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Billy Hanlon

@bhanlon15.bsky.social

ME/CFS | Long COVID | IACC | Stand with Minnesota

8,131 Followers  |  7,658 Following  |  8,223 Posts  |  Joined: 03.10.2023
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Posts by Billy Hanlon (@bhanlon15.bsky.social)

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Kristaps Porzingis Isn’t Long for the Golden State Warriors Key Points: Kristaps Porzingis is on an expiring contract. Porzingis has a serious health problem called POTS The Warriors May Miss the 2025-26 Playoffs The Golden State Warriors traded Jonathan Kuminga and Buddy Hield for Kristaps Porzingis in a major NBA Trade Deadline. *PREDICTION* While on paper, Porzingis solves a ton of the Warriors' problems from a center position, there are a couple of caveats for this move.

Kristaps Porzingis Isn’t Long for the Golden State Warriors

Key Points: Kristaps Porzingis is on an expiring contract. Porzingis has a serious health problem called POTS The Warriors May Miss the 2025-26 Playoffs The Golden State Warriors traded Jonathan Kuminga and Buddy Hield for Kristaps…

08.02.2026 00:00 — 👍 1    🔁 3    💬 0    📌 0
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Hives in autonomic disorders: a cutaneous marker of a distinct symptom phenotype Postural Orthostatic Tachycardia Syndrome (POTS) and Neurally-Mediated Hypotension (NMH) are heterogeneous syndromes characterized by dysautonomia and multisystem symptoms. Mast cell activation, of...

Ein Artikel über das Vorkommen von Urticaria bei einer Subgruppe von Menschen mit #POTS, wo es ja Überschneidungen mit Mastzellenaktivierung gibt.

Auch bei POTS ist das therapeutische Herangehen individuell und sollte Evaluation von #MCAS beinhalten.

www.tandfonline.com/doi/10.1080/...

17.02.2026 20:00 — 👍 33    🔁 9    💬 1    📌 0
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Long Covid is still here. I know – my life came to a stop because of it With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?

She can dive 30 feet underwater, but some days she cannot stand long enough to shower.

Long Covid took her career and independence.

At 34, she is back with her parents, sleeping many hours just to function.

Still, she keeps going.

www.theguardian.com/society/2026...

18.02.2026 15:44 — 👍 16    🔁 7    💬 0    📌 0
Validate User

"...acetylcholine deficiency and resultant parasympathetic hypofunction with relative sympathetic hyperactivity..."

Spannender #POTS Fallbericht mit konkreter genetischer Erklärung, aber generell etwas, das oft dem klinischen Eindruck entspricht.

academic.oup.com/ehjcr/articl...

18.02.2026 19:49 — 👍 27    🔁 8    💬 1    📌 0

something abled people don't get is you can have just one day a week where you are too sick to work, and that's enough to disqualify you from nearly all full-time jobs. it doesn't take a lot

22.02.2026 00:20 — 👍 4740    🔁 1840    💬 55    📌 61
ClinicalTrials.gov Study record managers: refer to the Data Element Definitions if submitting registration or results information.

A mitochondrial drug is being tested for long COVID fatigue with post exertional malaise (PEM). What it does, and what the prior trials found 🧵

clinicaltrials.gov/study/NCT072...

23.02.2026 14:33 — 👍 14    🔁 8    💬 1    📌 0
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"Emerging RNA viruses: Antivirals and innate immune control" by Dr. Sara Cherry YouTube video by GLOBAL IMMUNOTALKS

Dr. Sara Cherry breaks down antiviral strategies, how the innate immune system (specifically interferons & the CNOT2 pathway) controls infections, and the GI tract’s role as a potential reservoir for Long COVID.

www.youtube.com/live/hhKu6RZ...

24.02.2026 03:41 — 👍 8    🔁 2    💬 1    📌 0
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Immune exhaustion, the culprit for long COVID and chronic complications Chronic immune exhaustions underlie the development of long COVID.

Virginia Tech researchers, 2 cohorts, found long COVID looks less like slow healing and more like an immune system stuck in overdrive with exhausted T cells and ongoing IL-6 JAK/STAT signaling, helping explain fatigue brain fog and breathlessness.

academic.oup.com/jleukbio/adv...

28.02.2026 19:36 — 👍 23    🔁 8    💬 1    📌 0

~3 years ago, I was diagnosed with #CIDP, an #autoimmunedisorder I believe was triggered by #Covid (bsky.app/profile/jeff...). With regular #rituximab infusions, I’ve regained strength and function. I continue to #MaskUp. Stay safe, #covidaware folks! Don’t quit — you’re not alone! #longcovidmonth 😷

05.03.2026 19:16 — 👍 15    🔁 2    💬 1    📌 0
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Could a Cancer Treatment Cure Autoimmune Diseases? A “living drug” was developed as a cancer treatment. Now it is showing promise for conditions, such as lupus and multiple sclerosis, that have long been considered incurable.

Germany 5 patients with severe lupus received a single CAR T cell infusion and entered drug free remission.

Scientists reprogrammed their immune cells to remove harmful B cells.

The living therapy may offer hope for lupus and multiple sclerosis.

www.newyorker.com/culture/anna...

07.03.2026 17:15 — 👍 27    🔁 9    💬 0    📌 0
CAR T cells and T cell engagers for autoimmunity—lessons from hematology - Bone Marrow Transplantation Bone Marrow Transplantation - CAR T cells and T cell engagers for autoimmunity—lessons from hematology

"These observations underscore that eligibility for cellular immunotherapy should be guided by biological rather than chronological fitness—a principle of particular relevance for autoimmune diseases, which frequently affect older populations."
#Immunotherapy #Autoimmunity #CARTcells

09.03.2026 06:30 — 👍 9    🔁 5    💬 0    📌 0
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Kristaps Porzingis' 'mysterious' illness and the Warriors' uncertain future The Warriors traded for Porzingis on Feb. 4. He made his debut on Feb. 19 and has not played since.

ESPN: 'Kristaps Porzingis' 'mysterious' illness and the Warriors' uncertain future'

"It's a little mysterious...I'm not going to even posit any medical theories anymore," Warriors coach Steve Kerr said of Porzingis' illness

www.espn.com/nba/story/_/...

09.03.2026 14:56 — 👍 1    🔁 1    💬 0    📌 0
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Kristaps Porzingis responds to Steve Kerr's POTS comments: 'It wasn’t ideal' Kristaps Porzingis responds to Steve Kerr's POTS comments: 'It wasn’t ideal'

Yahoo Sports: 'Kristaps Porzingis responds to Steve Kerr's POTS comments: 'It wasn’t ideal''

uk.sports.yahoo.com/news/kristap...

09.03.2026 14:54 — 👍 1    🔁 0    💬 1    📌 0

Margot and Anne Frank died in Bergen-Belsen as a typhus epidemic killed 17,000 people

05.03.2026 16:06 — 👍 140    🔁 69    💬 3    📌 0

Welcome, @melaniemarich.bsky.social!

We’re so thrilled to work with you @thesicktimes.org on our podcast, Still Here!

05.03.2026 18:49 — 👍 11    🔁 1    💬 0    📌 0

So excited to join this stellar team!!

Let me know what you wanna hear on season 2 of Still Here, and more importantly, WHO you want to hear from in the Long COVID community👀👀

05.03.2026 19:11 — 👍 24    🔁 4    💬 1    📌 0
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ICE detains reporter Estefany Rodríguez in Nashville - Nashville Banner Reporter Estefany Rodríguez, detained by ICE with no arrest warrant, may face deportation. Her attorneys seek immediate review of the legality of her case.

ICE has arrested and detained a Nashville journalist who reported stories critical of ICE. She’s married to a U.S. citizen and has been seeking asylum here after fleeing death threats in Colombia because of her journalism there.

They’ve already sent her to Louisiana.

05.03.2026 23:41 — 👍 12276    🔁 7420    💬 293    📌 337
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Haitian man dies in ICE custody after family says tooth infection went untreated A 56-year-old Haitian man died in ICE custody in Arizona. His family says an untreated tooth infection spread and killed him.

Can you imagine how much pain this man must have been in? Haitian man dies in #ICE custody after family says tooth infection went untreated
www.scrippsnews.com/us-news/hait...

06.03.2026 03:18 — 👍 18    🔁 7    💬 2    📌 1
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DHS said that Ruben Ray Martinez was a threat.

That he “rammed” their vehicles.

Video evidence shows he was at a full stop and not a danger to anyone.

They shot him three times and killed him.

Just like Marimar Martinez, Renee Good & Alex Pretti.

They’re lying to cover up murder.

07.03.2026 04:53 — 👍 364    🔁 160    💬 7    📌 8
 A 3D medical animation shows the secretion of cytokines, small pink particles floating near purple and blue cells. The text reads, “The Sick Times. Long COVID research updates. Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID. Two new studies compare SARS-CoV-2’s long-term risks to those of the flu. A small phase 1 clinical trial will test the safety of the cancer monoclonal antibody Pembrolizumab (Keytruda).”

A 3D medical animation shows the secretion of cytokines, small pink particles floating near purple and blue cells. The text reads, “The Sick Times. Long COVID research updates. Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID. Two new studies compare SARS-CoV-2’s long-term risks to those of the flu. A small phase 1 clinical trial will test the safety of the cancer monoclonal antibody Pembrolizumab (Keytruda).”

Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID. The small study, published in Science Advances, found that symptoms improved when production of IFN-γ (a molecule that plays an important role in immune response) decreased. The researchers followed the people with Long COVID for 31 months, and tested their blood with a highly sensitive procedure. “It’s unlikely that all the different Long COVID symptoms are caused by the same thing,” one of the authors said in a press release, stating the need for treatments for different presentations of the disease.

Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID. The small study, published in Science Advances, found that symptoms improved when production of IFN-γ (a molecule that plays an important role in immune response) decreased. The researchers followed the people with Long COVID for 31 months, and tested their blood with a highly sensitive procedure. “It’s unlikely that all the different Long COVID symptoms are caused by the same thing,” one of the authors said in a press release, stating the need for treatments for different presentations of the disease.

Two new studies compare SARS-CoV-2’s long-term risks to those of the flu. A recent study in Frontiers in Immunology found that both COVID-19 and flu can impact lungs post-infection, but that only COVID-19 caused a significant impact on the brain. The study used a mouse model to compare the long-term effects of flu and COVID-19, finding that COVID-19 led to brain inflammation, sensory processing issues, and other types of brain injury. Still, the study did not mention myalgic encephalomyelitis (ME) or dysautonomia, which can both impact the brain and be triggered by influenza. A separate study in Communications Medicine also found that there is a higher risk of kidney disease after SARS-CoV-2 infection than after influenza.

Two new studies compare SARS-CoV-2’s long-term risks to those of the flu. A recent study in Frontiers in Immunology found that both COVID-19 and flu can impact lungs post-infection, but that only COVID-19 caused a significant impact on the brain. The study used a mouse model to compare the long-term effects of flu and COVID-19, finding that COVID-19 led to brain inflammation, sensory processing issues, and other types of brain injury. Still, the study did not mention myalgic encephalomyelitis (ME) or dysautonomia, which can both impact the brain and be triggered by influenza. A separate study in Communications Medicine also found that there is a higher risk of kidney disease after SARS-CoV-2 infection than after influenza.

A small phase 1 clinical trial will test the safety of the cancer monoclonal antibody Pembrolizumab (Keytruda). Sponsored by the National Institute of Neurological Disorders and Stroke (NINDS), the trial will enroll 15 participants with neurological symptoms of Long COVID in Bethesda, Maryland. Ketytruda is an infusion drug that is used to treat various cancers, including advanced melanoma and Hodgkin lymphoma. The trial adds to other cancer drugs like Anktiva and rapamycin being tested for Long COVID. The study is not yet recruiting. Study contact: Ladifatou N. Fouanta, ladifatou.fouanta@nih.gov.

A small phase 1 clinical trial will test the safety of the cancer monoclonal antibody Pembrolizumab (Keytruda). Sponsored by the National Institute of Neurological Disorders and Stroke (NINDS), the trial will enroll 15 participants with neurological symptoms of Long COVID in Bethesda, Maryland. Ketytruda is an infusion drug that is used to treat various cancers, including advanced melanoma and Hodgkin lymphoma. The trial adds to other cancer drugs like Anktiva and rapamycin being tested for Long COVID. The study is not yet recruiting. Study contact: Ladifatou N. Fouanta, ladifatou.fouanta@nih.gov.

🔬 Researchers identified high levels of cytokine interferon gamma (IFN-γ) as a potential biomarker for Long COVID

🦠 Two new studies compare SARS-CoV-2’s long-term risks to those of the flu

💊 A small phase 1 clinical trial will test the safety of Pembrolizumab

#LongCOVID research: bit.ly/4rV8DNf

06.03.2026 17:00 — 👍 41    🔁 14    💬 0    📌 0
Tweet from Paula Scanlan that reads, "the number of people I still see wearing face masks in the year 2026 is genuinely concerning"

Tweet from Jerome Adams that reads, "Why do you care?  Honestly asking. I thought the original mantra was “to each their own.” It sounds like you’re wanting to impose your priorities/belief systems on others while saying they shouldn’t impose theirs on you? What am I missing?

Also, beyond Covid – many people have found wearing a mask, has lowered their allergy symptoms- and pollen counts are rising this time of year. And Asian cultures have worn masks for years – are you bothered by Asians? Again honestly asking.  🤷🏽‍♂️"

Tweet from Paula Scanlan that reads, "the number of people I still see wearing face masks in the year 2026 is genuinely concerning" Tweet from Jerome Adams that reads, "Why do you care? Honestly asking. I thought the original mantra was “to each their own.” It sounds like you’re wanting to impose your priorities/belief systems on others while saying they shouldn’t impose theirs on you? What am I missing? Also, beyond Covid – many people have found wearing a mask, has lowered their allergy symptoms- and pollen counts are rising this time of year. And Asian cultures have worn masks for years – are you bothered by Asians? Again honestly asking. 🤷🏽‍♂️"

Appreciate former Sugreon General Jerome Adams pushing back on anti-mask sentiment on Twitter/X

08.03.2026 16:55 — 👍 358    🔁 77    💬 5    📌 6
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While PM Mark Carney marked International Women’s Day by recognizing the extraordinary contributions women have made to Canada and the world, the Leader of the Opposition has said absolutely nothing — which, honestly, might be preferable.

His silence speaks volumes.

❤️🍁🇨🇦TEAM CANADA FOREVER🇨🇦🍁❤️

08.03.2026 22:01 — 👍 192    🔁 63    💬 19    📌 3
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How the Rebel Loon became a symbol of resistance to ICE In mid-January, a Moorhead web developer released a symbol combining the Minnesota state bird with “Star Wars’” Rebel Alliance. It blew up overnight.

Star Tribune: "How the Rebel Loon became a symbol of resistance to ICE"

'In mid-January, a Moorhead web developer released a symbol combining the Minnesota state bird with “Star Wars’” Rebel Alliance. It blew up overnight'

www.startribune.com/how-the-rebe...

09.03.2026 13:53 — 👍 5    🔁 1    💬 0    📌 0

I know everyone gets excited for spring, but I will be sad to see winter end. Winter is the quietest that it is all year— no lawn mowers, no leaf blowers. It’s darker, which I love. And everyone is inside, so I don’t feel like I’m missing out on, well, everything. #pwME Until next year. ❄️

19.02.2026 20:16 — 👍 16    🔁 3    💬 0    📌 0
Image of a DNA double helix against a soft blue background with light particles. The Action for ME logo appears in the top right corner. Text on the image reads: “Research News – SequenceME and Long Covid study launches. The world’s largest long-read, whole-genome study of any disease.”

Image of a DNA double helix against a soft blue background with light particles. The Action for ME logo appears in the top right corner. Text on the image reads: “Research News – SequenceME and Long Covid study launches. The world’s largest long-read, whole-genome study of any disease.”

Quote from Action for ME CEO Sonya Chowdhury.

Quote from Action for ME CEO Sonya Chowdhury.

Quote from Complex Disorders Alliance CEO Amy Rochlin.

Quote from Complex Disorders Alliance CEO Amy Rochlin.

Quote from Schmidt Iniative for Long Covid CEO Dr John Redd

Quote from Schmidt Iniative for Long Covid CEO Dr John Redd

Today we’re delighted to launch Sequence ME & Long Covid - the world’s largest long-read, whole-genome study of any disease 🔬
🧬 This £20 million ground breaking initiative will explore the root causes of ME and Long Covid, with the aim of accelerating progress towards diagnostics and treatments.

20.02.2026 12:03 — 👍 64    🔁 30    💬 3    📌 4
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Immunoglobulin G complexes from post-infectious ME/CFS, including post-COVID ME/CFS disrupt cellular energetics and alter inflammatory marker secretion Autoimmunity is a key clinical feature in both post-infectious Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Post-Acute Sequelae of …

A new study from the Prusty lab shows IgG antibodies from ME/CFS and post-COVID patients can directly disrupt mitochondrial structure and energy metabolism in human endothelial cells, revealing distinct molecular fingerprints. www.sciencedirect.com/science/arti...

25.02.2026 20:27 — 👍 7    🔁 4    💬 0    📌 0

With an illness this severe, every moment counts. There’s absolutely no room for bullshit or wasted time. And the person that gets to decide what a meaningful life looks like within these extreme limitations is the person that’s living it. No one else. #LongCovid

25.02.2026 21:36 — 👍 22    🔁 5    💬 1    📌 1

It took me several yrs of #MECFS to realize that I was still doing things bc other people thought I should. Reading physical books I didn’t miss or trying hobbies I didn’t like bc people were mailing me items to be kind. Going outside more than I wanted so I could say I did when repeatedly asked.

25.02.2026 21:36 — 👍 24    🔁 3    💬 1    📌 0
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The Loneliness of Being Misunderstood There is a quote that circulates online, often attributed to George Orwell, about the particular cruelty of standing in a crowded room and feeling invisible.

A quote from my piece, The Loneliness of Being Misunderstood, about the invisibility of having #LongCOVID & #MECFS. #PwME #ChronicIllness

“The quote, whoever actually wrote it, describes standing behind a glass wall, hoping someone will look through and truly see you.”
substack.com/home/post/p-...

01.03.2026 18:58 — 👍 9    🔁 3    💬 2    📌 0

New & important preprint paper:
Search of Lost Volume: The Potential Causes of Hypovolemia in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Klaus J. Wirth
#ME/CFS #pwME #Hypovolemia #Vasopressin

02.03.2026 01:32 — 👍 17    🔁 7    💬 3    📌 3