Polio Survivors Network's Avatar

Polio Survivors Network

@polionetwork.bsky.social

Here to support polio survivors, those living lives with healthcare lessons for the future.

31 Followers  |  16 Following  |  10 Posts  |  Joined: 21.04.2025
Posts Following

Posts by Polio Survivors Network (@polionetwork.bsky.social)

Preview
Fears of polio resurgence as US vaccine adviser questions need for childhood shots Survivors say US healthcare system not ready for new cases – ‘the only thing to fix polio is the polio vaccine’

“The best prevention is: don’t get polio,” he said, highlighting the importance of vaccination.” - Dr Allan

“With polio, you’re never going to fix us, and that’s the problem. The only thing to fix polio is the polio vaccine.” - Yours truly

Shoutout to @melodyschreiber.com for this amazing work! 💜

23.02.2026 15:48 — 👍 81    🔁 37    💬 2    📌 8
Preview
a snowy path with trees covered in snow and snow falling ALT: a snowy path with trees covered in snow and snow falling

Our 131st newsletter is out now mailchi.mp/a7e91ba9e52a...

08.01.2026 10:48 — 👍 1    🔁 0    💬 0    📌 0
Preview
a white cat is surrounded by red hearts ALT: a white cat is surrounded by red hearts

The Joyce & Arthur Siegfried Memorial Fund kindly provide custom made shoes or braces for polio survivors in any country. post-polio.org/siegfried-fu... #polio #poliosurvivors #postpoliosyndrome #postpolioadvocacy #werestillhere

08.01.2026 10:46 — 👍 1    🔁 0    💬 0    📌 0
Post image

Great initiative brainhealth-challenge.org Especially important for those with neurological conditions. #BrainHealthChallenge #ProtectYourBrain #BrainHealthChallenge2025 #polio #poliosurvivors #postpoliosyndrome #postpolioadvocacy

09.06.2025 09:30 — 👍 0    🔁 0    💬 0    📌 0
Post image

We invite you to our Annual General Meeting. Email us for details of how to join online info@poliosurvivorsnetwork.org.uk #polio #postpolioadvocacy #pps #psn #poliosurvivors

21.05.2025 10:33 — 👍 0    🔁 0    💬 0    📌 0

We couldn't agree more @danielemagistro.bsky.social

21.05.2025 09:59 — 👍 1    🔁 0    💬 0    📌 0

Well done Zsuzsi #polio #poliosurvivor #postpolioadvocacy #psn

17.05.2025 15:45 — 👍 1    🔁 0    💬 0    📌 0
Post image

Bring the ever important patient voice to our conference is Zsuzi Snarey, who will be talking on living well with post polio syndrome. tinyurl/com/AgileCon... #AddingLifeToYears #AGILEConf25

28.04.2025 08:25 — 👍 2    🔁 3    💬 1    📌 0

Our very own Zsuzsi is part of this fantastic event #poliosurvivorsnetwork #postpolio #psn #polio

21.04.2025 15:06 — 👍 1    🔁 0    💬 1    📌 0
Post image

A word from our late founder ... #polio #poliosurvivorsnetwork #psn #postpolio

21.04.2025 14:38 — 👍 0    🔁 0    💬 0    📌 0
Preview
Post-polio immune therapy aces human trials Recent human trials of a new one-year-long immune-based treatment for post-polio syndrome, which can strike polio survivors years after the initial infection and be very debilitating, have produced po...

Interesting trials taking place... #poliosurvivorsnetwork #postpolio #psn Post-polio immune therapy aces human trials
newatlas.com/disease/clin...

21.04.2025 14:37 — 👍 0    🔁 0    💬 0    📌 0
Post image

Our 129th Post Polio Matters Newsletter is out now and will be shortly in your inbox or letterbox - mailchi.mp/2685fa80e056... #polio #poliosurvivorsnetwork #psn #postpolio

21.04.2025 14:35 — 👍 0    🔁 0    💬 0    📌 0