Oh, hey. I was interviewed by IGN about JoJo's Bizarre Adventure as the editor of Stone Ocean.
13.12.2023 08:46 — 👍 15 🔁 5 💬 0 📌 0@chronicraesyndrome.bsky.social
He/Him | Editor for Weekly Shonen Jump | Chronic illness warrior | My opinions are my own | 日本語ok https://linktr.ee/chronic.rae.syndrome https://www.linkedin.com/in/rae-first/
Oh, hey. I was interviewed by IGN about JoJo's Bizarre Adventure as the editor of Stone Ocean.
13.12.2023 08:46 — 👍 15 🔁 5 💬 0 📌 0My birthday is in about a week... wondering if I should post my amazon wishlist or if that would look snobby-ish. I have my Linktree too that has other things but yeah >.>
10.11.2023 01:19 — 👍 0 🔁 0 💬 0 📌 0This sketch always makes me laugh because of the line "happy Hanukkah to everyone in Scarsdale." Yup, I hate my hometown and was relentlessly bullied. But it's always a personal thing to me. And if you're from New York City or the tristate area, you know. lol (Scarsdale still sucks)
09.11.2023 07:02 — 👍 0 🔁 0 💬 0 📌 0The guy next to me in the hospital has like 5 generations of his family here…
11.10.2023 22:24 — 👍 0 🔁 0 💬 0 📌 0I know this is two weeks old, but...
As the editor of this Mission Yozakura Family, I am apologizing to everyone in publishing.
(Also, the kerning on this font...I swear... I try but I am actually sorry)
I am more committed than ever to fighting medical gaslighting to those who suffer from chronic illness, especially those in marginalized groups. What happened to me and what’s happened to friends should never happen to anyone.
30.09.2023 23:13 — 👍 2 🔁 0 💬 0 📌 0Honestly, yesterday really tired me out in a journey of medical gaslighting that no one should experience. Worse than my SPS one. I was almost committed for an eating disorder I didn’t have and my GI saying I need intense psychiatric intervention when in reality it was stage 2 gastroparesis.
30.09.2023 23:12 — 👍 1 🔁 0 💬 0 📌 0I was about to panic email my letterer all the text was missing when I realized I hit the visibility button instead of the unlock layer button :)
30.09.2023 23:09 — 👍 0 🔁 0 💬 0 📌 0Also had to make multiple corrections to a letterer who knows who they are "Please use a typed font/X (formerly known as twitter) look to this"
And I hated writing that sentence
Translator (TL): Yep! Grabbed it and am already half-done. ^^
Me: Halfway there? Living on a prayer??? Please don’t quit…
TL: Don't worry, I'm not going anywhere. ^^ We'll make it, I swear.
I love the people I work with
Figured I'd start a weekly thread of products on my shop, like I do on Twitter.
Starting out, here's some classic FFXV stickers! As a note, from now until the end of September, it's buy 5, get 20% off your whole sticker order with code STICKUP. pantheraleo.bigcartel.com/product/ffxv...
I am sad to say my surgery was not a success. I have opened up on TikTok and Twitter about it. I could still use the mutual aid for my home nurse, medical bills, new glasses since the surgery wasn't a success...and upcoming surgeries. I am sorry to keep pestering about this.
26.09.2023 01:16 — 👍 1 🔁 3 💬 0 📌 0Live with my friend on TikTok who is selling custom sugar skulls for mutual aide for our friend’s sister who is fighting for her life.
www.tiktok.com/t/ZT86UPxAq/
I should just go buy some scratch offs or something in my pajamas…and not forget my wallet this time. I have to cash in the ones I won from this situation lol.
I always win something…
Well, I almost just got screwed out of returning to work. They found some random MD to write a sentence that’s probably going to cost my insurance $400 or some shit.
21.09.2023 00:12 — 👍 0 🔁 0 💬 0 📌 0Anyways…done spamming for now while I try to ignore the fact that I will continue to lose my eyesight. I now have more information on what the thing in my brain is though.
19.09.2023 23:41 — 👍 0 🔁 0 💬 0 📌 0Yes it’s weird being both super bendy and having your shit get all dislocated thanks to a chronic illness like EDS while also your muscles turn to concrete and you have spasms so bad it’s like out of the exorcists sometimes (SPS). Like tetanus is a good example of a full body spasm.
19.09.2023 23:40 — 👍 0 🔁 0 💬 0 📌 0At least I didn’t have to demonstrate SPS… He woulda had to call 911 lol…I laugh but it’s true. My mom got scared when I was laughing so hard about something yesterday that I had a diaphragm spasm and couldn’t breathe. Forgot about what though...
19.09.2023 23:37 — 👍 0 🔁 0 💬 0 📌 0Sorry I’m a petty piece of shit and I was petty to gross someone out by touching my thumb to my forearm
19.09.2023 23:36 — 👍 0 🔁 0 💬 0 📌 0Plus the photo that was in question for being facetuned was when I was like…27? So like… It’s not like I was THAT old to begin with in the photo :/
19.09.2023 23:32 — 👍 0 🔁 0 💬 0 📌 0It's gratifying when someone thinks you’re 16 when you’re 30 when reddit trolls accuse you of being super face tuned, etc. Yeah, EDS causes dislocations, motility failure, MCAS, POTS, other bad things…but not my fault your butt’s gotta be all wrinkly and mine doesn’t :)
19.09.2023 23:32 — 👍 2 🔁 0 💬 0 📌 0Also, take that reddit trolls who talk about me being super facetuned. I’m getting carded at 30 because (and I asked him to be honest how old he thought I was) someone thought I was 16.
19.09.2023 23:28 — 👍 0 🔁 0 💬 0 📌 0And then explained that while it causes dislocations and stuff, I also don’t get wrinkles.
19.09.2023 23:27 — 👍 0 🔁 0 💬 0 📌 0But my chronic illness ass is kinda….petty… I explained to him that while I have another disease that is terminal (Stiff-Person Syndrome), I have another disease called Ehlers-Danlos Syndrome (EDS) and to gross him out I showed him bending my thumb to my wrist...
19.09.2023 23:26 — 👍 1 🔁 0 💬 1 📌 0And after he finally gave in (found medical proof on my phone) I asked him old I look….
He said I I looked 16. And other customers were like…complimenting each other on how young they look like the lady who was 63 I was like I thought you were late 30’s maybe early 40’s, etc. It was kinda wholesome.
And I’m like…I was here like 30 minutes ago when I bought these, you can check the security footage. And like “How did I get these if I am not of age” (admittedly it was my fault for not bringing my wallet I’ve gone down to that 7-11 a lot and it’s always the same guy)....
19.09.2023 23:23 — 👍 0 🔁 0 💬 1 📌 0In other news, I tried to cash in $43 in lottery winning tickets and for the first time ever it was some other dude. He wanted to card me and I’m like…”I’m 30.” I pull down my mask and other customers are coming to my defense, etc. But it gets more entertaining...
19.09.2023 23:21 — 👍 0 🔁 0 💬 2 📌 0I have another update to post later on TikTok about my neurology appointment today and what to do about my eyes.
19.09.2023 23:20 — 👍 0 🔁 0 💬 0 📌 0I’ll update on my gofundme but I have a post on twitter with the TikTok video about my brain surgery…
The last few days. Procedure. My eyesight. Hospitalization. Failing motility.
twitter.com/Chronically_...