SickGirlProbsss | Ashley's Avatar

SickGirlProbsss | Ashley

@sickgirlprobsss.bsky.social

πŸ‘½I'll be your Disabled alien todayπŸ›Έ Coping with lifelong chronic illness & pain πŸ¦“ MALRO β€’ EDS β€’ IC β€’ POTS β€’ IBD β€’ C-PTSD β€’ ENDO β€’ MCAS β€’ *and fun No filter here πŸ’…πŸΌ Theme park & adrenaline obsessed πŸ’–

69 Followers  |  61 Following  |  85 Posts  |  Joined: 22.11.2024  |  2.4102

Latest posts by sickgirlprobsss.bsky.social on Bluesky

@patientadvocacy.bsky.social
Here we go

10.03.2025 04:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
User itsmemaudehol: 
A LEGAL resident who led a peaceful protest
has been detained, no one knows where he is.
No warrant. No formal charge. Just an arrestin
the middle of the night, and he disappeared.
THIS IS FASCISM!! WAKE UP!!! 


Source: (link in post)
apnews.com
Immigration agents arrest Palestinian activist
who helped lead Columbia University protests

User itsmemaudehol: A LEGAL resident who led a peaceful protest has been detained, no one knows where he is. No warrant. No formal charge. Just an arrestin the middle of the night, and he disappeared. THIS IS FASCISM!! WAKE UP!!! Source: (link in post) apnews.com Immigration agents arrest Palestinian activist who helped lead Columbia University protests

//2 I'm going to explode

10.03.2025 04:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Immigration agents arrest Palestinian activist who helped lead Columbia University protests A prominent Palestinian activist who helped lead last spring's protests at Columbia University has been arrested by federal immigration agents.

I'm so heartbroken πŸ’”
I'll still be attending future protests!! Try and silence us, good luck babe bc I'm loud AF! After being Disabled my whole life, nothing scares me. I'm already living on borrowed time. ScrΔ“w 🍊
#disabled #america #chronicillness #resist #fightback
apnews.com/article/colu...

10.03.2025 04:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
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🚨URGENT: Demand your reps remove cuts to Medicaid, SNAP, #Medicare, #SocialSecurity: 202-224-3121

house.gov/representatives/find-your-representative & senate.gov/senators/

Save #Medicaid & #SNAP! actionnetwork.org/letters/no-cuts-to-medicaid

Text PXHTGI to 50409 or: resist.bot/petitions/PXHTGI

10.03.2025 02:47 β€” πŸ‘ 9    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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It’s borderline criminal.

08.03.2025 15:43 β€” πŸ‘ 48905    πŸ” 15335    πŸ’¬ 2890    πŸ“Œ 871
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You have died of dysentery.

03.03.2025 03:35 β€” πŸ‘ 2006    πŸ” 237    πŸ’¬ 28    πŸ“Œ 11
Post image 09.03.2025 02:39 β€” πŸ‘ 593    πŸ” 151    πŸ’¬ 15    πŸ“Œ 4

Hey, I'd greatly appreciate it! 🩡

04.03.2025 21:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A letter reads: 

FIGHT BACK!

HELP SAVE SECTION 504!

What I need:
I need your story! Tell me what Section 504 means to you!

Preferably this would be a video submission/audio recording or if you wish to remain anonymous, you can just submit a written submission that I will read on your behalf

(with an alt identity)

A blue background with a disability symbol on side. Letter is pink

A letter reads: FIGHT BACK! HELP SAVE SECTION 504! What I need: I need your story! Tell me what Section 504 means to you! Preferably this would be a video submission/audio recording or if you wish to remain anonymous, you can just submit a written submission that I will read on your behalf (with an alt identity) A blue background with a disability symbol on side. Letter is pink

WE CAN DO THIS⬇️

04.03.2025 07:48 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I'm planning on putting videos together to send to the press on this subject. If you want to contribute, let me know!!

Everyone in our community is invited to share, then I'll edit it all together into one video (several here)

You can remain anonymous if you wish and send me a letter to read

04.03.2025 07:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Can we discuss organizing on here?! We as a disabled collective, need to organize and make our voices heard!! βœŠπŸΌβ™Ώ
#section504 #medicare #medicaid #ssi #disabled #chronicillness

04.03.2025 04:11 β€” πŸ‘ 9    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0

Can we discuss organizing on here?! We as a disabled collective, need to organize and make our voices heard!! βœŠπŸΌβ™Ώ
#section504 #medicare #medicaid #ssi #disabled #chronicillness

04.03.2025 04:11 β€” πŸ‘ 9    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0
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That’s right. πŸ‡ΊπŸ‡¦

04.03.2025 00:52 β€” πŸ‘ 92416    πŸ” 17077    πŸ’¬ 326    πŸ“Œ 1111

//3 There are so many more of us than the they realize! I wish I could convince our government to stop buying aircraft carriers, and instead focus some of those dollars on research! We could be curing Cancer over here, but nope..

04.03.2025 04:06 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

//2 "The problem with EDS is there just isn't enough money to be made. No one is willing to invest in the amount of time it would take to go through the thousands of genetic markers. We unfortunately won't likely see that happen within our lifetime."

Quote by someone who has a daughter w/ #EDS πŸ’”

04.03.2025 04:06 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

πŸ¦„ My partner works in Silicon Valley in Biotech He's at a conference right now πŸ¦“
He inferred about Ehlers Danlos Syndrome, and research studies available.
RESPONSE from the biotech owners: "The problem with EDS (continued below ⬇️)
#disabled #raredisease #eds #EhlersDanlossyndrome
#chronicillness

04.03.2025 04:06 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Post image Post image 03.03.2025 02:46 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

Are we ever going to be treated as EQUAL members of society?! πŸ€”
*Asking for a friend*
β™Ώ #disabilitycommunity #chronicillness #disabled #spoonie #invisibleillness #raredisease

02.03.2025 16:12 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I hope everyone is doing okay *mentally* after such a rough week. Sending love to all my fellow Disabled/Chronically iIl girlies πŸ¦„πŸ’™πŸ«ΆπŸΌ
#disabled #disabilitycommunity
#mentalhealth #chronicillness

01.03.2025 17:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
DON"T SPEND MONEY TODAY 
FEB 28th
DON'T BUY FROM:
- AMAZON, TARGET, WALMART,
OR OTHER LARGE RETAILERS

DON"T SPEND MONEY TODAY FEB 28th DON'T BUY FROM: - AMAZON, TARGET, WALMART, OR OTHER LARGE RETAILERS

ECONOMIC BOYCOTT
DON'T
BUY STUFF
FRIDAY FE8 28
We HAVE
PoWER


NO
AMAZON
WALMART
TARGET 
FAST
FOOD
GAS
*oK
SMALL
BUSINESS
USE
CASH

ECONOMIC BOYCOTT DON'T BUY STUFF FRIDAY FE8 28 We HAVE PoWER NO AMAZON WALMART TARGET FAST FOOD GAS *oK SMALL BUSINESS USE CASH

YOU ACT AS IF YOU HAD NO AGENCY YOU AREN'T WITNESSING A CRIME 

YOU'RE PARTAKING IN IT Why isn't your entire country on strike? 

A meme of a woman laying on the ground that's clearly been attacked, but everyone is standing around like nothing happened while one person begs them to care

YOU ACT AS IF YOU HAD NO AGENCY YOU AREN'T WITNESSING A CRIME YOU'RE PARTAKING IN IT Why isn't your entire country on strike? A meme of a woman laying on the ground that's clearly been attacked, but everyone is standing around like nothing happened while one person begs them to care

KEEP IT GOING. ITS WORKING!
*HOLD THE LINE*
#EconomicBlackOut

28.02.2025 16:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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CALL TO ACTION:

Tomorrow, for one day, we will show THEM who holds the power.

…rinse & repeat as needed.
#economicblackout

27.02.2025 17:40 β€” πŸ‘ 482    πŸ” 122    πŸ’¬ 14    πŸ“Œ 2
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Good morning, warriors of the Opposition. It's just a good day to remember one thing...
#USDemocracy #Voices4Victory
#EconomicBlackout

28.02.2025 15:20 β€” πŸ‘ 1764    πŸ” 433    πŸ’¬ 35    πŸ“Œ 10
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The world is watching.
And convinced Americans can't be bothered. Too comfortable, too misinformed, too arrogant to realize what's actually happening to them, and through them, to all of us.

You have proven yourselves too naive to stop this coup. Prove us wrong. We beg of you.

#EconomicBlackout

28.02.2025 00:36 β€” πŸ‘ 548    πŸ” 152    πŸ’¬ 28    πŸ“Œ 9
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Constant attacks by Felon Trump & Fascist Musk on our institutions, government, democracy & on us can be stopped.

Tomorrow, show the power of nonviolent civil resistance by joining the #EconomicBlackout

Just 1 day will make a powerful difference πŸ’ͺ🏻πŸ’ͺ🏽πŸ’ͺ

28.02.2025 02:58 β€” πŸ‘ 652    πŸ” 265    πŸ’¬ 37    πŸ“Œ 15
Poster highlighting the economic blackout (no spend day) on Friday, February 28th.

Poster highlighting the economic blackout (no spend day) on Friday, February 28th.

We’re partnering w/ a number of groups participating in an #economicblackout THIS Friday, 2/28.

Do not spend, if possible.
No Starbucks on your way to work.
No drinks w/ the coworkers after work.
No dining out.
No Walmart run.
No quick McDonald’s drive-thru hit.

Hurt their wallets!

25.02.2025 14:49 β€” πŸ‘ 6013    πŸ” 2495    πŸ’¬ 236    πŸ“Œ 157
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Tomorrow, February 28, let’s disrupt the status quo by spending ONLY at businesses that uplift our communities.

#50501movement #PeoplesMovement #FiftyFiftyOne #March4thForDemocracy #ImpeachTrump #NoKings #PoliticalRevolution #BuildTheResistance #EconomicBlackout @polrev.bsky.social

27.02.2025 18:30 β€” πŸ‘ 1639    πŸ” 676    πŸ’¬ 69    πŸ“Œ 59
No Amazon. No Walmart. No Target. No Disney. No Google. No Apple. No Visa or Mastercard. And especially no Facebook or Twitter. Buy essentials such as medicine, food, and emergency supplies, of course, but make those purchases at small, local businesses and use cash. The purpose of today’s economic blackout is to send a clear message: We have the power.

No Amazon. No Walmart. No Target. No Disney. No Google. No Apple. No Visa or Mastercard. And especially no Facebook or Twitter. Buy essentials such as medicine, food, and emergency supplies, of course, but make those purchases at small, local businesses and use cash. The purpose of today’s economic blackout is to send a clear message: We have the power.

#EconomicBlackout

28.02.2025 16:10 β€” πŸ‘ 31129    πŸ” 7121    πŸ’¬ 1045    πŸ“Œ 398

✊🏼✊🏼✊🏼✊🏼✊🏼

28.02.2025 16:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

If you're supporting us today in the Economic Black Out -
I APPRECIATE YOU πŸ‘πŸΌ
Thank you for taking a stance against Fascism!! #economicblackout #disabled #fascism #trump #america

28.02.2025 16:34 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

//2 ANS:
Autonomic Nervous System

*I have Dysautonomia*
So my ANS is malfunctioning πŸ˜΅β€πŸ’«

27.02.2025 22:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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