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Wolfydoc

@spoonydoc.bsky.social

Love video and board games, sci fi books, my powerchair and my dog. Ex mathematician, still hopelessly a nerd. Mostly housebound due illness. Will probably talk a lot about disability.

360 Followers  |  659 Following  |  105 Posts  |  Joined: 11.11.2024
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Posts by Wolfydoc (@spoonydoc.bsky.social)

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Autistic woman wrongly locked up in mental health hospital for 45 years “Kasibba”, who is non-verbal and had no family to speak for her, was one of hundreds wrongly detained.

Many are arguing this highlights the need for better diagnosis and treatment of #autism.

While true it also highlights the horrendous and dehumanising treatment of people in some #MentalHealth hospitals.
This urgently needs investigating. #Disability
www.bbc.co.uk/news/article...

04.03.2025 12:01 — 👍 2    🔁 1    💬 0    📌 0

The court case win is pretty old news, so I'm wondering what ulterior motive the Telegraph has for publishing this now, particularly after weeks of telling us benefit cuts are coming.

09.02.2025 10:33 — 👍 0    🔁 0    💬 0    📌 0

I must have made a terrible mistake.
My "discover" feed is full of cat photos but not a single dog photo.

Going to lie down to recover.

18.01.2025 21:52 — 👍 1    🔁 0    💬 1    📌 0

Hmmmm. Mostly true, but I would be able to afford hydrotherapy, massage therapy and things like that.

Heck, I'd get my own hydrotherapy pool and open it for free to other disabled people when I'm not using it.
Oooh! With a cafe! For free!

Oh well. Back to reality.

16.01.2025 10:34 — 👍 0    🔁 0    💬 1    📌 0

otoh, what is anyone going to do if they catch me in a bike lane? Take away my licence? :P

16.01.2025 10:01 — 👍 1    🔁 0    💬 1    📌 0
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Using mobility scooters and powered wheelchairs The rules for driving mobility scooters and powered wheelchairs on roads, pavements and footpaths.

In the UK power chairs are currently allowed to use cycle paths but it is illegal for us to use bike lanes.

I get shouted at a lot for saying this, but it is true. Anyone can check.
But because no one knows about this silly legislation, no one is trying to change it.

www.gov.uk/mobility-sco....

16.01.2025 09:59 — 👍 1    🔁 0    💬 1    📌 0

Google Street View is a big help to plan journeys because of the following issues with Google maps:

Google maps doesn't show steps on pedestrian routes.
Pedestrian route designated as "mostly level" can include steps.
No option to show paths/routes which include drop kerbs.

10.01.2025 16:03 — 👍 5    🔁 0    💬 0    📌 0

This has to be a wind up.
If it isn't, go away and read about screen readers and how they use alt text.

10.01.2025 15:48 — 👍 0    🔁 0    💬 0    📌 0

I would categorise this issue as the same one that has affected mobility scooters and outdoor electric wheelchair users for years/decades.
Secure parking for cars is provided, but very rarely for mobility scooters or powerchairs.

20.12.2024 09:38 — 👍 1    🔁 1    💬 0    📌 0

Oh no!
Sometimes you don't want to be proved "right" and this is definitely one of them.
I'd have been delighted for you to keep telling me all your NHS experiences were absolutely fantastic forever.
Hope you get lots of rest and feel better soon.

18.12.2024 17:33 — 👍 1    🔁 0    💬 1    📌 0
Video thumbnail

🎁 Accessible Wrapping Hack for the Holidays!
Gift-opening joy is for everyone! 💚

Make presents easier to open for loved ones with disabilities:
1️⃣ Add a ribbon handle.
2️⃣ Wrap lightly with minimal tape.

🎥 Watch the video for the full hack!

#AccessibleWrapping #HolidayHack #CerebralPalsy #yeg

14.12.2024 22:12 — 👍 13    🔁 6    💬 1    📌 0

Happily replaying the Outer Worlds, having upgraded to the new edition.
Looking forward to a bunch of new games after that.

New Year is always a difficult time for me and I am already starting to feel the effects.
Video games and my dog are a lifeline.

15.12.2024 09:19 — 👍 1    🔁 0    💬 0    📌 0

Doctor: How are you?
Me: I'm good.
Doctor: What brings you here today?
Me: I'm doing bad.

13.12.2024 19:31 — 👍 480    🔁 67    💬 23    📌 7

You're secretly a satire account, right? Right?

14.12.2024 09:33 — 👍 0    🔁 0    💬 0    📌 0
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AI has brought bias and hunger to the DWP benefits system AI should be ensuring the benefits system is supporting claimants from the start – but leaves them fighting for support they deserve.

The use of #AI in government bureaucracy is problematic.
You only need look at the Horizon scandal to see the dangers when computers get it wrong.
Now it is being deployed against welfare claimants in the UK despite knowing it is biased. #disability
www.bigissue.com/opinion/dwp-...

14.12.2024 09:21 — 👍 6    🔁 2    💬 0    📌 0

Part of the problem is that social care is on its knees.
People can't be safely discharged, so there are is a bottleneck.
There are other reasons for lack of beds but this remains a large one.
But no one in government, this or last one is willing to even begin to address the issue.

13.12.2024 12:08 — 👍 0    🔁 0    💬 1    📌 0
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12-hour A&E waits in winter 'becoming normalised' Experts warn long waits becoming normalised as NHS winter waits show little sign of improvement.

National target from 2000 is 95% of people seen and treated/admitted within 4 hours.
That target used to be met but now only 73% in all A&E and 58% in hospital A&E.
Since the pandemic 12 hour waits have rocketed. 1 in 10 last winter, large variations locally. Eg:
www.bbc.co.uk/news/health-...

13.12.2024 12:02 — 👍 2    🔁 0    💬 1    📌 0

I saw marshmallows at the supermarket the other day proudly advertised as "100% fat free".
Yep. Practically a health food!

Like vegan leather, it's not false advertising as such, but certainly misleading.

13.12.2024 10:04 — 👍 1    🔁 0    💬 0    📌 0

This is not the usual experience for an NHS patient.
I will only go if unconscious, seriously injured, or severe pain not explained by my normal symptoms.

This is why it took 5 days to go with a blocked kidney stone. Similar pain to usual back pain, so eventually called GP, who sent me to A&E (ER).

13.12.2024 09:08 — 👍 3    🔁 0    💬 1    📌 0

I do similar.
I use a combination of a huge U shaped maternity pillow, a V shaped pillow and an ordinary pillow.
Took a while to discover this combination, but I sleep ok now. I usually sleep on my side, but can support my legs up at will and also prop myself up when on my back.

12.12.2024 09:52 — 👍 1    🔁 0    💬 0    📌 0

There are definitely some games which I think are "far more fun than they have any right to be"!

Generally they are the ones with a vast array of interesting and diverse loot.
Borderlands plays on this to a point but has other fun features. Some games don't.

11.12.2024 10:50 — 👍 1    🔁 0    💬 0    📌 0

Have logged on to discover that playing video games and having chronic pain will apparently turn me into an assassin.

Will now go away and reflect on my life.

Nah. Just kidding. Will now go away and play some more video games.

#disability #ChronicIllness

10.12.2024 21:45 — 👍 6    🔁 0    💬 1    📌 0

I restarted a Cyberpunk mission because I accidentally ran over some civilians.
Had much better luck with the motorbikes and stuck to them after a while!

10.12.2024 21:30 — 👍 7    🔁 0    💬 1    📌 0

"Video games cause violence"

Meanwhile, me reloading my save because I accidentally made one of the characters sad

10.12.2024 14:40 — 👍 24759    🔁 3507    💬 492    📌 270

Many people do not understand game design. Let me explain: game design is when attacking with your primary attack builds stacks of zorp, and your secondary consumes zorp stacks to add additional slow and lifesteal when you plurk

10.12.2024 02:43 — 👍 3746    🔁 416    💬 120    📌 18

Currently watching a TV Korean drama "Descendents of the Sun".
It has a secondary character who is a wheelchair using doctor.

No mention has been made of her wheelchair whatsoever so far. She just happens to be a disabled doctor.

08.12.2024 09:51 — 👍 6    🔁 0    💬 0    📌 0
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Gelastic and Dacrystic Seizures | Epilepsy Foundation Gelastic and dacrystic seizures are both focal or partial seizures. Gelastic seizures have bouts of laughing while a crying sound is made with dacrystic seizures.

Do you get any other symptoms at all?
Gelastic and dacrystic seizures can cause this, but you would usually get other minor symptoms too.
www.epilepsy.com/what-is-epil...?

08.12.2024 09:47 — 👍 0    🔁 0    💬 0    📌 0

I'd only ever seen it in the context of being scared, well, "shitless".
Which is a thing that happens in extreme situations to anyone, disabled or not.
Is it being used as an insult in other contexts?

08.12.2024 09:35 — 👍 1    🔁 0    💬 1    📌 0

Sometimes it's nice to just sit back and enjoy not being in pain!
Unless you're literally wandering around in frustration wondering what to do. In which case I hope you settle on something soon.

08.12.2024 09:29 — 👍 0    🔁 0    💬 0    📌 0

I always wrote off part of my rental deposit in advance for that sort of thing.

Some people semi jokingly call it the "disability tax", ie all the extra costs, big and small you pay that non disabled people don't.

08.12.2024 09:17 — 👍 2    🔁 0    💬 0    📌 0