Our work highlights the need for greater investment into #sicklecell and better data to increase clinical trials, research publications and drug approvals #sicklecellawarenessmonth @nhs-rho.bsky.social
19.09.2025 11:01 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Indicators of inequity in research and funding for sickle cell disease, cystic fibrosis and haemophilia: a descriptive comparative study
Sickle cell disease, one of the most common genetic conditions in the UK, is often considered a neglected disorder, but rigorous quantitative evidenceโฆ
๐ Our new article published in @thelancethaem.bsky.social showed that #sicklecell had the lowest research funding per person compared to cystic fibrosis and haemophilia and despite sickle cell being more prevalent it had the lowest proportion of clinical trials and drug approvals bit.ly/4gusj5H
19.09.2025 11:01 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
New MSc Health Data in Practice @qmul-wiph.bsky.social
Prepare for leadership or strategic positions in the NHS or wider public and private sector organisations.
Find out more at: www.qmul.ac.uk/postgraduate...
Register to join our webinar on 24th July, 1-2pm at qmul.tfaforms.net/166
15.07.2025 15:50 โ ๐ 5 ๐ 4 ๐ฌ 0 ๐ 0
Last month I saw Miss Myrtle's Garden at Bush Theatre. A beautiful and heartwarming story exploring dementia in the black community with the brilliant @drtasia.bsky.social as the dementia consultant and phenomenal performances from the cast. The play is on until July 12th - I highly recommend it.
01.07.2025 09:29 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
People with sickle cell disease face racism and 'sub-standard care', finds report
People with sickle cell disease benefit from less funding, staffing and GP support than patients with other comparable conditions, according to a report commissioned by the NHS Race and Healthโฆ
People with #sicklecelldisease benefit from less funding, staffing and GP support than patients with other comparable conditions, according to a report produced by researchers at Imperial College London to mark #WorldSickleCellDay
buff.ly/SYsDlkG
19.06.2025 16:22 โ ๐ 1 ๐ 2 ๐ฌ 0 ๐ 0
Yesterday we launched our report with the @nhs-rho.bsky.social and @sicklecelluk.bsky.social highlighting disparities in funding and support for sickle cell yesterday in the House of Lords on #WorldSickleCellDay. Read our report and key recommendations here nhsrho.org/research/sic...
20.06.2025 09:50 โ ๐ 4 ๐ 1 ๐ฌ 0 ๐ 0
Our work examining disparities in investment care for sickle cell compared with cystic fibrosis and haemophilia is highlighted here.
19.06.2025 12:11 โ ๐ 5 ๐ 2 ๐ฌ 0 ๐ 0
Poster for World Blood Donor Day 2025, featuring a large red blood drop in the center with the message: โ14 June 2025, World Blood Donor Day. GIVE BLOOD, GIVE HOPE. TOGETHER WE SAVE LIVES.โ Surrounding the blood drop are diverse illustrated characters of all ages and backgrounds, including pregnant women, children, healthcare workers, elderly individuals, and people with disabilities, some donating or receiving blood.
Today is #WorldBloodDonorDay ๐ฉธ
Blood donation is not only a selfless act but also a powerful show of solidarity.
When we #GiveBlood, we help ensure a safe, steady blood supply for everyone in need.
If youโre eligible, consider becoming a regular, voluntary donor. ๐ bit.ly/GiveBlood2025
14.06.2025 00:57 โ ๐ 177 ๐ 56 ๐ฌ 4 ๐ 5
Today I will be delivering a talk at the World Health Assembly #WHA78 side event on genomics and sickle cell
Register to attend online: bit.ly/4j8cEIH
@transmission-zero.bsky.social @susiekitchens.bsky.social
22.05.2025 04:53 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Genomics in Health: Advancing Science, Equity, and Investment through Global Health Governance โ Science Summit 2025
Join us online this Thursday at the World Health Assembly side event: "Genomics in Health: Advancing Science, Equity, and Investment through Global Health Governance" ๐๐งฌ
Hear from Transmission Zero members on the first panel: Gene Drive for Malaria ๐ฆ
Find out more, & register here: bit.ly/4j8cEIH
20.05.2025 12:20 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 1
Accelerator Awards | Grant funding | Wellcome
Eligibility and applications details for the Wellcome Accelerator Awards, which will support Black, Bangladeshi, and Pakistani researchers in the UK to make successful career transitions.
Our Accelerator Awards are open for applications.
Weโre supporting researchers of Black, Bangladeshi and Pakistani heritage in the UK to undertake activities that put them in a stronger position to reach their next career stage within academia.
Learn more and apply by 15 July 2025 โคต๏ธ
08.05.2025 14:18 โ ๐ 10 ๐ 6 ๐ฌ 0 ๐ 1
NICE to work with NHS Race and Health Observatory to de-bias clinical guidance
The NHS Race and Health Observatory and the National Institute for Health and Care Excellence (NICE) have agreed five priority areas for de-biasing clinical guidance. As part of an agreement betweenโฆ
As part of a two-year partnership, #NICE and the #NHS Race and Health Observatory plan to combine expertise and examine clinical guidance across maternal and neonatal health, mental health, genomics, sickle cell and hypertension to tackle #healthinequalities
buff.ly/eKtEXn1
08.05.2025 14:21 โ ๐ 0 ๐ 1 ๐ฌ 0 ๐ 0
Last month I attended the incredible Donald Rodney exhibition @whitechapelgallery.bsky.social and panel discussion. His powerful work, shaped by his lived experience of sickle cell, explored important themes of chronic illness and Britain's colonial past
08.05.2025 06:11 โ ๐ 2 ๐ 1 ๐ฌ 0 ๐ 0
Experiences of people with sickle cell are key to our comparative research programme with Imperial College London.
We encourage you to participate in this short survey, or to share the survey with others who may be eligible: imperial.eu.qualtrics.com/jfe/form/SV_...
07.12.2024 08:22 โ ๐ 13 ๐ 9 ๐ฌ 1 ๐ 0
๐ณ Biologist/Phylogenies
๐ฆ Phylodynamics/Infectious Disease Dynamics
๐จโ๐ซ Assistant Prof. at @LSHTM.bsky.social
๐งฎ Member of @cmmid-lshtm.bsky.social
๐ฒ Boardgames, ๐ฎ E33/BG3/D&D, ๐ณ๏ธโ๐
๐ฃ๏ธ ๐จ๐ด๐ง๐ท๐ซ๐ท๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ
We are an independent charitable organisation working to build a healthier UK.
www.health.org.uk
Research fellow @LSHTM. Epidemiologist who studies vaccine rumours and hesitancy. Slayer of orchids. Views own.
Infectious disease modeller, associate professor at the London School of Hygiene and Tropical Medicine.
Assistant Professor in Infectious Diseases Dynamics @ London School of Hygiene and Tropical Medicine; work on all things measles, especially interested in elimination and eradication of pathogens
The Lancet Haematology is a world-leading #haematology journal publishing peer-reviewed research and reviews, opinion, and news. #hematology
๐ https://www.thelancet.com/journals/lanhae/home
At @bsmsmedschool.bsky.social I am integrating medicine & conservation in Papua New Guinea + improving scabies control in Britain & Ethiopia. Chair @wildhealthcic.bsky.social Views own. #PublicHealth #MedicalParasitology
https://linktr.ee/DrJMiddleton
Postdoc @ RCSI Converge ๐ฎ๐ช, PhD from Western University ๐จ๐ฆ in Epidemiology and Biostatistics. Research interests in diabetes, chronic illness, global surgery, causal inference, Bayesian stats, evidence synthesis & research methods
PhD student @crick.ac.uk & @ucl.ac.uk | previously @uniofbath.bsky.social | protein folding on the ribosome, struct biochem, HDX-MS | Benghazi, Libya ๐ฑ๐พ / Cairo, Egypt ๐ช๐ฌ |๐London ๐ฌ๐ง Mostly listening to jazz/blues/funk | ๐ฌโ๏ธ
The Researchersโ Society is led by Early Career Researchers (ECRs) and PhD students and supported by the MRC Centre.
https://environment-health.ac.uk/the-researchers-society/
Senior Researcher ๐ฉโ๐ป | University of Oxford | Generates real world evidence to help patients |
Hobbies ๐ด and ๐ฝ๏ธ
Health Metrics Sciences Grad Student @University of Washington | Formerly, researcher and data analyst @Robert-Koch Institute, Berlin |
Final year PhD student in neurogenetics @ Leicester, U.K.
Researcher: health&care inequalities, disability, sustainability.
Passionate about involvement & intersections. Living w/ endometriosis and other fun ltcs.
Proudly queer #LwiththeT
Views my own
London, UK
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Professor of Infectious Disease Dynamics.
Epidemiology. Modelling. Respiratory viruses. Vaccination. Electronic Health Records. Health Inequalities. Comorbidities. Open Science. Big Data. Policy support. Science Communication.
at LSHTM.
Run IDDjobs.org
GP/ Prof of Primary care,
Director Child Health Unit, School of Public health Imperial College London UK | NIHR Senior investigator | President Child & Adolescent Public Health, European Public Health Association
We're Transmission Zero: an international research programme working to develop innovative genetic tools to stop malaria transmission.
www.transmissionzero.org