CCRC Research

Organ-level radiation dose estimations from cardiac catheterizations in neonates with tetralogy of Fallot Children with congenital heart disease (CHD) undergo procedures requiring ionizing radiation (IR). Estimation of organ-level radiation exposure is dif…

Excited to share CCRC Fellow Jeannette Wong Siegel's new paper which is the first to map organ-level radiation doses in neonatal TOF caths. Important insights for QI & clinical decision-making in CHD care. www.sciencedirect.com/science/arti...

CCRC is proud to announce Dr. Jeffery J. Meadows has been recognized as the inaugural recipient of the CCRC Leadership Award. Read more on page 8 of the Aug issue of CCT:https://www.congenitalcardiologytoday.com/north-american-edition

Stenting the Ductus Arteriosus in Neonates with Ductal-Dependent Pulmonary Blood Flow: Technical and Anatomic Considerations - Pediatric Cardiology Patent ductus arteriosus (PDA) stenting is rapidly emerging as an initial palliative option for infants with cyanotic congenital heart disease and ductal-dependent pulmonary blood flow. Although less ...

PDA stenting is gaining ground for infants with ductal-dependent CHD, but it’s complex and anatomy-specific. In this new review led by Dr. Tacy Downing, we share best practices and technical guidance—advancing CCRC’s mission to improve outcomes in CHD care.
link.springer.com/article/10.1...

Congratulations to CCRC's Joanna Nelson for receiving the Komansky Award for Research in Fellowship for her important work on the impact of genetic diagnosis on outcomes in neonates with TOF.

Congratulations to our biostatistician Dr. Yun Zhang on this incredibly funding opportunity from The Children's Heart Foundation!

Congratulations to Dr. Sara Pasquali who was recognized as the William J Rashkind Lecturer at the Cardiology 2025 Conference in Orlando Florida!

CCRC's Dr. Christopher Petit lead a panel of experts including Drs. Bryan Goldstein, @andyglatz.bsky.social, Dave Nykanen and Audrey Marshall at Cardiology 2025 in Orlando last week. They had an illuminating discussion on the ever-changing landscape and the future of innovation in managing CHD care.

Spotted: CCRC in the wild! UPMC's Dr. Bryan Goldstein is at the CHOP conference in Orlando this week and presented his predictions for catheter-based therapies in CHD in the next ten years. #cardiology2025 #CCRCresearch.org

This CHD Awareness Week, we honor the strength of children & families facing CHD. Research is essential to improving care, outcomes, & hope. CCRC is committed to advancing science & innovation to give every heart its best chance. Visit CCRCresearch.org to learn more.

Big News! 🎉 Our newly-redesigned website is live! With a vibrant new look, improved navigation, and enhanced content, you can:

🧡 Explore our mission and impact we are making
🧡 Stay informed with the latest news on our research
🧡 Get involved and connect with us

Check it out: CCRCresearch.org

A huge thank you to everyone who contributed to our shared successes. We look forward to building on this momentum in 2025!
#YearInReview #Healthcare #Research #PediatricCardiology #Milestones #CelebratingSuccess #MakingAnImpact 9/9

🧡 Rebranding: As CCRC grows and evolves, so does our identity. This year, we introduced an new logo and expanded our website to reach a wider audience and enhance accessibility. We’re excited to share the results and invite you to explore our newly launched site: www.CCRCresearch.org 8/9

🧡 Research: We celebrated five publications this year in journals such as JACC Advances, Journal of Pediatrics, and Pediatric Cardiology. Additionally, five more research manuscripts have been submitted or are in the final stages of submission. 7/9

🧡 Growth: We welcomed University of Texas-Southwest and the University of Minnesota to our growing list of full-member CCRC sites. 6/9

🧡 Pulmonary Vein Stenosis Registry: Behind the scenes, we are preparing to launch a new initiative to better understand this rare disease and improve outcomes for children with PVS. 5/9

🧡 Ductal-Dependent Pulmonary Blood Flow Registry: Since its inception, nearly 800 subjects have been enrolled, with ongoing longitudinal tracking and new subjects added regularly. 4/9

🧡 Conferences: Our organization met in person and virtually—first in Ann Arbor, Michigan in May and again in NYC in October—to review strategic goals, explore new research proposals and initiatives, and discuss ongoing projects. 3/9

🧡 Every day: Our collaborative of 16 full-member centers and countless dedicated individuals worked across institutional borders on meaningful quality improvement and research initiatives to improve outcomes for patients and families affected by congenital heart disease.
2/9

Reflecting on 2024, Looking Ahead to 2025:
As the year comes to a close, we are both proud and grateful for the milestones we've achieved together. Here are some highlights that made 2024 an impactful year:
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CCRC logo on a background of a blue sky announcing joining Bluesky

Hello Bluesky! CCRC is committed to pioneering research and improving health outcomes in congenital heart disease. Let's connect!