Lila Guterman

A science agency wants to stop knowing which ideas are true and which ones aren’t.

ME/CFS research program shuts down at Columbia after Trump cuts ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.

About 17 MILLION Americans have Long Covid. At least 50% of these meet criteria for ME/CFS. Does your government care? Does Trump give a damn? Does that joke RFK even know what these two disabling diseases are?
This is another example of their murderous intent.

www.statnews.com/2025/03/19/m...

But what about cloture? If you allow the CR to go to a full vote, your "no" vote will just be symbolic.

I've signed up but am wondering: do all the calls need to be made during that two-hour period? And can people who can't attend at that time make calls later?

I did this. It took less than 5 minutes. Please send a letter! We have no time to waste with so many people suffering.

#LongCovid is often a financial disaster. But if you have dollars to spare, here are great orgs I’m donating to:

@thesicktimes.bsky.social - the-sick-times.fundjournalism.org/donate/

@patientled.bsky.social - patientresearchcovid19.com/donate/

@openmedf.bsky.social - www.omf.ngo?form=donatenow

Almost a third of preteens, teens with long COVID still not recovered at 2 years, study shows

Those who reported COVID reinfections during the study period had the most symptoms through 24 months.

www.cidrap.umn.edu/c...

"I think people don’t understand that. You’re asking, “Hey, would you mind protecting my life?” When someone’s like, “Oh God, what a pain in the ass,” experiences like that make you reticent to ask in the future." Excellent article about living with #LongCovid or, indeed, being #CovidAware at all.

There Are Three Main Reasons You Are Alive Right Now. RFK Jr. Is Fighting Tooth and Nail Against One of Them. Things could get really bad.

If RFK Jr. really stands for confirmation as the Secretary of Health and Human Services (HEALTH and HUMAN SERVICES) we should march on the Capitol (metaphorically) with tetanus-tipped pitchforks to prevent him from taking us back a hundred years in health time. slate.com/technology/2...

Please call for this one, guys, this is a horrific turn.

There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.

You do not need to be Canadian to tell this survey exactly how insulting so many of these suggestions are. 🤬 #LongCovid

It takes until the *tenth paragraph* in this piece to introduce the phrase “thousands of children may die”

Laura did such good work at SciAm. It's a huge loss for the magazine.

There is no joy so big as the joy that folks with long covid and ME/CFS, and the allies who are truly and deeply in this with us, will feel when we find proper treatments for these illnesses. When we find ways of preventing these illnesses.

That joy will be bigger than the Sun.

I’m starting a new chapter in my career this summer. I’m now working as a freelance science editor. If you need help editing news/feature stories or science communication projects, please contact me: mmtorrice.com.

Heads up science writers! The National Association of Science Writers is launching a series of webinars offering career support. Free to all interested professionals and students. Please share!
https://www.nasw.org/article/nasw-science-writers-sciwriroundtable-2023-new-virtual-events-series

Thx for thinking of me!

Hi! I just joined!

Just joined!