Jen Preston

I thought you meant you were hiding behind the curtain 😂

Treatment options for preventing autoimmune-mediated congenital heart block: a systematic review Objective Complete congenital heart block (CHB) due to anti-Ro/La antibodies in pregnancy can lead to adverse fetal outcomes and neonatal death. National and international guidelines do not recommend ...

New systematic review from my brilliant @nihr.bsky.social ACF on Rx options to prevent autoimmune mediated heart block in fetus and baby

tl:dr Several drugs, no good evidence for ANY

#paediatrics @uolchildhealth.bsky.social @liverpooluni.bsky.social @alderhey.nhs.uk

adc.bmj.com/content/earl...

If you are not able to understand a study, can you ethically participate in it? Information sheets for young people don't explain studies in a way that is understandable for the audience, with commercial studies even harder than academic ones. This follows work similar work on parents information!

🧵 Earlier this month, the LifeArc-KRUK Centre for Rare Diseases held a successful international workshop at the Child Health Institute in the Park campus to design a clinical trial for patients with the inflammatory disease, IgA vasculitis (1/2)

Aww thanks Dan

HTs 🎩 to @jpreso.bsky.social, young people & colleagues for A* organising + presenters name-checked in blog post incl @simonrstones.bsky.social, Sophie @raiiseuk.bsky.social, @neuro-observant.bsky.social & her amazing #InvolveYoungPeople research cycle & @joshharsant.bsky.social @barnardos.org.uk 👏👏

Picture of 'live drawing' notes for the national 'Making Connections' event for young people's research advisory groups. Includes pictures of young people, presenters and key messages about voice, being heard and shared experience

We had a brilliant day in Birmingham on Saturday at the 'Making Connections' event for #GenR YPAGs. Check out our blog post: generationr.org.uk/hertsypag_ma...

Thank you Herts YPAG for attending & contributing to the event, what a great day! Thank you for reflecting on the day in this fantastic blog, watch out for the full report and next steps. Thanks again for joining us to raise the importance of involving young people in health research

See you there soon @jpreso.bsky.social @joshharsant.bsky.social @simonrstones.bsky.social 🥳

 
16/ Huge thanks to all the team including @emmatj.bsky.social, @ceumateus.bsky.social @cawaldrom.bsky.social @kerryhood.bsky.social @saulfaust.bsky.social @jpreso.bsky.social and others not on here. Funded by @nihr.bsky.social

1/ Delighted to report the results of the Procalcitonin-guided duration of antibiotic treatment in children hospitalised with confirmed or suspected bacterial infection in the UK (BATCH) trial in @LancetChildAdol
authors.elsevier.com/sd/article/S...

Looking forward to delivering a masterclass on young people’s involvement in health research decision-making as part of this programme

Good to see our @nhsconfed.bsky.social report on investing in women’s health cited in this article. Suspect it will be referenced for some time given the salience of the issue. Download it here www.nhsconfed.org/publications...

Lovely, have a great time ❤️x

Where are you off now Simon? 😄x