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@amandastclair.bsky.social

don’t take me too seriously but also are you listening to me?????? Musings of chronic illness & female rage OKC - PGH

101 Followers  |  272 Following  |  47 Posts  |  Joined: 14.11.2024  |  1.9377

Latest posts by amandastclair.bsky.social on Bluesky

22.01.2025 23:30 — 👍 8    🔁 5    💬 0    📌 0

Trans people are dying out of hopelessness and fear. This world isnt meant for us gnc folks. My trans friends and I are checking in with each other to make sure we made it to another day. You are celebrating billionaires that don’t give a shit about you, and will sell your livelihood for a good deal

22.01.2025 19:37 — 👍 2    🔁 0    💬 0    📌 0

Your nonbinary friends and family deserve complete love and affirmation of who they are. If your politics don’t allow you to challenge the status quo, your politics are wrong. If your politics prevent you from seeing the beauty out of the binary, your politics are primitive and harmful.

22.01.2025 19:36 — 👍 6    🔁 3    💬 1    📌 0

What the Bishop said is absolutely correct.

22.01.2025 00:34 — 👍 10    🔁 1    💬 0    📌 0
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Caring for others is hot!

22.01.2025 02:10 — 👍 2    🔁 2    💬 0    📌 0

Finishing up By the Fire We Carry by @rebeccanagle.bsky.social via audiobook & know this will be a book I recommend for years and years. Should be a requirement to read for every non-native person in the US, but especially Oklahoma.

21.01.2025 16:39 — 👍 1    🔁 0    💬 0    📌 0
A family of splitgill mushrooms grow aligned on the edge of an upturned branch in a bare winter forest. They look like seashells on wet stone

All photos by me

A family of splitgill mushrooms grow aligned on the edge of an upturned branch in a bare winter forest. They look like seashells on wet stone All photos by me

Here are some nice mushrooms

20.01.2025 13:38 — 👍 45348    🔁 2200    💬 698    📌 112
Post image

Oh to be a small dog

14.01.2025 04:19 — 👍 3    🔁 0    💬 0    📌 0

Is there an online marketplace for handmade or used 🍃glassware?

12.01.2025 23:27 — 👍 0    🔁 0    💬 0    📌 0
Pastel background with the title in bold: Practice Accessibility

Below in bullet points:
Require masks/testing at your gatherings.

Make sure your content online is accessible. (captions, photo descriptions, etc)

Ensure physical accessibility & consider physical barriers that may fatigue/hurt/etc disabled folk.  

Keep note or ask about allergies/food requirements. Be aware if serving food has allergens, fragrance, etc.

Consider sensory requirements for folks who have sensitivities to light, sound, smells, etc.

Communicate accessibility measures about facilities like bathrooms, seating, wheelchair accessibility, etc. Proactivity is key!

Pastel background with the title in bold: Practice Accessibility Below in bullet points: Require masks/testing at your gatherings. Make sure your content online is accessible. (captions, photo descriptions, etc) Ensure physical accessibility & consider physical barriers that may fatigue/hurt/etc disabled folk. Keep note or ask about allergies/food requirements. Be aware if serving food has allergens, fragrance, etc. Consider sensory requirements for folks who have sensitivities to light, sound, smells, etc. Communicate accessibility measures about facilities like bathrooms, seating, wheelchair accessibility, etc. Proactivity is key!

Pastel background with heading reading: other tips

below in bullet points reads:


Think about your own behavior around disabled folks. Disability is a neutral term - not all disabilities are seen as negative!

Solidarity is an ACTION! Continue to be willing to learn, accept feedback, and show support for the disabled community!

Ask before helping. Not all disabled people want or need help. 

Speak out when you may be met with ableist language, poor accessibility, or any opportunity to bring solidarity to disabled folks. We are often so tired/in pain because of our disability or illness to speak up ourselves.

Pastel background with heading reading: other tips below in bullet points reads: Think about your own behavior around disabled folks. Disability is a neutral term - not all disabilities are seen as negative! Solidarity is an ACTION! Continue to be willing to learn, accept feedback, and show support for the disabled community! Ask before helping. Not all disabled people want or need help. Speak out when you may be met with ableist language, poor accessibility, or any opportunity to bring solidarity to disabled folks. We are often so tired/in pain because of our disability or illness to speak up ourselves.

pastel background with title in black reads: Sources

with two numbered paragraphs below


Eisenmenger, A. (2022) Ableism 101 - what is ableism? what does it look like?, Access Living. Available at: https://www.accessliving.org/newsroom/blog/ableism-101/ (Accessed: 06 January 2025). 


 Dictionary of Cancer terms. Comprehensive Cancer Information - NCI. (n.d.). https://www.cancer.gov/publications/dictionaries/cancer-terms/def/immunocompromised

pastel background with title in black reads: Sources with two numbered paragraphs below Eisenmenger, A. (2022) Ableism 101 - what is ableism? what does it look like?, Access Living. Available at: https://www.accessliving.org/newsroom/blog/ableism-101/ (Accessed: 06 January 2025). Dictionary of Cancer terms. Comprehensive Cancer Information - NCI. (n.d.). https://www.cancer.gov/publications/dictionaries/cancer-terms/def/immunocompromised

11.01.2025 00:10 — 👍 1    🔁 0    💬 0    📌 0
Pastel background with black text reading "How to show 
solidarity with our 
disabled and 
immunocompromised
friends and neighbors
a quick guide by Mask Bloc OKC" surrounded with an ornate black frame.

Pastel background with black text reading "How to show solidarity with our disabled and immunocompromised friends and neighbors a quick guide by Mask Bloc OKC" surrounded with an ornate black frame.

Pastel background with black text that reads:
KEY DEFINITIONS

Ableism - The discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior. 

At its heart, ableism is rooted in the assumption that disabled people require ‘fixing’ and defines people by their disability. Like racism and sexism, ableism classifies entire groups of people as ‘less than,’ and includes harmful stereotypes, misconceptions, and generalizations of people with disabilities. 

Immunocompromised - Having a weakened immune system. People who are immunocompromised have a reduced ability to fight infections and other diseases. This may be caused by certain diseases or conditions, such as AIDS, cancer, diabetes, malnutrition, and certain genetic disorders. It may also be caused by certain medicines or treatments, such as anticancer drugs, radiation therapy, and stem cell or organ transplant. Also called immunosuppressed.

Pastel background with black text that reads: KEY DEFINITIONS Ableism - The discrimination of and social prejudice against people with disabilities based on the belief that typical abilities are superior. At its heart, ableism is rooted in the assumption that disabled people require ‘fixing’ and defines people by their disability. Like racism and sexism, ableism classifies entire groups of people as ‘less than,’ and includes harmful stereotypes, misconceptions, and generalizations of people with disabilities. Immunocompromised - Having a weakened immune system. People who are immunocompromised have a reduced ability to fight infections and other diseases. This may be caused by certain diseases or conditions, such as AIDS, cancer, diabetes, malnutrition, and certain genetic disorders. It may also be caused by certain medicines or treatments, such as anticancer drugs, radiation therapy, and stem cell or organ transplant. Also called immunosuppressed.

Pastel background with black text heading that reads:

Education

and then in a bulleted list:

Listen to your disabled friends and family, ask questions, and accept feedback!

Understand and unpack the impact of ableism on everybody, not just disabled people.

Dyanamic Disabilities exist! Some people are able to be ‘normally’ one day, and then unable to move the next. 

Familiarize yourself on viral illnesses, chronic illness, and mass disabling events.

Accomodations for disabled people help all! Ex. seating, flexible schedules, railings, elevators, drive up/delivery services.

Pastel background with black text heading that reads: Education and then in a bulleted list: Listen to your disabled friends and family, ask questions, and accept feedback! Understand and unpack the impact of ableism on everybody, not just disabled people. Dyanamic Disabilities exist! Some people are able to be ‘normally’ one day, and then unable to move the next. Familiarize yourself on viral illnesses, chronic illness, and mass disabling events. Accomodations for disabled people help all! Ex. seating, flexible schedules, railings, elevators, drive up/delivery services.

Black text on a pastel background: Amplify Disabled Voices & Treat them NORMALLY

And below in bullet points it reads:
Treat disabled folks as full capable humans. Do not treat them like children, shout, or belittle. 

Follow disabled creators, business owners, artists, makers, workers, and voices. Interact with their work online and offline if you are able to. 

Share & promote our work. The work we create is often very difficult, or limited due to our disabilities. 

If you have all of your needs met financially, please consider donating/giving to folks who are living on a set income, dealing with medical bills, or unable to work. A lot of us are under the poverty line. 

Vote in elections vote for candidates that support accessibility and reject ableism.

Black text on a pastel background: Amplify Disabled Voices & Treat them NORMALLY And below in bullet points it reads: Treat disabled folks as full capable humans. Do not treat them like children, shout, or belittle. Follow disabled creators, business owners, artists, makers, workers, and voices. Interact with their work online and offline if you are able to. Share & promote our work. The work we create is often very difficult, or limited due to our disabilities. If you have all of your needs met financially, please consider donating/giving to folks who are living on a set income, dealing with medical bills, or unable to work. A lot of us are under the poverty line. Vote in elections vote for candidates that support accessibility and reject ableism.

I put together a little guide for Mask Bloc OKC and thought I would share!

11.01.2025 00:06 — 👍 5    🔁 0    💬 1    📌 0

To an asshole, all virtue is "virtue signaling."

09.01.2025 17:34 — 👍 19545    🔁 3035    💬 288    📌 117

as LA is burning, a swath of the country is recovering from an ice storm, Alabama is preparing for up to 6” of snow and I’m praying for the TX power grid, a reminder:

we don’t need climate action just for future generations, we need it now.

the climate crisis is here, all around us

09.01.2025 01:00 — 👍 41684    🔁 9362    💬 771    📌 281
5 Oval shaped pins with gold outlines with an oval cutout in the middle with a yellow slideable star:

Spoons: Lavender background
Hunger Scale: Red background
Migraine Scale: Blue background
Speaking vs Non Speaking: Green background

The first one has SHE, THEY, HE on top. At the bottom there's HER, THEM, HIM. White background.

5 Oval shaped pins with gold outlines with an oval cutout in the middle with a yellow slideable star: Spoons: Lavender background Hunger Scale: Red background Migraine Scale: Blue background Speaking vs Non Speaking: Green background The first one has SHE, THEY, HE on top. At the bottom there's HER, THEM, HIM. White background.

Galaxy and Moon Bunny Compression Gloves

Galaxy and Moon Bunny Compression Gloves

Galaxy, Cat and Mushroom Wrist Braces

Galaxy, Cat and Mushroom Wrist Braces

Galaxy and Moon Bunny Artist Gloves

Galaxy and Moon Bunny Artist Gloves

It costs 0$ to Repost a Black disabled queer small business! It could lead to my next sale.

I sell pins, stickers, compression gloves, artist gloves, binders, wrist braces, compression socks, hoodies, compression leggings & more!

Store details below!

05.01.2025 23:11 — 👍 325    🔁 373    💬 5    📌 9

Jay has covid. I am still testing negative because I have been masking, washing my hands often, and using nasal spray. Who thinks I can stay this way until he tests negative?????

03.01.2025 00:24 — 👍 2    🔁 0    💬 0    📌 0

Anyone can draw. Anyone. Yes, the person who is disabled can draw. Yes, you, who has only ever drawn as a preschooler. If you want to draw, you can get there, it's a skill and you have to dedicate time and effort to it, but you can learn.

17.12.2024 14:50 — 👍 5732    🔁 1121    💬 179    📌 55

I love DOECHII

13.12.2024 23:10 — 👍 2    🔁 0    💬 0    📌 0
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At the vet with my oldest girl, Aspen. She’s showing signs of arthritis/joint pain and I’m like 😭😭😭😭

Currently getting X-rays on her chronically hurting paw.

13.12.2024 16:44 — 👍 0    🔁 0    💬 0    📌 0
An overturned stick is held upright in a winter forest and covered in mature rosy Splitgill mushrooms. Their gills burst out like a fireworks display

An overturned stick is held upright in a winter forest and covered in mature rosy Splitgill mushrooms. Their gills burst out like a fireworks display

Here are some nice mushrooms

10.12.2024 14:06 — 👍 36660    🔁 2058    💬 629    📌 109

I’ve slowed down. I took a step back in my career, I barely leave my house, but even the simple task of making coffee can be too much.

11.12.2024 14:43 — 👍 2    🔁 0    💬 0    📌 0

Ok good because I like this cycle 👸🏼

10.12.2024 21:48 — 👍 1    🔁 0    💬 0    📌 0

Every evening I crave and look forward to my morning coffee. When I’m drinking my morning coffee, I look forward to my cozy evening. Is this the death spiral?

10.12.2024 02:37 — 👍 2    🔁 0    💬 1    📌 0

I hope one day I will stop fighting myself on my illness and just rest when I need it. I feel like I’m so bad at being sick. Anybody know what I mean? I keep pushing myself into flares. I need to rest

10.12.2024 02:34 — 👍 2    🔁 0    💬 1    📌 0

What do we do now? Like overall what is everyone doing

08.12.2024 00:40 — 👍 0    🔁 0    💬 0    📌 0
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I’m basically bald now thanks to ocd & autoimmune things. I shaved my head originally just for fun, but I think it’s forever.

04.12.2024 19:14 — 👍 5    🔁 1    💬 0    📌 0

My visible arm band is coming today!!!!!! I’m so excited!!!!!!

04.12.2024 19:10 — 👍 0    🔁 0    💬 0    📌 0

I also showed them the 16 page report by my doctor at Mayo Clinic about Long Covid.

They don’t understand how there’s no cure. I don’t understand how there’s no cure

How I hoped the brain tumor being removed would help my fatigue.. ugh

I just want to feel free of this cement body and dizziness

03.12.2024 02:07 — 👍 0    🔁 0    💬 0    📌 0

Anyone know of a good place I can donate extra illnesses to those in need?

02.12.2024 20:20 — 👍 141    🔁 16    💬 9    📌 0

I’ve already had to switch my career path & am grieving the loss of an active life I may never get back.

These days, it can be a feat just to make coffee and get out of bed.

Being able to enjoy my home is enough. Having stability & a peaceful life.

03.12.2024 02:04 — 👍 0    🔁 0    💬 1    📌 0

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