@andreaalsstrategy.bsky.social
ALS strategist| former caregiver| ex-CEO and board member| aligning interests of the lived experience ALS/MND community with research, clinical care, regulators, funders, and industry.
As we close out the year, wanted to share this running list of FDA leadership departures one last time. Some new names on there include digital health director Jessica Paulsen, and director of clinical policy in the chief medical office Shari Targum.
www.statnews.com/2025/04/03/f...
As we rejuvenate and regroup after a very long year, the Union of Concerned Scientists offers actionable steps to defend science, medicine and public health.
#StandwithScience
blog.ucs.org/guest-commen...
Congratulations to Dr. Phillip Van Damme of ALS Liga in Belgium on the Forbes Norris Award! #alssymp
05.12.2025 17:27 β π 0 π 0 π¬ 0 π 0
The new heartbreaking reality...π
βCDC Cannot Currently Be Trusted as a Scientific Voiceβ
conscienhealth.org/2025/11/cdc-...
And American parents should be terrified also.
18.11.2025 14:00 β π 0 π 0 π¬ 0 π 0And the brain drain begins.
18.11.2025 13:57 β π 0 π 0 π¬ 0 π 0
Trump and RFK Jr. are mulling their most disruptive vaccine policies yet β alarming manufacturers www.statnews.com/2025/11/18/t... via @statnews
π¨ Key: Suggested policy changes, about schedule & ingredients, "run contrary to evidence around their safety and efficacy."
#ScienceMatters
Great article describing how young women cope with ALS in their own way. The Young Women Grappling With an βOld Manβs Diseaseβ www.nytimes.com/2025/11/11/h...
12.11.2025 03:58 β π 1 π 2 π¬ 0 π 0Nice rebrand for NEALS!
08.10.2025 14:01 β π 0 π 0 π¬ 0 π 0The United States has swiftly retreated from global health leadership. In @lemonde.fr, I share why this retreat will have serious repercussions worldwide.
25.09.2025 14:55 β π 83 π 44 π¬ 3 π 1
However bad you think things are at the CDC they are worse.
That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team.
Must-read.
www.statnews.com/2025/08/28/c...
I was delighted to have another opportunity to speak with @RepMikeQuigley today about the reauthorization of the #ACTforALS.
Stay tuned for more to come on this important piece of #ALS legislation.
What a great meeting!! Iβm honored to be on the ALL #ALS Steering Committee and delighted to see the progress and innovations this natural history study is making.
Learn more at all-als.org
In honor and memory of all those we have lost to #ALS this #2025MemorialDay.
26.05.2025 22:14 β π 0 π 0 π¬ 0 π 0Have you ever had a vaccine-preventable illness? I'm collecting stories for First Opinion on @statnews.com. Email me a paragraph about your experience at first.opinion@statnews.com.
06.04.2025 21:14 β π 27 π 10 π¬ 3 π 3Each of us working in public health is motivated by a drive to make the world safer and healthier. Never lose that core purpose. Hold true to the personal stories that have inspired you.
04.04.2025 14:36 β π 82 π 21 π¬ 5 π 1Looks like the CDC National ALS Registry will become part of the Agency for a Healthy America (AHA).
04.04.2025 15:51 β π 2 π 0 π¬ 0 π 0#Breaking: Top FDA official Peter Marks was forced to resign as the director of the Center for Biologics Evaluation and Research.
29.03.2025 02:46 β π 50 π 23 π¬ 3 π 2
Do scientists put themselves at risk by speaking out against the Trump administration?
βHell yes,β said Jonathan Jackson.
graph of NIH basisfor new drugs
A pie graph worth keeping in mind as the NIH budget plummets jamanetwork.com/journals/jam... for 356 new FDA drugs approved
23.03.2025 16:17 β π 4029 π 1647 π¬ 60 π 85And the snuffing out of scientific research continuesβ¦
18.03.2025 13:13 β π 0 π 0 π¬ 0 π 0
Happy St Patrickβs Day, everyone, whatever your nationality, so long as you stand up for truth and decency.
Showering you with good luck and joy
#Breaking - WHO issues starkest warning yet on fallout from U.S. withdrawal of aid for global health
17.03.2025 16:29 β π 41 π 20 π¬ 1 π 1An important read in @nature.com from Dr. Arthur Caplan on the importance of #DEI in science. www.nature.com/articles/d41...
17.03.2025 16:51 β π 3 π 1 π¬ 0 π 0What a beautiful calling. Bless these death doulas who help the last stage of life go more smoothly.
14.03.2025 20:54 β π 2 π 0 π¬ 0 π 0
RFK Jr. misleads, deceives or simply lies when he claims the measles vaccine "routinely" causes deaths. IT DOES NOT.
@matthewherper.bsky.social lays out the facts.
www.statnews.com/2025/03/14/r...
Take action today to call your Member of Congress to demand the reinstatement of the CDMRP.
11.03.2025 03:24 β π 0 π 1 π¬ 0 π 0
Are we surprised? No.
Horrifying? Yep.
Dark Age 2.0.
NIH to terminate or limit grants related to vaccine hesitancy and uptake wapo.st/3Dw7WG0