Mwidimi Ndosi's Avatar

Mwidimi Ndosi

@ndosie.bsky.social

Assoc Prof Rheumatology Nursing (UWE) | Editor-in-Chief, Rheumatology Advances in Practice | Research: PROMs & Patient Empowerment | Educate. Empower. Enable.

338 Followers  |  372 Following  |  138 Posts  |  Joined: 14.11.2024
Posts Following

Posts by Mwidimi Ndosi (@ndosie.bsky.social)

Preview
Investigating the association between urban rural classification with fragility fractures and bone density in the UK: evidence from a large observational clinical cohort AbstractObjectives. Geographic variation in fracture risk exists across the UK, yet rural/urban differences in fracture risk and bone density have yet to b

Does where you live in the UK affect bone health?

Study of 40,951 patients comparing urban–rural differences

⬇️ Lower osteoporosis prevalence in rural residents
⬇️ Slightly lower abdominal fat in rural groups
➡️ No difference in major osteoporotic fractures

Download the paper doi.org/10.1093/rap/...

21.02.2026 13:34 — 👍 0    🔁 0    💬 0    📌 0
Post image

How to assess quality of evidence? Term not well defined but usually includes 3 elements: 1. Internal validity (AKA #RiskOfBias), 2. External validity, 3. Reporting quality. @latitudes-network.bsky.social deals with study validity and @equatornetwork.bsky.social aims to improve quality of reporting

08.12.2024 12:57 — 👍 3    🔁 4    💬 0    📌 0
Preview
Thank you to the reviewers of Rheumatology Advances in Practice 2025 On behalf of the Editorial Team, I would like to extend my sincere thanks to all reviewers who generously contributed their time and expertise to Rheumatol

Are you on our 2025 Reviewer Recognition List?

Here is the full list of experts who generously dedicated their time, insight, and mentorship in 2025.

Your contribution strengthens the science, @rheumjnl.bsky.social and the wider rheumatology community.

Find your name here: doi.org/10.1093/rap/...

14.02.2026 19:17 — 👍 0    🔁 0    💬 0    📌 0
Preview
Gout, TikTok and misleading information: a content analysis AbstractObjectives. This study aims to explore what types of gout content are presented on the social media platform TikTok and assess their association wi

Gout content on TikTok has >400M views, but is it accurate? 🧐

➡️ Influencers push herbal cures and diet changes
➡️ Genetics and urate-lowering therapy info invisible.

Download the full paper on @rheumjnl.bsky.social
doi.org/10.1093/rap/...

09.02.2026 22:01 — 👍 1    🔁 0    💬 0    📌 0
Schematic overview of the positive perspective paradigm. The positive perspective paradigm postulates that the early stages of a chronic inflammatory disease present an optimal time window where appropriate intervention might positively influence one’s health perspective, in turn contributing to reduced long-term disease impact. Specifically, we propose that such an intervention should involve the prompt control of inflammation with appropriate pharmacotherapy, as well as tailored patient education and psychosocial support with a focus on positive communication from the time of diagnosis. The main hypothesis of the model is that both these types of interventions will lead to less patient-experienced disease impact both directly and through positive effects on patients’ health perspective

Schematic overview of the positive perspective paradigm. The positive perspective paradigm postulates that the early stages of a chronic inflammatory disease present an optimal time window where appropriate intervention might positively influence one’s health perspective, in turn contributing to reduced long-term disease impact. Specifically, we propose that such an intervention should involve the prompt control of inflammation with appropriate pharmacotherapy, as well as tailored patient education and psychosocial support with a focus on positive communication from the time of diagnosis. The main hypothesis of the model is that both these types of interventions will lead to less patient-experienced disease impact both directly and through positive effects on patients’ health perspective

Introducing the Positive Perspective Paradigm in the management of #rheumatoid #arthritis

1️⃣Educate with positive communication (not just warnings
2️⃣Empower by validating lived experience early
3️⃣Enable holistic care to support the mind and the joints

New paper Doumen et al doi.org/10.1016/j.ar...

05.02.2026 16:06 — 👍 0    🔁 0    💬 0    📌 0
Preview
Understanding the patient experience of newly diagnosed giant cell arteritis AbstractOBJECTIVE. The impact Giant Cell Arteritis (GCA) and its treatment has on an individual’s life is poorly characterised. This research sought to adv

Study of patients newly diagnosed with Giant Cell Arteritis identified 4 themes

1️⃣Uncertainty & fear
2️⃣Loss of autonomy & identity
3️⃣Adapting to physical symptoms
4️⃣Critical role of healthcare interactions

Patients need clear communication and support alongside disease control
doi.org/10.1093/rap/...

27.01.2026 14:58 — 👍 0    🔁 0    💬 0    📌 0
Preview
Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media AbstractObjective. To ascertain the perspectives of caregivers and patients with giant cell arteritis (GCA) and/or polymyalgia rheumatica (PMR) and the imp

Social media listening of people with #PMR and #GCA

➡️61% of treatment-related mentions were negative
➡️72% of GCA-related mentions on steroids were negative
➡️Biologics had more positive feedback than steroids

Download full paper doi.org/10.1093/rap/...
@rheumjnl.bsky.social

27.01.2026 10:57 — 👍 2    🔁 0    💬 0    📌 0
Preview
Enriching African genome representation through the AGenDA project - Nature The Assessing Genetic Diversity in Africa (AGenDA) project shares their processes, including community engagement, obtaining ethics approvals, navigating legal compliance and developing a common gover...

Hot off the press!🗞️

The AGenDA project shows how to finally enrich African representation in the global genome

Led by African researchers, they targeted under-represented groups, prioritising data sovereignty and local capacity building

Blueprint for decolonising research doi.org/10.1038/s415...

15.01.2026 22:09 — 👍 1    🔁 0    💬 0    📌 0

Great point @rheumnow.bsky.social the data suggests it is largely the 'severe' phenotype. It seems steroids remain a crutch for difficult-to-treat #RA..

10.01.2026 23:49 — 👍 1    🔁 0    💬 0    📌 0
Preview
Living with palindromic rheumatism: a qualitative interview study AbstractObjectives. Palindromic rheumatism (PR) is an unpredictable and under-researched inflammatory condition, and patients with PR are at risk of develo

Palindromic rheumatism is unpredictable and under-researched

New study by Chapman et al captures valuable patient insights

➡️ Unpredictable flares & psychological distress
➡️ Frequent diagnostic delays
➡️ Lack of info on progression to RA

@rheumjnl.bsky.social #palindromic doi.org/10.1093/rap/...

07.01.2026 23:23 — 👍 4    🔁 3    💬 0    📌 0
Preview
Development of a clinical tool to identify patients with early inflammatory arthritis at high risk of employment loss: analysis from the National Early Inflammatory Arthritis Audit AbstractObjectives. Work disability is an early consequence of inflammatory arthritis. Preventive interventions exist but access is limited, highlighting t

For people with #inflammatory #arthritis, staying in work matters.

Employment loss is driven by:
➡️manual work
➡️age
➡️musculoskeletal symptoms
➡️mental health

A simple risk tool can help direct scarce occupational health support to those who need it most.

Open access doi.org/10.1093/rap/...

05.01.2026 18:43 — 👍 0    🔁 0    💬 0    📌 0
Preview
Understanding physical activity participation in people living with rheumatoid arthritis AbstractObjective. We examined self-reported physical activity (PA) levels (metabolic equivalents expended (METs)/week and muscle strengthening/resistance

We are good at promoting "movement" in Rheumatoid Arthritis, but are we neglecting "strength"?

🏃‍♀️ 67% of patients meet aerobic activity guidelines.
🏋️‍♀️ Only 29% meet muscle strengthening targets.

The missing link? Confidence and clinician support.

Download the full paper doi.org/10.1093/rap/...

03.01.2026 18:28 — 👍 0    🔁 0    💬 0    📌 0
Infographic titled "2025 in review(s)" from Springer Nature. Statistics show 4 manuscripts reviewed, 3 resulting publications, 35 authors benefited, 2 journals reviewed for, and a 10-day average to complete a report. Top journals listed are BMC Rheumatology and Arthritis Research & Therapy.

Infographic titled "2025 in review(s)" from Springer Nature. Statistics show 4 manuscripts reviewed, 3 resulting publications, 35 authors benefited, 2 journals reviewed for, and a 10-day average to complete a report. Top journals listed are BMC Rheumatology and Arthritis Research & Therapy.

Glad to have supported 35 authors in the BMC Rheumatology and Arthritis Research & Therapy this year.

Next time you get an invite to #review, ask the editor if you can mentor a PhD student through the process. This helps reduce the reviewer 2 syndrome.

@springernature.com #AcademicSky #PeerReview

24.12.2025 09:54 — 👍 2    🔁 0    💬 0    📌 0
Preview
Acceptability and Barriers to Implementation of the EULAR Recommendations for the Role of the Nurse in the Management of Chronic Inflammatory Arthritis: A Mixed‐Methods Study With Nurses and Rheumatol... Aim EULAR recommendations for the role of nurses in managing chronic inflammatory arthritis were updated in 2018. This study aimed to: (i) assess the level of agreement and implementation of these r.....

Fusama et al assessed the implementation of @eular.org recommendations for the role of the #nurse in Japan 🇯🇵

High agreement by both nurses and rheumatologists, but the classic implementation barriers remain
⏳ Lack of time
🧠 Knowledge gaps
🛑 Issues with role expansion

🔗 doi.org/10.1111/1756...

18.12.2025 15:11 — 👍 2    🔁 0    💬 0    📌 0

I am sure they got the right answer. Not just safe, but recommended.

Always best to start gradually, ideally under the guidance of a physiotherapist or specialist familiar with systemic sclerosis, to ensure they account for factors like skin tightness, fatigue, or cardiopulmonary involvement.

13.11.2025 18:27 — 👍 1    🔁 0    💬 1    📌 0
Preview
High-intensity interval and resistance training programme improves pain and fatigue outcomes in people with systemic sclerosis: a European multicentre randomised controlled trial Background Pain and fatigue are among the most debilitating symptoms of systemic sclerosis (SSc), severely impairing quality of life (QoL). Pharmacological management is often inadequate, and evidence...

Pain and fatigue are among the most disabling symptoms in systemic #sclerosis.

New randomised controlled trila shows that a 12-week personalised, supervised exercise programme can ease pain, fatigue, and other symptoms of systemic sclerosis.

rmdopen.bmj.com/content/11/4...

12.11.2025 09:19 — 👍 2    🔁 0    💬 1    📌 0
Preview
Position statement on artificial intelligence (AI) use in evidence synthesis across Cochrane, the Campbell Collaboration, JBI and the Collaboration for Environmental Evidence 2025 | Cochrane Library

New Joint Statement on artificial intelligence #AI in evidence synthesis. From Cochrane, Campbell Collaboration, JBI & CEE

🧠 Human accountability remains paramount
🤖 AI tools require expert oversight
📊 Transparency & methodological rigour are non-negotiable

More: doi.org/10.1002/1465...

11.11.2025 17:08 — 👍 4    🔁 0    💬 0    📌 0
Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.

Mayor of London Sadiq Khan with colleague stood in front of C40 cities info board.

When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.

Due to our policies, we've done it in 9.

In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.

08.11.2025 09:08 — 👍 1593    🔁 429    💬 39    📌 25
Redirecting

What if the biggest barrier to early #arthritis treatment is not access to care but knowing when to ask for help?

🇩🇰 New Danish study shows how #education relates to how quickly people seek medical help.

We need health education and advocacy built into every health system. 🔗 doi.org/10.1016/j.ar...

06.11.2025 22:41 — 👍 0    🔁 1    💬 0    📌 0
Preview
Social media landscape: a cross-sectional survey of health professionals - Rheumatology International Social networks are widely used in the healthcare system for education, research, and professional networking. However, its adoption and impact in Central Asia, particularly among medical professional...

How do health professionals in Kazakhstan use social media? 🇰🇿

📱 98% adoption
🎓 82% use it for learning
📹 YouTube & Instagram dominate
😰 75% feel overwhelmed
💡 99% want training on professional social media use

Full paper 👉 doi.org/10.1007/s002...

28.10.2025 12:34 — 👍 3    🔁 0    💬 0    📌 0

Another paper from the same group in Bulgaria reporting the role of nurses in self-management for chronic inflammatory arthritis

- Education on self-injection
- Health promotion - healthy lifestyles
- Psychological support

doi.org/10.3390/jcm1...

25.10.2025 21:04 — 👍 0    🔁 0    💬 0    📌 0

Nurse-led care in #inflammatory #arthritis is expanding across Europe. New study from Bulgaria 🇧🇬 confirms how much patients value it

Majority of patients on bDMARDs were trained to self-inject by a nurse. They highly valued nurse-led #education and psychological support.

🔗 doi.org/10.3390/heal...

25.10.2025 21:04 — 👍 0    🔁 0    💬 1    📌 0
Preview
Mapping Use of High Dose or Long‐Term Oral Glucocorticoids and Steroid‐Sparing Strategies in Adults With Chronic Conditions: A Rapid Scoping Review of Reviews Purpose Oral glucocorticoids (OGCs) have a broad range of uses and are effective in treating numerous conditions. However, it is commonly acknowledged that OGCs at high doses or over long periods ha...

New #scoping review of 137 reviews across 47 conditions shows oral 💊 #glucocorticoids are widely used across numerous specialities.

Our collaborative research aims to explore how they affect quality of life and how to minimise harms.

Read more 👉 doi.org/10.1002/pds....

15.10.2025 16:31 — 👍 2    🔁 1    💬 0    📌 0
Preview
HandScan criteria versus ACR/EULAR Boolean remission as treatment target in early rheumatoid arthritis: results of a randomized controlled trial AbstractObjectives. The HandScan is a novel method to quickly and objectively quantify RA disease activity using optical spectral transmission in hands and

🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care.

🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.

@rheumjnl.bsky.social doi.org/10.1093/rap/...

06.10.2025 12:24 — 👍 2    🔁 1    💬 0    📌 0
Preview
Solar becomes main source of electricity in the EU for first time More than half of the EU’s electricity in the second quarter of 2025 came from renewable energy

#Solar becomes main source of electricity in the #EU for first time. More than half of the EU’s #electricity in the second quarter of 2025 came from #RenewableEnergy
www.independent.co.uk/tech/solar-p...

03.10.2025 09:14 — 👍 1198    🔁 452    💬 24    📌 43

Looking to connect with the leading community for health professionals in European rheumatology?

The EULAR HPR network offers an unparalleled opportunity to grow your professional network, access education and play an active role in advancing rheumatology care.

More: www.eular.org/eular-hpr-co...

01.10.2025 09:27 — 👍 2    🔁 0    💬 0    📌 0
Preview
Let’s ask the patient: disease prediction based on patients’ symptom descriptions in free text AbstractObjective. This study evaluates the value self-reported free-text symptom descriptions for supporting diagnostic decisions in osteoarthritis (OA),

AI and NLP analysed >8,400 patient-written free-text symptom descriptions.

Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.

This may reduce misdiagnosis and support earlier triage.

@rheumjnl.bsky.social doi.org/10.1093/rap/...

30.09.2025 17:37 — 👍 1    🔁 1    💬 0    📌 0
Post image

Join the 6th EULAR Postgraduate Course Health Professionals in Rheumatology 2026, focusing on the management of rheumatic and musculoskeletal diseases.


📅6-7 February 2026
📍Amsterdam, Netherlands
🔔Registration deadline: 7 December 2025
Register here: https://pulse.ly/phcts9mmby

#eularEDUCATION

17.09.2025 09:59 — 👍 0    🔁 1    💬 0    📌 1
PhD student Jessica Coggins at UWE Bristol is conducting a vital survey to understand the different ways people manage their fibromyalgia and the factors that influence these approaches

PhD student Jessica Coggins at UWE Bristol is conducting a vital survey to understand the different ways people manage their fibromyalgia and the factors that influence these approaches

UK adults with #fibromyalgia! Your experiences are needed for a PhD study on personalized care. Take our survey here 🔗 go.uwe.ac.uk/FMSPHD

17.09.2025 12:33 — 👍 0    🔁 0    💬 0    📌 0
Preview
What do turmoil at the CDC and new FDA recommendations mean for vaccines and public confidence? Susan Monarez's attorneys say she's being targeted for refusing to fire top health experts.

My interview with @wbur.org @npr.org

www.wbur.org/hereandnow/2...

28.08.2025 19:16 — 👍 84    🔁 41    💬 1    📌 1