Patient Experience Library's Avatar

Patient Experience Library

@patientlibrary.bsky.social

Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net

1,553 Followers  |  1,649 Following  |  150 Posts  |  Joined: 23.10.2024
Posts Following

Posts by Patient Experience Library (@patientlibrary.bsky.social)

Focus group invite with QR code.

Focus group invite with QR code.

Are you 16-25 years old, with experience of being detained under the Mental Health Act within CAMHS, and with experience using community mental health services?

Or are you a carer/supporter of someone with this experience?

Get in touch or sign up here: tr.ee/zzFSak

24.02.2026 12:24 โ€” ๐Ÿ‘ 2    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Woman with mouth open having a dental examination

Woman with mouth open having a dental examination

Have you recently had an experience visiting or registering with a dentist or hygienist in #Oxfordshire?

We want to hear your views.
Please tell us what it was like, good or bad, leaving a short, anonymous review in our Feedback Centre: healthwatchoxfordshire.co.uk/feedback-on-...

09.03.2026 14:25 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
AI Monitoring: From Model Metrics to Patient Outcomes As AI becomes more widespread, health systems face a practical question that governance structures alone cannot answer: how do you know if itโ€™s actually working? This blog addresses the practical work...

As AI becomes more widespread, health systems face a practical question that governance structures alone cannot answer: how do you know if itโ€™s actually working?

Read the blog: go.ihi.org/4bdwgsX

09.03.2026 14:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
โ€œI canโ€™t get an NHS dentist since mine left the practice. Now it costs me nearly ยฃ70 for a 5 minute check up. Iโ€™ve used my inheritance money to pay.โ€

โ€œI canโ€™t get an NHS dentist since mine left the practice. Now it costs me nearly ยฃ70 for a 5 minute check up. Iโ€™ve used my inheritance money to pay.โ€

Our new research finds more people are going private due to NHS dental access issues. But itโ€™s the poorest households that are hit hardest - https://www.healthwatch.co.uk/news/2026-03-09/people-struggling-financially-are-hardest-hit-shortage-nhs-dental-appointments

09.03.2026 14:39 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Do you want to be part of a movement on citizen and community involvement?

Are you thinking about how you can support your team to champion the practice of co-production in your work or a new project?

Get in touch for a chat: members@copronet.wales

More info here: buff.ly/ozm7veY

06.03.2026 09:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Bar chart of responses to the question, 'Which of these new tasks would you be happy to do through the NHS App?' showing that the public supports most of the proposed new uses of the NHS App in England.

Bar chart of responses to the question, 'Which of these new tasks would you be happy to do through the NHS App?' showing that the public supports most of the proposed new uses of the NHS App in England.

Our survey of attitudes to tech and AI in health care reveals three quarters of the public would be happy to use the NHS App for booking hospital appointments (76%), choosing a preferred hospital (73%) and accessing information about procedures (73%).

Explore more findings ๐Ÿ‘‡
https://bit.ly/407xoJG

06.03.2026 09:01 โ€” ๐Ÿ‘ 3    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

"How well or sick you are depends on how rich you are. The NHS provides free healthcare, but it canโ€™t pay your bills, free your flat of mould or keep your kids fed."

06.03.2026 08:01 โ€” ๐Ÿ‘ 17    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Video thumbnail

Just three minutes of your time can make a huge difference to improving services in your area. Let us know what is or isnโ€™t working in our short, confidential survey. https://www.healthwatch.co.uk/have-your-say

06.03.2026 09:09 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
โ€˜Miracle babyโ€™ examines emotional scars of life under the medical lens Liza Morton was the youngest child in the world to have a pacemaker. Now a psychologist, her book will resonate with anyone who feels challenged by the NHS

Thank you Helen Puttick for interviewing me for @thetimes about the deeply personal motivation behind my new book โ€˜Beyond the Medical Gaze: Practicing Psychologically Informed Healthcareโ€™ โค๏ธโ€๐Ÿฉน

www.thetimes.com/uk/scotland/...

05.03.2026 09:12 โ€” ๐Ÿ‘ 6    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Amier and Katharine outside, beside the sign for Katharine House Hospice

Amier and Katharine outside, beside the sign for Katharine House Hospice

Today Amier and Katharine are making an Enter and View visit to Katharine House Hospice.

You can find reports for previous visits on our website: healthwatchoxfordshire.co.uk/enter-and-vi...

Could you become an Enter and View volunteer? Find out more: healthwatchoxfordshire.co.uk/volunteer-fo...

03.03.2026 11:12 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Call for Evidence - Committees - UK Parliament Air Pollution In England

Closes 5pm Tuesday 3 March 2026 | @commonseac.parliament.ukโ€™s inquiry into #AirPollution in England << Please read their call for evidence and submit responses to one or more questions committees.parliament.uk/call-for-evi...

01.03.2026 14:32 โ€” ๐Ÿ‘ 7    ๐Ÿ” 7    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2
Preview
Patients lost in NHS โ€˜mazeโ€™ as doctors demand simpler access to care Health leaders say the current system is โ€˜confusing, frustrating and demoralisingโ€™

A new report from the Royal College of #GPs & the Patients Association highlights an urgent need for the Government to simplify access to health service. They describe #NHS as a complex web of organisations, making it difficult for individuals to receive #care
www.independent.co.uk/news/health/...

03.03.2026 09:34 โ€” ๐Ÿ‘ 4    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Our engagement team are out and about this month to speak to Stockton residents about their health and care queries.ย 

You can chat with Lynn and Janet in confidence at the following drop-ins/events:

3/3 - Warm Welcome, Thornaby Pavillion, 10am - 12pm

03.03.2026 09:55 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Video thumbnail

๐ŸšจCalling #LondonMums๐Ÿšจโ€‹

Had a baby since Dec 2024 or currently pregnant? @ImperialCollege researchers want to hear your thoughts on the RSV vaccine, whether you had it or not.

โ€‹๐Ÿ’ฌ 30-45 min interview (phone/online)
๐ŸŽ ยฃ25 Lovetoshop voucher
๐Ÿ“ง Email: matimms@imperial.ac.uk

26.02.2026 17:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

It's not only paint brushes that we use! The volunteers are working hard to spruce up the wall for the Day of Reflection on Sunday. โค๏ธ #DayOfReflection

02.03.2026 09:48 โ€” ๐Ÿ‘ 17    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Unseen and unheard: why healthcare must listen to neurodivergent south Asian women Patient advocate Mala shares how bias and misunderstanding shape healthcare for neurodivergent South Asian women, and why empathy, inclusion, and small adjustments can transform patient trust andโ€ฆ

Too often, neurodivergent south Asian women are dismissed or misunderstood in healthcare. Patient advocate Mala shares why inclusion, empathy, and small changes can transform trust and outcomes.
๐Ÿ‘‰ Read her blog: buff.ly/4F0sx8a

24.02.2026 07:56 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

On 29 Jan 2026, we published our first State of #PersonCentredCare report, bringing together findings from 9 national surveys delivered for the CQC and NHS England. It maps insights against our 8 Principles, showing how person centred care is experienced across #England today.

[1/2]

25.02.2026 13:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
This shows a photo of someone putting a voting slip into a box with The People's Vote Healthwatch Somerset

This shows a photo of someone putting a voting slip into a box with The People's Vote Healthwatch Somerset

Youโ€™ve only got just over a week to help shape our independent work in #somerset by voting on the health & care issues that affect you in our Peopleโ€™s Vote. It is quick & easy to vote.

All the details are on our website: www.healthwatchsomerset.co.uk/post/help-de... or call free 0800 999 1286.

25.02.2026 09:42 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Steering group members with Jenni Minto MSP in the middle, standing in front of a screen with the words 'National Summit on Young People's Sexual Health and Wellbeing'

Steering group members with Jenni Minto MSP in the middle, standing in front of a screen with the words 'National Summit on Young People's Sexual Health and Wellbeing'

We were delighted to welcome @jennimintomsp.bsky.social to the National Summit on Young People's Sexual Health and Wellbeing, held on Monday at the University of Glasgow.

@drruthlewis.bsky.social @glasgow.ac.uk @uofgmvls.bsky.social @nspcc.bsky.social @nhsggc.bsky.social

25.02.2026 09:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

Our latest survey completed with @ipsosintheuk.bsky.socialโ€‹ tracking the UK publicโ€™s views on the NHS and social care shows nearly half of the public (48%) delayed or avoided contacting their GP practice about a health concern in the previous 12 months.

Read more findings ๐Ÿ‘‡
https://bit.ly/4tTv1ru

25.02.2026 09:00 โ€” ๐Ÿ‘ 5    ๐Ÿ” 11    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2
Video thumbnail

.@natalie-fleet-mp.bsky.social is right to highlight the real world impact of the cuts to NHS dental services.

โœ‚๏ธSlashing budgets by 1/3 led to a dramatic decline in adult oral health under the last Government.

๐Ÿ“ˆWithout adequate investment, oral health inequalities will keep widening.

24.02.2026 14:43 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Banner with NIHR logo and the text โ€œApplied Research Collaboration South Londonโ€ at the top. Large heading reads โ€œTogether in Research:โ€ with a red underline flourish beneath it. Below, text states: โ€œThe patient, service user, carer and public involvement newsletter from ARC South London (Winter, 2026).โ€ Background is light teal with dark blue text.

Banner with NIHR logo and the text โ€œApplied Research Collaboration South Londonโ€ at the top. Large heading reads โ€œTogether in Research:โ€ with a red underline flourish beneath it. Below, text states: โ€œThe patient, service user, carer and public involvement newsletter from ARC South London (Winter, 2026).โ€ Background is light teal with dark blue text.

๐Ÿ“ขOut now - our final involvement newsletter, 'Together in Research' - includes:
๐Ÿ”ธBlog: beyond tokenism - lived experience in mental health research
๐Ÿ”ธThanks and farewell from our involvement coordinator
๐Ÿ”ธEvents, news, blogs, resources + more

mailchi.mp/3a5f644e7d1d...

23.02.2026 16:43 โ€” ๐Ÿ‘ 5    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

๐ŸŽ™๏ธHow do researchers recruit participants and keep them involved?

Neil Humphrey joins #NIHRBridgeTheGap to talk about best practice for recruitment, retaining participants, and making research more inclusive.

๐ŸŽง Listen now: bit.ly/4aqd6zP

@manchester.ac.uk, @nihrarcs.bsky.social, @nihr.bsky.social

24.02.2026 09:58 โ€” ๐Ÿ‘ 4    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
โ€œRare on Air Storiesโ€ in white text over blue, purple, and green painted streaks, Ren smiles at the camera from a pier in Australia, โ€œRen, Episode 8.โ€

โ€œRare on Air Storiesโ€ in white text over blue, purple, and green painted streaks, Ren smiles at the camera from a pier in Australia, โ€œRen, Episode 8.โ€

๐ŸŽ™๏ธThe final countdown to #RareDiseaseDay is on and weโ€™re back with our 8th episode of Rare on Air Stories! ๐Ÿ’œ

Meet Ren who lives with #CongenitalPanhypopituitarism, a story of resilience and hope in the face of lifelong hormone challenges.

๐ŸŽง Listen now: https://www.eurordis.org/rare-on-air/

19.02.2026 13:00 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Video thumbnail

๐Ÿšจ New paper!
Study reveals major inequalities for men with learning disabilities diagnosed with #prostatecancer. Theyโ€™re more likely to have symptoms but less likely to receive PSA tests, referrals, biopsies or timely diagnoses.

Read more: www.psrc-gm.nihr.ac.uk/2026/02/20/n...

20.02.2026 10:20 โ€” ๐Ÿ‘ 4    ๐Ÿ” 4    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1
โ€œWe often get male doctors and consultants for womenโ€™s health, and itโ€™s not appropriate for our culture.โ€

โ€œWe often get male doctors and consultants for womenโ€™s health, and itโ€™s not appropriate for our culture.โ€

Our latest insight from listening to refugee and asylum seekers experience of NHS services shows that they are struggling to find the right information and are not receiving culturally appropriate care - https://www.healthwatch.co.uk/blog/2026-02-24/refugee-and-asylum-seekers-experiences-using-nhs

24.02.2026 10:53 โ€” ๐Ÿ‘ 0    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
โ€œIt shouldnโ€™t be this hardโ€: solving the NHS maze for patients andย GPs Royal College of General Practitioners (RCGP) For most people, general practice is the front door to the NHS. However, talking to patients and GPs from across the UK has shown that too many people feel they are opening the door to a maze. This joint report with the Patients Association brings together the voices of the patients whose stories and experiences echo what RCGP members are hearing from patients across the four nations.

โ€œIt shouldnโ€™t be this hardโ€: solving the NHS maze for patients andย GPs

Royal College of General Practitioners (RCGP) For most people, general practice is the front door to the NHS. However, talking to patients and GPs from across the UK has shown that too many people feel they are opening the doorโ€ฆ

24.02.2026 09:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Doctors were complicit in Epsteinโ€™s abuseโ€”survivors must now be our priority A spectacle around Jeffrey Epsteinโ€™s depravity is overshadowing rights and justice for the survivors of the sex offender and his network, which included doctors, writes Jocalyn Clark The theme for I...

Two things are being overlooked in the #EpsteinFiles

The complicity of doctors

The extent of violence

My new piece @bmj.com #IWD #Epstein #Healthwashing #VAW

23.02.2026 15:36 โ€” ๐Ÿ‘ 75    ๐Ÿ” 43    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 2

This is not your usual research presentation!

We have some amazing people who will talk about the important difference Men's Sheds have made to them and the people they care for.

If you work in an end-of-life care context, you will want to make sure you are signed-up for this FREE ONLINE event!

12.02.2026 12:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

A similar force multiplier failure comes from treatment of patient complaints. Instead of seeing these as a powerful learning resource, the NHS throws up barriers. This paper offers a good explainer: pxlib.net/266

23.02.2026 10:39 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0