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CaNDLES+

@candles-plus.bsky.social

Cancer & Neuro Divergent Lived Experiences Support plus Because the #neurodivergent experience with #cancer can be horribly tough and toxic & there are so few #supportive, #caring spaces specifically for #ND cancer patients. DMs welcome. Pls share.

1,494 Followers  |  4,455 Following  |  113 Posts  |  Joined: 19.11.2024  |  1.8071

Latest posts by candles-plus.bsky.social on Bluesky

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A wee video that’s too cute not to share. If you’re struggling, take a few moments with the sound on πŸ’œπŸ«ΆπŸ’œmight make you feel better?

12.01.2025 08:11 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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6 Ways to Delete Yourself From the Internet You’ll never be able to get a clean slateβ€”but you can significantly downsize your digital footprint.

Amazon, Facebook, and Google all have reams of data about youβ€”including your likes and dislikes, health information and social connectionsβ€”but they’re not the only ones. Countless murky data brokers that you’ve never heard of collect huge quantities of information about you and sell it on.
#TechSky

07.12.2024 22:22 β€” πŸ‘ 27    πŸ” 6    πŸ’¬ 0    πŸ“Œ 1

All fetishes: go.bsky.app/E3VGKMv

22.11.2024 21:06 β€” πŸ‘ 453    πŸ” 149    πŸ’¬ 0    πŸ“Œ 0

Couldn’t help but chuckle at that. Oh but it hurts. The stupid. It hurts.

07.12.2024 22:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Founders that share value Join the conversation

Awesome list of builders!
go.bsky.app/Miiq9jZ

25.11.2024 13:49 β€” πŸ‘ 26    πŸ” 11    πŸ’¬ 2    πŸ“Œ 0

@skypacks.bsky.social

04.12.2024 05:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Podcasters Join the conversation

New FEATURED starter pack by @ianlandsman.com
go.bsky.app/E2q6ZKa

26.11.2024 09:05 β€” πŸ‘ 34    πŸ” 15    πŸ’¬ 5    πŸ“Œ 2
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Bluesky: The Next Big Social Media Platform Bluesky is a new social media platform that has been gaining popularity in the US. It's similar to Twitter but with some unique features.

new to bluesky?

just wrote the guide i wish i had:
- why 20M people are here
- what actually works
- how to find your people
- the secret sauce (custom feeds!)
- starter packs that don't suck

πŸ‘‰ il.ly/tech/bluesky

ps: yes, you can build bots. yes, the API works. no, there's no ads. wild, right?

26.11.2024 18:36 β€” πŸ‘ 164    πŸ” 40    πŸ’¬ 23    πŸ“Œ 3

@skypacks.bsky.social

04.12.2024 05:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

⭐ New featured pack by @flatoy.dev

go.bsky.app/75HfkVp

27.11.2024 09:51 β€” πŸ‘ 57    πŸ” 26    πŸ’¬ 12    πŸ“Œ 0

How do you prevent creative burnout?

03.12.2024 22:48 β€” πŸ‘ 17    πŸ” 6    πŸ’¬ 12    πŸ“Œ 2
Glamour shot of Jane Philpott

Glamour shot of Jane Philpott

Need a Family Doctor? Jane Philpott Can Help. macleans.ca/society/heal... @macleans.bsky.social

Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁

04.12.2024 04:50 β€” πŸ‘ 21    πŸ” 6    πŸ’¬ 4    πŸ“Œ 1

if I had a ton of money for #LongCovid research I’d spend at least some of it on post covid visual snow syndrome. 15% of ppl with vss believe they got it from covid (and around half from a tbi). it’s super under researched.

04.12.2024 02:07 β€” πŸ‘ 11    πŸ” 3    πŸ’¬ 3    πŸ“Œ 0

Also, holy shit, Bluesky sends real traffic. Will update this tomorrow with firm numbers but journalism is going to move here for sure. Twitter is a drop in the bucket. It's over, but we are so back, and so on and so forth

03.12.2024 21:53 β€” πŸ‘ 22947    πŸ” 1707    πŸ’¬ 271    πŸ“Œ 119

My autistic masks were a prison created by my abusers over my entire life.

They were the 'me' I would think of, they were a filter every impulse went through. They told me what I could and couldnt think about.

But they were not me.

03.12.2024 23:57 β€” πŸ‘ 228    πŸ” 38    πŸ’¬ 9    πŸ“Œ 2
Future fertility for young cancer patients preserved with procedure from U of C researchers | CBC News A medical procedure for children and adolescent chemotherapy and radiation therapy patients in Calgary provides an option to have a biological kid in the future.

Future fertility for young cancer patients preserved with procedure from U of C researchers #Calgary

Ovarian tissue cryotherapy keeps option open for chemotherapy patients

www.cbc.ca/news/canada/...

03.12.2024 12:54 β€” πŸ‘ 58    πŸ” 14    πŸ’¬ 1    πŸ“Œ 0
Immune T cells become exhausted in chronic fatigue syndrome patients Chronic fatigue syndrome creates conditions where pathogen-killing immune T cells become exhausted, according to a new Cornell University study.

T cell exhaustion in #MEcfs

www.eurekalert.org/news-release...

04.12.2024 03:21 β€” πŸ‘ 45    πŸ” 10    πŸ’¬ 2    πŸ“Œ 0
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Bluesky Now Has 24 Million Users. Jay Graber Is Still Vowing to Keep It From Enshittification At WIRED's The Big Interview event, Bluesky CEO Jay Graber discussed the booming user numbers for the Twitter rival and why giving social media users more control is a recipe for success.

NEW: Bluesky has seen massive growth in the weeks following the US election. There are 24 million users on the social media platform.

With great engagement comes great responsibility, which means Bluesky CEO @jay.bsky.team has a lot to do. She sat down with WIRED to talk about it.

04.12.2024 00:26 β€” πŸ‘ 30739    πŸ” 4683    πŸ’¬ 555    πŸ“Œ 304
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Disabled Americans rely on rideshare apps but say they still face discrimination Disabled rideshare users have for years reported having less access to Lyft and Uber than able-bodied people.
04.12.2024 04:04 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Attn : Spoonies with Brain and Spinal Injury

A new grant offered by the Brain and Spinal Injury Trust Fund Commission

Call: 888-233-5760. More info: bit.ly/3Qs1ZgN

Maximum payout $10,000
(Hope this helps!)

#chronicalyfabulous #spinalinjury #spooniesky
#blacksky #disabled #braininjury #tbi

04.12.2024 04:06 β€” πŸ‘ 8    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
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The United Nations (@UN) reminds us that today is ⬇️♿⬇️ #InternationalDayOfPersonswithDisabilities #UnitedNations

04.12.2024 04:24 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

The biggest barrier of those in the disability community is that which denies them the same quality of life the able-bodieds enjoy. For some reason there is an undercurrent of insistence those whose lives are lived differently should be expected to accept a lower standard of living.

04.12.2024 04:26 β€” πŸ‘ 5    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

Oh I see. Thanks so much for taking the time to explain that. Learnt something new!

04.12.2024 04:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Wow. Ur experiences r heart breaking & outrageous! Did u complain? Pls tell me you’ve got a quality medical team now who really listen to u. How many females have been disregarded = injury or worse? Do their lives mean nothing? This really boils the blood. & many women still believe β€˜dr knows best’

04.12.2024 04:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@nkinl.bsky.social there is a massive gap in how cancer and its treatments impact the lives of neuro divergent (autism, ADHD etc) patients. ND cancer patients often have pre existing, co-occurring medical conditions & higher sensitivity to the world. Is there any work towards cancer in ND folk?

04.12.2024 04:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@nkinl.bsky.social what about cancer patients who were already disabled/had other medical conditions that reduce exercise ability or prevent it? Exercise isn’t an available option for everyone. What’s the alt for those who can’t exercise even if they wanted to? They’re always left behind in advice

04.12.2024 04:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Delaying and shortening the duration of treatment with CDK4/6 inhibitors in patients with metastatic breast cancer leads to similar survival outcomes while reducing toxicity and achieving substantial cost savings, the SONIA trial shows. Read more ➑️ bit.ly/3Oqw7aX

27.11.2024 16:45 β€” πŸ‘ 40    πŸ” 11    πŸ’¬ 0    πŸ“Œ 2
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πŸŽ“ PhD candidate Laurien Zeverijn @hetavl.bsky.social @utrechtuniversity.bsky.social looked at how patients with microsatellite instability could be treated with a drug that matches their unique tumor profile. This treatment is now covered by insurance ➑️ bit.ly/49agoX4

28.11.2024 11:08 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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πŸ“’ Applications for the NKI PhD program open from Jan 1 - Feb 28. Join our international research community in Amsterdam, working in cancer biology, AI research & life sciences with leading scientists and top facilities #PhD #CancerResearch More info: bit.ly/3O4bOjq

29.11.2024 08:36 β€” πŸ‘ 26    πŸ” 16    πŸ’¬ 0    πŸ“Œ 6

@candles-plus is following 18 prominent accounts