💬 0 📌 0
The ASDS Public Engagement Award has gone to the Victoria and Stuart Project @asdsdeath.bsky.social @ddd17-2025.bsky.social #DDD17 . Congratulations!
29.08.2025 16:24 — 👍 8 🔁 4 💬 2 📌 2Check out our new paper! 📰 We learned a lot about how the end-of-life care planning toolkit works in practice - and a lot about how to evaluate things in the future (talking to peole and short and straightforward surveys!). The toolkit is still available on: www.victoriaandstuart.com
26.08.2025 08:29 — 👍 1 🔁 0 💬 0 📌 0Sign up for our launch webinar now!
19.08.2025 08:14 — 👍 0 🔁 0 💬 0 📌 0
Redefining Best Practice: Integrating Learning Disability Expertise into Palliative Care
13.08.2025 07:56 — 👍 6 🔁 2 💬 0 📌 1
Link here: doi.org/10.1177/1461...
11.08.2025 08:29 — 👍 0 🔁 0 💬 0 📌 0
Our wonderful @uclpals.bsky.social MSc student, Phineas Winterbottom, worked on rule-breaking in hospice MDT meetings in his final project. After his SLT studies, he turned his dissertation into a paper, now published in Discourse Studies. Check it out!
11.08.2025 08:29 — 👍 5 🔁 0 💬 1 📌 0
📄 New paper alert! 📄
Our protocol paper for DAPPLE has been published 🎉 You can read it below. It’s open access and sets out what we’re doing and how we’ll do it.
bmjopen.bmj.com/content/15/7...
It has been a pleasure being involved in this review on systemic medications and dementia risk. Check out our new paper!
www.nature.com/articles/s41...
📣 Are you a UK-based professional working in palliative or end of life care?
💥 Help shape priorities for the new Impact Centre for Palliative and End-of-Life Care.
We’re inviting health & care professionals & commissioners to complete our Stakeholder Survey
👉 qualtrics.kcl.ac.uk/jfe/form/SV_...
So excited about this! We hope the print and deliver service will help staff with getting hold of and using The Victoria & Stuart Project resources with people they support. It's a pleasure leading a project when you're working with such a brilliant (and fun) team!
18.07.2025 11:19 — 👍 3 🔁 0 💬 0 📌 0Link to the paper here: bmjopen.bmj.com/content/15/6...
27.06.2025 16:19 — 👍 3 🔁 1 💬 0 📌 0@tuffrey-wijne.com @kingstonuniversity.bsky.social
27.06.2025 15:10 — 👍 0 🔁 0 💬 0 📌 0
Last year I was so lucky to be awarded one of the Kingston University First Grants Schemes🌠My project is a small-scale Conversation Analysis pilot study where I'm video-recording conversations between patients with a learning disability and hospice staff. Read all about it in our new protocol paper!
27.06.2025 15:10 — 👍 28 🔁 7 💬 2 📌 0
