@reicop.bsky.social
Red Española de Investigación en COVID persistente Spanish Research Network in Long COVID reicop.org Asóciate: https://reicop.org/asociate/
🔴 La lucha de los enfermos de #Covidpersistente en Tarragona: "Es una patología invisible"
www.diaridetarragona.com/tarragona/24...
The Lancet @buonsenso.bsky.social
The take-home message from this study is clear: long COVID is here to stay, even in children, and can be exacerbated by reinfections and sustained by high viral circulation. Governments, health-care systems, and
#LongCovidKids
www.thelancet.com/journals/lan...
Graphic with a blue background and a mint green backpack with pencil crayons, pens and a cellphone in the front pocket, and folders peeking out of the main compartment. Text reads: "Back to school... but not for all children. The Children’s Long Covid Network (CLCN) honors the voices of children living with long Covid and demands urgent awareness, care and action. Join them by signing the CLCN petition calling for immediate biomedical evaluation and equitable care for children across Canada." An inset image of a tablet with the petition is in the lower right corner.
The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow
01.10.2025 17:00 — 👍 34 🔁 19 💬 1 📌 1
A study found that children who contract Covid twice are at double the risk of developing long Covid
www.independent.co.uk/bulletin/new...
#Research #LongCovid #LongCovidKids
🔴 #LongCOVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study - The Lancet Infectious Diseases
www.thelancet.com/journals/lan...
🔴 La lucha de Iñaki ‘Uoho’, ex de Extremoduro, contra la #COVIDpersistente: “He estado dos años y medio en una cama”
elpais.com/cultura/2025...
🔴 Violet Affleck ha hecho un discurso apasionante a favor del aire limpio y del uso de las mascarillas para prevenir la transmisión persistente de la #COVID
#COVIDpersistente
@violetaffleck.bsky.social ♥️
elpais.com/gente/2025-0...
🔴 El #COVIDpersistente, asociado a alteraciones menstruales: www.agenciasinc.es/Noticias/El-...
18.09.2025 05:07 — 👍 2 🔁 0 💬 0 📌 0
A graph showing the time course of the ratio of chimeric antigen receptor (CAR) T cells to CD8+ T cells in peripheral blood after the administration of HN2301, shown as the percentage of CAR T cells relative to CD8+ T cells.
A graph showing the percentage of CD19+ B cells relative to total lymphocytes in peripheral blood of patients receiving HN2301.
In patients with refractory systemic lupus erythematosus, in vivo generation of CD19 CAR T cells by means of lipid nanoparticles led to B-cell depletion, reduced disease activity, and no major toxic effects. Full study results: nej.md/42u4eWF
17.09.2025 21:20 — 👍 7 🔁 4 💬 0 📌 1
🔴 REiCOP insiste en la necesidad de una definición común para mejorar el abordaje de la #COVIDpersistente
#JornadaREiCOP25
www.immedicohospitalario.es/noticia/5275...
“Cardiovascular toll of COVID: Millions at risk, new report reveals prevention tips” Summary text: A new report highlights the profound cardiovascular impact of COVID-19 and long COVID, affecting millions globally. It emphasizes the importance of continued vaccination programs and structured cardiac rehabilitation to prevent long-term complications and support recovery. The study calls for increased investment in rehabilitation services to ensure equitable access and to reduce the burden on healthcare systems.
Cardiovascular toll of COVID: Millions at risk, new report reveals prevention tips.
A new report warns of COVID-19’s cardiovascular toll affecting millions globally, urging vaccination, structured cardiac rehab, and more rehab investment to ease healthcare strain.
Source: archive.md/7qeY7
🔴 La #JornadaREiCOP25 avanza en el reconocimiento del #COVIDpersistente
La inauguración oficial contó con la asistencia de la ministra de Sanidad @monicagarciag.bsky.social @sanidad.gob.es
www.redaccionmedica.com/secciones/me...
🔴 Mónica García @monicagarciag.bsky.social @sanidad.gob.es pide perdón a los pacientes de #COVIDpersistente por su falta de reconocimiento en el sistema sanitario
#JornadaREiCOP25
www.infosalus.com/actualidad/n...
#LongCOVID Upcoming #EU event Sep 30th👇👇https://europarl.europa.eu/thinktank/en/events/details/long-covid-current-realities-future-dire/20250902WKS06481
via @Europarl_EN
Como me pidió Raúl Incertis, médico español en Gaza, entrego a Feijóo y Abascal su testimonio y las imágenes del horror en el hospital de Nasser. No pueden seguir defendiendo a Israel después de verlo. Cuando la historia juzgue este genocidio, no podrán decir que no lo sabían.
10.09.2025 09:25 — 👍 422 🔁 194 💬 16 📌 19
☀️ Buenos días
⏱️Recordamos 👇🏻
📌2ª Jornada de #REiCOP
#COVIDpersistente: Avances hacia una estrategia integral de cronicidad
📅 12/09 🕤 9:30 h
📍 CaixaForum Madrid
👩🏽💻👫 Híbrida
💸 Inscripción gratuita! 🔗 forms.gle/mbHDUDLAbmQd...
ℹ️ 🔗 reicop.org/events/2a-jo...
#SaveTheDate
⏱️Ya queda menos para la 2ª Jornada de #REiCOP
📅 12/09
🕤 9.30 a.m.
📍 @CaixaForum Madrid
👫👩🏽💻 Híbrida
✍🏼 Inscripción gratuita 👉🏼 🔗 forms.gle/oVVVm8kmsY7j...
🔬 Presenta tu proyecto de investigación sobre #COVIDpersistente 👉🏼 🔗https://forms.gle/MmEoGnwCw2RCDdp4A
🏃🏼💨No pierdas tiempo #SaveTheDate
Here's the latest variant picture with a global scope, to early August.
Growth of XFG.* "Stratus" has continued, and it remains dominant at 60%.
The NB.1.8.1 "Nimbus" has been slowly declining, to 27%.
#COVID19 #Global #NB_1_8_1 #Nimbus #XFG #Stratus
🧵
"We found that people with long Covid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support."
#LongCovid in the UK
www.bbc.com/news/article...
Review article by Elisa Perego on Long Covid and two LC case definitions in the US
My new research is out
"A Case Definition of a New Disease: A Review of the US Working Definition (USG) and 2024 NASEM Definition for Long COVID"
I use two US #LongCovid case definitions as case studies for a broader discussion of SARS-CoV-2 sequelae
Low Dose Naltrexone (LDN) for the treatment of people with ME: A Conversation with Dr Etianne Sasso,
Dr Sasso is from NCNED (in Australia), who are recruiting for an #LongCovid LDN trial & will soon be recruiting for a #MEcfs LDN trial
forums.phoenixrising.me/threads/low-...
#LDN
An integrative review on the orexin system and hypothalamic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome: implications for precision medicine — Noé López-Amador "Although preclinical and clinical findings link orexin deficiency to narcolepsy, fragmented sleep, and metabolic disruption, few studies directly measure orexin levels in ME/CFS cohorts. The prevailing assumption of orexinergic involvement remains more inferential than conclusive"
An integrative review on the orexin system and hypothalamic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome: implications for precision medicine
www.explorationpub.com/Journals/ent...
Screenshot from latest Science for ME weekly update
#MEcfs #CFS #PwME
Long COVID is more than fatigue. Our new study suggests its impact is similar to a stroke or Parkinson’s Published: August 25, 2025 6.10am AEST
Long COVID is more than fatigue. Our new study suggests its impact is similar to a stroke or Parkinson’s
Mounting evidence shows long COVID is real and serious. Studies confirm it reduces quality of life to levels seen in chronic fatigue syndrome, stroke, arthritis and Parkinson’s
archive.md/jb4hx
🔴 Detectan casos de inmadurez cerebral en niños cuyas madres padecieron #COVID19 en el embarazo www.rtve.es/n/16704540/
📌 La presencia del 🦠virus tiene efectos "de forma muy particular y localizada en células de la región embrionaria del hipocampo: la parte del cerebro que se dedica a la memoria"
⏳2ªJornada de #REiCOP
#COVIDpersistente: avances hacia una estrategia integral de cronicidad
📅 12/09 🕤 9:30 h
📍Caixaforum Madrid
💻👫 Híbrida
✔️Inscripción gratuita 🔗 forms.gle/mbHDUDLAbmQd...
📩Presenta tu 🔬proyecto de investigación👉🏼 forms.gle/oJ2rZd5hpaTx...
ℹ️ reicop.org/events/2a-jo...
Accelerated vascular ageing after COVID-19 infection: the CARTESIAN study url: academic.oup.com/eurheartj/ar...
18.08.2025 06:27 — 👍 49 🔁 19 💬 1 📌 5
Support this petition:
The UK government needs to direct @ukhsa.bsky.social 'to ensure the relevant policy on the management of healthcare associated infections (HCAI) is extended to include the recording of data on COVID infections spread within hospitals'.
petition.parliament.uk/petitions/73...
Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID-19 (LC-19) are complex conditions with no diagnostic markers or consensus on disease progression. Despite extensive research, no in vitro model exists to study skeletal muscle wasting, peripheral fatigue, or potential therapies. We developed 3D in vitro skeletal muscle tissues to map muscle adaptations to patient sera over time. Short exposures (48 hours) to patient sera led to a significant reduction in muscle contractile strength. Transcriptomic analysis revealed the upregulation of glycolytic enzymes, disturbances in calcium homeostasis, hypertrophy, and mitochondrial hyperfusion. Structural analyses confirmed myotube hypertrophy and elevated mitochondrial oxygen consumption in ME/CFS. While muscles initially adapted by increasing glycolysis, prolonged exposure (96–144 hours) caused muscle fragility and fatigue, with mitochondria fragmenting into a toroidal conformation. We propose that skeletal muscle tissue in ME/CFS and Long COVID-19 progresses through a hypermetabolic state, leading to severe muscular and mitochondrial deterioration. This is the first study to suggest such transient metabolic adaptation.
Interesting new research from Spain:
Metabolic adaptation and fragility in healthy 3-D in vitro skeletal muscle tissues exposed to Chronic Fatigue Syndrome and Long COVID-19 sera.
iopscience.iop.org/article/10.1...
#LongCovid #PASC #postcovid #postcovid19 #MEcfs #CFS #PwME
We need a #GlobalLongCOVIDRoadmap. No global health concern—from malaria to TB, HIV/AIDS to polio—has successfully mobilized research funding, accessible treatment or achieved scientific breakthroughs at the scale & pace needed without an international effort. #Keystone
11.08.2025 17:01 — 👍 7 🔁 5 💬 0 📌 0Again, deep gratitude to @michaelpelusomd.bsky.social for your constant research for & engagement with the patient community. To donors: this is a critical moment to sustain & grow #LongCOVID advocacy. Let's help patient advocates move from bootstrapping to global collaboration at scale. 5/5
11.08.2025 16:58 — 👍 8 🔁 2 💬 0 📌 0
