Nicole Shambles

COVID-19 mRNA Vaccination and 4-Year All-Cause Mortality Among Adults in France This cohort study uses the data from all adults aged 18 to 59 years living in France on November 1, 2021, to evaluate whether there is an association of receipt of an mRNA COVID-19 vaccine with long-t...

Vaxed people less likely to die of anything over 4 years than unvaxxed "we observed a 25% lower standardized incidence of all-cause death in vaccinated individuals compared with unvaccinated ones. A 74% lower risk was observed for hospital mortality due to COVID-19" jamanetwork.com/journals/jam...?

Anyone here with political aspirations, please take note. We live in an era, policy-wise where there is such a dearth of humanity that if you simply allow basic fundamental baby-brained levels of human decency to guide your policy it’s like 99% certain you’ll be goddamn Superman to the average voter

Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise

This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.

substack.com/home/post/p-...

Midwest Tribal ECHO 2024: Session 14 Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

We must reach out to help fight the health disparities found in these communities. As part of #TeachMETreatME initiative, a Midwest Tribal ECHO focused on ME/CFS & Long COVID. Thanks to the Native American Community Clinic in Minneapolis for collaborating with #MEAction MN!
ow.ly/CXAQ50Xt6Kk

rectangle image with a lantern and a heart reflection. The words A Lantern Burning Bright in Minnesota at the top. #MEAction logo bottom right corner.

As a community-centered & disability-led organization, #MEAction’s strength lies in the choices we make that shape programs long before launch. It is these decisions that allow us to continue to serve you as a light for this community.

Learn more:
www.meaction.net/post/inside-...

Thank You Alice Wong Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.

Alice Wong helped me accept my disabilities.

She taught me there’s no social justice without disability justice.

She encouraged me to start The Disabled Ginger and was a friend & mentor.

She won’t be forgotten.

Don’t let the bastards grind you down:

www.disabledginger.com/p/thank-you-...

Steven and Alice smiling and holding each other’s books

Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated

1) Interesting interview of Prof. Brian Hughes by David Tuller.

In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.

2025 Minneapolis Election Recommendations Here are my recommendations for the municipal election in Minneapolis coming up on November 4, 2025, and some photos I've taken this year.

here are my recommendations for mayor, city council, park board, and BET for tuesday! and this was a good excuse to share some photos from covering campaigns this year

taylordahlin.com/f/2025-minne...

Are hotel rooms accessible for people who use wheelchairs? NPR wants to hear from you Hotels have accessible rooms for wheelchair users. If you or someone you know has experienced problems with those rooms, we'd like to hear about it.

NPR wants to write about what makes travel difficult for people who use wheelchairs--with hotels. Tell us your stories. www.npr.org/2025/09/11/g...

Join our Blue State Vaccine Alliance, Minnesota! Sure, the rest of us have Pacific coastlines, but you have like, several lakes, so you test out of coastline.

#MEAction: 'Our pilot program offers free support applying for in-home help for Minnesotans with Long COVID, ME/CFS, and energy limiting illness'

'We’re excited to announce the official launch of the Minnesota Home Help Navigation Program, a new pilot program created..'

mailchi.mp/meaction/off...

BJGPLife: What does the fallout from the ‘Salt Path’ saga tell us about our society’s ideas about chronic illness and exercise?
bjgplife.com/what-do...


#GeneralPractice #PrimaryCare #FamilyMedicine

The first paper that uses the Pacing Narrative Study data is now published!

@grachstephanie.bsky.social is building a case for vocal differences to detect #PEM. She found many discussed such issues during a crash.

Find the paper here: 🧪

www.mdpi.com/2077-0383/14...

#MECFS

Home - Long Covid Families Supporting families and raising awareness by providing comprehensive support to families navigating the challenges of pediatric Long Covid.

We’re proud to support Pediatric Long COVID Awareness Week with @longcovidfam.bsky.social.

Millions of children are still living with the lasting effects of COVID. They deserve care, recognition, and action. Learn more: longcovidfamilies.org/awarenessweek

#PediatricLongCOVID

The University of Minnesota’s Dr. Michael Osterholm on Why Public Health and Vaccines Matter “The cuts that have been made in personnel, in resources, research, public service … all of those have been dramatic and drastic.”

We talked to public health expert Dr. Michael Osterholm about funding cuts, misinformation, and what keeps him going in challenging times.

Scott Lynch, a bearded white man with long blond hair, sits behind a table stacked with copies of THE LIES OF LOCKE LAMORA.

Three Elizabeth Bear books: THE ORIGIN OF STORMS, THE FOLDED SKY, and THE RED STAINED WINGS, all with little gold signed stickers.

So many signed copies of THE LIES OF LOCKE LAMORA by that @scottlynch78.bsky.social at the Roseville MN Barnes & Noble, and some signed Elizabeth Bear books too!

#DisabilityAwarenessMonth

I’m going to donate any royalties from sales of my book this month to @meactnet.bsky.social, who make my #disabled life a bit easier to bear.

Please buy a book or two so I can donate more than $0.30.

Don’t have a linktree, so I Will link various purchase options below.

Bethesda Declaration — STAND UP FOR SCIENCE Support NIH Staff Now!

If you are a scientist or a member of the public invested in scientific research, take a look at the Bethesda declaration and consider signing it and sharing it with others. 🧪

www.standupforscience.net/bethesda-dec...

Your reminder that #MEAction has a ✨protest guide✨ for people with energy-limiting illnesses like #MECFS:

#DisabilitySky #NEISvoid

www.meactions.org/_files/ugd/b...

Graphic with headline in red that reads "#MEAction Minnesota Helps Save Long COVID Program!" Beneath the graphic is a compilation of 3 photos showing #MEAction Minnesota advocates testifying before the Minnesota committee, standing posing for a picture and taking a selfie while they listen to the hearing.

#MEAction Minnesota rallied last month to save its Long COVID program - the first in the country - after the MN House proposed cutting all of its funding.
Yesterday, MN legislature passed a budget that cut $70 million across agencies but did NOT cut a dime from the Long COVID program!

Minnesota’s unique Long COVID program retains funding following advocacy - The Sick Times Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.

The Sick Times: 'Minnesota’s unique Long COVID program retains funding following advocacy'

'Advocates pushed back against threatened funding cuts and won continued support for Long COVID work in the Minnesota legislature’s final 2026–27 budget.'

thesicktimes.org/2025/06/11/m...

Grieving in solidarity, I feel this so hard

Community Voices - “ME/CFS Is..” - Open Medicine Foundation For ME/CFS Awareness Day, individuals shared powerful messages about the reality of living with ME/CFS. Explore the gallery of voices and help raise awareness.

How do you fight for visibility when you’re too sick to leave your bed?

This May, individuals around the world used their limited energy to share powerful messages, completing the sentence “ME/CFS is…”

Explore community voices on our website: www.omf.ngo/community-vo...

Why is the City's answer to public safety almost always to make our home a worse place to live? Why can't we have places for people to sit at one of the busiest bus stops in the City? Why is the answer to just give up, throw up our hands and not try to reach people?

Cartoon protest art with detailed, dark lines depicting the Statue of Liberty sinking to her crown in bright red liquid. She holds her torch high above an ocean of red next to the words "#Millions Missing SOS". Text in the image reads "May 12, 2025 protest in Washington D.C. and from home."

You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss...

#MEAction will be sounding a Disability SOS at the nation’s capitol and across social media.

#PwME

Ben HsuBorger (white man with short dark hair & beard wearing an N95 mask and glasses and dark shirt) sits on a train with window behind him.

Sending our best to Ben HsuBorger, Terri Wilder #MEAction MN state lead, & other #MECFS #LongCovid advocates heading to Minnesota state capitol tomorrow.
House budget is proposing eliminating ALL appropriations for Long COVID grants & health dept staffing!

SOS moment for #MillionsMissing in MN.

A black and white photograph of a shirtless man sitting on a bed, curled up with his arms wrapped around his knees and his head down. The room has white cabinets in the background, and the setting conveys a sense of isolation.

It’s been a week since the launch of our online art gallery A Quiet Storm.

Part of our launch exhibitions was my documentary-style photography series about my current life, ‘Enduring: Life with Severe ME/CFS’. 1/3

www.aquietstorm.me/enduring-by-niko-suvisto

#MECFS #pwME #Photography

NIH building in the background in black and white with a yellowed/faded overlay. Text: SOS Fund the ME/CFS Roadmap.

We are fighting for funding for the ME/CFS Research Roadmap.

We have a letter urging Dr. Bhattacharya to allocate $50 million to fund the ME/CFS Research Roadmap.

Sign our new letter now: bit.ly/MEcfsRoadmap

The more signatures we gather, the louder our call for action.

#PwME #MECFS #NIH