Patient Experience Library

Fixing Social Care: The Six Key Problems And How To Tackle Them Different people have different opinions about what’s ‘wrong’ with social care and how to fix it. This long read outlines the six key issues and the options cited to tackle them.

The social care system is not fit for purpose. Many people can't access the care and support they need and others are left facing catastrophic costs. Our new long read outlines the six key issues and the options cited to tackle them. https://bit.ly/3VPOdH3

October is Health Literacy Month – Let’s Bridge the Gap! - University Hospitals Sussex NHS Foundation Trust Health Literacy Month in October helps to raise awareness of the importance of helping people find, understand, and use health information.

October is Health Literacy Month – Let’s Bridge the Gap! www.uhsussex.nhs.uk/news/october...

Prof. Elizabeth Wrigley-Field Discusses Excess Deaths Because the US death rate has exceeded that of 21 other high income countries for over four decades, an estimated 14.7 million US lives have been lost since1980.

New podcast episode where I talk about what's going on with mortality in the US

A wide-ranging discussion of what happened before the pandemic & what's happened since then; racial disparities and how to get our heads around their scope; why things might be going so badly for Millennials & Gen Zers

Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare Abstract. Long-term health conditions (LTCs) affect one-third of the global population and are associated with a heightened risk of depression, anxiety, me

My new book 'Beyond the Medical Gaze: Practicing Psychologically Informed Healthcare' is NOW AVAILABLE ONLINE from @oxunipress.bsky.social
Available in print from 28 Nov 25.
Download: academic.oup.com/book/61406

#booksky #medsky #psychsky #chronicillness #healthcare #livedexperience

NHS bureaucratic failures are on my mind a lot right now. Can you tell????

#cansky

Maternal wellbeing concepts. Copyrights: WHO/Adrien Liard.

Maternal wellbeing has been described in the literature, but no consensus on a global definition is available 🌍

Introducing “Maternal wellbeing: a WHO definition and conceptual framework”, now in @lancetobgyn-wh.bsky.social 👉 tinyurl.com/ytj8umfs

Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net?249293

Your feedback can lead to change and help make care better for everyone

Think there is no power in your feedback? Don't believe it can make a difference to services? We want to show you this isn't the case. Check out some recent examples of how your feedback made a difference - www.healthwatch.co.uk/our-impact

Our 12 week course, Co-production and You, has always been very highly rated by our previous students. Don't just take our word for it, check out the feedback below 👇
Spaces are starting to be booked - don't miss out! Find out more and book: buff.ly/Bede6gA

New pill for advanced lung cancer recommended by NICE A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England.

New pill for advanced lung cancer recommended by NICE

A daily pill for treating an aggressive form of lung cancer that affects younger patients is being made available on the NHS in England. #NICE #lungcancer #NHS #cancer #nursing #healthcare #health

www.nursingtimes.net/cancer/new-p...

Referrals that vanish without trace. Phones that don’t get answered. Baffling jargon. @hayleygullen.com tells her story of battling NHS bureaucracy in the latest edition of #PatientExperience quarterly. Get your copy here: pexlib.net?249293

Patient Experience Quarterly out now. News, views and comment from the world of #PatientExperience and patient/public involvement. Plus our top picks from recent research studies and surveys. Get your copy here: pexlib.net?249293

Delighted to have written an article about the admin burden of navigating the NHS as a seriously ill person.

Bad admin is traumatising. If your system traumatises people, it can’t heal them.

Patients often talk about medical care that has been excellent but communications and admin systems that have been poor. @hayleygullen.com tells her story of battling bureaucracy in the latest edition of our quarterly magazine. Get your copy here: pexlib.net?249293

I was chuffed that Liz (who is working on the national breast screening programme) had some big thoughts after reading my book…

The #NIHR Patient Engagement in Clinical Development Service, in collaboration with ABC UK, is looking for 6–8 adults (18+) in the UK who:
✅ Have lived experience of bladder cancer – either as a patient or carer
✅ Can access and use a program like Microsoft Word

tinyurl.com/mvupep8z

#BladderCancer

Photo of a young Black man wearing glasses, smiling, sitting at a desk witha laptop and looking off to the side. Text: Could you be our Policy Analyst?

We're hiring! Brilliant opportunity to join our policy team
and lead a new, high-profile programme of work. This is an exciting opportunity to shape the national conversation on mental health at a time of major political and policy developments. www.centreformentalhealth.org.uk/vacancy/poli...

Image of our menopause information sheet, with a screen capture from the recent webinar

October is #Menopause awareness month and we'd like to make you aware of the Menopause Information and Support sheet we have produced, for download healthwatchoxfordshire.co.uk/wp-content/u... along with our recent webinar "Let's talk menopause" healthwatchoxfordshire.co.uk/news-and-eve...

Would you like to get involved with our latest #NESSIE project? Visit our webpage or email us for more details – links in bio.  #evidencesynthesis #bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #PPI #patientinvolvement #chronicpain #LifeWithPain

Research conversation: Improving care for women living with endometriosis - ARC West About the event Endometriosis affects around 1 in 10 women and those assigned female at birth. It can cause severe pain, heavy periods, fatigue, and difficulties with fertility, yet it often takes yea...

⏰ Tomorrow!
💻 Join our Research Conversation: Improving care for women living with endometriosis ♀️

🕔 5-6pm, online
🗣️Take part, get involved, give feedback!
arc-w.nihr.ac.uk/research-con...

The influence of gender stigma in the management of pain for women Discover how gender bias impacts women’s pain care and learn strategies to improve assessment, diagnosis and treatment plans.

The influence of gender stigma in the management of pain for women

Learn how stigma and bias affect women’s pain assessment and treatment in this fifth article in a series on stigma in healthcare. #nursing #nurses #pain #gender #stigma #womenshealth #health

www.nursingtimes.net/womens-healt...

“They’re really hot on fairness, on wellbeing, mental and physical, providing tools that any of us need. I can’t fault them on that side of things at all.” Female, fifties, administrator in the NHS

Less than half of Disabled people aged 50-66 feel their workplace is inclusive.

We can do better. Inclusive policies must be clearly communicated, upheld, and embedded in workplace culture.

Read more in our Supporting Disabled Older Workers report: buff.ly/9Ux1kRX

#OlderWorkers #DisabledWorkers

🍃 #WorldMentalHealthDay event you may be interested in 👇

NHS continuing health care: consigned to the too difficult box? Alongside our new research today on NHS continuing health care (CHC), the report's lead author Rachel Hutchings sets out why CHC is important, what we found in our research, and describes what the imp...

What could the implications be if #NHS continuing healthcare (CHC) - a package of NHS funded care - is not improved?

@rachelhutchings.bsky.social's latest blog explains some concerning findings from her research on this poorly understood service. 👇

www.nuffieldtrust.org.uk/news-item/nh...

Curiosity as a safety tool: Tackling organisational drift in healthcare and beyond (Judy Walker Associates, October 2025) Judy Walker discusses the role AI has in the workplace, the concept of organisational drift and patient safety, and why using After Action Review can help support successful adaptation.

Article added to the hub - Curiosity as a safety tool: Tackling organisational drift in healthcare and beyond. www.pslhub.org/learn/invest...

All or nothing? Access and variation in NHS continuing health care NHS continuing health care provides funded health and social care support for people with very complex needs outside hospital. Yet our comprehensive new report shows this system is highly inconsistent...

Our report about NHS continuing health care shines a light on the problems with a package of support that is relied upon and needed by many people.

It shows a system under pressure, struggling to deliver fair, timely and sustainable support.

Read our report and the accompanying blog and Q&A 👇

UK government wins £122m pandemic case against Michelle Mone-linked firm over faulty PPE Trial heard 25m surgical gowns supplied by PPE Medpro to protect NHS staff were unusable and could ‘seriously harm or kill patients’

🧵on Michelle Mone and Covid contracts

1/
Former Tory peer Michelle Mone has called today’s ruling that PPE Medpro must give the taxpayer back £122m for supplying dodgy PPE an ‘establishment cover-up’. Utter nonsense.

Let’s ignore the rhetoric & look at the facts 👇

Covid Inquiry: 'Since having Covid my life's completely changed' A teenager has told the Covid-19 inquiry she often feels

Molly said she thought it was "very important" that children and young people gave evidence to the UK COVID Inquiry.

"Too often children like me have felt abandoned and failed, our struggles minimised and ignored," she said.

www.bbc.co.uk/news/article...

#LongCovidKids #LongCovid #COVIDInquiry

Isn't it crazy that you can be found to have ripped off the government to the tune of £122m and still retain your position as a legislator for life.

When it comes to #PatientExperience, transparency is powerful. Independence matters. And trust is at the heart of it all.

Excellent blog here from @fraserg.bsky.social and @careopinion.org.uk