Oliver he/him

I have been on testosterone 14 years today. That is bonkers.
I remember my first injection like it was yesterday.
And now 14 years on and an injection every 3 weeks of T.

#TransMan #Transition #LGBTQIA #NonBinary #Transgender #Testosterone

On the right is an eye gaze on a mount showing a large keyboard layout. On the left is a picture of a curling match projected onto a wall.

Journaling using eye gaze device.

But also the curling is on so this is my setup!

50 press ups a day are apparently going to cure my Tourette’s.

Says some randomer on Facebook.

Best get down and do some press ups.
/sarcasm.

#Tourettes #Ableism #Tics

I made a video of me reading this poem.

#Poet #Poetry #Schizophrenia #AACuser #LGBTQIA

One of three poems I had in a museum two years ago.

“The schizophrenic queer

The pride parade goes on without me.
My crazy brain cannot attend.
Hallucinations spiral.
The schizophrenic queer.
Pride is a protest.
But no access.
Do I fit.
Crazy.
Pride.”

#Poet #Poetry #Schizophrenia #Pride

Any recommendations for journaling apps/programmes for windows computer?

#Journaling

Things that DON’T help me as a severely mentally ill person:

- being sectioned
- the crisis team
- the CMHT
- ableism and saneism
- stereotypes and stigma
- the news
- society

#Mentallyill #MentalHealth #Schizophrenia #ComplexPTSD #OCD #Mentalillness

Things that DON’T help me as a severely mentally ill person:

- being sectioned
- the crisis team
- the CMHT
- ableism and saneism
- stereotypes and stigma
- the news
- society

#Mentallyill #MentalHealth #Schizophrenia #ComplexPTSD #OCD #Mentalillness

Things that help me as a severely mentally ill person:

- medication (especially clozapine)
- hearing voices network group
- cats
- some close humans
- playing wheelchair rugby league
- sometimes therapy (sometimes it’s detrimental!)
- diagnoses
- knowing my limits and resting

Nurse at clozapine clinic kept trying to make me tic things she wanted me to ‘say’

Told me she would write them on my ‘pad’ (AAC device) so I’d remember.

She also pulled up one of my push handles on my wheelchair and moved me out of the way. Didn’t ask or say excuse me etc.

🙄😡🙄

Watched the curling this evening. I love the curling 🥌🥌🥌

Love all the other sports too. Some of them are very bonkers!

#NotAloneTalk

Following up from this post.

Instead of saying “x is fully accessible”

Describe what facilities you do have.

So say things like “step free entrance. Accessible toilet. Lifts. BSL interpreters. Touch tours. Sensory/quiet room and etc.”

That says a lot more to me than just ‘fully accessible’

A5: yes I have a lot of echopraxia tics.
And also echopraxia stims (best word to describe them I think) where I’ll copy
Actions (mainly knocking or tapping) from the TV or others around me.

#AutChat

A3: as my echolalia is involuntary Tourette’s tics it doesn’t have a purpose. It just happens randomly as tics do.

But I have a lot of echolalic tics.

Pre full time AAC user I would do echolalia for communication or similar.

#AutChat

A2: as now a days all my echolalia are tics. There are a wide variety of echolalia tics.

It seems common for me if someone sings something I then tic it back.

But yeah for me I have a lot of echolalia. #AutChat

A1 cont: my echolalia tics vary as to whether they ate immediately or a delayed echolalia tics. #AutChat

A1: yes I have a lot of echolalia due to
Tourette’s syndrome.

I’m now a full time AAC user but when I had some voluntary speech and was a part time AAC user I did some echolalia as stimming.

#AutChat

A0: hi I’m Oliver he/him. Multiple disabled and ND.

I have a lot of echolalia due to
Tourette’s.

#AutChat

I used to believe I had schizoaffective bipolar type. I got officially diagnosed with it in 2022.

But now I’ve worked out that it’s actually schizophrenia and ADHD.

Even when I thought it was schizoaffective I identified with the schizophrenia part and not with the bipolar part.

When places say “fully accessible for all”

They’re lying. And it frustrates me.

I’m not even accessible for myself. My access needs clash all the time.

I’m in a current situation with clashing access needs.

No where is fully accessible. That’s just a bullshit saying.

When your access needs are different to others who are using the same aids it gets complicated.

I am an AAC user. I use a manual active user wheelchair. I need a device with eye gaze as an option.

Most eye gaze users have their device mounted to their power chairs. This isn’t an option for me.

A white non binary trans man in a pink suit. Wearing dark glasses. He is wearing a graduation gown and hat. Holding a scroll in his hands.

Last year I graduated with a BA hons in history from the Open University.
I went to the graduation ceremony, and I’m glad that I did go as was debating whether to or not.

A decade long, where 6 years were studying. Other years were spent sectioned and battling the council for care hours.

For me being autistic I don’t get or understand things like jokes or sarcasm
I often believe things which aren’t true or AI etc. people often take the piss because of this.

For me being schizophrenic means I don’t trust things at all and everything is bad and lies.

It’s a weird combination

The world is scary and can’t trust anything said because of AI and trolls etc.

Add on top of that being schizophrenic and I just trust no one and nothing. Not even my own brain can be trusted.

The voices lie and tamper with evidence.

Watching Hannah Gadsby’s Nanette again.

Love their stand ups.

I’ve started with a new exercise routine.

Gym, swimming, and wheelchair rugby league.

Plus all the self propelling I do to get about to the shops and groups etc.

My fitness is massively improving. Routes that I previously needed pushing up hills & rests I know do myself in one go.

TS isn’t just vocal tics.

A thread 🧵 about the motor tics of Tourette’s Syndrome.

#Tourettes #TS #Tics #Disabled #Neurodivergent

1/

so yes Tourettes is definitely more than just vocal tics. My motor tics severely affect all areas of my life and greatly disable me.

#Tourettes #Tics #Disabled #Neurodivergent

End/

- tic attacks (one reason why I can't go out alone)
- just general every day tasks
- certain medical procedures. Having to be restrained for things like blood tests. Having to have procedures like MRI scans and colonoscopy etc done under general anaesthetic
- and more

#Tourettes #Tics

14/

So here is a list of other ways my motor tics affect and disable me:

- using the toilet
- showering
- eating and drinking
- sleeping
- mobility
- self injury tics
- being injured
- chronic pain and acute pain
- getting dressed and undressed

#Tourettes #Tics

13/