Sign the Petition
Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review
#PatientSafety please sign the call for Cochrane to withdraw its harmful endorsement of studies promoting exercise in post infection diseases www.change.org/p/cochrane-w.... Cochrane is a highly recommended resource to many post-graduate scholars in England. The next generation deserves better.
18.12.2024 06:16 β
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If Matt Gaetz DIDNT rape a minor, the GOP would have released the report.
Just fyi
21.11.2024 00:42 β
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Did you ever think you'd be reading police reports for rape by a nominee for the Secretary of Defense?
21.11.2024 18:35 β
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ππ«π€
20.11.2024 20:21 β
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π₯π₯π₯πππ
20.11.2024 18:22 β
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THIS
20.11.2024 18:31 β
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Vet the stuff you subscribe to and periodically revisit them to make sure they haven't gone weird.
Some lists will be named very similarly to legit lists as well, so be careful.
19.11.2024 18:19 β
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And we're seeing longer, bigger surges. We're still dying. Still becoming disabled. Still developing intractable chronic conditions for which there are no treatments.
19.11.2024 07:53 β
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I made a blocklist for some of the new showing up to troll anti trans folks. No oxygen for these schmoes! bsky.app/profile/did:...
18.11.2024 23:25 β
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18.11.2024 20:40 β
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you all should keep this in mind abt SARS-COV-2 -- you're letting yourselves get regularly reinfected b/c the biden admin & MSM said the pandemic is over. but our surges are bigger & longer w/o mitigations, & the science is telling us the long-term downstream effects are disastrous.
18.11.2024 20:13 β
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she talks as if PEM is, like, extra stubborn fatigue or some stereotypical 90's neuro bllsht like that.
18.11.2024 18:22 β
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18.11.2024 04:21 β
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Appreciate these so much. π«
18.11.2024 00:49 β
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pretty special weekend for pwME π₯Ή
18.11.2024 00:28 β
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She's been promoted & accepted into LongCovid research circles, & pwLC with PEM & the research itself are endangered by her doublespeak & biases.
17.11.2024 20:58 β
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Hiding patient replies isn't exactly respecting disagreement.
17.11.2024 20:32 β
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17.11.2024 20:28 β
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Clinician-researchers who support the work of this neurologist should perhaps credit patient reports over her self-reports re GET & PEM? There's a pattern of disrespectful & dominating behavior, & yesterday's post & replies reveal someone who doesn't expect professional accountability.
17.11.2024 20:28 β
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YouTube video by Long Covid Advocacy
Set up Bluesky Guide - in less than 10 mins
πΊA Start-up Guide in less than 10 mins.
This is predominantly for people who haven't moved over (but is also has some handy tips)!
We have a Bluesky playlist on YouTube too with shorts & vids to help the community
#longcovid #mecfs #chronicillness #disability
youtu.be/aY8mYN7_ufs?...
16.11.2024 10:36 β
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i couldn't see the rest of the thread, either. i'll check back!
17.11.2024 02:21 β
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17.11.2024 01:59 β
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gah. so grateful to the people who are putting together starter packs for our disabled communities. appreciate the work & care so, so much. π«
17.11.2024 01:54 β
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17.11.2024 01:44 β
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love being framed as a clinician's private property. that one is messy AF.
17.11.2024 01:37 β
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For the past 4 years almost every major βdisinformationβ reporter has ignored the rise of COVID denialists like Jay and others, instead choosing to boost their denialist rhetoric that the pandemic ended (it has not, according to the World Health Organization), and that COVID is harmless (it is not)
16.11.2024 18:19 β
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appreciate your work today over at the other site on that PEM/GET bs post π«
17.11.2024 00:44 β
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Looks as if she's deleted the post now?
17.11.2024 00:33 β
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Thank you so much, Sabrina. I started an account long ago & logged on to see 700+ followers, most of whom are from disability, CC, & research communities. Seemed unfortunate that mass follow-back in that context isn't available, but hopefully the packs will end up covering the lion's share.
17.11.2024 00:22 β
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