Patient Experience Library

Great blog by @markgamsu.bsky.social – written with typical insight and humour.

Makes an important point and offers a simple prompt for peer support among prostate cancer patients. But will NHS services take it up…? #PatientExperience

📅 Solidarity Space
Mon 8 Dec, 12pm UK
Hosted with People’s Voice Media a space to speak openly, safely and in solidarity.

Interested in joining? email Hania coproduction@ucl.ac.uk

More details + full update

www.coproductioncollective.co.uk/news/underst...

Alongside secrecy cultures are disclosure processes that appear transparent but leave much to be desired. As per our Into the Web report: pexlib.net?249750 and APPG Influence tracker showing who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net

Front cover of the National Programme's framework: 'A framework to guide early planning ("the front end") of large-scale change in health and healthcare' with an illustration of groups of people sharing ideas depicted in speech bubbles. December 2025, version 1. Logos of University of Cambridge, Ipsos, The Health Foundation and THIS Institute.

Large-scale change programmes in health and healthcare don’t always succeed. The problems often originate in early design and planning. A framework from @THISInstitute, @HealthFdn & @IpsosUK aims to offer support. Find out more: ths.im/4iyf9pd

Health Literacy, Self-Management and Patient-Reported Outcomes in Prostate Cancer Survivors: A Mixed Methods Systematic Review To systematically review the literature to identify the influence of health literacy on self-management behaviours and patient-reported outcomes of in…

Health Literacy, Self-Management and Patient-Reported Outcomes in Prostate Cancer Survivors: A Mixed Methods Systematic Review www.sciencedirect.com/science/arti...

Closing soon The Health Foundation NHS Productivity Commission Call for evidence Share your views on how productivity in the NHS can be improved over the next decade Deadline: Friday 12 December

2 WEEKS TO GO: Contribute your insights, ideas and expertise to inform the work of the #NHSProductivityCommission and shape policy and practice to ensure better care for people.

The Commission's Call for Evidence runs until Friday 12 December.

Find out more ⬇️
https://bit.ly/4oHG9UY

Big congrats to @rdash-nhs.bsky.social today, with over 2,000 stories and 400 staff now listening to feedback on @careopinion.org.uk 👏👏👏

www.careopinion.org.uk/services/rxe

Eight of the volunteers standing outside the building that holds the Department for Culture, Media, and Sport.

We've been meeting regularly with the DCMS, but today's felt special: the first meeting since the announcement in Parliament that the wall will be made permanent. ❤️

Good article on why UK govt should resist pressure to increase drug prices. Good context for our Into the Web report on transparency: pexlib.net?249750 and APPG Influence tracker showing drug company connections to health-related All Party Parliamentary Groups: www.appgtracker.net

The tough choices at the heart of the government’s dispute with big pharma The government has been locked in a dispute with pharmaceutical companies for a number of months over how much the NHS pays for new branded medicines. Sally Gainsbury and Huseyin Naci set out the issu...

This week’s budget brought no resolution to the dispute between the government and the pharmaceutical industry over the price the NHS will pay for new branded medicines 💊

Read the article from @sallygainsbury.bsky.social and Huseyin Naci for a summary of what's at stake for the NHS 👇

Smiling younger woman being treated by a female dentist.

Have you recently had an experience visiting or registering with a dentist or hygienist in #Oxfordshire?
We want to hear your views.
Please tell us what it was like, good or bad, leaving a short, anonymous review in our Feedback Centre: healthwatchoxfordshire.co.uk/services/?fi...

Read our latest article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being. 👇

onlinelibrary.wiley.com/doi/epdf/10....

Our new report shows the economic inactivity crisis is greater in the North of England, with workers more likely to lose their job due to ill health, and those without educational qualifications nine times more likely to lose their job if they become ill.
www.healthequitynorth.co.uk/poor-health-...

I very much relate to this.

🧵/ Today a damning parliamentary report on the state of palliative care services in England was published.

Services are patchy, underfunded & “ill-equipped” to address end-of-life needs.

Bereavement support is “frequently inaccessible.

The palliative care workforce is in a “critical” situation”.

Infographic stating that 11% of men reported using Healthwatch for information on staying healthy, including 30% of Black men. It features the Healthwatch logo.

Younger men and men from ethnic minority backgrounds are more likely to seek information on staying healthy from outside of the NHS, such as social media, Healthwatch and AI. Find out more - https://bit.ly/4oSGGU8

Forside

Patient’s and researcher’s perspectives on patient involvement in research in multiple sclerosis | Ugeskriftet.dk ugeskriftet.dk/dmj/patients...

Implementing Patient Research Partner Engagement in Research (iPREPARE): Summary of main findings

Implementing Patient Research Partner Engagement in Research (iPREPARE): Summary of main findings - The University of Aberdeen Research Portal abdn.elsevierpure.com/en/publicati...

NHS productivity is often framed as working harder or doing more work.

This is the wrong perspective and a harmful one that makes achieving productivity improvement harder...

Older mother and adult daughter talking while enjoying baking together in a kitchen

Healthwatch Oxfordshire want to hear your thoughts about what is important to you towards the end of your life and about experiences you have had of end-of-life or palliative care services. #yourvoicecounts
Have your say by completing our short, anonymous survey www.smartsurvey.co.uk/s/talkaboutd...

A clinician wearing blue scrubs holds an iPad. The text reads: patient safety issues associated with electronic patient record (EPR) systems - a thematic review.

🆕 REPORT
➡️ Patient safety issues associated with electronic patient record (EPR) systems – a thematic review
📖 Read the report: buff.ly/eXLd5vK

#PatientSafety #NHS #HSSIB #Healthcare #EPR

Time for action: The Black Maternal Mental Health Report In partnership with the Maternal Mental Health Alliance (MMHA) and the Centre for Mental Health, The Motherhood Group recently launched the UK's first dedicated Black Maternal Mental Health Report at ...

🗨️Black mothers have been reduced to statistics for too long. It's time for urgent, sustained, and meaningful change.🗨️

Time for action: The Black Maternal Mental Health Report. www.pslhub.org/learn/patien... #blackmaternalhealth #patientsafety

Welcome to my body After twenty years of pain and repeated medical dead ends, a stranger sent me a message on Instagram. It led to a diagnosis all the doctors…

Last month, I found out I have hypermobile Ehlers Danlos Syndrome, after decades of chronic pain and medical disinterest.

I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:

medium.com/p/4fea6398b8ba

“There were no cervical cancer cases diagnosed in women aged <25 years in 2021 – the first time that this has occurred in data going back to 1982. This remarkable achievement is almost certainly due to the impact of HPV vaccination.” From report.cervicalcancercontrol.org.au

#vaccinationsaveslives

Improving patient experience and enhancing access to cancer services for people with learning disabilities Improving patient experience and enhancing access to cancer services for people with learning disabilities

Really pleased to share this Cancer Experience of Care Improvement Collaborative work to improve experience and waiting times for people with learning disabilities on a cancer pathway journals.rcni.com/cancer-nursi...

A turning point for end of life care? Our response to the announcement of a Palliative and End of Life Care Modern Service Framework.

Dying people’s voices must be at the centre of design and delivery.

Our latest blog responds to the government’s prioritisation and commitment to improve Palliative and End of Life Care through a new Modern Service Framework.

compassionindying.org.uk/blog-post/tu...

A bitter pill to swallow While headlines have been dominated in the run-up to this month's Autumn Budget by the final securing of an agreement between the DHSC and Treasury to pay the £1bn...

Amongst the many possible announcements in today's budget, one we'll be keeping an eye out of for is a deal over what the NHS pays for branded new medicines.

Our Senior Policy Analyst @sallygainsbury.bsky.social set out what's at stake for the NHS in her interview with Healthcare Management.

Important points on drug company influence on politicians and NHS drug pricing. Our Into the Web report: pexlib.net?249750 addresses similar issues and our APPG Influence tracker shows who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net

And meanwhile, closer to home, we continue to see transparency problems at the heart of the UK parliament. As per our Into the Web report: pexlib.net?249750 and APPG Influence tracker showing who is connected with whom among health-related All Party Parliamentary Groups: www.appgtracker.net

The Covid tribute wall 'bridging accountability with grief' The half-mile stretch of red hearts along the South Bank will be preserved as a permanent memorial.

Two of our volunteers spoke to the BBC about the government's announcement that The National Covid Memorial Wall will be made permanent - and of the Wall's importance in bridging institutional accountability with public grief. ❤️